Husbands first Chemo today 5hrs came home with Pack for two days stage 4 colon cancer with liver met

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Comments

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    Sorry

    Sorry you have to be here and that your husband is going through this.  He is lucky to have you as you came to these boards to help him out and that is a very good wife to care that much.  It's going to be hard on you and him.  Take a deep breath and exhale.  You are going through a lot along with him.  Come on this board and express your emotions as well.  We are here to help you.  Hope he tolerates the treatments as well as possible.

    Kim

  • Ucimpark
    Ucimpark Member Posts: 23
    Be strong

    Hi desnee,

    Going thru the same here.. this wednesday my husband is back for his chemo and today he will take off the pump and will be back in 2 week.  Are your husbanddidnt get the nausea? 

  • CyniD
    CyniD Member Posts: 13
    edited September 2017 #24
    Can't get vomiting under control

    My poor husband keeps vomiting everything up. He has not even started chemo yet. He had a drip today.?Nothing seems to help. Any ideas?

  • CyniD
    CyniD Member Posts: 13
    Folfox

    Tomorrow he starts folfox. Please pray. He had a partial obstruction. That was the cause of all the vomiting.

    Pray he will tolerate this chemo. Surgery is not an option.

  • vtspa6
    vtspa6 Member Posts: 172
    edited September 2017 #26
    CyniD said:

    Folfox

    Tomorrow he starts folfox. Please pray. He had a partial obstruction. That was the cause of all the vomiting.

    Pray he will tolerate this chemo. Surgery is not an option.

    Folfox...

    Surgery is not an option for my husband either.  He has been on chemo starting his 3rd year.  Please be aware that if your on Folfox for too long (over 6-7 treatments) it can cause nerothopy in your feet and hands.  My husband was on it for at least 9 treatments, finally he went on Folfori/Avastin with pump.  But it was too late, can't feel his feet and hands.  Hang in there!

  • CyniD
    CyniD Member Posts: 13
    bobby66 said:

    hi

    My husband is going thru the same thing. colon cancer and mets to liver and taking chemo. if you need to talk let me know. it is hard on us.

    1st Chemo

    My husband had his first chemo today. So nervous about what tomorrow will bring. He is very weak, his BP very low. Please share your story with me.

  • desnee2029
    desnee2029 Member Posts: 28
    edited September 2017 #28
    Ucimpark said:

    Be strong

    Hi desnee,

    Going thru the same here.. this wednesday my husband is back for his chemo and today he will take off the pump and will be back in 2 week.  Are your husbanddidnt get the nausea? 

    Ucimpark no nausea

    My dh has not had nausea but neuropathy is his issue and he said three of his fingers felt water logged when he was on chemo pack.  I believe they give him steroids etc before his Chemo treatment.

     

  • Ucimpark
    Ucimpark Member Posts: 23
    Same issue with obstruction

    Hi cyni d , vtspa6

    Finally, we figured it out how to control the vomit, obstruction, and the eating.

    My husband on his 3rd round of his chemo. First n second chemo put him back in the hospital total over a month with the same issue, the chemo causes obstruction in his small intestine. Finally his surgeon suggested to place PEG tube/ G tube for drain out, so far the tube keep him out from the hospital. And he took this medication 1 hour before the chemo too its really help him with the vomiting (varubi).

  • queenwarrior
    queenwarrior Member Posts: 9

    Such Support

    I am so grateful for everyones reply to my post.  I don't feel so lost and alone.  T omorrow we are supposed to take out the porta Chemo needle and unhook pack.  Kinda scared.  Wish my husband would get on this support group.  Prayers and positive thoughts for everyone

    new here as well

    Hello, I am a stage 4 colon patient with met to liver. I have gone through resection and now on my 7th treatment.  I believe the spouses of those with cancer, are the unsung heroes, truly.  It is a scary process but it will get easier and you will be his best advocate. My husband HATED hospitals before this happened still does but he is always looking at what everyone does to make sure they dont hurt me or that im ok lol. He is so cute. I think the hardest part for him personally has been my emotional swings. I do have them but as time goes on im learning to control them and not take my sickness, pain, tiredeness, emotional state out on him.  If you have any questions or just need to vent, feel free to contact me!.  Pretty soon you will be a pro at all of this and then hopefully your husband will carry on with life and this will be something you guys can look back on and say. we made it. HUGS>.

  • Franb51
    Franb51 Member Posts: 1

    Stage 4 guy here who started

    Stage 4 guy here who started when kids were 12 and 10. It is now almost 11 years out and I am doing well. Not easy and there were many setbacks but there were also great things. Caregivers really need support. Lots of love and attention given my direction but it was wife and kids who also suffered without lots of help until I made sure that all our relatives/friends spent time with and for her.

    All my best and prayers

    Chip

    Long term survival

    Hi Chip!

        Just read your inspiring story of long term survival.  Stories like yours give me a lot of strength and confidence. Bet your family is so happy.  I was diagnosed stage four this past April. Had surgery and went on folfox regimen at sloan kettering .  I never had terrible side effects.  I have 3 more treatments to go.  What really freaks me out is the getting scanned after the chemo is finished. i have a lot of anxiety.  How did you get thru that part?  Keep up the good work 

    kind regards, Fran

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    Franb51 said:

    Long term survival

    Hi Chip!

        Just read your inspiring story of long term survival.  Stories like yours give me a lot of strength and confidence. Bet your family is so happy.  I was diagnosed stage four this past April. Had surgery and went on folfox regimen at sloan kettering .  I never had terrible side effects.  I have 3 more treatments to go.  What really freaks me out is the getting scanned after the chemo is finished. i have a lot of anxiety.  How did you get thru that part?  Keep up the good work 

    kind regards, Fran

    Hello and welcome to the forum

    Chip pops on every now and again, and hopefully he will see your post. 

    What you are describing we fondly call scanxiety.  Wether your scans are every month, three months, year, we're all hit with that awful anxious time of waiting for the results. 

    Good luck as you face your fist scans, and pray all is clear and you can say you are NED (no evidence of disease). 

    Tru

  • LindaSP
    LindaSP Member Posts: 2
    Husband just diagnosed

    My husband was just diagnosed with Stage 4 NSC undifferentiated carcinoma of the lung.  It has metasizided to atleast 6 other locations.  There were no real symptoms.  He had a persistent cough and was slightly more fatigued.  They first started running tests on September 25 and made the diagnosis on October 18th.  He has his first Chemo tomorrow October 26th.  I am scared- really scared.  He seemed fine until last weekend and now it seems the cancer is taking over.  I have no idea what to expect. 

  • Makord
    Makord Member Posts: 37
    vtspa6 said:

    Folfox...

    Surgery is not an option for my husband either.  He has been on chemo starting his 3rd year.  Please be aware that if your on Folfox for too long (over 6-7 treatments) it can cause nerothopy in your feet and hands.  My husband was on it for at least 9 treatments, finally he went on Folfori/Avastin with pump.  But it was too late, can't feel his feet and hands.  Hang in there!

    What cancer does your husband

    What cancer does your husband have and at what stage? my mother has stage 4 rectal cancer with mets in the liver and the lungs and we are now in the process of deciding  what to do. Most probably folfox 4 or 6. Avastin is not recommended due to her vescular problems. Would love any advise and thoughts on Folfox. Thanks and all the very best wishes for your husband and all of you. 

  • Winny
    Winny Member Posts: 10
    Hope things are going ok

    my wife recently got diagnosed on sept 28 and she just started her 2nd chemo also, and found out her tumour markers have dropped, hope things are going well and hope your husband is getting thru this on the positive side.  It’s been very emotional for me also and reading everything on net also gets my head spinning, hope you are doing ok.  

  • Karry66
    Karry66 Member Posts: 1
    edited December 2017 #36
    SophDan2 said:

    Don't be afraid to get help for yourself.

    All of us on this page have very similar cancer albeit at different stages. I go for my 5th treatment of 12 tomorrow (Stage 3C Colon Cancer). Throughout this process, I (like your husband) am going through emotions that are unfamiliar to me, let alone how it is affecting my wife a 2 kids.. My wife, like you, is still trying to wrap her mind around what has happened to me/us. I recommended that she search out help of a professional, to help her be the strong person that she's always been. She has done just that, and I am so proud of her for helping herself through the process, as I am not sure that I would be able to help as well as a professional, while dealing with my own concerns.

    Good luck moving ahead; positive energy is much better than negative energy!

    Barry

    My husband was diagnosed with stage 4 inoperable colon cancer

    Hi Barry,

    Like your wife I am having a hard time wrapping my mind around my husband's diagnosis of Stage 4 colon cancer with liver Mets which they say right now doesn't look like it will never be operable unless we get a miracle. He also had a blood clot in his lung which he is being treated for. I am having a hard time staying positive and hopeful. I am going to be seeing a counsellor on Jan 4, 2017. How is your wife dealing with it since she has seen a counseĺor? My husband was diagnosed on November 22, 2017 and he will be starting chemo on January 19, 2017

  • impactzone
    impactzone Member Posts: 551 Member
    Franb51 said:

    Long term survival

    Hi Chip!

        Just read your inspiring story of long term survival.  Stories like yours give me a lot of strength and confidence. Bet your family is so happy.  I was diagnosed stage four this past April. Had surgery and went on folfox regimen at sloan kettering .  I never had terrible side effects.  I have 3 more treatments to go.  What really freaks me out is the getting scanned after the chemo is finished. i have a lot of anxiety.  How did you get thru that part?  Keep up the good work 

    kind regards, Fran

    I feel for you and the

    I feel for you and the scanxiety.. I did go on an antidepressant for a couple years to level my mood out. There was no easy way for me  early in the treatment as the information made such a difference in my future. I tried to look at it as not a final score but just part of the game... or a lap split time. For me this is a marathon not a sprint... if it was good info...great... if it wasn't then lets do something now. Its acutally wierd now if I don't get scanned as I worry that something is happening that they can not do anything about... You cant win...

    all my best

    Chip

  • impactzone
    impactzone Member Posts: 551 Member
    edited December 2017 #38
    So sorry for all the new

    So sorry for all the new people and their loved ones. Lots of advice out and here are some of mine:  be an advocate for yourself, be agressive in treatments, don't worry if you feel bad as that always was a sign that something was working..eat healthy...fall down seven but stand up eight... surround yourself with as much positive as possible... what is written on the internet may or may not help... if religion helps - use it.. change viewing habits to something fun and lighter... ask questions.... a slower infusion time can make side effects less... its never too late...nurses are your best friend... you will wait a lot - bring something to read that matters. Whenever I got feeling really sorry, I walked over to the Lucile Packard Children's Hospital and saw true unfairness, strength, love and hope.

    All my best to all

  • PADAVE1
    PADAVE1 Member Posts: 10
    edited January 2018 #39
    Bellen said:

    Hello Desnee - I was

    Hello Desnee - I was diagnosed last summer with colon cancer with multiple mets to my liver.  They saw the liver mets first in an ultrasound.  I started folfiri chemo with avastin (same as folfox but irinotecan instead of oxyplatin) and get it every 2 wks.  I have had about 4 "extra week breaks".  That extra week is wonderful and I feel almost "normal".  If you have any questions would be glad to help if I can.  This is a great support group.  We all know what you are going through.  Wishing you and your husband well, and yes it is an emotional and physical roller coaster ride - day to day.  I try to get out whenever I feel good - laughter, friendship, just a chance to feel back to your old self whenever he can.  

    Chemo breat question

    Hi Bellen - I did 12 rounds of FOLFOX in 2016 - no breaks.  Now I'm on 8th round of FOXFIRI + avast - not sure how many more left /  I'm curious - were your chemo breaks initiated by you [maybe to do a vacation or family stuff] or by the Doctor [to give your body a break].  Best - Dave

  • SophDan2
    SophDan2 Member Posts: 150 Member
    edited January 2018 #40
    Karry66 said:

    My husband was diagnosed with stage 4 inoperable colon cancer

    Hi Barry,

    Like your wife I am having a hard time wrapping my mind around my husband's diagnosis of Stage 4 colon cancer with liver Mets which they say right now doesn't look like it will never be operable unless we get a miracle. He also had a blood clot in his lung which he is being treated for. I am having a hard time staying positive and hopeful. I am going to be seeing a counsellor on Jan 4, 2017. How is your wife dealing with it since she has seen a counseĺor? My husband was diagnosed on November 22, 2017 and he will be starting chemo on January 19, 2017

    Just saw your post, sorry for tardy response

    Hi Karry,

    I hope that you and your husband are doing better. Your husband will be starting his treatments soon, so be strong for yourself and be there for him.  With regard to your question, my wife really found it very helpful to talk with a professional about her emotional state, about her feelings on my having cancer. She is really doing much better, especially since my treatments have ended. I go back for CT scan in late February, to follow up post treatment. I am the one who is anxious about that appointment, but I know that is to be expected. I am just hoping to hear the words "your clean" after the scan is done. I plan for the future (as I have always done), but live for today!

    May 2018 be a better year for your family.

    Barry

  • Robjoe
    Robjoe Member Posts: 6
    Same boat...

    my spouse also was diagnosed with stage 4 colon met to liver two weeks ago.  He was set up with folfox +avastin and had a port put in.   First treatment done last Wednesday at roger maris    We had asked for a second opinion, although I think for peace of mind (is there such thing now) to the Mayo clinic, which I was happy about.  Long story short, (right) Mayo can’t do anything as he’s started treatment, and would likely have gone the same route.  We are to go back after treatments done.  His PET scan however, just showed two spots in his bones, one in the pelvic area and another in his shoulder.  I’m doing my best to keep it together because the minute he senses something amiss with me, he will panic.  In reading some of the comments, what hit home was a reference to not being a race.  I guess this is just so hard to wrap my head around but I think this forum is awesome.  One thing makes me panic a bit...are we safe to wait until beginning of April to know where we are at?  I know it’s probably a dumb question, but I’m soooo new and trying to make sense of this new journey.   Thanks in advance for any helpful info.   I appreciate this site!