I KILLED MY STAGE IV EXTENSIVE CHOLANGIOCARCINOMA!!! In less than two years!!!

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  • Gourley
    Gourley Member Posts: 1
    #22
    Hi my name is Tara. I am 31

    Hi my name is Tara. I am 31 and I found out in Oct 2013 I have liver cancer. I also have cholangiocarconoma!  I read your story and so many emotions ran thru my head. So many things hit home for me. I had a years worth of test and stents placed before they figured out I had cancer. I also had a PET scan and it showed no cancer. I went to mayo before I got an answer. After I found  out it was cancer I went to cancer treatment centers of America where I also had cisplatin and Gemzar. I had it two weeks on one week off one time a week. I had 9 treatments and they pullec it because I took a hard hit spent 5 nights in the hospital and had to have blood transfusions. So I went last week and had the mapping done with the hopes of getting the Y90 in the next few weeks. I am still waiting to see if I can have it placed. I have also been told I have no cure and I can not have my removed at this time due to it's wrapped around my main artery in the liver. We are hoping it will shrink but so far it hasn't. 

    I am am coming to you today because I am hoping you can help me. I am too young to die from cancer and I am a mother of three. 7 and under. I want to fight for them. I have cut back my sugars I take lots of vitamins and I try to eat healthier. 

    My my main question for you is did u ever have your CA19-9 drawn. It's a cancer marker in your blood? I had my drawn the other day and it is in the normal range. It was high but now boom normal. I feel like that's a great thing. I was wondering what yours ran and how high it was. Any pointers or anything to help me would be great. 

     

    you have inspired me so much. Thanks for sharing. 

    Thanks

    Tara

    please email me if at all possible to 

    gourley29@gmail.com

  • northa914
    northa914 Member Posts: 100
    #23
    Gourley said:

    Hi my name is Tara. I am 31

    Hi my name is Tara. I am 31 and I found out in Oct 2013 I have liver cancer. I also have cholangiocarconoma!  I read your story and so many emotions ran thru my head. So many things hit home for me. I had a years worth of test and stents placed before they figured out I had cancer. I also had a PET scan and it showed no cancer. I went to mayo before I got an answer. After I found  out it was cancer I went to cancer treatment centers of America where I also had cisplatin and Gemzar. I had it two weeks on one week off one time a week. I had 9 treatments and they pullec it because I took a hard hit spent 5 nights in the hospital and had to have blood transfusions. So I went last week and had the mapping done with the hopes of getting the Y90 in the next few weeks. I am still waiting to see if I can have it placed. I have also been told I have no cure and I can not have my removed at this time due to it's wrapped around my main artery in the liver. We are hoping it will shrink but so far it hasn't. 

    I am am coming to you today because I am hoping you can help me. I am too young to die from cancer and I am a mother of three. 7 and under. I want to fight for them. I have cut back my sugars I take lots of vitamins and I try to eat healthier. 

    My my main question for you is did u ever have your CA19-9 drawn. It's a cancer marker in your blood? I had my drawn the other day and it is in the normal range. It was high but now boom normal. I feel like that's a great thing. I was wondering what yours ran and how high it was. Any pointers or anything to help me would be great. 

     

    you have inspired me so much. Thanks for sharing. 

    Thanks

    Tara

    please email me if at all possible to 

    gourley29@gmail.com

    Try reaching Laura on Facebook

    Laura has not posted here in a long while.  She has a Facebook page under The Cancer Assasin.  You might have better luck there.

  • kavi.1620
    kavi.1620 Member Posts: 1
    #24
    northa914 said:

    Try reaching Laura on Facebook

    Laura has not posted here in a long while.  She has a Facebook page under The Cancer Assasin.  You might have better luck there.

    Colongiocarcinoma- horrible disease

    Hi i am from India, my dad is also having Colongiocarcinoma which was diagnoised in the month of March and his age is 65. He is suffering from jaundice and it is now in the value Billurubin =11.Doctors suggested for surgery initaially and when Laproscopy was done they found some red carpet tumours all over the liver which is in millimeter size. Doctors told that surgery will not benefit the disease and they suggested for stent to be placed inbetwwen the bile duct. This process also did not happen as the doctors were not able to insert the stent in the hard tumour which created a white puss to come out from the tumour when given pressure. So Colongio process happened with two tubes one external and the other one internal. This is what has happened till now. We are so much worried about our dad's health. Also doctors told that they are reducing the Jaundice level to give Chemotherapy treatment. They also mentioned that he should be able to withstand the chemo treatment with positive attidute. Please if anyone can advise us on this how this can be treated? do reply me on the same blog.. And the diet constraints? also please let me know if naturopathy ll work out for this Cancer?? will be more helpful

  • Sal123
    Sal123 Member Posts: 1
    #25
    Cholgiocarcinoma

    Hi Laura,

    Your story is truly inspiring, just wish it was possible for us too.  My mother has been diagnosed with Cholangiocarcinoma aswell Stage IV, Oncologists have confirmed its not operable as its near the blood vessel. We are trying our best to stay strong but at times it gets very hard to do so.  She too has been given months to live so its a very stressful time as you know already.   My mother has become very weak and lost a lot of weight, she doesnt want to eat anything let alone healthy.  What would you recommend in that instance, how to get her appetite back up and running as she needs to be strong for Chemotherapy which she hasnt started yet. 

     

    We've been looking into Hyperthermia - which is where they perform a high level temperature to the body which is meant to kill the cancerous cells but not designed to effect the normal cells.  Does anyone know about that and whether it does actually work or not. Any advice or informaion would be very much.

    I look forward to hearing back from someone who is also going through the same experience.

     

    Kind Regards

     

  • Mandy dhall
    Mandy dhall Member Posts: 1
    #26
    Dear laura, my father aged 73

    Dear laura, my father aged 73 was diagnosed with cc  in august 2014. He had a tumour in left liver lobe. In March 2015 it showed enhancement in ct scan.  in April it was resected and subsequent histopathology report showed malignancy at stage II.however the surgeon was quite hopeful that the surgery had been performed well in time and it should not recurr.  unfortunately it recurred in nov 2015 which was known in the quarterly follow up scanning schedule. Now it is at the biliary confluence causing dilatation of billiary duct. Doctors have ruled out second surgery. They believe chemotherapy is not helpful in case of liver malignancy. Throughout this period he has never been subjected to chemotherapy. His bilirubin and alkaline phosphate levels are continuously increasing and doctors have virtually lost any hope. Please advise.

  • Mr singh
    Mr singh Member Posts: 1
    #27
    Advise

    Hi

    I just read your blog. I just want to take your advise.

    My father is 73 and he was diagnosed with this disease in April 15 after liver surgery in which his left lobe of liver was removed.after 6 months this disease again came and now it's advanced and non operable.now doctors have placed stent in his liver to lower the bilirubin since it was raised to 20 at pe sent bilirubin is 3

    Now we are giving him chaga, and some other chinese herb supliments. Please advise the diet çhart he should follow and treatment if any. 

    Rgds

    Surinder dhall 

     

  • william miller
    william miller Member Posts: 1
    edited October 2016 #28
    how do you go qabout finding a naturepath that will give you IV

    thank you for your encouraging story.  i have stage IV bile duct cancer and would appreciate any info on how to locate a naturepath that can administer IV.  thank you in advance for your help

  • CDB
    CDB Member Posts: 1
    edited December 2016 #29
    Diet protocol

    Dear Laura, I went through your blog recently. My father has been diagnosed with with CC this month and has been advised palliative chemotherapy. Can you kindly provide with the dietary details you followed strictly. 

    Thanks

  • rmsol426
    rmsol426 Member Posts: 1
    edited August 2017 #30
    Diagnosed intraheptic cholangio carcinoma 4 stage

    Hi Laura 

    impressed with your story so I have writing to you 

    i have been diagnosed with intraheptic cholangio carcinoma the doctor first tried ultrasound there is a tumour then he told me to do ct scan still he wasn't satisfied then he done fnfc inserted a needle and took liquid and tested then he said its a cancer but still he told me to do pet scan to check source and how much spread and decided to operate but the senior oncologist stopped the surgery because he saw someone nodes found in and around liver and sent me for biopsy the doctor who did biopsy is not available for 1and half month but just on his note he took me for biopsy after 6day I got my report diagnosed above cancer 

    my overall health is good no problem at all I get hungry eat food well no problems yet st today I had to go for chemotherapy in other hospital.

    is there any other means or source to check this I doubt this report can you help me 

    because if any oncologist sees the biopsy report he wil get to conclusions about the above cancer only how to recheck this report please advice 

    rahul

  • Pankaj k gupta
    Pankaj k gupta Member Posts: 2
    #31
    Cholangiocarsionoma

    Hi, Laura just read your inspirational story, it will really give strength to everyone suffered from Cologne cancer, my father in law has just diagnosed cholangiocarsionoma and again surgical possibilities are very rare as it is already spread in multiple parts of liver, It will be a big help for us if you could suggest the diet that you had taken during the treatment

  • Pankaj k gupta
    Pankaj k gupta Member Posts: 2
    #32
    kavi.1620 said:

    Colongiocarcinoma- horrible disease

    Hi i am from India, my dad is also having Colongiocarcinoma which was diagnoised in the month of March and his age is 65. He is suffering from jaundice and it is now in the value Billurubin =11.Doctors suggested for surgery initaially and when Laproscopy was done they found some red carpet tumours all over the liver which is in millimeter size. Doctors told that surgery will not benefit the disease and they suggested for stent to be placed inbetwwen the bile duct. This process also did not happen as the doctors were not able to insert the stent in the hard tumour which created a white puss to come out from the tumour when given pressure. So Colongio process happened with two tubes one external and the other one internal. This is what has happened till now. We are so much worried about our dad's health. Also doctors told that they are reducing the Jaundice level to give Chemotherapy treatment. They also mentioned that he should be able to withstand the chemo treatment with positive attidute. Please if anyone can advise us on this how this can be treated? do reply me on the same blog.. And the diet constraints? also please let me know if naturopathy ll work out for this Cancer?? will be more helpful

    Cologne cancer

    hi dear, 

    I am also from India and my father in law has just diagnosed cholangiocarsionoma and we are about to start his chemo in a day or two I would like to talk to you on phone as we both can help each other I am from Delhi and my number is 9654909070

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