Affirmation and positive thoughts

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Comments

  • Bellen
    Bellen Member Posts: 281 Member
    Wishing you all the best

    Hi Jan - I will pray for you that you will get positive results from trying this chemo again.  There are many who believe in the power of prayer.  I have a small intestinal stricture - a scarred area caused by pelvic radiation yrs ago -  the blockages cause very painful spasms that can last hours.  When I was diagnosed, the nurse gave me a "low residue diet" - a list of foods that are easily digested and do not cause bulking in the intestine - limited fiber, no nuts, seeds, grains, fresh vegetables, lettuce, potato skins, etc.  The list includes foods that are easy to digest and those not easily digested, such as the ones I just mentioned.  Websites on the internet have lists of low residue foods and those that you should avoid. They are not necessarily foods that are particularly good for you, but ones that go through your system easily.  I wonder if this "diet" might help to prevent any blockages.  I have still had blockages, but I do follow this diet pretty strictly, and believe that it has limited blockages or made them less severe.  Are you familiar with this "low residue diet"?  Again, sending you all the best.

  • JanJan63
    JanJan63 Member Posts: 2,478 Member
    Bellen said:

    Wishing you all the best

    Hi Jan - I will pray for you that you will get positive results from trying this chemo again.  There are many who believe in the power of prayer.  I have a small intestinal stricture - a scarred area caused by pelvic radiation yrs ago -  the blockages cause very painful spasms that can last hours.  When I was diagnosed, the nurse gave me a "low residue diet" - a list of foods that are easily digested and do not cause bulking in the intestine - limited fiber, no nuts, seeds, grains, fresh vegetables, lettuce, potato skins, etc.  The list includes foods that are easy to digest and those not easily digested, such as the ones I just mentioned.  Websites on the internet have lists of low residue foods and those that you should avoid. They are not necessarily foods that are particularly good for you, but ones that go through your system easily.  I wonder if this "diet" might help to prevent any blockages.  I have still had blockages, but I do follow this diet pretty strictly, and believe that it has limited blockages or made them less severe.  Are you familiar with this "low residue diet"?  Again, sending you all the best.

    Thanks Bellen! I'm going to

    Thanks Bellen! I'm going to look that up. I was just thinking about that yesterday, if there's a list that's helpful somewhere.

    Jan

  • JanJan63
    JanJan63 Member Posts: 2,478 Member
    I'm so confused at this point

    I'm so confused at this point. I saw the onc that's there while mine is away yesterday. She went over my results and says that they're not sure that I have another mass because they can't see one, they're going by the likelihood of it being one due to what's going on. So now I have half saying they think it is and half saying they don't know if it is. I don't know what to think because obviously nobody knows but I think about the neurologist saying my husband and daughter should give consent to pull the plug on me after the PE because according to their data, I should have been very badly damaged mentally. And he was wrong. You can't always go by stats. I remember at one point when I was in the hospital after that when they decided I had an internal bleed because some level- I don't remember what it was- had dropped. So statistically that meant I had a bleed. They did a bunch of tests and were all concerned but they never found anything. I figured they wouldn't, I didn't have a bleed. The human body is an amazing thing. And it doesn't always follow their books.  

    Jan 

  • PamRav
    PamRav Member Posts: 348 Member
    Love your new photo

    dont know who is cuter you or the horse !!

    You're in my thoughts and I'm sending positive energy and big hugs your way.  I hope you can tolerate the new chemo this time around, wonder if they could cut the dose a bit or if there is something they can give you concurrently that'll cut those nasty side effects. 

    All the posts here are so kind and supportive that I don't know what I can add!   Keep the faith. do your best to keep that positive attitude going.  All the best to you  

    Pam

  • Canadian Sandy
    Canadian Sandy Member Posts: 783 Member
    I know how you feel Jan. In

    I know how you feel Jan. In my short experience with cancer I have found that doctors really don't know a whole lot. Hopefully there isn't a mass. You are always in my prayers.

  • darcher
    darcher Member Posts: 304 Member
      Ain't that the truth.  The

      Ain't that the truth.  The more we get into this the more we find out how little the medical profession really knows.  Reading up on chemotherapy and how it operates I was surprised to learn that it doesn't specifically target cancer. It kills everything in its path.  Radiation is no different with the exception of proton therapy.  As we all know, it's used because of the ratio of good cells to bad.  That's a hellava way to cure something, kill everything along the way.   

      On top of that some chemo drugs can induce a 2nd cancer due to the methods used to interrupt cellular mitosis.  We don't have to worry about that but image that as a side affect.  I have to wonder why that specific activity is targeted instead of looking for other possible avenues of undermining cancer cells.  Why not stop it from feeding or cut off the blood supply? What do they "eat".  Look for specific enzymes, vitamines, or what ever that it needs that other cells can do without.  It's a different cell so... WTH. Find what's unique and go after that.      

      I'm praying for everyone to make it through this nitemare.   

     

  • EissetB
    EissetB Member Posts: 133
    Jan, I drink Pro Performance

    Jan, I drink Pro Performance Weight Gainer from GNC store when I can't eat the things I used to eat. This drink has 50grams protein which our body needs for energy. I mix it with banana, peanut butter and milk in a blender. I chose the chocolate flavor. Taste real good!! My oncologist said it's a good supplemental for me. They have Vanilla and also Strawberry flavors as well. Hope you'll find this helpful. God bless us all

    Eisset

  • JanJan63
    JanJan63 Member Posts: 2,478 Member

    I know how you feel Jan. In

    I know how you feel Jan. In my short experience with cancer I have found that doctors really don't know a whole lot. Hopefully there isn't a mass. You are always in my prayers.

    Thank you so much Suandy!!

    Thank you so much Suandy!! You are in mine as well!

    Hugs!

    Jan

  • JanJan63
    JanJan63 Member Posts: 2,478 Member
    edited July 2017 #30
    darcher said:

      Ain't that the truth.  The

      Ain't that the truth.  The more we get into this the more we find out how little the medical profession really knows.  Reading up on chemotherapy and how it operates I was surprised to learn that it doesn't specifically target cancer. It kills everything in its path.  Radiation is no different with the exception of proton therapy.  As we all know, it's used because of the ratio of good cells to bad.  That's a hellava way to cure something, kill everything along the way.   

      On top of that some chemo drugs can induce a 2nd cancer due to the methods used to interrupt cellular mitosis.  We don't have to worry about that but image that as a side affect.  I have to wonder why that specific activity is targeted instead of looking for other possible avenues of undermining cancer cells.  Why not stop it from feeding or cut off the blood supply? What do they "eat".  Look for specific enzymes, vitamines, or what ever that it needs that other cells can do without.  It's a different cell so... WTH. Find what's unique and go after that.      

      I'm praying for everyone to make it through this nitemare.   

     

    I was told that most of the

    I was told that most of the colon cancer chemos do dut off the bllod suplly to the tumour. That's how I ended up with a blood clot and why they can cause blood clots. I'm not sure of the tie in, I just know that I was told that any chemo that deal with it on a vascular level can cause blood clots.

    Fun with chemo! My paraphrase of Big Bang Theory's Sheldon's Fun With Flags show.

    Jan

  • JanJan63
    JanJan63 Member Posts: 2,478 Member
    EissetB said:

    Jan, I drink Pro Performance

    Jan, I drink Pro Performance Weight Gainer from GNC store when I can't eat the things I used to eat. This drink has 50grams protein which our body needs for energy. I mix it with banana, peanut butter and milk in a blender. I chose the chocolate flavor. Taste real good!! My oncologist said it's a good supplemental for me. They have Vanilla and also Strawberry flavors as well. Hope you'll find this helpful. God bless us all

    Eisset

    Thanks for sharing that! I'm

    Thanks for sharing that! I'm not sure I've heard of it. The last thing I want is to gain weight, I have to say. Despite hardly eating anything for weeks I've only lost 6 pounds. Figures...

    Jan

  • Inishbofin
    Inishbofin Member Posts: 11
    sending positive thoughts your way

    hi-  I've been lurking on these boards for  the past month or so, as I wrap my head around a diagnosis of stage 4 colon cancer w mets to liver.  I have to say,when I was  lying in the hospital for 10+ days, I found these boards To be scary, informational, but most importantly, supportive and  hopeful.  Jan, I would look forward to reading your posts when I couldn't sleep at night.  Your honesty, kindness and attitude throughout your ups and downs has been remarkable.  Hang tough and don't give in. This newbie from Boston is rooting for you, and everyone else here! 

     

    ps-I like your new picture too!!

  • beaumontdave
    beaumontdave Member Posts: 1,280 Member
    danker said:

    Diet

    Try the brat diet for a bit and see how you tolerate it.  Brat stands for Bananas.Rice.Applesauce,and Toast.

    They should call it the BART

    They should call it the BART diet, since everytime I see BRAT diet, I think "that wouldn't be hard, eating sausage on a regular basis" Must be my Wisconsin origins showing through...................................Dave

  • beaumontdave
    beaumontdave Member Posts: 1,280 Member
    JanJan63 said:

    Thank you both. I woke up at

    Thank you both. I woke up at 4 am and couldn't stop thinking about it. The things I need to do before I'm gone to make it easier for my family, the things I want to do- my bucket list- which is now very much shorter than it was because of my health, the dreams I must give up, who I need to reach out to that I haven't seen for a while, what will happen to my horse and dogs, all of that stuff. It's hard to turn your brain off at times like that.

    I'm so sad but not really crying much. I knew this was the worst case scenario so I'd already kind of accepted that it could happen despite my attempts at beng positive. And I could switch chemos and still be okay longer than they think. It's possible. I'm hoping it happens. I hate seeing my hisband crying and upset and knowing it's because of me. I didn't tell my daughter. They said at this point they'd only use radiation for palliative comfort if I need it. I told her that they don't want to do more damage for now and would rather I tried the other chemo. I've never lied to her but hse doesn't need the burden.

    Damn, this really sucks. I pray that the new chemo will at least hold it at bay for some time. Maybe I can get five years out of this. Last fall I was told ten and I was upset. Now I'd be thrilled to get ten more years. 

    I hate that early morning

    I hate that early morning wake-up, where your brain is fully engaged in trying to deal with worst-case-scenarios and things you can't do a thing about at 3-4 in the morning! I'm sorry Jan, that recent tests have put you in such mental/emotional turmoil, it really is the worst part of this disease, in my mind. Sending you peaceful, easy thoughts.............................................Dave

  • JanJan63
    JanJan63 Member Posts: 2,478 Member

    sending positive thoughts your way

    hi-  I've been lurking on these boards for  the past month or so, as I wrap my head around a diagnosis of stage 4 colon cancer w mets to liver.  I have to say,when I was  lying in the hospital for 10+ days, I found these boards To be scary, informational, but most importantly, supportive and  hopeful.  Jan, I would look forward to reading your posts when I couldn't sleep at night.  Your honesty, kindness and attitude throughout your ups and downs has been remarkable.  Hang tough and don't give in. This newbie from Boston is rooting for you, and everyone else here! 

     

    ps-I like your new picture too!!

    You're so sweet! Thank you! I

    You're so sweet! Thank you! I try to be positive but realistic. I want people to know you can live with cancer and there is always hope. It's not an easy road or fun but it's doable. I start back on the Vectibix this coming Friday. I'm kind of looking forward to it just because right now I'm off the Xeloda so I'm doing nothing to fight this. But I'm terrified of having the reaction I had previously. And I just wanted a good summer so this kind of breaks my heart a little bit. Every year I think 'this is it' and I hope I'm going to have a good one and then I don't. But I'm alive and I have a good life and peope who love me so that's what really matters.

    I'm so sorry to hear of your diagnosis. Every time someone new comes on I'm glad they've found this forum because its so helpful and positive but I also die a little inside knowing another person has had to be told they have cancer. As you read, stage four is not necessarily a death sentence, there are options. I pray that you'll get on the right track to battling the beast as soon as possible and see results soon! Good luck and keep us all informed and ask any questions you'd like. The lack of knowledge is one of the worst things about this. And all the garbage information that's out on the internet. 

    Thanks for the lovely comment about my new pic. I took that the other night and it turned out okay. I hate having my picture taken. That's my boy, Prince. He's having health issues, too. If you know about horses, he has Cushing's disease. I love him so much! He came to the hospital when I was very ill and in the ICU. To the door, they wouldn't let him come right in. But it was amazing!

    Take care,

    Jan

     

  • Lily Flower
    Lily Flower Member Posts: 260 Member
    Jan, I truly believe the

    Jan, I truly believe the positive attitude is the complementary medicine for this awful disease. And some laughter too. when they first told me finding the malignant tumor in my colon and they said it doesn't look good. I was so shocked and I was already planning my own funeral in my head. My older daughter was sitting next to me. She said mommy we're going to fight this and get rid of this nonsense inside of you. Right away I felt my strength build up and my positive attitude changed my whole outlook. When you're feeling down, think of the people you love and your Prince. :) You can truly draw strength from your loved ones. I applaud you for fighting so strong with courage. Even though I just joined this site not long ago but I find this as my extended family. We're all here for you! {{{HUGS}}}

  • ron50
    ron50 Member Posts: 1,723 Member
    Basically

        For the first 48 years of my life everything I thought was serious turned out to be nothing. For the last twenty years everything I think is nothing has had a shot at trying to kill me . I think part of my DNA may be cockroach. One of my friends always reckoned that if the bomb ever went off I'd be elbowing the roaches out of the way to get out of the rubble. That is not exactly true and sometimes I get a little scared but I have lived on my own for the past 11 years so if I get a bit scared nobody knows. It is hard to stay strong all the time so sometimes you have to cut yourself a little slack. When push comes to shove cancer has thrown everything it can at us and still we survive. Push back a little harder ,sometimes we have to tell doctors what to do not the other way around.  Jan it has been a tough road but I have no doubt you can get thru this as well, Hugs from Ron.

  • JanJan63
    JanJan63 Member Posts: 2,478 Member
    Thank you Lily and Ron. Your

    Thank you Lily and Ron. Your support means more than you can know. Today I am havng a good day for the first time in almost a month. I'm enjoying every minute of it. Weak but very little nasuea or pain. It's awesome! Kind of sad to know that my good day would have a normal person going "es, I feel like crap" but I'll take it.

    Ron, you are the toughest of the tough. For you to tell me that I can get through it and to tell me I've had a tough time means so much. In comparison to you I've had a walk in the park. You are so inspiring!

    We went to a wildlife park an hour and a half away yesterday. We rented a golf cart so I could get through it. I was exhausted last night and should be an empty sack of yuck today but I feel pretty okay. Nice! I'll take it!!

    Jan 

  • Lily Flower
    Lily Flower Member Posts: 260 Member
    JanJan63 said:

    Thank you Lily and Ron. Your

    Thank you Lily and Ron. Your support means more than you can know. Today I am havng a good day for the first time in almost a month. I'm enjoying every minute of it. Weak but very little nasuea or pain. It's awesome! Kind of sad to know that my good day would have a normal person going "es, I feel like crap" but I'll take it.

    Ron, you are the toughest of the tough. For you to tell me that I can get through it and to tell me I've had a tough time means so much. In comparison to you I've had a walk in the park. You are so inspiring!

    We went to a wildlife park an hour and a half away yesterday. We rented a golf cart so I could get through it. I was exhausted last night and should be an empty sack of yuck today but I feel pretty okay. Nice! I'll take it!!

    Jan 

    So glad to hear you're having

    So glad to hear you're having a good day!