Last Week was Hell

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  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    edited July 2017 #22
    So Very Sorry

    You have been through so much lately and have always been so positive on the boards and so supportive.  I'm sorry you are going through so much.  It's ok to get frustrated with your doctors as I've done the same with a situation I've been through lately, but if you can find "one" that is honest and open with you keep going back to that same "one."  I've learned that a long time ago.  I'm not believing a lot of what some doctors say because what I'm feeling isn't right or shouldn't be happening so just say "wait a minute, this is what is wrong and now I'm needing answers."  You are in my thoughts and prayers.  Hope that you feel better soon.

    Hugs!  Kim

  • JanJan63
    JanJan63 Member Posts: 2,478 Member
    edited July 2017 #23
    Luckily, this doctor is not

    Luckily, this doctor is not one I'm likely to run into again. He was just one of the surgeons at the hospital where I was taken. We had another negative experience at the same hospital when I'd had the blood clot and was being recusitated (sp?) and he suggested to my husband and daughter that they not coninue to recusitate me because the brain damage was going to be too severe. He said I probably wouldm't know them, I'd be living in a home, I'd be barely aware at best. He based this on stats and whate he'd seen previously. Okay, but we're all individuals. He thought it was best if they let me die. My family refused his suggestion and here I am now. I guess it's normal for a doctor to get jaded and negative but give us a chance! 

    My onc will probably be quite horrified when I tell her what happened.

    Jan

  • JanJan63
    JanJan63 Member Posts: 2,478 Member
    edited July 2017 #24

    I've been thinking about John

    I've been thinking about John also. Hope he is okay. Such a smart man.

    I'm very worried. He was very

    I'm very worried. He was very against chemo and I suspect that's not served him well. He did so much research and was so articulate, I miss him.

  • beaumontdave
    beaumontdave Member Posts: 1,280 Member
    Yeah that's a rough week

    Yeah that's a rough week alright Jan, you deserve better treatment than your getting, no question. It made me think of the doctor who handed me the pathology report a couple days after the first surgery. At that point I still didn't know much about cancer except if it got loose, it was bad news. So he's smiling, hands me papers and says "2 of 17 nodes were positive" My heart sank to the floor, he just kept smiling and said "I've seen worse", then walked off. I'm sure he thought he was projecting optimistic confidence, but because he didn't take the time to qualify things or give me any context, I spent the next days thinking I was screwed. That's an awful feeling and I'm sorry you had to deal with it like that. A hospital room can sure be a lonely place, even with, or especially with a neighbor whining about trivial stuff. I'm glad your home, keep drinking those fluids and get your strength back..........................Dave

  • PamRav
    PamRav Member Posts: 348 Member
    Stories

    i think we all have run into "that" doctor and have a story to tell.   Some nutty resident told me minutes before I was rolled into the OR that if were was more tumors than they suspected.  That they would close me up and there was nothing further to be done.  Wtf    Idiots are all around. 

  • JanJan63
    JanJan63 Member Posts: 2,478 Member

    Yeah that's a rough week

    Yeah that's a rough week alright Jan, you deserve better treatment than your getting, no question. It made me think of the doctor who handed me the pathology report a couple days after the first surgery. At that point I still didn't know much about cancer except if it got loose, it was bad news. So he's smiling, hands me papers and says "2 of 17 nodes were positive" My heart sank to the floor, he just kept smiling and said "I've seen worse", then walked off. I'm sure he thought he was projecting optimistic confidence, but because he didn't take the time to qualify things or give me any context, I spent the next days thinking I was screwed. That's an awful feeling and I'm sorry you had to deal with it like that. A hospital room can sure be a lonely place, even with, or especially with a neighbor whining about trivial stuff. I'm glad your home, keep drinking those fluids and get your strength back..........................Dave

    Thanks Dave! I picked up the

    Thanks Dave! I picked up the anti-nausea Rx I was given when I first started on the Xeloda but hadn't needed. I'm finally feeling failry normal today. 

    The funny thing about the neighbour who was whining is that she'd had her tummy tuck almost a week before. And after she'd been whimpering to the nurses when her mother came to visit- walking through the door asking how her 'precious' was feeling- she perked right up. 

    Yeah, these guys sometimes need a reminder of how to be human again. Empathy can be faked. They can get jaded and bitter and twisted but they can still fake being kind.

    Jan

  • JanJan63
    JanJan63 Member Posts: 2,478 Member
    PamRav said:

    Stories

    i think we all have run into "that" doctor and have a story to tell.   Some nutty resident told me minutes before I was rolled into the OR that if were was more tumors than they suspected.  That they would close me up and there was nothing further to be done.  Wtf    Idiots are all around. 

    Oh, that's lovely, isn't it.

    Oh, that's lovely, isn't it. Is there a module in the training in how to deal with people? There should be. I've been trying to write a book. As if it would ever be published... But the idea came from hoping that it would be and some medical profesionals would read it and know what it's like at our end. How we hang on every word and every nuance of what they say. Even the facial expressions. Did the ct scan tech look like they pitied me? Does the nurse look like she feels sorry for me? All of that.

    Jan

  • plsletitrain
    plsletitrain Member Posts: 252 Member
    I'm lucky

    ...that I have a tactful oncologist.  I was thinking if the same scenario that you guys encountered happened to me and if my doctor happen to tell me I'm beyond cure in an impolite, imprudent manner, I'd probably say "Don't worry doc, nature will one day find a cure for me but nature's wonders will never find a cure to your imprudence." Hehehehe. 

  • Bellen
    Bellen Member Posts: 281 Member
    Wishing you well

    Jan - You really are one of the most positive on this site and always offer support for others.  If there is anything we can do, other than all of our posts wishing you well and supporting you, please let us know.  I hate to hear what you went through, and how insensitive some drs are.  My heart goes out to you.  Stay strong.  I have a very caring Oncologist.  Unfortunately, my treatment and Onco are 2 1/2 hrs each way - from where I live - wouldn't trade him for anything.  He gave me hope when I didn't have much, and continues to.  Continuing to think of you.