How to deal with fatigue?

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  • JanJan63
    JanJan63 Member Posts: 2,478 Member
    #22
    Thanks for asking. I just got

    Thanks for asking. I just got home. Thank goodness I was prepared. I figured the winning streak couldn't last and I'd be the one to break it. I have three spots in my left lung, two were deemed to be cancerous and the third one not. Turns out the third one is a met and all three have doubled in size since December. And I have a new small one as well. So four mets now that are growing at what she called a surprising rate.

    The good news is that my kidney isn't any worse and the cancer isn't anywhere else. 

    I'm continuing on the Xeloda for another two months and then having another CT to see if it's helping at all. All of the other chemos I could try have blood clots as a possible side effect. I'm on blood thinners and have an IVC filter in my vena cava to stop any blood clots but she wasn't sure if she was comfortable having me try them. She said it's up to me. She can't guarantee anything with them. Or I try the one that made my face break out so badly again at a lower dose.

    I was told I'd only have a 30% chance of surviving surgery to have the lung removed. I've seen other members on here have surgery done by a doctor after another one refused. I wonder what the reason was that one refused. I need to check this out. Right now I feel absoluetely deflated and cursed. 

    Jan

     

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    #23
    JanJan63 said:

    Thanks for asking. I just got

    Thanks for asking. I just got home. Thank goodness I was prepared. I figured the winning streak couldn't last and I'd be the one to break it. I have three spots in my left lung, two were deemed to be cancerous and the third one not. Turns out the third one is a met and all three have doubled in size since December. And I have a new small one as well. So four mets now that are growing at what she called a surprising rate.

    The good news is that my kidney isn't any worse and the cancer isn't anywhere else. 

    I'm continuing on the Xeloda for another two months and then having another CT to see if it's helping at all. All of the other chemos I could try have blood clots as a possible side effect. I'm on blood thinners and have an IVC filter in my vena cava to stop any blood clots but she wasn't sure if she was comfortable having me try them. She said it's up to me. She can't guarantee anything with them. Or I try the one that made my face break out so badly again at a lower dose.

    I was told I'd only have a 30% chance of surviving surgery to have the lung removed. I've seen other members on here have surgery done by a doctor after another one refused. I wonder what the reason was that one refused. I need to check this out. Right now I feel absoluetely deflated and cursed. 

    Jan

     

    Dear Jan

    I am so very sorry to hear this news.  

    You have every right to feel deflated and cursed, and no dount a whole bunch of other things. 

    You will keep on keeping on, because thats what we do. 

    Know that you are in my thougths and prayers. 

    Tru

     

  • SandiaBuddy
    SandiaBuddy Member Posts: 1,381 Member
    #24
    JanJan63 said:

    Thanks for asking. I just got

    Thanks for asking. I just got home. Thank goodness I was prepared. I figured the winning streak couldn't last and I'd be the one to break it. I have three spots in my left lung, two were deemed to be cancerous and the third one not. Turns out the third one is a met and all three have doubled in size since December. And I have a new small one as well. So four mets now that are growing at what she called a surprising rate.

    The good news is that my kidney isn't any worse and the cancer isn't anywhere else. 

    I'm continuing on the Xeloda for another two months and then having another CT to see if it's helping at all. All of the other chemos I could try have blood clots as a possible side effect. I'm on blood thinners and have an IVC filter in my vena cava to stop any blood clots but she wasn't sure if she was comfortable having me try them. She said it's up to me. She can't guarantee anything with them. Or I try the one that made my face break out so badly again at a lower dose.

    I was told I'd only have a 30% chance of surviving surgery to have the lung removed. I've seen other members on here have surgery done by a doctor after another one refused. I wonder what the reason was that one refused. I need to check this out. Right now I feel absoluetely deflated and cursed. 

    Jan

     

    Bad news

    Jan:  I am very sorry to hear your bad news.  Perhaps with some exploration other doors will open.

  • JanJan63
    JanJan63 Member Posts: 2,478 Member
    #25
    Trubrit said:

    Dear Jan

    I am so very sorry to hear this news.  

    You have every right to feel deflated and cursed, and no dount a whole bunch of other things. 

    You will keep on keeping on, because thats what we do. 

    Know that you are in my thougths and prayers. 

    Tru

     

    Thank you. I know it's not

    Thank you. I know it's not the end but I have so few options that I don't know what to do or what to think. I'm so tired of living scared and living with this. I don't want to live whatever time I have left being sick and on treatments.   

  • Canadian Sandy
    Canadian Sandy Member Posts: 784 Member
    edited June 2017 #26
    Sorry your news wasn't better

    Sorry your news wasn't better. Keep your chin up. I am praying for you. 

     

  • bobby66
    bobby66 Member Posts: 69
    #27
    Sorry for the bad news. will

    Sorry for the bad news. will keep on praying. only God knows when is our time. Doctor's can only give you an estimate, but at the end. God is in control.

  • Cindy225
    Cindy225 Member Posts: 172 Member
    #28
    Scan Results

    Hi Jan  - Not what you wanted to hear and new data to tackle...thoughts about second opinon?  Thoughts about research trials? Be your own best advocate. Be present with your family, friends and horses. Focus on you. Be positive and keep fighting... hugs.

    Cindy

  • Bellen
    Bellen Member Posts: 281 Member
    #29
    Sending best wishes

    Hi Jan - Thinking of you as you make a decision about your next step.  I wonder if anyone on site can respond if they have had a similar diagnosis and what treatment was suggested for them.  This website can be so helpful.  Sending you thoughts and prayers that your next option will bring you some positive results.  Hugs!

  • EissetB
    EissetB Member Posts: 133
    #30
    I also dealt with fatigue

    I also dealt with fatigue syndrome, Jan. I took Tylenol and fell to sleep for 3 hours!! When I woke up although not hungry I shove in a few bites of steamed rice with a few drops of lite sodium soy sauce on it. And boy, I felt a little better. But of course it's me, it might be different for you though or you might try it. I do hope you feel a little better if not a lot. Big Hugs from me.

  • JanJan63
    JanJan63 Member Posts: 2,478 Member
    edited July 2017 #31
    Thanks you guys! I appreciate

    Thanks you guys! I appreciate the support on this forum more than nayone can ever know. To have pople who understand is priceless. I've just gotten over an absolutely miserable week which I'm going to put in a new topic in case it's helpful to anyone.

    Hugs!

    Jan

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