Phyllodes tumor

Vanna_kay said:

Confused

hello everyone ,

I'm 22 years old and two years ago noticed a lump in my left breast. My doctor ordered me do a ultrasound and they said it was solid so they decided I get a biopsy done. Before my biopsy, they walked me to get a mammogram. A couple days later, was at the doctor and they said it was a fibroadenoma. It measured 1.2. He said it was not necessary to get it removed since it was not bothering me. Now two years later ; I get it checked . (I know I shouldn't had waited so long even though he told me to get it rechecked 6 months later, dumb of me) my new doctor did not like how hard and solid it fealt; as well you could see it since I'm real tiny. She orders me to get a ultrasound done . A couple days later; my doctor office calls and tells me over the phone that they're referring me to a surgeon. They said it's now a phyllodes tumor and it's measuring 3.4cm. My appointment is this coming Thursday (it's Friday) for The surgeon. 

I'm not sure what to think or expect from the surgeon? they have not told me if it's benig, malignant or borderline. Obviously I'm hoping for benign. Any advice ? Which questions should I prepare to ask. Did I wait too long? Sorry for this long post; just a little worried as I try not to show it towards my family especially to my five year old little girl.

 

thank you! 

Hello Vanna_kay

Hello Vanna_kay

So sorry to hear about your diagnosis. I hope your surgery went well, the pathology results were benign and your healing journey is well underway. 

I had surgery to remove a benign phyllodes tumour in November last year.  Like you, I was beside myself with worry pre-op and most concerned about how the event unfolding was affecting my children.

If you haven't already done so, can I recommend joining an online support group?  I joined one around the time of my diagnosis and it's been a real lifeline for support and encouragement from people who know first hand what it's like to experience such a rare diagnosis. 

Please feel free to contact me directly if I can help in any way. 

Blessings

Fiona