Surgery tomorrow

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Comments

  • MK1965
    MK1965 Member Posts: 233 Member
    edited March 2017 #42
    Nightmares

    Thanks Max And Vasco.

    Might be hard to believe that such event like planed surgery can cause so much mental suffering. I found someone on another forum who experienced same symptoms post op. He is Medical social worker from California. I can mirror all his experience as carbon copy. Possible or not, it is happening to people. I do not know how often but it happens. And to be honest, I am not lonely guy. I work 50-55 hrs a week and do some other stuff in my free time. I walk my doge to the park almost every day for 45-60 minute and I go to gym 3-4 times a week. I can fall asleep fairly quickly but my sleep does not lost for long. Waking up having bad nightmares most of the time related to surgery and Ca. After that, I have trouble to fall asleep again and spend most of the night just tossing in bed. When alarm goes off, I fell terribly tired and barely can get out of bed. To get me moving thru the mornings, I need lots of strong coffee to get going. Hard to concentrate on the job that I really like and put lots of pride in it.

    I am healthy guy and list I want is to be on depression medication. Already, have enough trouble with ED post op.

    This surgery was not my first surgery. Had TURP and sinus surgery before without any probless post op and was feeling great week or two after surgery. This RP hit me very hard. I anticipated problems and knew about them but did not expect to be such hard as it is.

    MK

  • Clevelandguy
    Clevelandguy Member Posts: 1,003 Member
    Extra help?

    Hi,

    Sounds like you might need to see a psychiatrist or some other type of metal health provider.  The continuing nightmares would really bother me.  If it was me I would want to find out what's going on, why do I keep having the nightmares?

    Dave 3+4

  • MK1965
    MK1965 Member Posts: 233 Member
    First successful sex

    Hi all,

    just want to share good news. Started TRIMIX a month ago and today was my 10th self injection of TRIMIX.

    Trimix gave me erection every time but today was my first sex with penetration and my wife and I enjoyed it very much. I was feeling like that was my first sex ever. What  a happy day again. I will remember this day for the rest of my life. 

    MK

  • Old Salt
    Old Salt Member Posts: 1,315 Member
    Congrats

    Nice to read that you made another significant step forward.

  • VascodaGama
    VascodaGama Member Posts: 3,641 Member
    Congratulation

    Wonderful news. Born again.

    I recall when you compared the returning of erections as a declared brain death. You are alive and that is your newer you. 

    Hope you enjoy and that the cancer story is over forever.

    Best,

    VG

  • Clevelandguy
    Clevelandguy Member Posts: 1,003 Member
    edited May 2017 #47
    Congrats!!
    Hopefully all the bad stuff is behind you.
  • MK1965
    MK1965 Member Posts: 233 Member
    7 months post RALP

    Want to update followers: Today is my 7 months post RALP.

    Only good news is that TRIMIX works every time I use it. Erections are lasting between 1.5 - 2.5 hrs with dose of 0.1 ml  which is equal to 10 units. Here is the mixture I use 150mg/ 5mg/ 50 mcg - full strength. Sometimes penis stretches nicely but still short minimum 1 inch from prior tu surgery and is not rock hard but it is useful For penetration.

    Other times it becomes rock hard but it does not stretch well, up to 2 + inches shorter from prior to surgery but it is bigger in circumference than in first case. In this rock hard and short scenario,  penis becomes painful and I can not wait to go to soft. Per urologist, it will get to same with every injection with time.

    Would like to know if this is normal response and if others experienced something similar.

    Other than actual response to TRIMIX,  my penis is still totally in hibernating state. No slightest spontaneous response and still no response to Cialis. It bothers me that is always totaly retracted in my body.

    Overal, I feel better mentally and physically now compared to 2-3 months ago.

    Also, yestready was my first anniversary of my TURP which led to prostate Ca diagnosis.

    Wish to every one who is in post RP time fastest possible recovery and back to normal time.

    Also, want to thank everyone who supported me in my dark times.

    MK

     

  • Clevelandguy
    Clevelandguy Member Posts: 1,003 Member
    edited June 2017 #49
    Sounds encouraging

    Hi,

    Glad to hear things are improving, at seven months,  I would think that you still have some healing to do.  I noticed changes for the better into my second year post surgery both in urinary control & irections.  Keep on healin guy................

    Dave 3+4

  • MK1965
    MK1965 Member Posts: 233 Member
    9 months post RALP

    At 9+ months post RALP, I can report that my 3rd post OP PSA was <0.1.

    I still have some stress incontinece but that is something I can live with.

    On ED side, I have nothing new to report. Still ABSOLUTE ZERO down there. Nothing spontaneous by now. 

    Still no feeling, no stirrings, non existent orgasam, no any succes with Cialis, Viagra, VED, nothing with manual stimulation.

    Trimix still works most of the time. Did not recovered any length and girth, still2+ inches shorter and still pathetically small and tiny while erect. Non usable.

    I wish at least I could have better and more satisfying orgasam but no luck with that either.

    Not much of hope left with being so long at point zero. Still hibernating .....

    According to urologist, I already exhausted all my non invasive options. Just wait for miracle to happen.

    MK 

     

     

     

     

     

     

     

     

     

     

     

     

  • VascodaGama
    VascodaGama Member Posts: 3,641 Member
    Still ..................

    I read many "still"(s) in your posts but no "if"(s), and such miracle may never come without a strong will to propel it. You need to work on your willpower, on that thing visual or visionary that arouses you in sex. Your partner may help but you can try external means to exalt the excitement mentally. Trimix is just an external complement with no mental effects. Your mind must be put into action. Porno is used by physicians to manipulate excitement. A third partner affair may be sufficient or even the help of a pro that can put you back on the rails. Then, just push it forwards.

    Congratulations on the remission.Your surgeon must be pleased. He knocked down everything.

    VG

  • Grinder
    Grinder Member Posts: 487 Member
    edited August 2017 #52
    Unpleasant discovery

    Something I discovered getting some erection back slowly... Just like your business erected from 6" to 12" before RP, when you lose 1" to 2" in RP, that translates to several inches lost from erection. When it gets erect now, I call it "Stubby". 

    And he is right, visual stimulation is important because that is the way guys are wired. The ladies are wired differently... That explains why there are strip bar gentlemen's clubs on every corner, but the Chippendales and Magic Mike are out of the way anomalies.

    Oh, I forgot Chris Farley as an exotic dancer... That really turned the ladies on. 

    ;)

    Btw... I was told 3 to 6 months incontinence, but 1 to 2 years ED. So expect ED to lag way behind the incontinence schedule.

  • Clevelandguy
    Clevelandguy Member Posts: 1,003 Member
    Hope

    Hi,

    Well it seems so far the surgery was succesful in getting rid of the Pca, hopefully many,many more undetectable PSA's in your future.  Keep workin on the ED thing, mine came back slowly but after all most three years I feel I am pretty much back to normal.  So there is hope but, I would trade no erections for cancer free any day.

    Dave 3+4

  • GeorgeG
    GeorgeG Member Posts: 152
    edited August 2017 #54
    I can tell you that post RP I

    I can tell you that post RP I can have an orgasm but it requires a lot more work/stimulation and persistence. They did not start out very good but over time they got almost as good as new. I agree with VG, start visualizing success and comit to working this problem with the goal of making it work. 

  • MK1965
    MK1965 Member Posts: 233 Member
    edited August 2017 #55

    Still ..................

    I read many "still"(s) in your posts but no "if"(s), and such miracle may never come without a strong will to propel it. You need to work on your willpower, on that thing visual or visionary that arouses you in sex. Your partner may help but you can try external means to exalt the excitement mentally. Trimix is just an external complement with no mental effects. Your mind must be put into action. Porno is used by physicians to manipulate excitement. A third partner affair may be sufficient or even the help of a pro that can put you back on the rails. Then, just push it forwards.

    Congratulations on the remission.Your surgeon must be pleased. He knocked down everything.

    VG

    Vasco,

    Vasco,

    since surgery disconnected penis from the brain, I lost all sexual triggers like sign, smell, sound, fantasy, touch etc which were giving me erection before surgery. Neither of this sexual triggers works for me after surgery. Sadly but this is trhut.

    MK

  • rmp42661
    rmp42661 Member Posts: 6
    When did you regain urinary

    When did you regain urinary continenence? I am now 7 weeks post op and have absolutely no control - except overnight when I seem to have 80% control -- doing the exercises and no results - need some rays of hope

  • MK1965
    MK1965 Member Posts: 233 Member
    rmp42661 said:

    When did you regain urinary

    When did you regain urinary continenence? I am now 7 weeks post op and have absolutely no control - except overnight when I seem to have 80% control -- doing the exercises and no results - need some rays of hope

    Continence le

    rpm,

    i regain most of my continence in weeks 11 and 12. My first 10 weeks were really bad. I used to soak 2 pull ups and 5-6 high absorbency pads per day. By the end of 3rd month I was about 98-99% continent. Now, at year post RP I am about 99%. Still have few drips every day but that is tolerable. If I lift, laugh, sneez, smile, jump, run or work around the house, leaking will happen. 

    I don’t think I will ever be 100% dry.

    MK

  • Grinder
    Grinder Member Posts: 487 Member
    Timetable

    I don't know what it is with these surgeons and urologists, but they should have told you 3 months is the average to begin to see improvement. In my case, it was much longer, and took about a year to see 98% improvement. Now I buy the minipads. I could get by without them, but they are dirt cheap, so I change them out each day, even though they don't need it.

    Relax, you have a long way to go.

  • MK1965
    MK1965 Member Posts: 233 Member
    Orientational timetable

    Surgeons always avood to tell about lenght

    of recovery and always start with “might happen “ might be affected “ and such arrays of might possibly be affected like those things never happened or once in the bloo moon. All of thise worlds stear discussion in directions where they feel comfortable trying to avoid questoons with the answere which are not in their favor to be selected as a provider.

    And like my current urologist said at my 11 months visit: it happens more often then surgeons want to admit.

    MK