Long time listener, first time caller. Less that 24 hrs from surgery.

BoondockSaint
BoondockSaint Member Posts: 242 Member
edited March 2017 in Kidney Cancer #1

Well, I guess it's time we introduced ourselves. I am the husband 46 and my wife is 44 from Arkansas, married 21 yrs this June.

First a brief history.....on Feb 8 my wife sent me a text saying thaqt she was in extreme pain in her right side and that she was going to the ER. While she was there the ER doctor who happened to be a highschool classmate ordered an abdominal CT to check for a kidney stone. There was also blood work and other things ordered, maybe a chest x-ray, not sure on that one but anyway......all the tests came back okay except the CT.

ER doc came back in to tell her that everything looked good BUT there was a 3 - 3.5 cm mass on her left kidney which seemed odd because her pain was in the right flank that shot down to her groin and upper right leg. The ER doc ordered a ultrasound for the following Thursday. The next 2 days were Hell and we really believe she passed a stone on that friday because it was an immediate relief from the pain the 2 days prior.

In the meantime we have a friend that is a surgical nurse who operates with one of the local urologists and she asked if it was okay if she talked to him about our case. She did.... and he told us that as soon as the U-sound was done, give it about 30 min and that we were to call him and he would pull it up and look at it himself. So.....we did as instructed and he told us that the mass was indeed solid appearing and wanted to meet with us that followin Monday morning.

We go to his office and he talks with us a bit and takes us to the Radiologists room where the actual Dr. sits at his computer and anylizes all the scans. He shows us the findings and spoke with us a bit. The Urologist refers us to a Dr. in Little Rock. Before I could even get it out of my mouth he says "If this was me or my wife or family member, this is the Dr. I woud see" he is a med school classmate of his and is one of the top urological surgeons in the state, esp with the Da Vinci robot.

We have met with him 2 times now, new CT ordered with contrast this time and he seems to think that we can go in and do a partial and given clear margins his words were "An excellent Outcome" and will only need routine follow up scans back with the origional urologist in the future.

So here we are, scared as Hell.....wondering if there is going to be any more bumps in the road.

We are to be at St. Vincent Hospital (which is where this particular Dr. likes to operate) at 5a.m. in the morning to start this whole process.

I don't really know what to expect but I am going to be there with her the whole time and do any and everything I can to help her recover.

Thanks so much for listening.

Boondock out!

«13

Comments

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    That was me almost 15 years ago.

    Boondock,

    With a mass under 4 cm it is highly probable that the surgery will take care of this. It did for me. The feeling you are going thru are normal. Nobody wants to hear the C word and than hear that they are going to yank out your kidney or part of it right out of the gate. At 44 years old she will have it easier than I (59 at the time I was nephed). The recovery is not fun, but each day gets a little better with maybe a bad day in between. You can do this. I did.

     

     

    Icemantoo

  • BoondockSaint
    BoondockSaint Member Posts: 242 Member
    Thanks Iceman.......I have

    Thanks Iceman.......I have read many of your posts, as well as others on here before I joined. We are going to get thru this. We are ready to get this behind us and on to many more years of enjoying our lives together.

  • CRashster
    CRashster Member Posts: 241 Member
    That was me 9 months ago.

    Two days before my surgery, I was physically trembling, scared to death. I wanted to get up and run from the doctors office. But, I was broken, I was sick. I had to let go a little, lay down on the operating table and let the surgery team save my life. It was the only way. It's hard, but try and calm down and let them fix you.

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    Hello Boondock! I am so

    Hello Boondock! I am so impressed at how you are advocating for your wife, kudos!

    Yes, its a shock to hear the "c" word. But as Iceman said, under 7cm is usually stage I corrected by surgery. I was lucky to have joined here and asked so many questions, therefore being well prepared by the time I saw my surgeon.  I am 3 years NED=no evidence of disease.

    She is lucky to have the robatic/laproscopic surgery technique as its less invasive and easier recovery for most of us. I have had 4 abdominal surgeries, all separate reasons, and two robatic ones. I wore a lumbar, velcro, wrap used to back backs and wrapped it around my tender abdomen. Then to reduce swelling (due to healing, post surgery) I put dry ice packs (less messy) inside the wrap, but not right on skin. As a result there is less swelling=less need for pain meds.

    What hurt the most for me is that trapped gas they use to pump up the abdominal wall so surgeon can see. It gets trapped in weird places afterwards, like the shoulder. I kept moving my arm around in circles and walking to get rid of it. It does take days, Im afraid till its gone.

    Feel free to email me (upper left menu) and ask any other questions.

    She'll be fine, but do not rush the recovery. Most likely will be cancer free, but monitored for about 5 years or so.

    Sending you both healing hugs,

    Jan

  • Kat23502
    Kat23502 Member Posts: 179 Member
    edited March 2017 #6
    Please feel free to post here

    Please feel free to post here with any questions or comments! We are here to help and everyone on this site has been a tremendous source of support for me. It is a very scary thing to be facing this at a young age. A year ago I had my partial nephrectomy for a 2.9cm mass that ended up being clear cell renal carcinoma. I had it done robotically and so far, feel great, and plan to continue to. Good luck to your wife!

  • BoondockSaint
    BoondockSaint Member Posts: 242 Member
    Thank you Jan & Kat. I've already

    Thank you Jan & Kat. I've already gotten her an ab wrap because I had read earlier before I joined that you had done this. We will definitely be using it. We are not going to rush things and we are going to follow the Dr's orders to a "T". It'll be tough because she is so active. She owns her own business and is very active with the local humane society in rescuing dogs. I couldnt begin to tell you the number of dogs she has rescued in the last 21 yrs we've been married.

    Heck, longer than tat really. We've known each other since we were 13 and 12 yrs old when I moved to the neighborhood. We used to hold hands on the school bus. lol....went to Prom together. Me and this girl have a lot of history together and plan on having much, much more.

  • tracylev
    tracylev Member Posts: 17
    Hi, I just posted on this

    Hi, I just posted on this site for the first time yesterday. Your wife's cancer was caught while it is still small. How lucky she had that pain and went to have it checked out! I predict you will both have a long happy life together. The uncertainty of things is quite distressing I know all too well, waiting for scan results and other test results. She is so lucky also to have such a supportive husband. I talk about all this luck when I'm sure you don't feel that lucky right now. She will have pain but they should give her pain meds that will make the pain tolerable. If the pain meds they prescribe aren't doing the trick, call the doctor and get something stronger. Make sure your wife drinks lots of fluids when you go home to keep things moving. Bowel obstruction is a potential side effect of abdominal surgery, it happened to me and it was very unpleasant. So drink up. 

    Im so sorry you are both going through the uncertainty and fear that cancer can cause. Good luck to you both!

    Tracy

  • JerzyGrrl
    JerzyGrrl Member Posts: 760 Member
    edited March 2017 #9

    Thank you Jan & Kat. I've already

    Thank you Jan & Kat. I've already gotten her an ab wrap because I had read earlier before I joined that you had done this. We will definitely be using it. We are not going to rush things and we are going to follow the Dr's orders to a "T". It'll be tough because she is so active. She owns her own business and is very active with the local humane society in rescuing dogs. I couldnt begin to tell you the number of dogs she has rescued in the last 21 yrs we've been married.

    Heck, longer than tat really. We've known each other since we were 13 and 12 yrs old when I moved to the neighborhood. We used to hold hands on the school bus. lol....went to Prom together. Me and this girl have a lot of history together and plan on having much, much more.

    You will have...

    What a wonderful story you kids have already written. While no one can really predict the future on any given day, it looks as though you two will have lots more time together. 

    It was kidney stones that enabled them to find my kidney mass, too. Who knew something positive could come out of those wretched little kidney stones?

    Oh, and you get to pick the dogs up onto the sofa or boost them into the car for a while. Their mama won't break, but she'll be mighty sore for a while. Short inside - then outside - walkies will be good for her (an excellent way to get rid of the nasty painful gas). 

  • BoondockSaint
    BoondockSaint Member Posts: 242 Member
    Thank you Tracy & Jerzy. Yes....we

    Thank you Tracy and Jerzy. Yes....we are very lucky she went that day. If it had passed within 30 minutes or so I flat promise you she would have not gone and thought nothing more of it until it happened again no telling when.

    We are very thankful that if we have to deal with all this, better now than who knows when down the road.

    I hate to wish our lives away but my nerves sure wish it wa this time tomorrow and we were already in recovery and in our hosp. room.

    We'll get there though.

  • stub1969
    stub1969 Member Posts: 966 Member
    edited March 2017 #11
    Welcome, Boondock

    I'm glad you found us--although membership in this club is one you would rather avoid.  First of all, if you have been reading the posts here for a while you know the type of people that are members.  Some of the most caring, empathetic, with a good touch of "kick that cancer in the a**" attitude you'll find in any site.  We're here to help you as much as you want.  We'll share our expereinces--after all, we've all been through it.

    My wife and I were childhood sweethearts since we were in elementary school, so your story resonates with me.  The only difference, I was the one with the mass and my wife was there to support me.  The mass on my kidney was found in late July with surgery in late August.  I also had a partial with Da Vinci--click on my "name" to read my story. 

    Your wife is young and healthy, so recovery will not be that bad.  I encourage you to have her get up and walk as soon as she can.  That movement will help remove the gas they use in surgery.  I had surgery on a Friday and went home early afternoon on Saturday--I suspect it will be the same with your wife.  She will be sore for a while, so help her as much as she allows :).  Remember movement is really a key to a quick recovery. 

    As others have said with the size of her mass surgery will most likely take care of this.  In the meantime, try to keep her calm.  The night before and the morning of surgery is the worst.  You guys will get through this!

    Blessings,

    Stub

  • lobbyist0724
    lobbyist0724 Member Posts: 515 Member
    edited March 2017 #12
    Hi, I am 42 and my mass was 3

    Hi, I am 42 and my mass was 3.2 cm, similar size to the one you are dealing with. I had an open surgery because it wass cystic, but the surgery was uneventful and the recovery is good. The surgery itself should be straight forward for the surgeon based on the size and the method chosen. It is very safe too especially for your age. Just relax and prepare for the things you will need during the recovery phase such as extra pillow, a good diet plan and etc.

    All the best!

    Carmen

  • BoondockSaint
    BoondockSaint Member Posts: 242 Member
    Thanks guys. 

    Thanks guys. 

    Yes, Carmen.....we actually have 2 big fuzzy body pillows ready to pack in the car tonight before we venture out tomorrow a.m. at 4:00 to make it to the hospital by 5:00

    The wife has just now layed down on the couch for the evening. She's been a buzzsaw for the last 2 weeks since we got a go on the surgery date.

    I tell ya, and ya'll already know this by being there and doing that but, I have learned so much about myself in the last month. Things that I used to make a big deal of, now I just let them go. Things that I used to think were important have almost become insignificant. I didn't know I could love as hard as I have since we got the news of this Demon that we are facing down.

    We are both rather calm tonight considering.

    I'll let everyone know how it all goes tomorrow.

    Boondock out!

  • todd121
    todd121 Member Posts: 1,448 Member
    edited March 2017 #14
    Welcome to the club!

    Sorry you have to be here. Smaller mass removable by partial is on the good news side of things. You won't know for sure what's going on until you get the pathology report back. They can't tell 100% from imaging. That's part of why they have to remove it. Heck, it might not even be cancer. I don't know what they told you, because it depends on what they say. However, my docs were saying it was about 80% likely to be cancer and there was some 20% chance it wasn't. Or it might have been 90%. There are different kinds too and they all have different risks/prognosis.

    Never get ahead of yourself with your worry. Go with what you have on your plate today: the surgery. Then face what comes when it comes/as it comes.

    Hope the surgery all goes smooth and ya'll will get the best outcome.

    Best to you both,

    Todd

  • sandy23
    sandy23 Member Posts: 143 Member
    edited March 2017 #15
    We are pretty much right

    We are pretty much right where you are Boondock.  My husband is 2 days past surgery so if there is anything that we can do to help, please don't hesitate to ask.  Or if you just want to chat.

    If it is reassuring at all, he walked 2 miles yesterday, just one day after surgery and he is in very little pain.

  • BoondockSaint
    BoondockSaint Member Posts: 242 Member
    Oh wow Sandy!!!! That's so

    Oh wow Sandy!!!! That's so awesome. Tell him to press on and I for one am proud of him.

    They just took her back to prep about  20 minutes ago. Nervous wreck right now.

  • BoondockSaint
    BoondockSaint Member Posts: 242 Member
    edited March 2017 #17
    We are done with this hurdle

    We are done with this hurdle in our journey. Just spoke with the surgeon while surrounded by so many family and friends.

    Surgery took a little over 2 hrs. Was able to use the robot, removed the tumor, no suspicious lymph nodes, was not attached to anything and that he was able to save 90ish% of her kidney & that she did great. He said we will have the Path report as soon as he does.

    She's in recovery right now and I'm still in the waiting room. Everyone else bailed on me to go eat but I'm not going anywhere, I want to be the first one to go see her and give her the biggest, although gentle hug I can.

    Thanks everyone so much. This is such a wonderful place.

    Ill update later.

    Boondock out!!

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    Piece of cake

    Boondock,

     

    Sounds like she made it thru like a trooper. A little pain will come as she gets off the pain meds. Sending good karma for an uneventful recovery.

     

    Icemantoo

  • APny
    APny Member Posts: 1,995 Member
    What a lovely history you

    What a lovely history you have and there'll be many more years to add to that :) My husband and I are pretty much the same. Met at 15 and 17 and here we are 50 years later. So glad the surgery is over and she's in recovery. Make sure she walks as much as possible (I walked the same night) and that she uses the breathing apparatus they give you to keep your lungs clear. Mine was an open procedure yet I was home the third day and walked my butt off every single day. She may not have much appetite and that's ok. I hardly ate for a week. Maybe broth and soft boiled eggs. Also, she may have some gas pain from the surgery and going number 2 will take a while. Wishing you both all the very best!!

  • Steve.Adam
    Steve.Adam Member Posts: 463 Member
    edited March 2017 #20
    Hi Boondock

    That's about the best outcome you could have hoped for. It's great that she kept 90% of the kidney.

    She looks really lovely in the photo.

    I wish you both a long and happy life together.

    Steve.

  • JerzyGrrl
    JerzyGrrl Member Posts: 760 Member
    edited March 2017 #21
    Super -- !

    That's super news, and then some. I'm impressed on the 90% kidney-keeping (heck, I think even my KIDNEYS are impressed on the 90%). 

    BTW, there's a good chance that later she won't remember most of what happens during the first sort-of day after surgery. Not to worry -- it's just the anesthesia's effects.  Now both of you can get some rest (Well, aside from the walking she'll need to do to work out the carbon dioxide AND get her strength back).