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  • MAbound
    MAbound Member Posts: 1,168 Member
    #42
    Congratulations on the D & C

    Congratulations on the D & C results!

    Did your doctor have any thoughts about whether or not the unopposed estrogen you had was responsible for your PMB? A history of taking unopposed estrogen is a risk factor for developing this cancer, so it's a good thing that that was stopped.

    There was a thread last summer where it was wondered why hysterectomies weren't done prophylactically after menopause to prevent this cancer. It actually is considered for women with Lynch Syndrome (a genetic mutation) as they go into menopause and is something my daughter may now be facing because I'm positive for Lynch Syndrome as well as because of her having a number of the other risk factors for this cancer.

    You may want to discuss having such a preventive hysterectomy with your doctors so that they can examine your uterus more diffinitively for cancer if what you've learned so far is still making you anxious about it. You may also want to consider genetic testing for at least Lynch Syndrome. Most geneticists and testing companies want to do a broad array of genetic tests, but if the cost of them is an issue, giving priority to that one test would make the expense more reasonable and is the one that you'd really want to know one way or the other about because it also has implications for other cancers, like colon cancer, which at least have screening tests to detect them.

    Hopefully, the D & C will have been the only solution you need for your issue with spotting, but what you have learned about this cancer will never have been a waste. A lot of us wish we had know earlier what we've had to learn the hard way, but it doesn't seem like there's the education out there to put it on our radars like there is for breast cancer. 

    Best Wishes,

    Pat

  • Nellasing
    Nellasing Member Posts: 528 Member
    edited February 2017 #43
    Great news Noelle!

    Congratulations on your good news!  I agree with Pat- if I knew then what I know now I would NEVER have waited or hesitated to have a hysterectomy when I started having problems in 2010.  They told me it was a fibroid etc. etc. but my endometrial layer at that time was way thicker than it should have been and looking back they think perhaps I had cancer then?  I would have rather had the hysterectomy then and skipped all thisWink  Just keep looking out for yourself.  (((HUGS)))   Go live your life <3

  • Kvdyson
    Kvdyson Member Posts: 789
    #44
    Congratulations on those

    Congratulations on those results, Noelle! What a relief for you! Hopefully you and your doctor will figure out the PMB but in the meantime, get busy living and don't look back!

  • Soup52
    Soup52 Member Posts: 908 Member
    #45
    Congratulations! I too wish I

    Congratulations! I too wish I had had a hysterectomy years ago with some heVy bleeding going through menaupausE. Also, when I was evaluated for donating a kidney to my daughter they found many large fibroid. Hmm why didn't I pursue having something done then?? At least you have gained much info so that you can be proactive if needed. Best wishes and happy for you!

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,811 Member
    #46
    Great news Noelle! Very happy

    Great news Noelle! Very happy for you. I think getting tested for Lynch is a great idea. Very simple test. Rinse mouth with scope and spit it into a container! I have heard they can also test it with a blood test. Easy peasy either way.

    Love and Hugs,

    Cindi

  • Lou Ann M
    Lou Ann M Member Posts: 996 Member
    edited February 2017 #47
    Noelle

    i am so happy the your D&C results were good.  Best news ever.

  • Noelle2016
    Noelle2016 Member Posts: 18
    edited February 2017 #48
    Giving myself a break

    The Doctors do think the unopposed estrogen is the cause of all of this. They won't really come out and say that the prescribing Doctor made a huge mistake. They all do seem to agree that I should not have been taking Estrogen alone and that stopping the Estrogen and taking huge doses of Progestrin was not the appropriate way to treat the PMB .

    I am just so grateful that I did not ignore the PMB when it started. I googled it and thats where I learned  that the unnoposed estrogen could cause cancer (first I knew of that). Of course I did not actually know that I was only taking Estrogen to begin with. Talk about learning the hard way.Cry The information I found on the internet is what lead me to disregard the prescribing Doctor's way of fixing his mistake and find someone to give me  a second opinion. Thankfully the second opinion led to the TVU and endometrial biospy.

    This site, and all of your stories, are what led me to pursue finding a Gyn/Onc and then push for the D&C when I continued having PMB post endo biopsy. I kind of wish I could have just had a hysterectomy rather than the D&C but I guess they don't jump right into that. For now, I am going to rest in the belief that the D&C is accurate and I am just going to give myself a break from all the stress and worry. I know you all understand that stress and worry and it just takes a toll on you regardless of your biopsy results.

    I will certainly consider that test for Lynch in the meantime. It never hurts to just have it checked out. Please know that everything I have learned from all of you has really helped me on this jouney and I appreciate you all so much!!! I will keep you all in my thoughts and my prayers. Now on to looking forward!Smile

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