Recurrence

TAyers
TAyers Member Posts: 86 Member
in Uterine/Endometrial Cancer #1

Ladies I received the news that my one solitary nodule that they took 1/2 my middle lobe out for was a recurrence of UPSC. So now I wait to see my oncologist this coming Thursday. I've been reading all the recurrence posts seeing what line of defense is used. Has anyone went on Social Security disability with this? I am also interested in maybe an integrative oncologist....All questions and comments encouraged.

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Comments

  • Lou Ann M
    Lou Ann M Member Posts: 996 Member
    edited December 2016 #2
    So sorry

    So sorry to hear this.  No one wants to hear those recurrence words.  I had a recurrence in Dec, 2013. With mets to my neck, liver and several in my abdomen.  I change Cancer centers, for many reasons, and was blessed with the wonderful oncolonist that I have now.  We went back to the Taxol/ Carbo chemo and it did work bringing my CA 125 back down to 7 and tumors shrunk small enough that they couldn't be detected on a CT scan.    I was already old enough for Social Security at this time, but I think that stage 4 and maybe stage 3 cancer would qualify a person for Social Security.  

    Sending you Hugs and prayers, Lou Ann

  • Kaleena
    Kaleena Member Posts: 2,088 Member
    #3
    immunology?

    Tayers, have you looked into immunology?   My husband needs to do chemo again (he had chemo, then surgery and now they want him to do chemo again).  He is looking into immunology.  If I find anything out on it, I will let you know.  He meets with his oncologist next week.

  • Nellasing
    Nellasing Member Posts: 528 Member
    #4
    TAyers

    So sorry to hear that it was indeed a recurrence Embarassed  Prayers and big ole (((HUGS))) as you meet with your team and decide what to do next.

  • Editgrl
    Editgrl Member Posts: 903 Member
    edited December 2016 #5
    Sorry to hear that this was

    Sorry to hear that this was indeed a recurrence. You might consider working with a board-certified naturopathic oncologist as well as your conventional medical team.  A list can be found here:  http://fabno.org/membership.html  Many specialize in complementary care working with your medical team to enhance chemo, radiation, etc. and reduce undesirable side effects while strengthening your body's own self-healing mechanisms.  In my experience, naturopaths or integrative doctors take a more whole patient approach to healing that could include diet, exercise, supplements, meditation, yoga and other types of self-care.

    CheeseQueen57 applied for and got Social Security Disability.  I remember this because I was considering on applying earlier this year. If she doesn't come along, you might send her a message about that.

  • CheeseQueen57
    CheeseQueen57 Member Posts: 933 Member
    #6
    Disability

    So sorry you are going through this. Yes, I got SS disability and it was approved very quickly. It's worth a try to apply. 

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,358 Member
    edited December 2016 #7
    Tami, I am so sorry to hear

    Tami, I am so sorry to hear your news.  I can't add anything on SSD, but it is worth a try as CheeseQueen said.  Please let us know what the doctor said is his thoughts on attacking this.  Hugs 

  • Kvdyson
    Kvdyson Member Posts: 789
    edited December 2016 #8
    Oh, Tami, I am so very sorry

    Oh, Tami, I am so very sorry to hear this news. Praying for you and for your medical team to develop a plan to get you to NED. Stay strong! Kim 

  • ConnieSW
    ConnieSW Member Posts: 1,678 Member
    edited December 2016 #9
    Tami,

    Wish this hadn't happened.  I wish a good response to whatever treatment you have.  I'm feeling awful about all the recurrences our members are having.  I don't recall so many in a short period of time.

  • Northwoodsgirl
    Northwoodsgirl Member Posts: 571
    #10
    Tami,

    Tami, I join the other ladies in expressing how sorry I am to hear of your reoccurence. I will keep you in my prayers as you continue your treatments. It just shouldn't happen again....(HUG)). Lori 

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,811 Member
    #11
    Tami, Hate the news and I'm

    Tami, Hate the news and I'm sorry you are having to deal with it. Please let us know the plan of attack once you get it. Sending you loads of support.

    I hope you are able to get on Social Security. I bet you can!

    Love and Hugs,

    Cindi

  • cindy0519
    cindy0519 Member Posts: 173
    #12
    Sending prayers for healing

    Sending prayers for healing and obtaining SS quickly and easily.

  • henhill
    henhill Member Posts: 123
    #13
    Sorry to hear

    I am sorry to hear your news, you have company here and hopefully we can get through this together.  Stay strong! 

  • laura25
    laura25 Member Posts: 180 Member
    #14
    Dear Friend

    Hi Tami,

    I'm so very sorry to hear the news.  I echo what everyone has already said, this board is wonderful and a wealth of information.   I hope that this Thursday goes well and you leave with a clear direction and path.  

    God Bless and keep us informed.   You will be in my prayers.

    ~Laura

  • TAyers
    TAyers Member Posts: 86 Member
    edited December 2016 #15
    Chemo again

    My oncologist said since it sbeen 31/2 years since chemo we can use carboplatin and pacilitaxol again. He was presenting my solitary nodule to the tumor board at Magee's Womens Hospital in Pittsburgh. Usually it doesn't come back as a solitary nodule? I get my port put win on December 30. I asked at a clinical trail and he didn't think there were any available right now.... I had to call twice to get my port set up. Isn't that weird? 

  • ConnieSW
    ConnieSW Member Posts: 1,678 Member
    edited December 2016 #16
    TAyers said:

    Chemo again

    My oncologist said since it sbeen 31/2 years since chemo we can use carboplatin and pacilitaxol again. He was presenting my solitary nodule to the tumor board at Magee's Womens Hospital in Pittsburgh. Usually it doesn't come back as a solitary nodule? I get my port put win on December 30. I asked at a clinical trail and he didn't think there were any available right now.... I had to call twice to get my port set up. Isn't that weird? 

    I'm sorry

    you have to face this again.  Did you save any of your headgear from last time?  I think I should donate my wig, caps and scarves but then I think twice and don't.  I liked what I had and would hate to shop all over again.  Also, I might be a touch superstitious.

    Did you tolerate the chemo pretty well last time?

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,358 Member
    #17
    TAyers said:

    Chemo again

    My oncologist said since it sbeen 31/2 years since chemo we can use carboplatin and pacilitaxol again. He was presenting my solitary nodule to the tumor board at Magee's Womens Hospital in Pittsburgh. Usually it doesn't come back as a solitary nodule? I get my port put win on December 30. I asked at a clinical trail and he didn't think there were any available right now.... I had to call twice to get my port set up. Isn't that weird? 

    Tami, I am sorry to hear you

    Tami, I am sorry to hear you have to go through the chemo again but if it kicks it than that is the road to go.  Please let us know how you are doing.  I didn't know you were in Pittsburgh - I am originally from there.  Hugs, Tami!  

  • Lou Ann M
    Lou Ann M Member Posts: 996 Member
    edited December 2016 #18
    So sorry you have To go back to the chemo

    but if it will get you back to dancing with NED, it will be worth it. You caught this early, that has to be a good thing.  It does seem odd that you had to call more than once for an appointment to get a port put .  Maybe the holidays have something to do with that.    

    My advice to everyone would be to leave that port in for a really long time and keep your head gear.

    Hugs and prayers, Lou Ann

  • Editgrl
    Editgrl Member Posts: 903 Member
    #19
    TAyers said:

    Chemo again

    My oncologist said since it sbeen 31/2 years since chemo we can use carboplatin and pacilitaxol again. He was presenting my solitary nodule to the tumor board at Magee's Womens Hospital in Pittsburgh. Usually it doesn't come back as a solitary nodule? I get my port put win on December 30. I asked at a clinical trail and he didn't think there were any available right now.... I had to call twice to get my port set up. Isn't that weird? 

    Sorry to hear that it's chemo again.

    I'm hoping that you have few side effects, and most importantly, that it kicks the cancer to the curb.

    Peace and strength,

    Chris

  • Soup52
    Soup52 Member Posts: 908 Member
    #20
    Tami, I'm hoping the chemo

    Tami, I'm hoping the chemo will get you NED again. I'm taking Lou Ann's advice and keeping my port and head gear. I know unfortunately it's always a possibility to need it again one day.

  • Kvdyson
    Kvdyson Member Posts: 789
    #21
    You caught it quick and have

    You caught it quick and have a plan. That is the best that any of us can really hope to do. Stay strong and know that we are all here to help you get through treatment. ((Hugs)) and lots of positive energy coming your way. Kim

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