Reoccurrence of UPSC

cheerful
cheerful Member Posts: 261 Member

Hi Ladies:

  I have some bad news to mention.  I was diagnosed with a reoccurrence of UPSC (I initially had stage 1 in February of 2011 so it is over 5 years).  My CA level has been 134 since mid August so I had a Cat Scan done the end of August and I had a Pet Scan done on October 12th and that is where the cancer has shown up. The cancer is found on my spleen and in my pelvic area it is a small spot.  I am going for blood work tomorrow and an ascites test on Wed morning then I go back and see my oncologist next week.  I found out today that my cancer has returned.

  I know the normal range for the CA level is up to 35 so this I knew was much higher.  Anyway, I found out this morning and it was a shock and upsetting to say the least especially being a little over 5 years.  Anyway, I always knew there was a chance for reoccurrence.

  I will need chemo and will have to go once a week for 3 weeks and then have a week off.  After I meet with my oncologist next week, I will find out how soon I will start the chemo which will probably be sometime in November. The chemo treatments will last a long time for about a year.  I do have a good prognosis or outcome.  

  Anyway, I wanted to let you ladies know about the reoccurrence.  I will keep you informed and will post.

Cheerful

a/k/a Jane

 

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Comments

  • Lou Ann M
    Lou Ann M Member Posts: 996 Member
    My heart is aching for you.

    My heart is aching for you.  I am so,sorry to,hear this.  You made it through this once and you can do it again, but is so unfair that you have to.

    Hugs and prayers, Lou Ann

  • cheerful
    cheerful Member Posts: 261 Member
    Lou Ann M said:

    My heart is aching for you.

    My heart is aching for you.  I am so,sorry to,hear this.  You made it through this once and you can do it again, but is so unfair that you have to.

    Hugs and prayers, Lou Ann

    Hi Lou Ann:

     Yes, this is really bad news, however, your right, I made it through once and I will do it again. Although the chemo will be much longer, I will get through it.  At least I know there is a good outcome so I will remain hopeful and optimistic.

    Cheerful

    a/k/a Jane

     

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,811 Member
    edited October 2016 #4
    Jane, So sorry to hear this!

    Jane, So sorry to hear this! We all shoot for that magic 5 years to have permission to let our guard down. DANG IT!  Please let us know what you learn next week. You have a fantastic attitude and will do this with flying colors. Please come back for support as you move along this next journey.

    Love and Hugs,

    Cindi

  • txtrisha55
    txtrisha55 Member Posts: 693 Member
    edited October 2016 #5
    So sorry to hear this news

    So sorry to hear this news but keep the positive outlook as you said I beat i t once I can do it again. Praying for good outcome. Trish

  • MAbound
    MAbound Member Posts: 1,168 Member
    You are a strong person

    Cheerful, your screen name seems so apt. You seem to have such a positve attitude in spite of recieving news that none of us want to hear, especially after reaching that magic 5 year mark. I'd be screaming and throwing a real hissy fit! I'm so glad to hear that the prognosis for you is good though a year of chemo sounds a bit daunting. Don't be a stranger here if you need anything. God be with you.

  • Editgrl
    Editgrl Member Posts: 903 Member
    edited October 2016 #7
    Ah, Jane

    That has to be a shock to hear after 5 years.  But, you've got a plan, the prognosis is good, and you're keeping your eyes on the prize.  

    Peace and strength to you.

    Chris

  • beccabtown
    beccabtown Member Posts: 234
    I'm sorry you got this news,

    I'm sorry you got this news, but I'm impressed by your attitude and hope it will only be a temporary setback.

  • janaes
    janaes Member Posts: 799 Member
    Im so sorry!!

    Im so sorry!!

  • EZLiving66
    EZLiving66 Member Posts: 1,482 Member
    edited October 2016 #10
    (((Jane))) I'm sorry to hear

    (((Jane))) I'm sorry to hear this but, as you said, you've done this once and you can do it again!!  Thankfully they are coming up with new, more effective treatments all the time.  Keep us updated!!

    Love,

    Eldri

  • Nellasing
    Nellasing Member Posts: 528 Member
    edited October 2016 #11
    I have no words....

    truly this is just such a shock and it deeply affects me as I am sure it does everyone - just so unfair and inexplicable.  My prayers join with our sisters as you muster your courage and march forward.  Please do keep us posted.   (((HUGS)))  <3

  • sshhaarrii
    sshhaarrii Member Posts: 38 Member
    edited October 2016 #12
    I'm so sorry to hear this.

    I'm so sorry to hear this. And after 5 years, how can this be? Darned UPSC!

    BUT obviously you're stronger than this cancer. You beat it once already. And have a good prognosis, so very happy to hear. 

    I'll be thinking of you!

  • giggs100
    giggs100 Member Posts: 91 Member
    edited October 2016 #13
    So sorry to hear this

    I am so sorry to hear of your news.  Keep up the strong attitude and you are in my prayers to beat this once again.

    Jerri

  • cindy0519
    cindy0519 Member Posts: 173
    edited October 2016 #14
    So sorry to hear of the

    So sorry to hear of the return of the beast!  I can imagine how shocking it must be after 5 years of clear.  Your attitude is amazing! Between that and a good prognosis you are armed and ready!

  • Kvdyson
    Kvdyson Member Posts: 789
    We are here for you, Jane.

    We are here for you, Jane. You can rant or scream or cry or whatever it is you need to do here and we will support you. Wishing you continued hope and strength, Kim

  • cheerful
    cheerful Member Posts: 261 Member
    edited October 2016 #16

    To The ladies who responded to my post for reoccurrence - I thank all of you for responding and wishing me the best. I so appreciate it.

    Yes, after 5 years, it is a "shock" to say the least and my Mom who is 93 is devastated and heartbroken that I have this reoccurrence of cancer.  My husband and son (my son is 22) are also very sad for me, but my husband will be at my chemo treatments with me so that will be a real comfort for me.

     

     I will post and let you know what is happening with my chemo treatments.

     Again, thanks to all of you for responding.

    Cheerful

    a/k/a Jane

     

    I am really "overwhelmed" from all of you that responded. This is such a "great group of women" I am so glad I stayed in constant contact through the years on this board.

  • sunflash
    sunflash Member Posts: 197 Member
    Oh Jane, I'm so saddened to

    Oh Jane, I'm so saddened to hear this news. Please know your in my prayers for the best possible outcome......kicking this cancer to the curb where it belongs! Stay strong......we are all behind you and part of your journey.

    Much love and big hugs for you, dear one! 

  • brissance
    brissance Member Posts: 192
    edited October 2016 #18
    So Unfair

    I am so sorry that you have this struggle ahead of you but then again I look at you and your words and I just know you have that extra spark that will enable you to fight and WIN this battle.  You are strong, smart and grounded.  You have so much support right here on this board that prayers won't end.  If anything at all we can do, please let us know.  God bless and know you will go on to victory.  

  • artist49
    artist49 Member Posts: 87

    So sorry about this news but wishing you a second even longer remission.

    What drugs will they be giving you?   Are  you BRCA 1 or 2 positive?

  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    Oh, no!

    I am so sorry you have to face this again.  And when you had no recurrence for FIVE years?  Not fair.  Best of luck to you that this can be beaten back again. 

    Hugs,

    Suzanne

  • DrienneB
    DrienneB Member Posts: 182
    edited October 2016 #21
    Beat it like Beckham

    Jane,

    Cheering you on as you embark on a year of treatment to whip that dumb thing. Despite the inevitable ups and down, wishing you stamina, peace, and joy. best, another jane