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Thank you

janaes
Posts: 800
Joined: May 2016

I just wrote a post and tried to send it and it didnt work so i am going to try to do it again.  There is a lot going on with the women and friends on this forum.  There are friends doing chemo and family members doing chemo.  There are others having reacurances while others who are NED and moving on.  Some of us have had to do second surgeries or prparing to do so.  Others are making desisions about radiation or doing it currently.  Some of us are waiting for results from our recent vistits with the doctor. Im sure there is more as well.

Im sad by all this a times but at the same time i see all the fighting going on and i am happy for all the strength and courage i see.  We are all such a team helping each other and i love seeing that. It seems like some one is always there for someone else.  I want to thank every one also for the support we give each other.  We are great!!!!!!!!!!                                                                                     

 

 

 

 

 

 

 

 

 

 

 

EZLiving66's picture
EZLiving66
Posts: 1471
Joined: Oct 2015

I agree!  The support here is tremendous.  I don't know if I could have made it without all of you.  It's tough, very tough when someone doesn't make it but when people come back and say they're 5 or 10 years NED or that their current treatment is working, it gives the rest of us so much hope.

Love,

Eldri

janaes
Posts: 800
Joined: May 2016

I sure love those NED post as well.  It sure gives me hope and a chance to focus on that hope.  I love your word termendous.  That explains the spport given hear so well.  Thanks eldri for all your funny stories that have help me through all this stuff.

Love Janae

rcdeman
Posts: 257
Joined: Aug 2016

I agree with you completely, Janae. This forum has been a blessing and a great help to me and my mom--- a veritable trove of information, knowledge, and testimonies that have really helped us (and will continue helping us) as we go through this treatment "journey." There is so much available support, encouragement, and hope from all of you and for that we thank you. I'm sure our continual posts and discussions will be of help to more people in the future as well. :)

Love,
Rebecca

 

Mmpeterson
Posts: 124
Joined: Sep 2016

When you get first diagnosed you feel like your entire world fell apart.  Finding all the ladies here that are going through the same thing is truly a blessing!  I really appreciate all the support from family members and friends because they try to understand but sometimes you just need people to talk to that are going through this.  I thank each and every one for being there when it seems like you just can't keep going.  NED is the glimmer of hope to look forward to.  Hugs and many blessings to all!  Maryanne 

Soup52's picture
Soup52
Posts: 906
Joined: Jan 2016

I'm with you all! No one can understand more completrly what we are going through except the people in this group! I'm so thankful for the support:)

namedropper
Posts: 102
Joined: Dec 2014

I agree too.  I love the way we support each other in good and bad and sad times.  We make a great team and are always there for one another and there is no question that is to small or silly. I thank all of you for being there for me.

   

LindyLu
Posts: 72
Joined: Sep 2016

 I agree with all the others, no one knows what it's like except those who are going through it.  This board is the greatest gift and the women here are The Best!  I don't know how I could have coped without the information you all so freely share.  When I'm having a bad day others are lifting me up and making me strong or giving me permission to grieve my old self.    A BIG Group Hug!!

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

I thank my lucky stars every day that I found this group. You have all helped me in so many ways - especially during frontline treatment. Now that frontline treatment is over, I feel like that best way to repay all of that help is to continue to post and to be there for everyone just starting their journey.  

Scotgirl's picture
Scotgirl
Posts: 31
Joined: Oct 2016

 

This is my very first time posting but I have been reading about you all for a bit of time now. You can read my personal story for the details of my diagnosis (new as of August 15, 2016) Endometrial adenocarcinoma - clear cell, Grade 3 / Stage 1a. I am amazed at how everyone is so positive and strong. I am a very independent, proactive, strong person but somehow right now after 8 hours spent at MSK for consults with chemo oncologist and radiation oncologist along with labs, I am burnt out today and I start chemo this Tuesday, Oct 18 with radiation squeezed in between chemo breaks. Pity party today and I am so angry as well. It seems this diagnosis has taken up every waking moment between my own research, researching what the doctors tell me, arranging appointments, canceling personal appoints because of treatment appointments, missing family events, etc. I am seeing a side of me that I didn't realize existed, I usually just want to take care of business but this cancer business is bringing out the worst in me and I am ashamed that I am so emotional at any given moment. I am hoping once I get this whole thing started I will be back to my fighting self. Thanks for listening, it does help to hear how everyone else copes.

txtrisha55's picture
txtrisha55
Posts: 690
Joined: Apr 2011

It does take you for a loop when first told and you are trying to get your life back the way you had it organized.  Just remember there will be a new normal after it is all over with.  You will never be the same as you were before the diagnosis.  You will see to much, go through to much that you never thought you would go through.  It does change you.  But the bright side is that it does change you for the better.  Little things that use to bother you, no so much anymore.  Your focus goes to the bigger things that mean something to you.  Family, Friends, Living your life to the fullest.  Doing the things that you have put off doing because now we know that life is short.   Been the the valley of the shadow of death and came out on the otherside bruised but thankful we are still here.  I very much appreciate this site.  It saved me a lot of ups and downs when I first signed on back in April 2011.  I am still here NED and I appreciate everyone that is still here and those that have passed because of the cancer.  I miss each of them everyday.  Praying for all. trish

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

Welcome to the club no one ever wanted to,join.  Glad you found us though.  This is a great place to come for support, comfort and information. No questions are off limits.  It is also a good place to vent, we understand.

Hugs and prayers, Lou Ann

EZLiving66's picture
EZLiving66
Posts: 1471
Joined: Oct 2015

Welcome to the group!   If you want more info on me,  you can read my blog.   I'm the poster girl for "What doesn't kill you,  makes you stronger. " LOL

Love, 

Eldri 

DrienneB's picture
DrienneB
Posts: 186
Joined: Aug 2013

This is a wonderful place for support and information. Hoping you will be able to just breathe and walk through each day as it presents itself. Yep, the other stuff might have to go by the wayside, you'll do what you have to, to survive. Hey, there will be enough time for your fighting self to get her game on.

-j

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

So sorry you have to join us, but I'm glad that the board has already been of some help to you.  Adjusting to the "new" normal is not a linear progression.  We all have our "pity party" days and yes, our angry, defiant days too.  The beginning of the journey is the most stressful, as you are discovering.  Appointments, differing professional opinions, options, research...  it is almost overwhelming at the beginning.  But once you get started, things will kind of smooth out.  Sounds weird, but it seems to be true for most of us.

If you haven't already, check out the thread titled "Ladies Going Through Chemo. http://csn.cancer.org/node/296461

There's a lot of good information there about what to expect and what some of us did to deal with the side effects.

And be gentle with yourself.  This diagnosis is not an easy thing to hear, and our psyches certainly take a hit.  But you will deal with it and you will discover that you are indeed stronger than you know.

Chris

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

I agree that this is a great place to come to.  I am thankful for all the wonderful ladies here that a willing to give their time, advice, and comfort to each of us.  I wish I had found this site at the beginning of my rollercoaster ride.  Even though I had the support of family and freinds, it is not like having someone who knows exactly what you are going through.  Thank you ladies.

Hugs and prayers, Lou Ann

janaes
Posts: 800
Joined: May 2016

Scotgirl, welcome to our forum.  Its hard to want to be here because no one wants cancer but itssuch a wonderful place for support.  Im glad you reached out for support because you can definetly find it here. I will be thinking of you with your upcomming chemo treatments next week. 

Hugs, janae

Soup52's picture
Soup52
Posts: 906
Joined: Jan 2016

Welcome Scotgirl! So sorry you have to go through these treatments. I too am clear cell stage 3c. I've been through surgery, radiation external and internal and 6 rounds of carbo/taxol. Yes, it is rough but you can do it. We will be here to support you in the journey!

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Scotgirl, you will get back to your fighting self but it's going to take time. Allow yourself to take that time. This is a life-threatening disease. Imagine if you had been in a serious car accident and were in a hospital bed fighting for your life. Would you beat yourself up about it? No, of course not! This is really no different. Whatever you are feeling is real. Acknowledge that you're feeling it and then get on with whatever it is that you need to be doing. You will make it through this rough patch and we will be here to help in whatever way we can. Wishing you strength and peace, Kim

SettledSue's picture
SettledSue
Posts: 55
Joined: May 2012

One of the best things about coming here is finding out about so many people doing so much better than the research you do on the Internet would lead you to expect. Also valuable is finding out what side effects you might experience and what to do about them. 

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