It's back!

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  • Trubrit
    Trubrit Member Posts: 5,796 Member
    edited September 2016 #22
    abrub said:

    MRI

    No symptoms. My dr was just saying "one more clean scan and we'll throw you out for good."  Didn't quite reach that point.  Now I'll never be thrown out for good.

    Alice

    Don't throw the baby out with the bath water

    I think I would rather keep on having the scans than be thrown out and then have it come back. 

    We grumble about all of the radiation and such running through our bodies, but the alternative is very scary. 

    I am so glad they found the little beastie now.  

    SUE

  • marbleotis
    marbleotis Member Posts: 720 Member
    edited September 2016 #23
    Oh NO!

    Alice,

    I am soooooooo sorry.  When I saw this I thought oh-s$$t.  My heart and prayers go out to you.  I send you good thoughts and extra energy.

    And yes, cancer really sucks!

  • abrub
    abrub Member Posts: 2,174 Member
    Trubrit said:

    Don't throw the baby out with the bath water

    I think I would rather keep on having the scans than be thrown out and then have it come back. 

    We grumble about all of the radiation and such running through our bodies, but the alternative is very scary. 

    I am so glad they found the little beastie now.  

    SUE

    Scans for life now.  (Better

    Scans for life now.  (Better be lots and lots more annual scans!)

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    abrub said:

    Scans for life now.  (Better

    Scans for life now.  (Better be lots and lots more annual scans!)

    I'm actually going to contact my doc this week

    and ask about this.  I haven't had any scans for a couple of years, and I know he doesn't want me to keep having PETs (the only kind that worked for me), but...this freaks me out, tbh.  My cancer was an odd fast-growing type, but you just never know with cancer.  It seems to be able to do just about anything.

    Keep us posted about your surgery, will be thinking of you.

     

  • abrub
    abrub Member Posts: 2,174 Member

    I'm actually going to contact my doc this week

    and ask about this.  I haven't had any scans for a couple of years, and I know he doesn't want me to keep having PETs (the only kind that worked for me), but...this freaks me out, tbh.  My cancer was an odd fast-growing type, but you just never know with cancer.  It seems to be able to do just about anything.

    Keep us posted about your surgery, will be thinking of you.

     

    Scans...

    I only had one PET scan, and that was at the request of an oncologist who didn't know Appendix cancer.  Since then, it's always been CTs, until a couple of years ago when we switched to MRIs to avoid radiation.  I had an MRI this time, and my dr told me that because I have a soft mucinous tumor, it actually shows better on an MRI.  That being said, he is sending me for a CT next week.

    Of note, mine is a very slow growing tumor.  Dr. Paty thinks that the new tumor has been growing from a rogue cell that was left behind 9 years ago.

    But with my new history, I don't see them ever discontinuing my scans.  I've been on 18 month scans for about 4 1/2 years.  I'm sure the frequency will now be bumped up, at least for a few years.  All very frustrating, but at least the prognosis looks good.  I'll keep everyone posted.  Dr's appointments and CT scan this Thursday and Friday (and next Friday).  Too many drs!

    Alice

  • Helen321
    Helen321 Member Posts: 1,459 Member
    Holy crap!!!!!! I just

    Holy crap!!!!!! I just decided to pop on for a day. No freaking way!  I'm sorry that just freaking stinks.  Get it out and get back to life.  Ugh I demand a recount!  

  • Phil64
    Phil64 Member Posts: 838 Member
    :-(

    I just popped in to see what's up. This is not what I wanted to read. Praying it is isolated and you are soon on another extended NED. 

    Love and Light to you.

  • DD3
    DD3 Member Posts: 136 Member
    well

    that's &%$#@#!!!.  I just popped in and seen this.  I'm so sorry. Thoughts and prayers your way.

  • RetiredNellie
    RetiredNellie Member Posts: 14
    edited September 2016 #30
    Alice,

    Alice,

    I believe you have had your surgery and am just letting you know you have and will continue to be in my thoughts and prayers.  Take care.

    sincerely, Sharon

  • abrub
    abrub Member Posts: 2,174 Member
    edited September 2016 #31

    Alice,

    Alice,

    I believe you have had your surgery and am just letting you know you have and will continue to be in my thoughts and prayers.  Take care.

    sincerely, Sharon

    Not yet

    This round of surgery (#4) is in 2 weeks.  Thank you.

  • danker
    danker Member Posts: 1,276 Member
    abrub said:

    Not yet

    This round of surgery (#4) is in 2 weeks.  Thank you.

    Time

    After 6 yrs NED, I thought I was safe.  You are proof that we never are!!  Hope all goes well for you!!! Good luck!

  • RetiredNellie
    RetiredNellie Member Posts: 14
    abrub said:

    Not yet

    This round of surgery (#4) is in 2 weeks.  Thank you.

    Sorry I got the date wrong.

    Sorry I got the date wrong. but you will continue in my thoughts and prayers!

    sincerely,

    Sharon

  • UncleBuddy
    UncleBuddy Member Posts: 1,019 Member
    Nooo!

    I'm so sorry to hear this! I hope they can zap it quickly.

    Lin