CheeseQueen checking inn
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Cheese Queen Update
Well I saw my oncologist yesterday. I don't need to make up last week's chemo. But before I got chemo yesterday, she questioned whether I wanted to continue (12 out of 17) despite the rather dismal results generally of chemo. Now I knew the chemo had a 50/50 chance of working. But I really didn't hear from that her, that's been my research. Something with hearing her speak of dismal results, for some reason, really upset my husband and me. But I'll get over it. i plan to be in that upside of 50! It's just been a little hard to get my balance
We had a nice talk with the fellow regarding anticoagulant therapy and I'm feeling much more comfortable with the Eliquis the cardiologist is recommending.
What a way for my husband to celebrate his 60th birthday. I guess he really meant "in sickness and in health." Bless his heart
Thanks for all your love and support. You make me have hope
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Hey Cheese,
Hey Cheese,
Great attitude! I'm glad you are feeling more comfortable with your recommended meds.
We celebrated my husband's 60th birthday last November when I was doing chemo. And, Christmas with my last chemo treatment. You know... it is all just small stuff in the overall scheme of life. I feel like I did everything I could to beat the odds and have the opportunity to celebrate many more. Sounds like you are doing the same. :-)
I hope you continue to heal.
Love and Hugs,
Cindi
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It's always a bit of a surpriseCheeseQueen57 said:Cheese Queen Update
Well I saw my oncologist yesterday. I don't need to make up last week's chemo. But before I got chemo yesterday, she questioned whether I wanted to continue (12 out of 17) despite the rather dismal results generally of chemo. Now I knew the chemo had a 50/50 chance of working. But I really didn't hear from that her, that's been my research. Something with hearing her speak of dismal results, for some reason, really upset my husband and me. But I'll get over it. i plan to be in that upside of 50! It's just been a little hard to get my balance
We had a nice talk with the fellow regarding anticoagulant therapy and I'm feeling much more comfortable with the Eliquis the cardiologist is recommending.
What a way for my husband to celebrate his 60th birthday. I guess he really meant "in sickness and in health." Bless his heart
Thanks for all your love and support. You make me have hope
CQ, it's always a bit of a surprise when your doctor tells you something about treatment that they hadn't before, isn't it? In the last appointment before my last round of chemo, mine said that "either this will work or it won't - it's 100% or 0%." I just about fell out of my chair. He had always spoken more optimisticly to me before. I'm so very glad that he hadn't said that in the beginning because I'm not sure how I would have reacted. Good news is that it seems to have worked 100% for me. I know that your treatments will work for you, too. Keep fighting and wish your hubby a very happy birthday! Kim
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You guys are great
Thanks for the encouragement! Soldier on my comrades!
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With Stage II, Grade 3 UPSC,
With Stage II, Grade 3 UPSC, my oncologist, Mr. Fun, gave me a 50/50 chance the surgery had cured me and with six chemos, he said 80 to 90%. I don't think he was sugar coating anything because he sure isn't a sugar-coater - he hardly says a word to me much less something encouraging.
Yeesh, we go through enough without a doctor being so negative!!
Love,
Eldri
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Not asking, not looking
I know I have advanced high grade cancer, so I think I'm happier not knowing my odds on recurrance becuase I know I'm high risk, irregardless. I'm learning more about everything else, but odds aren't written in stone and would only make living with this harder. Sometimes ignorance is bliss and I want to focus on the positive and not worry about what I can't change at this point. I get a lot of good, positive energy from this website hearing how others are NED even when more advanced or agressive than what I have and it keeps me looking forward rather than feeling sorry for myself. Thank you everyone!
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MAMAbound said:Not asking, not looking
I know I have advanced high grade cancer, so I think I'm happier not knowing my odds on recurrance becuase I know I'm high risk, irregardless. I'm learning more about everything else, but odds aren't written in stone and would only make living with this harder. Sometimes ignorance is bliss and I want to focus on the positive and not worry about what I can't change at this point. I get a lot of good, positive energy from this website hearing how others are NED even when more advanced or agressive than what I have and it keeps me looking forward rather than feeling sorry for myself. Thank you everyone!
You are a class act and I like your thinking. No matter what the odds makers come up with there still a win margin and that is where we will be, regardless of their modern math. We are winners.
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I'm with you soup
My attitude exactly!
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Update
Well, while driving back from the shore on Monday I had an episode of my left eye going blind, only for a few seconds. Apparently this is a big problem because it landed me in the hospital for observation. So I've been in 24 hours waiting for the results. Poop! Also had to miss my 14th chemo today as s result. Those of you that missed some weekly chemo treatments, how was that handled! I've had to miss 2 so far. Doctor said I didn't have to make up the other one but curious how this one will be handled.
Hanging in there!
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Update
CQ - holy cow - that sounds so scary! Glad to hear that you went right to the hospital. Hopefully the results you receive give you good news. I'm not sure about missing the chemo treatments but I'm sure the others will be able to help with that. Wishing you good news and a speedy recovery, Kim
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I'm so sorry to hear aboutCheeseQueen57 said:Update
Well, while driving back from the shore on Monday I had an episode of my left eye going blind, only for a few seconds. Apparently this is a big problem because it landed me in the hospital for observation. So I've been in 24 hours waiting for the results. Poop! Also had to miss my 14th chemo today as s result. Those of you that missed some weekly chemo treatments, how was that handled! I've had to miss 2 so far. Doctor said I didn't have to make up the other one but curious how this one will be handled.
Hanging in there!
I'm so sorry to hear about your eye!!! Please let us know what the doctor says. Hopefully it's nothing but best to get it all checked out, that's for sure!
Love,
Eldri
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Hang in there
Hoping you get good news soon!
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So sorryCheeseQueen57 said:Update
Well, while driving back from the shore on Monday I had an episode of my left eye going blind, only for a few seconds. Apparently this is a big problem because it landed me in the hospital for observation. So I've been in 24 hours waiting for the results. Poop! Also had to miss my 14th chemo today as s result. Those of you that missed some weekly chemo treatments, how was that handled! I've had to miss 2 so far. Doctor said I didn't have to make up the other one but curious how this one will be handled.
Hanging in there!
you have really been having a rough time. My heart and prayers go out to you.
I missed some chemo times because of bad blood reports. Mostly low platelets. With that they just rescheduled for the next week and every thing was alright. Lou Ann
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So sorry to hear this. YouCheeseQueen57 said:Update
Well, while driving back from the shore on Monday I had an episode of my left eye going blind, only for a few seconds. Apparently this is a big problem because it landed me in the hospital for observation. So I've been in 24 hours waiting for the results. Poop! Also had to miss my 14th chemo today as s result. Those of you that missed some weekly chemo treatments, how was that handled! I've had to miss 2 so far. Doctor said I didn't have to make up the other one but curious how this one will be handled.
Hanging in there!
So sorry to hear this. You have had a really rough time lately. Hang in there. My heart and prayers are with you.
i had several chemo treatments postponed because of poor blood reports. Mostly low platelets. They just scheduled them for the next week. It got so bad that they just started scheduling them for 4 weeks instead of every three. Every thing worked out fine. Lou Ann
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How are you now, Cheese.
A few weeks after my DiVinci surgery my husband had a large stroke in his cerebellum. Cerebellum strokes are rare and with No neurologists in our small town it took us a while to gain an understanding of his status. He has none of the risk factors and all scans were clear. He was referred to a cardiologist thinking possible Afib (the trendy diagnosis for our age cohort) but cardiologist can find "no evidence of disease." He is now wearing a heart monitor all day for a month to see if he has "silent Afib." All this to say that with time the swelling in his cerebellum is reduced, the pressure on his brain stem removed, and almost all of his functioning has returned - just some leftover equilibrium and balance issues. And some lost stamina. I'm hoping that before Halloween you will discover that your awesome brain has compensated for the injury and ALL YOU ARE DEALING WITH IS CANCER. Nuff said.
Mary Ann
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Update
Well, I'm out of the hospital. The neurologist said it was not a new stroke and after holding Eliquis, they started it again. Bt she explained to me that it can't stop all clots, just most so I can suffer clots in the future. And she confirmed what Eldri said that a diagnosis of cancer (not the treatment) makes you more prone to clots. Great! So will be looking over my shoulder for cancer and a stroke always. This sucks. But trying to take one day at a time. She says I need to see opthamologist too to see if it is eye related.
Needless to say, I missed this week's chemo which I'm none to happy about. And as wonderful as Fox Chase is, I hate their out patient call center and I will be lodging a complaint to the higher ups tomorrow about how bad it sucks. My surgeons have given me their personal cell to reach me, but my oncologist forces you to go through the call center. This has not been acceptable and I am going to tell her that in my next appointment in addition to making a formal complaint. When you are in a life and death situation, as we all are, you need to be able to reach your doctor. This was even during normal business hours. Thank God for my PCP friend who lives across the street who has always been there for me.
On a happier note, my son will be moving up from Orlando this weekend to the DC area which is only a couple hours from me and my husband let me get season tickets to Maryland football games so we can go with my son to the football games. My son went to Maryland and I going to a Big 10 school (MSU) enjoy college football. Maryland even plays MSU at home-a bonus for me. So I have to get well enough to enjoy this time!
Thanks for ypur support ladies! It means the world to me. Now if I just could get some sleep!
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