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What cancer patients, their families, and caregivers need to know about COVID-19.

Updating Bio Information

todd121's picture
todd121
Posts: 1425
Joined: Dec 2012

I'd like to make a plug for keeping your bio information up-to-date. Please take a moment and do this. It can save all of us a lot of time. You, when posting, you don't have to repeat all your history. The rest of us can go read about your condition and history without asking lots of questions. It's just an all-around good idea. It helps everyone to give you the best comments/advice if we know your history.

Regards,

Todd

medic1971's picture
medic1971
Posts: 192
Joined: Sep 2015

Hey Todd do you know if CSN fix the issue they were having where your "About Me" page would disappear?

 

Jason

todd121's picture
todd121
Posts: 1425
Joined: Dec 2012

I didn't even know they had that problem. In any case, the problem I'm having is seeing people's "About Me" but it hasn't been updated in 3 years. :)

I find the page very useful. I'm in and out here and sometimes I miss the historical posts where people explained their situation, then I catch a post and I'm not at all clear what their treatement history has been. I like to go there first before asking questions.

This reminds me of Texas Wedge. He was all about us helping to keep the number of posts down and the amount of useful information maximized, and things collected on certain threads. We've gone a little crazy since he left us. Thinking of him and missing seeing him here.

Todd

 

APny's picture
APny
Posts: 1969
Joined: Mar 2014

I just updated and it seems to be staying put.

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

Morosa just brought this up a couple weeks back. It seems the site was dropping a lot of updates. Others just haven't submitted info.

medic1971's picture
medic1971
Posts: 192
Joined: Sep 2015

I'll try it again, maybe third time will be the charm 

blueangel61's picture
blueangel61
Posts: 1
Joined: Jun 2016

Hi. I just need some answers please can you help. In 2013 i was told through a ct scan to come straight to hospital and that Dr wanted to talk to me about the results of the scan .I went along with my sister and got some bad news ,there is a large blood clot inside of my aorta ,ihave a severly damaged heart valve (where they think the clot came from) I have cancerous nodules on my lungs along with copd and enphysema ,my lungs are just horrendous and then there was this tumor on my kidney . Ok long story short.Went to hospital to see renal Dr and he sat myself and my sister down and said in these very words .Ok ms parks,your a very sick lady and wee have to get all these other things sorted before we can do anything about the cancer. Gasp!!!! I looked around at my sister and silently swore F... Sake Cancer,My sister then asked the Dr saying excuse me Dr did you say my sister had cancer,yes,yes cancer in the kidneys,he then proceeded to show us on screen where it was. and then said we have about less than a year to get all the information back from all the other Dr's about the heart and lungs esp as you will prob need an operation.He got up and said right then ,I will see you soon in the meantime the McMillan nurses will guide you through it.They were waiting on us to come out and obviously they new before i went in.Cut short again. About 4 weeks ltr i had to go see another Dr who was gonna be doing the op,he told me and my sister they will try to burn it off first but said he wanted another scan done and this time it was an ultra sound. My sister asked this Dr again ,is it def cancer my sis has Dr yes it is ,well what else can it be and i said why,because it's on my kidney ,he said well yes. He did the scan about 2 weeks ltr and 2 days after that he sent a letter to my house saying .Great news Ms Parks it's not cancer,we think it's a cyst with some fluid inside and we tend to leave them.OMG!!!!!! After having to try and tell my family and all my friends how do i now tell them what has just happened. By letter to.No apologies or nothing.Ok fast forward again its now 2016 and i lost my sister the same yr i was told i had the cancer 2013. and i have been so very ill since then and before her death.I cant walk now with the pain and my breathing and was rushed into hospital a few months back where they did another scan on my chest and lungs.Dr now telling me i have holes in my lungs now and there is a massive hernia in my stomach that is over the clot and it's the size of a beach ball and nobody will touch me to operate because they said if i go into theatre i won't come back out I stopped smoking then because i was so ill and didn't even want a cig. Ok i am back home and get terrible pains in my stomach ,the Ulcerative Colitis is playing up,i never get a rest from pain .Back at Dr this time Dr wants a scan of my abdomen as he is sure there is fluid in the abdoman . Scan takes place results are in Dr sends for me . I now have 5 of these lesions on my kidney and one is 23mm a massive enlarged liver and gall stones in the gall bladder. I am in such a bad way and i don't know anymore even my family Dr has said with everything i have wrong with me i shouldn't even be here. Where do i go now and these kidneys need to be scanned again to see if there is any cancer there . Where do i start as i asked my Dr saying All these things ,there not good are they,he said well i think you know that yourself Christine. I am lost. x x

 

icemantoo's picture
icemantoo
Posts: 3242
Joined: Jan 2010

Blue angel.

 

All of us on this board have had the kidney cancer and surgery . Mine was almost 14 years  ago. At 2.3 cm even with other smaller tumors on the same kidney it is nearly 100% curable from surgery. Hopefully the other issues can be resolved.

 

 

Icemantoo

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