Mammograms and Ports

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  • brissance
    brissance Member Posts: 192
    Soup52 said:

    Yes, I had my port put in at

    Yes, I had my port put in at the hospital under conscious sedation, so no pain for me. I decided that I wouldn't try to hide it. If it shows with what I'm wearing, I won't worry about it:)

    Port

    Mine shows too and has several "broken veins" framing it.  I live in Southern California and the weather has gotten a bit beyond warm.  I decided I am wearing my "cool" shirts even if the port shows...   Daughter suggest a tattoo of a "butterfly" with the veins be part of the wings...  It hasn't bothered me.  No one has stared.  I am envious of the wig...  My head apparrently is "LARGE"... guess I have a big head.  Have not found one I like that fits.  Wearing one but more often wear my golf hat...  Will keep looking for the right one.  

    It is hard to remain a sex symbol and go through cancer treatment but  I am endeavoring to accomplish this..  (Honestly I found that I could be an identical twin of my older brother if I had facial hair - and he is a very masculine he-man type.  We often laugh about what a difference the hair made).

     

  • Kvdyson
    Kvdyson Member Posts: 789
    Charissa said:

    Oh my goodness, ladies. What

    Oh my goodness, ladies. What is the port? Am I going to have to have one of these too for chemo treatment? Is it difficult and painful to put in? Where exactly is it? I thought they just injected us through a vein in the arm? I am so ignorant to all of this.

    I'm also still awaiting my pathology report. I called yesterday (Monday - three weeks since my DaVinci hysterectomy) and they said it showed pending in the computer system. Not sure if that is good news or bad news?  I meet with my oncologist this Thursday the 9th. I will have all the information then and will share it with all of you, as I'm sure I will have lots of questions.

    Thank you, ladies, for being so active in checking and replying so quickly to messages. I get busy with my girls and family and can't get on here every day. But, I have gained so much knowledge through all of you and am comforted to know you are always here. Love and hugs to all.

    Port and Pathology Report

    Hi Charissa, my port is in my chest near my collarbone - sort of where my bra strap rests. Mine in on the left side. I had outpatient surgery to have it placed and was under twilight anesthia. It's a life saver since I have small veins and day 1 of my 3 day treatments lasted 8 hours. 

    Does your hospital or doctor have an online portal? I was able to access my pathology report from my hospital portal before I saw my gyn-onc for my first follow-up appointment after surgery. It helped me be ready with a list of relevant questions about my specific type and stage of cancer.

    Also, I always brought a tape recorder with me to those "important" appointments since the amount of information could be a bit overwhelming. I listened to one of the recordings the other day and realized that my memory of that conversation was quite a bit different that the actual thing.

    Good luck on our appointment Thursday and let us know how it goes. Kim  

  • CheeseQueen57
    CheeseQueen57 Member Posts: 933 Member

    Keep in mind, some facilities do not allow audio or video recording. Where I go, Fox Chase, does not allow this. But you could certainly take notes. 

  • EZLiving66
    EZLiving66 Member Posts: 1,482 Member
    edited June 2016 #25
    DrienneB said:

    Xray of Port Paraphernalia

    Trish I would have loved to have seen that Xray! I got a great big kick out of seeing the outline of the tube at my jugular vein. I developed a red rash outlining that part. Did not think to have my port saved or to ask to see its image while inside. My port area was always black and blue, as I suspect everyone's is. I am glad that my mother encouraged me to have it out when I was done. I just hit the 3-year mark last month. Believe it or not, though, my scar in that place is still red and sore. It's a big keloid. Yuck.

    Did you ever get hugged by a man who had sunglasses hanging in his front shirt pocket? OUCHHH.

    -j

    I love this site!!  I thought

    I love this site!!  I thought I was the only one with a port scar that still hurts.  Sometimes when I move during the night, the pain wakes me up.  I think it's because the scar tissue is so tight, the skin pulls.  I'm faithfully putting that scar cream on it and it's not as purple as it was before.  I usually wear a sleeveless t-shirt under my other summer shirts.  Luckily it's been pretty cool here this spring.  (I was just feeling it right now and I had some cheese stuck on my chest from my enchillada from supper - crimney crickets, what next??)  

    Love,

    Eldri

  • EZLiving66
    EZLiving66 Member Posts: 1,482 Member
    brissance said:

    Port

    Mine shows too and has several "broken veins" framing it.  I live in Southern California and the weather has gotten a bit beyond warm.  I decided I am wearing my "cool" shirts even if the port shows...   Daughter suggest a tattoo of a "butterfly" with the veins be part of the wings...  It hasn't bothered me.  No one has stared.  I am envious of the wig...  My head apparrently is "LARGE"... guess I have a big head.  Have not found one I like that fits.  Wearing one but more often wear my golf hat...  Will keep looking for the right one.  

    It is hard to remain a sex symbol and go through cancer treatment but  I am endeavoring to accomplish this..  (Honestly I found that I could be an identical twin of my older brother if I had facial hair - and he is a very masculine he-man type.  We often laugh about what a difference the hair made).

     

    I have a big giant head too

    I have a big giant head too and found some "large" size wigs at Paula Young that were a real good fit.  I've been going a la naturale lately and finding that I really like it.  I've never worn my hair short but it's so easy to take care of.  I can wash and dry it in five minutes.  So, party on, sex symbol, Patty!!!  LOL

    Love,

    Eldri

  • brissance
    brissance Member Posts: 192

    I have a big giant head too

    I have a big giant head too and found some "large" size wigs at Paula Young that were a real good fit.  I've been going a la naturale lately and finding that I really like it.  I've never worn my hair short but it's so easy to take care of.  I can wash and dry it in five minutes.  So, party on, sex symbol, Patty!!!  LOL

    Love,

    Eldri

    Al la Natural.....

    Hmmm...  I like the idea.  At least the head doesn't have wrinkles, no age spots, no broken veins and nothing is sagging!  I wll look into Paula Young wigs tho!  Glad to hear from you Eldri.....

     

  • Charissa
    Charissa Member Posts: 129 Member
    edited June 2016 #28
    You guys are the greatest! I

    You guys are the greatest! I love the sense of humor. I will know tomorrow if a port is recommended. I printed out a list of great questions - Virgil90012 provided the link. Thank you, Kim, for letting me know where yours is and reminding me of the recorder - GREAT idea!  You are too funny brissance. Love your humor and outlook on life and this journey. Nancy, thank you, for your reassurring words. I had NO idea chemo would take that long - 5 hours is crazy. I like the el' natural hair look Eldri. I'm not sure I'm a wig person, so if cold-capping doesn't work, then I may be a bandana wearer. Thank you, CheeseQueen57, we'll take a recorder, with the hopes he will let me use it. My doctor is so compassionate and caring, I can't see him balking at it. Fingers crossed.  Will touch base with all of you fabulous women tomorrow. Love and hugs to each of you!!

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,811 Member

    I love this site!!  I thought

    I love this site!!  I thought I was the only one with a port scar that still hurts.  Sometimes when I move during the night, the pain wakes me up.  I think it's because the scar tissue is so tight, the skin pulls.  I'm faithfully putting that scar cream on it and it's not as purple as it was before.  I usually wear a sleeveless t-shirt under my other summer shirts.  Luckily it's been pretty cool here this spring.  (I was just feeling it right now and I had some cheese stuck on my chest from my enchillada from supper - crimney crickets, what next??)  

    Love,

    Eldri

    Eldri

    It has been about a month since I had my port taken out. And, the area still hurts sometimes. It still feels like it itches on the inside too.

    My scar tissue pulls a bit as well. I was told it will take about a year for that to get back to normal.

    I hope you are feeling better these days!

    Love and Hugs,

    Cindi

  • Charissa said:

    You guys are the greatest! I

    You guys are the greatest! I love the sense of humor. I will know tomorrow if a port is recommended. I printed out a list of great questions - Virgil90012 provided the link. Thank you, Kim, for letting me know where yours is and reminding me of the recorder - GREAT idea!  You are too funny brissance. Love your humor and outlook on life and this journey. Nancy, thank you, for your reassurring words. I had NO idea chemo would take that long - 5 hours is crazy. I like the el' natural hair look Eldri. I'm not sure I'm a wig person, so if cold-capping doesn't work, then I may be a bandana wearer. Thank you, CheeseQueen57, we'll take a recorder, with the hopes he will let me use it. My doctor is so compassionate and caring, I can't see him balking at it. Fingers crossed.  Will touch base with all of you fabulous women tomorrow. Love and hugs to each of you!!

    You're young enough to pull off a do-rag?

    Whatever they're called, they have some stretchy ones with really fun print.  I looked like an old biker chick, (probably more old henish), however they were comfortable.  Whatever you decide, remember, wear or don't wear anything with pride.  You are a symbol of strength and determination to live your life with whatever is thrown at you.  Good luck today Hugs Nancy

  • Editgrl
    Editgrl Member Posts: 903 Member
    unknown said:

    You're young enough to pull off a do-rag?

    Whatever they're called, they have some stretchy ones with really fun print.  I looked like an old biker chick, (probably more old henish), however they were comfortable.  Whatever you decide, remember, wear or don't wear anything with pride.  You are a symbol of strength and determination to live your life with whatever is thrown at you.  Good luck today Hugs Nancy

    I had a couple of do-rags,

    I had a couple of do-rags, really cool ones that a woman on the Facebook group made and sent to whomever wanted one.  And then around Christmas, I think, she sent out more.  I also have some of those pre-tied bandanas that I wore, too.  

  • EZLiving66
    EZLiving66 Member Posts: 1,482 Member

    Eldri

    It has been about a month since I had my port taken out. And, the area still hurts sometimes. It still feels like it itches on the inside too.

    My scar tissue pulls a bit as well. I was told it will take about a year for that to get back to normal.

    I hope you are feeling better these days!

    Love and Hugs,

    Cindi

    Thanks, Cindi!  I am feeling

    Thanks, Cindi!  I am feeling better especially since I went back to working just afternoons.  It was too much to try and work full time.  I have my three month checkup the end of the month and the worry has already set in.  Most of the time, I just push those thoughts away but.....I know you all now what that's like.  We are enjoying our summer.  Last Monday on our way back from the lake house, we spotted two black bears a few miles apart.  Last fall, our cocker spaniel treed a bear in our yard up there.  My husband has been going there since 1958 and he said they NEVER saw bears - the past couple of years, bears are everywhere!  Last summer, there was also wolf track at the end of our driveway.  Now we're VERY careful when we let the dogs out.  I've been going there since 1969 and I never wondered if this would be the last time I'd be there when we drove out of our road.  Now, every time we leave, I think that.  Our lives can turn on a dime!  Sooooo, I'm going to enjoy every day and be grateful for that day.

    Love,

    Eldri

  • EZLiving66
    EZLiving66 Member Posts: 1,482 Member
    Editgrl said:

    I had a couple of do-rags,

    I had a couple of do-rags, really cool ones that a woman on the Facebook group made and sent to whomever wanted one.  And then around Christmas, I think, she sent out more.  I also have some of those pre-tied bandanas that I wore, too.  

    I have a bunch of the pre

    I have a bunch of the pre-tied scarves in solids and patterns that I wore for my physical therapy and really liked them.  I even bought some little fake bangs to wear under the scarf.  I thought I looked pretty natty, if I do say so myself - LOLOLOL!!!  After awhile I thought, who cares??  And besides, I have found that people for the most part are REALLY nice to bald old ladies!!  Ha ha!!!

    Love,

    Eldri

  • brissance
    brissance Member Posts: 192
    edited June 2016 #34
    Will Try

    Have a pre tied "do-rag" that is more than a bit snug but I am actively looking for something nice...  Liking my white fishing hat for everyday...  wear my too tight do rag with it and it is pretty darn stylish..  :)

    Eldri, now that I know you are only 6 months older than I am... I will have to challenge the "old lady" statement.  I would say we are still the life of the party and pretty darn young....   They are nice to you because you deserve it!  

    If you saw Pink Panther and Commissioner Dreyfus, I repeat his mantra, "I am getting stronger everyday!"

  • ConnieSW
    ConnieSW Member Posts: 1,678 Member

    I have a bunch of the pre

    I have a bunch of the pre-tied scarves in solids and patterns that I wore for my physical therapy and really liked them.  I even bought some little fake bangs to wear under the scarf.  I thought I looked pretty natty, if I do say so myself - LOLOLOL!!!  After awhile I thought, who cares??  And besides, I have found that people for the most part are REALLY nice to bald old ladies!!  Ha ha!!!

    Love,

    Eldri

    Your hair

    looks great, Eldri

  • txtrisha55
    txtrisha55 Member Posts: 693 Member
    edited June 2016 #36
    Charissa said:

    Oh my goodness, ladies. What

    Oh my goodness, ladies. What is the port? Am I going to have to have one of these too for chemo treatment? Is it difficult and painful to put in? Where exactly is it? I thought they just injected us through a vein in the arm? I am so ignorant to all of this.

    I'm also still awaiting my pathology report. I called yesterday (Monday - three weeks since my DaVinci hysterectomy) and they said it showed pending in the computer system. Not sure if that is good news or bad news?  I meet with my oncologist this Thursday the 9th. I will have all the information then and will share it with all of you, as I'm sure I will have lots of questions.

    Thank you, ladies, for being so active in checking and replying so quickly to messages. I get busy with my girls and family and can't get on here every day. But, I have gained so much knowledge through all of you and am comforted to know you are always here. Love and hugs to all.

    Go to Google and do a

    Go to Google and do a powewrport. I was going to put a picture in but the system would not let me because it wanted to pull in a hyperlink.   The purple triangle that is surgerally placed under the skin usually above the breast but under the collar bone area and a tube is then inserted into the neck vein and the tube goes all the way done the vein into your heart.  It is so the chemo goes that route which is faster and better than having no port and just a needle put in your arm to get the chemo treatment each week.  I kept mine in for over two years even though I only had to have chemo for 6 treatments.  After which they removed it.