FOLFOX

Just curious how many rounds or cycles or treatments of FOLFOX you have had?  My first cycle will be 6 trestments then scans to see how things are going.

Comments

  • Jaggi
    Jaggi Member Posts: 6
    Number of treatment

    hi, I have been told that I would require 12 treatments. My Oncologist said that he'd evaluate side effects after 8 and decide then. I had my first chemo yesterday snd sent back with 5FU pump. I will go back tomorrow to get it removed. So far no major side effects. I hope it stays that way. God luck in your treatment!

  • JanJan63
    JanJan63 Member Posts: 2,478 Member
    I had 5fu when I was first

    I had 5fu when I was first diagnosed and then folfox after my surgery. I was supposed to have 12 rounds but ended up only having 8 or 9, I can't remember, due to having a blood clot and ending up in the hospital for that. The side effects from the oxypalatin like the neuropathy increased over the course of the treatments and by six treatments it wasn't too bad yet.

    Jan

  • DD3
    DD3 Member Posts: 136 Member
    JanJan63 said:

    I had 5fu when I was first

    I had 5fu when I was first diagnosed and then folfox after my surgery. I was supposed to have 12 rounds but ended up only having 8 or 9, I can't remember, due to having a blood clot and ending up in the hospital for that. The side effects from the oxypalatin like the neuropathy increased over the course of the treatments and by six treatments it wasn't too bad yet.

    Jan

    My wife

    had twelve total treatments.  They cut off Oxy the last two due to nueropathy.  I have remember reading there was a trial going on over in England to see about reducing FOLFOX to 6 treatments instead of the standard 12.  Never heard anything about that again. 

  • JanJan63
    JanJan63 Member Posts: 2,478 Member
    DD3 said:

    My wife

    had twelve total treatments.  They cut off Oxy the last two due to nueropathy.  I have remember reading there was a trial going on over in England to see about reducing FOLFOX to 6 treatments instead of the standard 12.  Never heard anything about that again. 

    Someone posted on here about

    Someone posted on here about 6 months or a year ago that the typical regimen in Europe is six.

  • phuckcancer
    phuckcancer Member Posts: 63 Member
    the DR has told my husband

    the DR has told my husband 4-6 months then redo scans

  • danker
    danker Member Posts: 1,276 Member
    JanJan63 said:

    I had 5fu when I was first

    I had 5fu when I was first diagnosed and then folfox after my surgery. I was supposed to have 12 rounds but ended up only having 8 or 9, I can't remember, due to having a blood clot and ending up in the hospital for that. The side effects from the oxypalatin like the neuropathy increased over the course of the treatments and by six treatments it wasn't too bad yet.

    Jan

    Lucky Me

    I had a chemo pump giving me 1 1/4 ml/hr 24/7 of FU5 for the five weeks I was getting radiation.  Then a six week rest before resection.

    Oncologist wanted more chemo after resection, but surgeon said:"not necessary."  It will soon be 6 years that I am NED!!!  Ah that we should all be so lucky. 

  • Faithandstrength
    Faithandstrength Member Posts: 19
    My mom is scheduled to have

    My mom is scheduled to have 12 rounds of treatment, but after her 6th treatment, that is when they are going to do a pet scan to see how her body is taking in the chemo. 

     She has to go in every two weeks to get chemo and it's a 48 hour process where she takes a pump home for 48 hours. 

  • lizard44
    lizard44 Member Posts: 409 Member
    FOLFOX

    I had eight FOLFOX  plus Avastin treatments.  A scan after the 8th treatment showed improvement  in the  rectal mass and that a  liver lesion had shrunk from 1.5 cm to 1 cm.

  • beaumontdave
    beaumontdave Member Posts: 1,280 Member
    12 Folfox without

    12 Folfox without interruption

  • lou3863
    lou3863 Member Posts: 9
    5FU

    I was told 12 treatments  every 2 weeks for 6 months.  Stage 3 colon cancer, Had 1/2 my colon removed with 19 lymph nodes. They said they got it all but one lymph node had a micro spec of cancer so I have to do this much chemo. Good luck

  • NewHere
    NewHere Member Posts: 1,427 Member
    I had 12

    But the Oncolgist dropped the Ox after 8 treatments with it due to neuropathy.  It was not used in the first one because he maxes the Oxiliplatin at 10 treatments because the incremental benefit is exceeded (in his opinion) by the risk of neuropathy.  Leaving it out of the first round let him see how I reacted to the other parts of the cocktail.  

    There are various studies going on about dropping the treatments to 6 rounds.  I think Japan and some other countries already have gone to 6.  After going through 12 rounds, 6 sounds like a walk in the park ;)

  • vtspa6
    vtspa6 Member Posts: 172
    I suppose it depends on

    I suppose it depends on exactly where the cancer is ect.  My husband had 14 treatments of Folfox and started Folfiri on his 15th treatment.  Just had his 2nd scan should know the results next treatment on the 26th!

  • stevo55
    stevo55 Member Posts: 3
    Jaggi said:

    Number of treatment

    hi, I have been told that I would require 12 treatments. My Oncologist said that he'd evaluate side effects after 8 and decide then. I had my first chemo yesterday snd sent back with 5FU pump. I will go back tomorrow to get it removed. So far no major side effects. I hope it stays that way. God luck in your treatment!

    Clinical Trial

    I am on the clinical trial: 6 infusions of folfox and a celebrex/placebo everyday for 3 years.

  • MS2014
    MS2014 Member Posts: 58
    edited May 2016 #15
    12 Rounds+ 1 year NED + 7 Rounds and counting

    Thats my moms story.

    First 12 rounds, coping with regualr side effects and 1 big allergic reaction on the 12th

    Then after surgery one year NED

    January this year new liver mets and she is in her 7th round (19 th total). No big sympthons now, just ligth neuropathy

    Hope it helps

  • MS2014
    MS2014 Member Posts: 58
    JanJan63 said:

    I had 5fu when I was first

    I had 5fu when I was first diagnosed and then folfox after my surgery. I was supposed to have 12 rounds but ended up only having 8 or 9, I can't remember, due to having a blood clot and ending up in the hospital for that. The side effects from the oxypalatin like the neuropathy increased over the course of the treatments and by six treatments it wasn't too bad yet.

    Jan

    Yes in Europe (at least Spain) it is 12 rounds

    Hi Jan

    In Spain as far as I know (at least my experience till now) is 6 months (12 rounds) of folfox. One every fortnigth

    BR