New and just beginning

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  • ncg007
    ncg007 Member Posts: 138 Member

    I'm doing pretty good

    Love how amazing my husband is, and my in-laws. If it was not for them, I don't think it would of been as easy to get through.  I still have to wait on the staging of my cancer, but for now. I'm just going to consider myself NED. Until I get something  that tells me otherwise, I will think of myself as NED and not worry. If it turns out I still need treatment then I will take that one step at a time. It does no good to worry myself silly. It will just decrease my healing time, and I'm all about returning to be as normal as possible.

    My mother in law is thinking of getting a new car and they were possibly thinking of giving us their other car. My hubby proudly told them, that while he would not look a gift car in the mouth, it was all up to them and no matter what they decided to do with it, he would be happy for them. I can't even begin to describe how amazing the hubby has been. Even with my little ups/downs. And I swear my temper is worse than ever. One moment I'm fine, and the next I feel like a little bit of raving lunatic.

    I have decided to quit taking some of my other meds that my normal doctor prescribes for me, because atm... I don't believe it is in my best health to continue them. And that medicine is the phentermine one. I don't think in my current condition it's a good idea to be taking it. My food input has been relatively low since a few days before surgery. I've only eaten 1-2 times a day because the rest of the time I feel full and kind of nauseous. I've mostly been eating light food like scrambled eggs, and drinking apple juice. It just tastes the best atm. Thank you everyone for your replies, I don't feel so alone when you ladies talk with me. I've been a member on a  few msg boards but this is the one that I always come back to, because you ladies talk to me. And I just feel more relaxed. So thank you!!!

    Tichondria

    Tichondria...happy that you are doing good.  It sounds like you have right attitude in approaching all this mind over matter.  Wishing you a speedy recovery and good results.

    Nancy

  • ConnieSW
    ConnieSW Member Posts: 1,677 Member

    I'm doing pretty good

    Love how amazing my husband is, and my in-laws. If it was not for them, I don't think it would of been as easy to get through.  I still have to wait on the staging of my cancer, but for now. I'm just going to consider myself NED. Until I get something  that tells me otherwise, I will think of myself as NED and not worry. If it turns out I still need treatment then I will take that one step at a time. It does no good to worry myself silly. It will just decrease my healing time, and I'm all about returning to be as normal as possible.

    My mother in law is thinking of getting a new car and they were possibly thinking of giving us their other car. My hubby proudly told them, that while he would not look a gift car in the mouth, it was all up to them and no matter what they decided to do with it, he would be happy for them. I can't even begin to describe how amazing the hubby has been. Even with my little ups/downs. And I swear my temper is worse than ever. One moment I'm fine, and the next I feel like a little bit of raving lunatic.

    I have decided to quit taking some of my other meds that my normal doctor prescribes for me, because atm... I don't believe it is in my best health to continue them. And that medicine is the phentermine one. I don't think in my current condition it's a good idea to be taking it. My food input has been relatively low since a few days before surgery. I've only eaten 1-2 times a day because the rest of the time I feel full and kind of nauseous. I've mostly been eating light food like scrambled eggs, and drinking apple juice. It just tastes the best atm. Thank you everyone for your replies, I don't feel so alone when you ladies talk with me. I've been a member on a  few msg boards but this is the one that I always come back to, because you ladies talk to me. And I just feel more relaxed. So thank you!!!

    Call your dr

    before stopping your phentermine.  I looked it up and it SHOULD NOT BE STOPPED ABRUPTLY.  It needs to be tapered off.  Also check about any other meds you are taking before stopping them.  Your pharmacist is another good resource.

    i've taught people to self  cath and it is awkward, especially for women.  You need to watch ( with a mirror) and then give a return demonstration when its time to do it again.  Depending on your anatomy (we all differ a bit) it can be downright challenging.  Also if your technique isn't good, you can give yourself a UTI.  Usually it's used for someone who needs to do this long term.  Anyway, it would have taken a lot more effort than an extra night in the hospital was worth. 

    When you get your form to evaluate your care, I would mention the catheter bag not being emptied.  the exploding bag would have been the least of your problems.  Serious consequences could happen if no one noticed if it wasn't draining properly.

     

     

  • EZLiving66
    EZLiving66 Member Posts: 1,482 Member

    I'm doing pretty good

    Love how amazing my husband is, and my in-laws. If it was not for them, I don't think it would of been as easy to get through.  I still have to wait on the staging of my cancer, but for now. I'm just going to consider myself NED. Until I get something  that tells me otherwise, I will think of myself as NED and not worry. If it turns out I still need treatment then I will take that one step at a time. It does no good to worry myself silly. It will just decrease my healing time, and I'm all about returning to be as normal as possible.

    My mother in law is thinking of getting a new car and they were possibly thinking of giving us their other car. My hubby proudly told them, that while he would not look a gift car in the mouth, it was all up to them and no matter what they decided to do with it, he would be happy for them. I can't even begin to describe how amazing the hubby has been. Even with my little ups/downs. And I swear my temper is worse than ever. One moment I'm fine, and the next I feel like a little bit of raving lunatic.

    I have decided to quit taking some of my other meds that my normal doctor prescribes for me, because atm... I don't believe it is in my best health to continue them. And that medicine is the phentermine one. I don't think in my current condition it's a good idea to be taking it. My food input has been relatively low since a few days before surgery. I've only eaten 1-2 times a day because the rest of the time I feel full and kind of nauseous. I've mostly been eating light food like scrambled eggs, and drinking apple juice. It just tastes the best atm. Thank you everyone for your replies, I don't feel so alone when you ladies talk with me. I've been a member on a  few msg boards but this is the one that I always come back to, because you ladies talk to me. And I just feel more relaxed. So thank you!!!

    I agree with you - consider

    I agree with you - consider yourself NED unless told otherwise.  Even if chemo and/or radiation is recommended, if it's only to prevent a possible recurrence, you're still NED.  I also agree to be careful going off any medication.  Our 41 year old daughter stopped taking one of her meds - not by choice; she had run out and couldn't get into her doctor for two weeks.  She had terrible withdrawl symptoms but thought she had the flu and ended up in the emergency room.

    I'm glad to hear you have so much support.  I don't know what I would have done without my husband.  Over our 47 years together, I've pretty much taken care of most things but he stepped right in even changing the bed (althought he put one of the pillow cases and the bottom fitted sheet on inside out - LOL).

    Let us know how you're doing.  We're her for you!

    Love,

    Eldri

  • Editgrl
    Editgrl Member Posts: 903 Member

    Would love to add you all

    I would like nothing more than to add all you wonderful people as friends, but I'm not sure how to do that? I would like to be able to follow you all and see how you all are doing as well.

    Friends

    There may be an easier way to do this, but I haven't found it yet.  You can search for members by their user name at the top right of the page.  When they pop up, there is an "Add Friend" option.  Click on that and it will send a friend request.

    In addition, if a user has created info on their "About Me" page, it will show up if you click on their name.  It's a great way to share info about our own particular journey.  

    Chris

  • Tichondria
    Tichondria Member Posts: 39
    ConnieSW said:

    Call your dr

    before stopping your phentermine.  I looked it up and it SHOULD NOT BE STOPPED ABRUPTLY.  It needs to be tapered off.  Also check about any other meds you are taking before stopping them.  Your pharmacist is another good resource.

    i've taught people to self  cath and it is awkward, especially for women.  You need to watch ( with a mirror) and then give a return demonstration when its time to do it again.  Depending on your anatomy (we all differ a bit) it can be downright challenging.  Also if your technique isn't good, you can give yourself a UTI.  Usually it's used for someone who needs to do this long term.  Anyway, it would have taken a lot more effort than an extra night in the hospital was worth. 

    When you get your form to evaluate your care, I would mention the catheter bag not being emptied.  the exploding bag would have been the least of your problems.  Serious consequences could happen if no one noticed if it wasn't draining properly.

     

     

    Actually I had already

    Actually I had already stopped it about a week before my surgery and I just have not started up again. Only because  my blood pressure was doing great in the hospital without it, and I know taking it, my BP has been like 190/102 and higher. But for stopping slowly I did  that, tapered myself off a week before surgery because they told me i couldn't have it. Then just never restarted. I hope I do get a form to evaluate my care, there are 2 nurses and 1 cna that I will give glowing recommendations for. The other ones, not so much. I understand cna's can get busy/bogged down when they get 15+ patients however the nurses only had 5... So I don't think they have an excuse. And then I watched a cna mark off that she seen me on the board when she didn't do anything the first night. So I'm going to comment about that.

     

    It's my opinion, if you want to be a cna, you need to do your work or at least touch base with your patients. Not completely ignore  them and then make a mark saying you did vitals when you didn't. That is just bad news and more times then not gets people in trouble. I used to be a cna, I never once said I did something when I didn't so when something didn't get done, I owened up to it. But I also didn't wait till end of shift to advise I had not done anything either, I let my nurses know if I was getting behind. But then again, I worked in a nursing home where CNAs get 35+ patients sometimes 15 patients and I would of thought I was on the easy path.

  • Tichondria
    Tichondria Member Posts: 39
    Not feeling so great today

    Been nauseous all day today. Got up this morning and thought I was going to loose my apple juice but after one dry heave it just stopped and settled down. Then I got up a little bit ago and I'm sitting here at the computer desk instead of using laptop and my nausea level is at an all time high today :( It is just not settling down very well. I might have to call my normal gyno and see if he will prescribe me some anti nausea meds. Because I am just having a really hard time today. Perhaps I'm over doing  it but I didn't feel like I was. I'm not eating any really heavy foods. I had 1 small salad (when my nasuea first acted up) then 2 chili dogs (yeah I know.. worse thing to eat but when I burp it's not them I'm tasting.. I still taste that dumb salad.. sorry for the not so pretty details.) But I'm hoping I didn't get sick from eating that salad. I know spinich and stuff can go bad, but it wasn't slimy and didn't look bad, but ever since eating it.. I've just felt horrible :(

  • Soup52
    Soup52 Member Posts: 908 Member
    Welcome! I don't know how I

    Welcome! I don't know how I missed your posts except I'm out of town right now. I hope you will encounter better nurses in the future. The ones at my cancer center are fabulous. You will get plenty of support on this board. It is the best. I've tried other boards, but it doesn't seem like people participate on a regular basis. Looking forward to hearing about your progress.

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,811 Member

    Not feeling so great today

    Been nauseous all day today. Got up this morning and thought I was going to loose my apple juice but after one dry heave it just stopped and settled down. Then I got up a little bit ago and I'm sitting here at the computer desk instead of using laptop and my nausea level is at an all time high today :( It is just not settling down very well. I might have to call my normal gyno and see if he will prescribe me some anti nausea meds. Because I am just having a really hard time today. Perhaps I'm over doing  it but I didn't feel like I was. I'm not eating any really heavy foods. I had 1 small salad (when my nasuea first acted up) then 2 chili dogs (yeah I know.. worse thing to eat but when I burp it's not them I'm tasting.. I still taste that dumb salad.. sorry for the not so pretty details.) But I'm hoping I didn't get sick from eating that salad. I know spinich and stuff can go bad, but it wasn't slimy and didn't look bad, but ever since eating it.. I've just felt horrible :(

    Tich

    Definitely call the doc and get some medicine. The anti-nausea pills they gave me for chemo worked well.

    Also, you might want to try the brat diet (bannanas, rice, applesauce, toast) for a few days and see if that helps.

    I hope you feel better soon!

    Love and Hugs,

    Cindi

  • EZLiving66
    EZLiving66 Member Posts: 1,482 Member

    Not feeling so great today

    Been nauseous all day today. Got up this morning and thought I was going to loose my apple juice but after one dry heave it just stopped and settled down. Then I got up a little bit ago and I'm sitting here at the computer desk instead of using laptop and my nausea level is at an all time high today :( It is just not settling down very well. I might have to call my normal gyno and see if he will prescribe me some anti nausea meds. Because I am just having a really hard time today. Perhaps I'm over doing  it but I didn't feel like I was. I'm not eating any really heavy foods. I had 1 small salad (when my nasuea first acted up) then 2 chili dogs (yeah I know.. worse thing to eat but when I burp it's not them I'm tasting.. I still taste that dumb salad.. sorry for the not so pretty details.) But I'm hoping I didn't get sick from eating that salad. I know spinich and stuff can go bad, but it wasn't slimy and didn't look bad, but ever since eating it.. I've just felt horrible :(

    I got sick one night after

    I got sick one night after eating red grapes and I wondered the same thing - had those grapes gone bad??  It's probably going to be a long time before I eat grapes again!!!  The anti-nausea meds didn't work for me but other people swear by them so it's worth a try.

    Hope you feel better today!!

    Love,

    Eldri

  • Tichondria
    Tichondria Member Posts: 39

    Tich

    Definitely call the doc and get some medicine. The anti-nausea pills they gave me for chemo worked well.

    Also, you might want to try the brat diet (bannanas, rice, applesauce, toast) for a few days and see if that helps.

    I hope you feel better soon!

    Love and Hugs,

    Cindi

    I see my normal doctor tomorrow

    So I already had a day penned in for my normal physician. Not that I really depend on him much lol. He actually tried to tell me that PCOS can go away just by having a kid... ya ok.. don't quit your normal day job there buddy. But he is at least good for taking blood pressure and allowing me to get pills that I need. I determined not to take any of my oxy's until tonight. I know they can make you nasueas and constipated. So I'm just trying to do ibuprofen today unless I really, really need a stronger pain pill.

     

    They gave me 60 and i'm down to 24 since the 18th. So I know I've been depending on em too much. Pretty sad that these things only work for 3 hours then you have to take more. I guess that how narcotics hook someone. Well so far, i'm doing good on no narcotics since 1am this morning. Been over 12 hours free. Now if I could just get my legs to quit hurting. They feel sore and stiff.. so I walked around a little more than normal. It's the weirdest thing though. Only half my legs have hair, the other half.. nothing... not sure what to make of that.

  • Tichondria
    Tichondria Member Posts: 39
    got some anti-nausea pills

    Can't fill them yet though, will have to wait till first of month.  Oh the joys of being on disability and having to wait till the beginning of the month.  However, I'm slowly loosing more and more faith in my doctor. Even though he just found out about my cancer and having to do tvh/bso he was telling me that eating applesauce and bananas was too much sugar and wanted me to eat more protein. Said get those protein drinks at safeway 10 for 10. I almost wanted to look at him and go, "have you seen the amount of sugar in those things?" lol. I'm scared more protein will make this constipation worse.

    And then he was like.. just take a laxative... yet everything i read said some can make pain worse because it irritates the lining of the intestine and can cause lots of pain. I don't need anymore lol.. I barely went # 2 today and that was with a lot of rocking back and forth so I was not straining since that can dmg the insides. Should I make an apt with my normal Gyno.. or should I make a call my my Gyno/onco and ask her what kinds of foods I should eat.. I thought bland/soft would help make my stool softer/easier to pass but maybe i'm wrong. What do you Ladies think, or what did you do to help with constipation without having to rely on pills and what not?

  • Lou Ann M
    Lou Ann M Member Posts: 996 Member

    got some anti-nausea pills

    Can't fill them yet though, will have to wait till first of month.  Oh the joys of being on disability and having to wait till the beginning of the month.  However, I'm slowly loosing more and more faith in my doctor. Even though he just found out about my cancer and having to do tvh/bso he was telling me that eating applesauce and bananas was too much sugar and wanted me to eat more protein. Said get those protein drinks at safeway 10 for 10. I almost wanted to look at him and go, "have you seen the amount of sugar in those things?" lol. I'm scared more protein will make this constipation worse.

    And then he was like.. just take a laxative... yet everything i read said some can make pain worse because it irritates the lining of the intestine and can cause lots of pain. I don't need anymore lol.. I barely went # 2 today and that was with a lot of rocking back and forth so I was not straining since that can dmg the insides. Should I make an apt with my normal Gyno.. or should I make a call my my Gyno/onco and ask her what kinds of foods I should eat.. I thought bland/soft would help make my stool softer/easier to pass but maybe i'm wrong. What do you Ladies think, or what did you do to help with constipation without having to rely on pills and what not?

    My doctor recomended Myralax

    My doctor recomended Myralax and I also take DocQlax or the generic.  That was recomended by my surgeon/Gyn-Onc.  Both doctors say I can take both.  I am on pain meds that cause constipation and they want to me pre-emptive.  They are stool softners and are mild.  Many doctors recomend the Myralax before chemo treatments 

    i have always heard that eating a diet with a lot of whole grain and fresh fruit and veggies help, but have haven't had much luck with them.  Sometimes a nice thick milk shake helps.

    hugs and prayers , Lou Ann

  • Tichondria
    Tichondria Member Posts: 39
    Lou Ann M said:

    My doctor recomended Myralax

    My doctor recomended Myralax and I also take DocQlax or the generic.  That was recomended by my surgeon/Gyn-Onc.  Both doctors say I can take both.  I am on pain meds that cause constipation and they want to me pre-emptive.  They are stool softners and are mild.  Many doctors recomend the Myralax before chemo treatments 

    i have always heard that eating a diet with a lot of whole grain and fresh fruit and veggies help, but have haven't had much luck with them.  Sometimes a nice thick milk shake helps.

    hugs and prayers , Lou Ann

    Thank you Lou Ann

    Just wanted to give you a big thank you. I will have the hubby get some Myralax for me.  And hugs and prayers back at ya. I hope your scan comes back with some great news.. and for the rest of you wonderful women, thank you soooo very much!!! having you ladies here and having someone to talk too off an on really makes my day feel so much better/easier to deal with.

     

     

    Edit:

     

    On a side note.. i have something that happened I was gonna ask you all about.  Been having very weird issues with my head lately. Not sure if the medicine i'm taking for pain is messing with me or what. But I am not quite sure how to explain my issues. It's like.. a part of my brain is on hyper-drive and going so fast I can't keep up (it will just push out words like go, stop, now.. very easy usually 1 syllable words, while the other half of my brain is going at the same time but it's going incredibly slow.. like it will think totally different words. I was laying down and when this woke me out of a dead sleep I had to look at my hand, I knew it was a hand.. but I couldn't think of the word at that moment. I couldn't speak, all I could do was grunt, I could still move around a little but it was very hard.

    This sounds so ridiculous even just typing it up but I have no real way to describe what happened. It was just the oddest sensation, and it took almost an hour before I was back to normal. I could then get up, use the bathroom, talk. It was like I was in my body but had no "real" control over it. And I was worried about telling a doctor because they always assume things with me. I guess I just wanted to tell someone, somewhere that doesn't brand me as the mental ill girl. That is why this forum is so wonderful. The people here don't automatically assume, and you can be scared and or confused and they help you as best they can or just to say, he it's ok.. it will get better. So thank you everyone, thank you for being so kind to me and helping to keep me from being too spastic lol.

  • pinky104
    pinky104 Member Posts: 574 Member

    got some anti-nausea pills

    Can't fill them yet though, will have to wait till first of month.  Oh the joys of being on disability and having to wait till the beginning of the month.  However, I'm slowly loosing more and more faith in my doctor. Even though he just found out about my cancer and having to do tvh/bso he was telling me that eating applesauce and bananas was too much sugar and wanted me to eat more protein. Said get those protein drinks at safeway 10 for 10. I almost wanted to look at him and go, "have you seen the amount of sugar in those things?" lol. I'm scared more protein will make this constipation worse.

    And then he was like.. just take a laxative... yet everything i read said some can make pain worse because it irritates the lining of the intestine and can cause lots of pain. I don't need anymore lol.. I barely went # 2 today and that was with a lot of rocking back and forth so I was not straining since that can dmg the insides. Should I make an apt with my normal Gyno.. or should I make a call my my Gyno/onco and ask her what kinds of foods I should eat.. I thought bland/soft would help make my stool softer/easier to pass but maybe i'm wrong. What do you Ladies think, or what did you do to help with constipation without having to rely on pills and what not?

    Constipation

    I had constipation after surgery, but it was because of the narcotic pain meds.  Once I got off of them, I was fine.  I had been on Percocet.  Protein is supposed to be recommended during chemo, so if you go for chemo, be sure to eat extra protein. Also, be sure to keep hydrated.  That should help the constipation, too.  Foods with garlic often help me, as do the apples.  Your symptoms in your earlier post reminded me of gallbladder problems. If you don't get better, you might want to get checked out for that.  I had mine out with my cancer surgery because gallstones were found on my CT scan.

    I know someone with constipation who regularly takes the MiraLax, but also has to take Konsyl for fiber along with it every third day.  One local gastroenterologist said that's the only good kind to take.  Konsyl is sold at Walmarts (look for the white and cranberry colored plastic container) and online. I've had trouble finding it in some of the other grocery stores and drug stores in my area. You might be able to find it in other stores, depending upon where you live.    

    I'm wondering about the origin of your name.  Does it have anything to do with the town in the Adirondacks called Ticonderoga? 

     

     

  • Editgrl
    Editgrl Member Posts: 903 Member

    got some anti-nausea pills

    Can't fill them yet though, will have to wait till first of month.  Oh the joys of being on disability and having to wait till the beginning of the month.  However, I'm slowly loosing more and more faith in my doctor. Even though he just found out about my cancer and having to do tvh/bso he was telling me that eating applesauce and bananas was too much sugar and wanted me to eat more protein. Said get those protein drinks at safeway 10 for 10. I almost wanted to look at him and go, "have you seen the amount of sugar in those things?" lol. I'm scared more protein will make this constipation worse.

    And then he was like.. just take a laxative... yet everything i read said some can make pain worse because it irritates the lining of the intestine and can cause lots of pain. I don't need anymore lol.. I barely went # 2 today and that was with a lot of rocking back and forth so I was not straining since that can dmg the insides. Should I make an apt with my normal Gyno.. or should I make a call my my Gyno/onco and ask her what kinds of foods I should eat.. I thought bland/soft would help make my stool softer/easier to pass but maybe i'm wrong. What do you Ladies think, or what did you do to help with constipation without having to rely on pills and what not?

    Stool softener and ginger

    I did not use Miralax after surgery (did during chemo, though) but I did use Colace twice a day.  That helped a lot for me and seemed fairly mild.  No straining, no rocking.  And yes, lots of water will help, too. And once you get off the pain meds, things will resolve themselves. Fruits, vegetables, whole grains will help move things along, too.

    Oh, God, those protein drinks are ridiculously sweet.  I have found an organic one, Orgain, that isn't too bad and has quite a bit of protein in it, 16 g.  I drank a lot of it when I was recovering from surgery.  I also recently came across something that's loaded with protein:  collagen peptides.  If you get the unflavored powder, it dissolves completely in water or any hot or cold liquid and it is absolutely tasteless.   18g protein per 2 scoops.  This was the "protein powder" recommended by my naturopath.

    I used ginger for the few times I dealt with queasiness, either ginger chews or even sucking on slices of raw ginger.  And that good old stand-by, ginger ale. Also, I know that for me, having a little something in my stomach before I took the pain meds helped prevent nausea, even if it was just a bit of yogurt or a couple of crackers.

    I hope this phase passes quickly for you.

    Chris

  • Tichondria
    Tichondria Member Posts: 39
    pinky104 said:

    Constipation

    I had constipation after surgery, but it was because of the narcotic pain meds.  Once I got off of them, I was fine.  I had been on Percocet.  Protein is supposed to be recommended during chemo, so if you go for chemo, be sure to eat extra protein. Also, be sure to keep hydrated.  That should help the constipation, too.  Foods with garlic often help me, as do the apples.  Your symptoms in your earlier post reminded me of gallbladder problems. If you don't get better, you might want to get checked out for that.  I had mine out with my cancer surgery because gallstones were found on my CT scan.

    I know someone with constipation who regularly takes the MiraLax, but also has to take Konsyl for fiber along with it every third day.  One local gastroenterologist said that's the only good kind to take.  Konsyl is sold at Walmarts (look for the white and cranberry colored plastic container) and online. I've had trouble finding it in some of the other grocery stores and drug stores in my area. You might be able to find it in other stores, depending upon where you live.    

    I'm wondering about the origin of your name.  Does it have anything to do with the town in the Adirondacks called Ticonderoga? 

     

     

    Actually.. tichondria was an

    Actually.. tichondria was an old character I made when I was a teenager for a D&D game. And it just kind of stuck since then, my real name is Miranda. It's just when I try to sign up for things, that is almost always taken and tichondria is rarely taken :)

  • Tichondria
    Tichondria Member Posts: 39
    pinky104 said:

    Constipation

    I had constipation after surgery, but it was because of the narcotic pain meds.  Once I got off of them, I was fine.  I had been on Percocet.  Protein is supposed to be recommended during chemo, so if you go for chemo, be sure to eat extra protein. Also, be sure to keep hydrated.  That should help the constipation, too.  Foods with garlic often help me, as do the apples.  Your symptoms in your earlier post reminded me of gallbladder problems. If you don't get better, you might want to get checked out for that.  I had mine out with my cancer surgery because gallstones were found on my CT scan.

    I know someone with constipation who regularly takes the MiraLax, but also has to take Konsyl for fiber along with it every third day.  One local gastroenterologist said that's the only good kind to take.  Konsyl is sold at Walmarts (look for the white and cranberry colored plastic container) and online. I've had trouble finding it in some of the other grocery stores and drug stores in my area. You might be able to find it in other stores, depending upon where you live.    

    I'm wondering about the origin of your name.  Does it have anything to do with the town in the Adirondacks called Ticonderoga? 

     

     

    It does sound like gallbladder issues

    I would of thought gallbladder to. Sadly about 4 years ago though, I had to have mine removed due to gallstones. So while the symptoms are very much the same, I can't blame it on that haha. Wish I could though, this overly full, bloated feeling reminds me exactly of how i felt before they took out my gallbladder. They thought it was due to my stones, because I was always bloated, felt over full all the time, even when I just ate a a little bit of food. And then now when I had my tvh/bso surgery, I find that over full and bloated all the time is another symptom of uterine cancer. I'm wondering when it is that I really started to get effected by the cancer, and was my symptoms before due to gallbladder or did I have the cancer then. But if I did.. then I know it is a very slow growing cancer and if so then that almost makes me feel positive that I will hopefully be considered NED once the staging process is done. I just wish they would hurry

  • Tichondria
    Tichondria Member Posts: 39
    Editgrl said:

    Stool softener and ginger

    I did not use Miralax after surgery (did during chemo, though) but I did use Colace twice a day.  That helped a lot for me and seemed fairly mild.  No straining, no rocking.  And yes, lots of water will help, too. And once you get off the pain meds, things will resolve themselves. Fruits, vegetables, whole grains will help move things along, too.

    Oh, God, those protein drinks are ridiculously sweet.  I have found an organic one, Orgain, that isn't too bad and has quite a bit of protein in it, 16 g.  I drank a lot of it when I was recovering from surgery.  I also recently came across something that's loaded with protein:  collagen peptides.  If you get the unflavored powder, it dissolves completely in water or any hot or cold liquid and it is absolutely tasteless.   18g protein per 2 scoops.  This was the "protein powder" recommended by my naturopath.

    I used ginger for the few times I dealt with queasiness, either ginger chews or even sucking on slices of raw ginger.  And that good old stand-by, ginger ale. Also, I know that for me, having a little something in my stomach before I took the pain meds helped prevent nausea, even if it was just a bit of yogurt or a couple of crackers.

    I hope this phase passes quickly for you.

    Chris

    I will try out your suggestions

    I'm going to try miralax and that protein powder you were talking about.. and I don't know why i didn't even think about some ginger ale. I should have the hubby grab some. He made me tomatoe soup today and I told him to eat the rest of the meatloaf because I was eating so little of it and it don't want it to go bad. Plus I think he is done with chicken lol.  He has turned into quite the cook for me. I will try that collagen peptides though, i'll put it into my fruit juices or maybe when I make some smoothies.. Love home made smoothies, best thing ever.. just wish where i lived there was a Jamba Juice here. I LOVE those places!

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,811 Member

    I will try out your suggestions

    I'm going to try miralax and that protein powder you were talking about.. and I don't know why i didn't even think about some ginger ale. I should have the hubby grab some. He made me tomatoe soup today and I told him to eat the rest of the meatloaf because I was eating so little of it and it don't want it to go bad. Plus I think he is done with chicken lol.  He has turned into quite the cook for me. I will try that collagen peptides though, i'll put it into my fruit juices or maybe when I make some smoothies.. Love home made smoothies, best thing ever.. just wish where i lived there was a Jamba Juice here. I LOVE those places!

    Miranda, I used Colace and

    Miranda, I used Colace and Miralax after surgery. Please consider using both so that you can get things moving faster and more comfortably.  I also used both during chemo.  As long as you are on the pain meds, keep using them daily. They won't hurt you, and your body won't come to depend upon them once you are off the other meds. My doctor told me this and that was certainly the case for me.

    I hope things settle down for you. BTW, I have a feeling the strange brain things is a result of the pain meds.  There are a couple of ladies on our board that are/were nurses. I'm hoping they will see this or your post and confirm my assumption or provide you a better explanation. Either way, it is probably a good idea to share it with your doctor.

    Love and Hugs,

    Cindi

  • Lou Ann M
    Lou Ann M Member Posts: 996 Member
    Lou Ann M said:

    My doctor recomended Myralax

    My doctor recomended Myralax and I also take DocQlax or the generic.  That was recomended by my surgeon/Gyn-Onc.  Both doctors say I can take both.  I am on pain meds that cause constipation and they want to me pre-emptive.  They are stool softners and are mild.  Many doctors recomend the Myralax before chemo treatments 

    i have always heard that eating a diet with a lot of whole grain and fresh fruit and veggies help, but have haven't had much luck with them.  Sometimes a nice thick milk shake helps.

    hugs and prayers , Lou Ann

    Another thought

    my daughter who has chronic stomach issues suggested a product called Gin-Gin. It is ginger chews and comes in several flavors.  It works pretty well for nausia.  There is also something Calle Sea-Bands. They are bands you wear on your wrist and hit on a specific pressure point. They are made for pregnancy, chemo patients and for sea sickness. Easy to use and no chemicals.

    hugs and prayers, Lou Ann