Roll call for Endometrial Adenocarcinoma any stage
Comments
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I had my hysterectomy oncindy0519 said:USPC
I late as diagnosed with stage IIIC1, grade 3, USPC in early October after a radical hystercotomy. I have compelted 4 of 6 chemo cycles (Carboplatin and Taxol) and will begin 5 weeks of external radiation sometime in mid April.
I had my hysterectomy on September 30th. I also was diagnosed with UPSC, but Stage II, Grade 3. Did they use the DiVinci robot to do yours?
Good luck with your chemo and radiation.
Love,
Eldri
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Yesterday I had my 1st
Yesterday I had my 1st anniversary CTScan and am still NED!
I was diagnosed in January 2015 with Stage III Grade 3, mixed type with metastasis to the right ovary. After open-abdominal surgery the next month, nothing was found in 31 lymph notes or in the pelvic wash. Presurgery CA-125 was 33.
For a number of reasons I declined chemotherapy and started working with a holistic doctor in changing my diet/lifestyle, adding mistletoe and weekly IV vitamin C. My CA-125 has dropped to 5 (getting tested every 2-3 months) and my scans have been clean so far. Best of all, I feel terrific.I totally get that my choice is not for everyone and so I am in no way recommending that others do this. It is a deeply personal decision that has involved numerous factors.
I held all of you in mind and heart last night when I attended an event at the local Tibetan monastery. The program focused on, among other things, blessings to help all of us remove obstacles -- and extend our lives. It felt like such a fitting end to a joyful day. My best to you all this year!
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Endometrioid Adenocarcinoma Grade 1-A. Stage 2GoodLuck15 said:Yesterday I had my 1st
Yesterday I had my 1st anniversary CTScan and am still NED!
I was diagnosed in January 2015 with Stage III Grade 3, mixed type with metastasis to the right ovary. After open-abdominal surgery the next month, nothing was found in 31 lymph notes or in the pelvic wash. Presurgery CA-125 was 33.
For a number of reasons I declined chemotherapy and started working with a holistic doctor in changing my diet/lifestyle, adding mistletoe and weekly IV vitamin C. My CA-125 has dropped to 5 (getting tested every 2-3 months) and my scans have been clean so far. Best of all, I feel terrific.I totally get that my choice is not for everyone and so I am in no way recommending that others do this. It is a deeply personal decision that has involved numerous factors.
I held all of you in mind and heart last night when I attended an event at the local Tibetan monastery. The program focused on, among other things, blessings to help all of us remove obstacles -- and extend our lives. It felt like such a fitting end to a joyful day. My best to you all this year!
surgery 1-7-2013, no lymph node involment but had positive Washings. Was advised not to take chemo, so didn't . My CA-125 stays around 29 With slight movement up and down. Lung nodules, but they are stable. So they say NED, I love that!
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Good Luck 15 and Sisters ThreeSisters three said:Endometrioid Adenocarcinoma Grade 1-A. Stage 2
surgery 1-7-2013, no lymph node involment but had positive Washings. Was advised not to take chemo, so didn't . My CA-125 stays around 29 With slight movement up and down. Lung nodules, but they are stable. So they say NED, I love that!
Congrats to both of you for milestone NED status!!!
So happy for you.
Love and Hugs,
Cindi
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Welcome, GoodLuck15!!GoodLuck15 said:Yesterday I had my 1st
Yesterday I had my 1st anniversary CTScan and am still NED!
I was diagnosed in January 2015 with Stage III Grade 3, mixed type with metastasis to the right ovary. After open-abdominal surgery the next month, nothing was found in 31 lymph notes or in the pelvic wash. Presurgery CA-125 was 33.
For a number of reasons I declined chemotherapy and started working with a holistic doctor in changing my diet/lifestyle, adding mistletoe and weekly IV vitamin C. My CA-125 has dropped to 5 (getting tested every 2-3 months) and my scans have been clean so far. Best of all, I feel terrific.I totally get that my choice is not for everyone and so I am in no way recommending that others do this. It is a deeply personal decision that has involved numerous factors.
I held all of you in mind and heart last night when I attended an event at the local Tibetan monastery. The program focused on, among other things, blessings to help all of us remove obstacles -- and extend our lives. It felt like such a fitting end to a joyful day. My best to you all this year!
Welcome, GoodLuck15!! Congratulations on having NED!! That is wonderful!!! I am very interested in what you did instead of chemo. I made it through three chemos before it almost killed me. I'm going in for tests in two weeks to see if my liver has recovered from that third chemo. It's been almost ten weeks since that last chemo and I am still having some problems associated with it - neuropathy, hip and knee pain, fingernails falling off and persistent diarrhea.
I would love to hear more of your journey!
Love,
Eldri
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Synchronous Stage 3C2 grade 3 endometroid adenocarcinoma
of uterus with extensive LVSI and stage 1A grade 3 serous and endometriod adenocarcinoma of one ovary with STIC. TAH, BSO Sep 2015, rads, chemo etc, still on chemo.
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Thank You, Cindi And Eldri! ...EZLiving66 said:Welcome, GoodLuck15!!
Welcome, GoodLuck15!! Congratulations on having NED!! That is wonderful!!! I am very interested in what you did instead of chemo. I made it through three chemos before it almost killed me. I'm going in for tests in two weeks to see if my liver has recovered from that third chemo. It's been almost ten weeks since that last chemo and I am still having some problems associated with it - neuropathy, hip and knee pain, fingernails falling off and persistent diarrhea.
I would love to hear more of your journey!
Love,
Eldri
Eldri: I'm so sorry to hear about your experience with chemo!
My mom died from cancer 30 years ago (this upcoming May), so I am well aware of many of the issues many are facing. I think of Mom every single day. It is hard for our family to think how much of our lives she has missed. She left us five months after diagnosis.
When I was awaiting my biopsy results early last year, I had told my dad and brother (who totally understood) and my husband that, unless I could hear or read something to convince me, I was not likely to do chemotherapy.
When I got my pathology results, I got a second opinion and it was confirmed I was a so-caled Type I -- primarily endometroid -- case. I was diagnosed with aggressive tumors in both endometrium and ovary, so that kicked me up to Stage 3, Grade 3. I also was told that, in my case, if I were to recur, it would be locally. There was no cancer found anywhere else, which included the 31 lymph nodes that were removed. A pathologist who read my reports told me this was "a miracle." If so, I'll take it. LOL! My doctor confirmed that the recommended chemo was to be a mop-up of stray cells "just in case." I was dismayed by the treatment plan and said so. It didn't make sense for me to get treatment systematically for something that was expected to recur in the same area. Maybe I was naive to expect to be told I could "wait and see," but that is what I had felt. There are many other reasons why I balked, but this was a biggie.
I totally got that I was taking a risk on relying on the word of my gynecological oncological surgeon, but I decided that it sure looked and sounded as though he had indeed gotten it all. So, given that gut feeling with other factors, I decided I was going to move on with my life, assume I was NED whether anyone else would say it or not and try to find something to help me to recover and possibly heal. I have been told that if I don't recur in three years I am cured.
I consulted with a holistic physician and radically changed my diet. I won't go into it here, but it is ketogenic. I've seen several postings on this and other websites, so I am adding nothing new here. I take only a few supplements and inject myself with mistletoe and go for weekly IV-C infusions.
I want to emphasize that both my gynecological oncologist and holistic physician did NOT agree with my decision. I went this way because I thought it made the most sense to me. I am blessed that my gynecological oncologist said he respected my decision and insisted on continuing to monitor me. He has been tickled with my progress, which means a lot to me as I did not "get with the program."
Best wishes for your recovery, Eldri. Please feel free to message me.
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I was told by doctors (before the Oncologist came on the scene) that I had Stage 4 Cancer. Aden....... whatever! Once the Oncologist became involved I asked her. Her reply was that once it is recurrance you dont stage but it was Grade II. Not really sure what that means. I sometimes overhear others, think they are discussing me, and they use Advanced Cancer. I try not to think much about this. Anyone who has feedback or been told the same, let me hear from you.
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There are a lot of womenJacjac2 said:I was told by doctors (before the Oncologist came on the scene) that I had Stage 4 Cancer. Aden....... whatever! Once the Oncologist became involved I asked her. Her reply was that once it is recurrance you dont stage but it was Grade II. Not really sure what that means. I sometimes overhear others, think they are discussing me, and they use Advanced Cancer. I try not to think much about this. Anyone who has feedback or been told the same, let me hear from you.
There are a lot of women doing just fine with "advanced cancer" and some are on this board. It becomes a chronic disease instead of a curable one, just like diabetes or lupus. We're here for you (((Jacjac2)))!
Love,
Eldri
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Jacjac2Jacjac2 said:I was told by doctors (before the Oncologist came on the scene) that I had Stage 4 Cancer. Aden....... whatever! Once the Oncologist became involved I asked her. Her reply was that once it is recurrance you dont stage but it was Grade II. Not really sure what that means. I sometimes overhear others, think they are discussing me, and they use Advanced Cancer. I try not to think much about this. Anyone who has feedback or been told the same, let me hear from you.
I had stage IVb (the highest stage) of uterine adenocarcinoma of a very aggressive cancer (UPSC). My oncologist refused to tell me my chance of survival since he said if a cancer has a 90% survival rate and you're in the other 10%, it doesn't make any difference to you. I had surgery and 6 rounds of chemo (carboplatin and taxol) and I've been fine ever since. My chemo ended in September, 2010. My odds definitely weren't good (I've since read there was a 9% chance of survival for me with that type of cancer in stage IV), but here I am, healthy, with no evidence of disease. Don't stress out too much. Just wait and see what happens. I had a mother and grandmother survive breast cancer (my mother had it twice) and a father that survived prostate cancer. You never know how your own body will react to treatment. Lifestyle and genetics play a part in it. My gyn/onc (who was different from the oncologist who gave me my chemo, as I wanted to have my chemo in the hospital where I'd worked, closer to home) told me he had a lot of patients who had survived stage IV. The registration clerk in the hospital where I'd worked, a friend of mine, told me she saw lots of patients in my local hospital who had also survived stage IV cancers.
My cancer was grade III, which is the most aggressive cancer grade. Grade 1 is the least aggressive, and grade II is in between. If I can survive a grade III, then your odds of survival are probably better than mine were. Of course, it also depends upon where your cancer has spread to already. Mine was considered stage IV because it had gone out of the pelvis. Mine had spread to both ovaries, the omentum, and the small intestine, so it was a regional spread. Mine hadn't gone into my lymph nodes yet, which was good. Miracles do happen, so keep the faith.
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Just curiouspinky104 said:Jacjac2
I had stage IVb (the highest stage) of uterine adenocarcinoma of a very aggressive cancer (UPSC). My oncologist refused to tell me my chance of survival since he said if a cancer has a 90% survival rate and you're in the other 10%, it doesn't make any difference to you. I had surgery and 6 rounds of chemo (carboplatin and taxol) and I've been fine ever since. My chemo ended in September, 2010. My odds definitely weren't good (I've since read there was a 9% chance of survival for me with that type of cancer in stage IV), but here I am, healthy, with no evidence of disease. Don't stress out too much. Just wait and see what happens. I had a mother and grandmother survive breast cancer (my mother had it twice) and a father that survived prostate cancer. You never know how your own body will react to treatment. Lifestyle and genetics play a part in it. My gyn/onc (who was different from the oncologist who gave me my chemo, as I wanted to have my chemo in the hospital where I'd worked, closer to home) told me he had a lot of patients who had survived stage IV. The registration clerk in the hospital where I'd worked, a friend of mine, told me she saw lots of patients in my local hospital who had also survived stage IV cancers.
My cancer was grade III, which is the most aggressive cancer grade. Grade 1 is the least aggressive, and grade II is in between. If I can survive a grade III, then your odds of survival are probably better than mine were. Of course, it also depends upon where your cancer has spread to already. Mine was considered stage IV because it had gone out of the pelvis. Mine had spread to both ovaries, the omentum, and the small intestine, so it was a regional spread. Mine hadn't gone into my lymph nodes yet, which was good. Miracles do happen, so keep the faith.
Mine had spread microscopic cells of both types cancer that I had to one pelvic lymph node out of 14 checked. Did your doctor indicate it was worse to have lymph node involvement?
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I believe it only matters onunknown said:Just curious
Mine had spread microscopic cells of both types cancer that I had to one pelvic lymph node out of 14 checked. Did your doctor indicate it was worse to have lymph node involvement?
I believe it only matters on the first diagnosis. If it is found later one then they just call it metastisis. During one of my surgeries later four or five years after my initial diagnosis, I was found to have one of my lymph nodes with microscopic cells. It was removed during surgery. I decided to forgo any treatment at that time other than a wait and see. That was five years ago. I do get scanned frequently since then.
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Adenocarcinoma endometroid, Stage 1A grade 3
I was diagnosed a month ago. Had a total hysterectomy on April 1st, recovering well. I will undergo Brachytherapy for 3 treatments. I have been given the option to undergo chemotherapy, Carbo/Taxol for 3 treatments. A tough decision to make, without a lot of scientific evidence of benefit, though I am learning a lot from the stories on this site. Thank you for sharing your stories!
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Welcome to our group, Pink!!pinkuke said:Adenocarcinoma endometroid, Stage 1A grade 3
I was diagnosed a month ago. Had a total hysterectomy on April 1st, recovering well. I will undergo Brachytherapy for 3 treatments. I have been given the option to undergo chemotherapy, Carbo/Taxol for 3 treatments. A tough decision to make, without a lot of scientific evidence of benefit, though I am learning a lot from the stories on this site. Thank you for sharing your stories!
Welcome to our group, Pink!! What was your diagnosis - Stage, grade and type (it's ok if you don't want to say) but I'm just curious with your treatment plan? What country are you in?
Love,
Eldri
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Thanks for the welcome, Eldri!EZLiving66 said:Welcome to our group, Pink!!
Welcome to our group, Pink!! What was your diagnosis - Stage, grade and type (it's ok if you don't want to say) but I'm just curious with your treatment plan? What country are you in?
Love,
Eldri
My diagnosis is Adenocarcinoma, stage 1A, grade 3. I'm in California. The current standard of care is surgery/ radiation, though they will allow me to undergo chemo! if I wish. The physicians treating me think either course would be reasonable. There are some clinical trials underway to determine if stage 1A grade 3 would benefit from chemo but results are years away. The stories of recurrence from women in similar circumstances are compelling. I am leaning toward chemo,but will discuss again with my GYN Onc again next week. Thank you for reaching out to me. The support is very helpful!
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New here
I am new to this board, but not new to endometrial cancer. I was diagnosed with endometrial adenocarcinoma, stage 1b, grade 3, in September, 2010 @ 57 years of age. I had no involvement outside of uterus. I did receive three brachytherapy treatments vaginally. Previously, in 1989, I was diagnosed with stage 2 breast cancer. I was treated with radiation and chemotherapy. It has never returned, but I did find out two years ago that I am BRCA1+, had the prophylactic bilateral mastectomy and reconstruction surgery in 2014.
Five years down the road, last September, a tumor was discovered in my lung during my annual physical. The pathology report said it was metastatic endometrial adenocarcinoma. The lobe containing the tumor was removed and 17 lymph nodes from the appropriate areas all tested negative. I finished up six cycles of Carboplatin/Taxol in February, 2016, only to find two very small tumors on one kidney. They were not seen in the PET/CT scan that was done 6 months prior. Tomorrow I am having a partial nephrectomy laproscopically using the daVinci robot. The doctors say the odds are that it not a metastasis of the endometrial cancer, but if it is, I will have more chemo treatments. Unfortunately Carboplatin/Taxol did not keep these tumors from growing, so I will be given something different.
If it's kidney cancer, the surgery will be all that I need, as kidney cancer it woukd be stage 1a. Never thought I'd be praying for kidney cancer.
That's it for now. I will be in the hospital for two or three nights, but I will be checking this board when I can. Debbie
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Roll Call
Mixed Endometrioid and Serous Adenocarcinoma
Stage IIIC1, grade 3
Diagnosed July 2015
Total Hysterectomy August 2015
Chemo-Radiation with 2 rounds of Cisplatin and 28 radiation sessions completed October 2015
Chemo with 4 rounds of Carboplatin and Paclitaxel to begin December 7th
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Welcome to the board, Debbie!Fla_native said:New here
I am new to this board, but not new to endometrial cancer. I was diagnosed with endometrial adenocarcinoma, stage 1b, grade 3, in September, 2010 @ 57 years of age. I had no involvement outside of uterus. I did receive three brachytherapy treatments vaginally. Previously, in 1989, I was diagnosed with stage 2 breast cancer. I was treated with radiation and chemotherapy. It has never returned, but I did find out two years ago that I am BRCA1+, had the prophylactic bilateral mastectomy and reconstruction surgery in 2014.
Five years down the road, last September, a tumor was discovered in my lung during my annual physical. The pathology report said it was metastatic endometrial adenocarcinoma. The lobe containing the tumor was removed and 17 lymph nodes from the appropriate areas all tested negative. I finished up six cycles of Carboplatin/Taxol in February, 2016, only to find two very small tumors on one kidney. They were not seen in the PET/CT scan that was done 6 months prior. Tomorrow I am having a partial nephrectomy laproscopically using the daVinci robot. The doctors say the odds are that it not a metastasis of the endometrial cancer, but if it is, I will have more chemo treatments. Unfortunately Carboplatin/Taxol did not keep these tumors from growing, so I will be given something different.
If it's kidney cancer, the surgery will be all that I need, as kidney cancer it woukd be stage 1a. Never thought I'd be praying for kidney cancer.
That's it for now. I will be in the hospital for two or three nights, but I will be checking this board when I can. Debbie
Welcome to the board, Debbie!! Wow, if it wasn't for bad luck, you'd have no luck at all!! I'm hoping for the best for you tomorrow but no matter what happens, we're here for you. This board is a great place to learn all kinds of new things, find a shoulder to cry on, stamp your feet and wail at the gods or find a little humor in our situations. Good luck tomorrow (((Debbie) - I'll be thinking about you.
Love,
Eldri
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Hi, Debbie.Fla_native said:New here
I am new to this board, but not new to endometrial cancer. I was diagnosed with endometrial adenocarcinoma, stage 1b, grade 3, in September, 2010 @ 57 years of age. I had no involvement outside of uterus. I did receive three brachytherapy treatments vaginally. Previously, in 1989, I was diagnosed with stage 2 breast cancer. I was treated with radiation and chemotherapy. It has never returned, but I did find out two years ago that I am BRCA1+, had the prophylactic bilateral mastectomy and reconstruction surgery in 2014.
Five years down the road, last September, a tumor was discovered in my lung during my annual physical. The pathology report said it was metastatic endometrial adenocarcinoma. The lobe containing the tumor was removed and 17 lymph nodes from the appropriate areas all tested negative. I finished up six cycles of Carboplatin/Taxol in February, 2016, only to find two very small tumors on one kidney. They were not seen in the PET/CT scan that was done 6 months prior. Tomorrow I am having a partial nephrectomy laproscopically using the daVinci robot. The doctors say the odds are that it not a metastasis of the endometrial cancer, but if it is, I will have more chemo treatments. Unfortunately Carboplatin/Taxol did not keep these tumors from growing, so I will be given something different.
If it's kidney cancer, the surgery will be all that I need, as kidney cancer it woukd be stage 1a. Never thought I'd be praying for kidney cancer.
That's it for now. I will be in the hospital for two or three nights, but I will be checking this board when I can. Debbie
Welcome to the board. You have already been through a lot! I am hoping that your surgery goes well tomorrow, and that whatever they find is the best possible outcome for you.
Chris
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