Stage 1 Per T cell Lymphoma

100585
100585 Member Posts: 1
in Lymphoma (Hodgkin and Non-Hodgkin) #1

I am a 67 year old male rrecently diagnosed with Stage 1 Perif T Cell Lymphoma.  I have had 3 different "specialists" advise 3 different treatment plans.  I can't find anyone with stage 1 to see what they've done.  Anyone out there with advice?

 

Comments

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,812 Member
    #2
    The "T Cell" lymphomas are

    The "T Cell" lymphomas are among the rarest, and commonly very aggressive.  The standard 'tool bag' of drugs for HL and NHL are often not effective agaist them.  It is good that you are seeing specialists in this area. I suppose I would look for "overlap" in what the tree oncologists have proposed, and possibly go from there.  Of course it is also undoubtedly a good thing that it was detected as Stage 1.

    We have had some T-Cell patients here, and I hope that some of them will respond to you soon. Typcially those threads do not have a lot of activitty, but they do exits.

     

    max

  • po18guy
    po18guy Member Posts: 1,465 Member
    #3
    You need a T-Cell specialist

    There is no standard treatment for T-Cell Lymphomas, so there is a lot of disagreement on treatment. Therefore, it is good to consult with someone who specializes in T-Cell Lymphomas. You are blessed if yours has been diagnosed at stage 1. Oftentimes, radiation is all that may be needed at stage 1. Some doctors might suggest some chemotherapy to kill any cells that escaped the radiation. Either way, it is most curable at stage 1, so that much is good news. 

    There is a foundation that is designed to assist those with T-Cell cancers, either leukemia or lymphoma. Their website is here: http://www.tcllfoundation.org/

    They maintain a listing of centers who research T-Cell cancers: http://www.tcllfoundation.org/resources-and-support/treatment-centers

     If none of those are within your travel capabilities, I would advise you to obtain a second opinion at a National Cancer Institute designated cancer center. You may find the closest one here: http://www.cancer.gov/research/nci-role/cancer-centers/find

  • Lorriexoxo
    Lorriexoxo Member Posts: 5
    #4
    Treatment

    hi,

    my dad is 66 and recently diagnosed with tcell lymphoma. What treatments are u having now?

    lorrie

  • po18guy
    po18guy Member Posts: 1,465 Member
    #5
    Lorriexoxo said:

    Treatment

    hi,

    my dad is 66 and recently diagnosed with tcell lymphoma. What treatments are u having now?

    lorrie

    After eight regimens

    After eight regimens involving 17 different drugs, I went with a stem cell transplant. There is much more to the story, however.

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