Stage 4 NED 7 Years

Congratulations on the seven years. I don't know if what you are doing will help stop the cancer coming back but I do know that it is very good to have a plan and to stick to it. I have pretty well stuck to a mediterranean diet. I eat little sugar tho I do eat a lot of fruits. My excercise regime was badly disrupted by neuropathy. I was walking approx 50 miles a week every week for over three years. I had no platinum based chemo drugs. I was initially dxed with a highly aggressive stage three tumour or the transverse and descending colon. My surgeon and onc both agreed i would likely not survive. After the gradual onset of the neuropathy (both legs and left hand) I saw a neurologist . he confirmed I had moderate to sever motor sensory peripheral neuropathy. He would not put forward any probability on cause and because he had no cause , would not treat me. My doctor suggested that i give up my walking before it killed me. I nearly died  from acute pancreatitis. It appears the excercise disaloged a small cholesterol gall stone ( my gall bladder was full of them) and blocked my pancreatic duct. They were able to flush it with saline and oxygen therapy. I lost my gallbladder. I suffer from neprotic syndrome of the kidneys now. I have had three kidney biopsies and they still dont have a dx. I loose up to seven grams of protein a day thru my urine. My nephrologist keeps it in check with cyclosporine. An earlier neph had me on high dose steroids for 18 months causing type two diabetes. I have a lot of other issues some auto -immune like asthma and psoriatic arthritis and some not like sleep apnea (I use cpap every night) . My survival has not been anything to write home about but this Jan I will be out to 17 years still cancer free. Wishing you continueed success with your survival , Ron.

Randy I follow a number of the things on your list, exercise, veggies and fruit, multi and fish pills. I also take a baby aspirin and milk thistle, which is said to be good for the liver. I just do regular black tea, but I've cut almost all the sugar out of everything, excluding the occassional ice cream, which I file under stress relief. I wish Folfox had worked as well for me as for you, but surgery got the mets so I'm over a year good and the cea is lower then ever so hopefully at the two year point, they'll ease up on the labs and scans. Your's is a great example of sucess with a stage 4 diagnosis, Congrats.......Dave