Stage 4 NED 7 Years

Yay!  Thanks for giving this peice of awesome news.

Thank you so much for sharing your good news and your program with us. I am 4 months out from treatment and not sure if I'm NED yet but I am trying to be as proactive as possible and I am doing some of the same things you are. Not up to 3 hrs of exercise or anywhere near it but...I'll get there! The part I'm struggling with is knowing I need to eat fruits and vegetables but that I can't right now due to radiation of the intestinal tract. Do you remember how long it was before you could eat them?  

Randy33 said:

Evelyn

I never had to undergo radiation. I did 9 rounds of Folfox + Avastin and the tumor in my liver and lymph node were gone. The tumor in my colon was removed surgically. During chemo I really didn't know about the low carb Mediterranian diet yet so I was eating just about anything except no sugar. Also during chemo I was not exercising 3 hrs per day. I would walk for 30 min. in the morning then go to the gym to lift weights for 30 min. in the afternoon or run for 30 minutes. I remember at the end of my chemo treatments I could barely run for 15 minutes before I would collapse in exhaustion. Good luck with your treatment!

Congratulations on the seven years. I don't know if what you are doing will help stop the cancer coming back but I do know that it is very good to have a plan and to stick to it. I have pretty well stuck to a mediterranean diet. I eat little sugar tho I do eat a lot of fruits. My excercise regime was badly disrupted by neuropathy. I was walking approx 50 miles a week every week for over three years. I had no platinum based chemo drugs. I was initially dxed with a highly aggressive stage three tumour or the transverse and descending colon. My surgeon and onc both agreed i would likely not survive. After the gradual onset of the neuropathy (both legs and left hand) I saw a neurologist . he confirmed I had moderate to sever motor sensory peripheral neuropathy. He would not put forward any probability on cause and because he had no cause , would not treat me. My doctor suggested that i give up my walking before it killed me. I nearly died  from acute pancreatitis. It appears the excercise disaloged a small cholesterol gall stone ( my gall bladder was full of them) and blocked my pancreatic duct. They were able to flush it with saline and oxygen therapy. I lost my gallbladder. I suffer from neprotic syndrome of the kidneys now. I have had three kidney biopsies and they still dont have a dx. I loose up to seven grams of protein a day thru my urine. My nephrologist keeps it in check with cyclosporine. An earlier neph had me on high dose steroids for 18 months causing type two diabetes. I have a lot of other issues some auto -immune like asthma and psoriatic arthritis and some not like sleep apnea (I use cpap every night) . My survival has not been anything to write home about but this Jan I will be out to 17 years still cancer free. Wishing you continueed success with your survival , Ron.