Nanosecond has passed

2»

Comments

  • AprilandChuck
    AprilandChuck Member Posts: 110
    BDS said:

    Neil - Nanosecond - RIP

    So sad, Neil will be dearly missed but he is at peace now.

     

    I know, I am probably violating some site rule but the following was posted on Smart Patients from Neil's wife.  

    Neil's wife wrote:

    It is with a heavy heart that I tell you that Neil Feldman passed away this morning.

     

    He had been declining severely in the past few weeks, in a wheelchair and sleeping much of the day. But in the end it was quick. He awakened at 2:30 a.m. and said, “Something’s not right.” I helped him back to sleep, and when I got up at 6:45 a.m. (late for us), he was still sleeping — in a coma. He passed away, with our daughter Anna and me at his side, just after 10.

     

    Please let the community know that Neil was on hospice for a full year -- after he came close to death in June 2014, before starting Afinitor and gaining another year -- and I cannot recommend hospice highly enough. People should not fear signing up. We had a nurse visit every Monday and a massage therapist every Friday. They helped us with oxygen, hospital bed, medications, and all manner of issues. They were here when Neil died -- though Neil, typically, waited until the nurse was out of the room and alone with Anna and me.

     

    Please tell everyone how important Smart Patients has been to him.

     

    I do not think they mind

    Neil was much loved in both places... I dont think Smart Patients would mind you sharing.. you beat me to the punch its why I logged in here... Nanosecond/Neil was loved by us all... the nutriation information that he compiled and shared will be his legacy as will his giving and sharing heart!!!

  • Allochka
    Allochka Member Posts: 1,060 Member
    angelsnls said:

    SO SO SAD

    This is so sad nanosecond and Djinnie were among the first people I spoke to on here when I joined last year, it has taken me all day to write something and all I can think of is that this is so sad. My deepest condolences to their families and their friends. This is such a horrible desease I HATE it.

    Keep fighting everyone 

    Lots of love

    Angela xx

    Oh no...
    Now they hurt no

    Oh no...

    Now they hurt no more. I wish a lot of strength to their families.

    I'm so lucky to know them and to feel their support and knowledge...

  • Phredswife
    Phredswife Member Posts: 162
    RIP Neil and Carolyn.

    Beyond sad to hear the news of Nanoseconds and Djs passing. Neil was an amazing guy with an incredible amount of intelligence and compassion.

    Dj (Carolyn)was a very dear friend to me and a huge supporter and encourager of me, and my daughter as she was dealing with her own illness.  She was that way for everyone. I am richer for knowing her. Sending hugs to her family if they read this.

  • firedude21
    firedude21 Member Posts: 52
    A sad time.

    We lost two wonderful members of our community. No matter how bad they may have been feeling they were both so willing to reach out and help others. Rest in Peace Neil and DJ.

  • a_oaklee
    a_oaklee Member Posts: 566 Member
    loss

    I will miss Djinnie and Neil so much.  I feel like both of them were friends of mine.  I loved Djinnie's sense of humor and the way she wrote and described things.  She was a very compassionate lady.  Neil was my hero, and advisor.  I just loved how he wrote the kind truth in response to people.  He had a way with words that was truly unique to this site.  i will miss them both.

    Annie

  • a_oaklee
    a_oaklee Member Posts: 566 Member
    This is a public site.

    It needs to be remembered that this is a public site.  Smart Patients is private. 

     

    When I first googled RCC, the link I clicked on was a thread written by Fox.  Looking back, it was an interesting "first read".   I still dont know who Fox is.  And yet I know him very well.  My point is, Neil did not use his last name here, and I believe he appreciated a certain level of anonymity. 

    I believe Neils wife should be asked if it's ok to post her letter here.  It's respectful of her privacy. 

    If anyone wants to know more about RCC, or have more intimate personal conversations, I encourage you to "also" joint Smart Patients.  Neil introduced many people to the smart patients website.  He sent me a private email encouraging me to join so that I could communicate with more caregivers privately.  I will always be greatful to him.  RIP Neil.

  • sblairc
    sblairc Member Posts: 585 Member
    He will be truly missed. Let's keep his legacy through science.

    I can't think of a better way to honor him than to keep updated on the science of kidney cancer. This is a passion of mine, I'll try to do my best here for all. I copied and pasted all his posts on chromophobe for my husband. I'll miss his input very much. 

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    sblairc said:

    He will be truly missed. Let's keep his legacy through science.

    I can't think of a better way to honor him than to keep updated on the science of kidney cancer. This is a passion of mine, I'll try to do my best here for all. I copied and pasted all his posts on chromophobe for my husband. I'll miss his input very much. 

    neil

    A good man who will be mised by more than hr knew

  • foroughsh
    foroughsh Member Posts: 779 Member
    I'm so sorry to learn of

    I'm so sorry to learn of Neil's passing, he helped me a lot and gave me precious knowledge and information. He was always there to help and answer all my questions about nutrition. I'm so sorry we've lost such a caring member, I read the news yesterday but couldn't write anything as it was a big shock for me, I didn't know he was in hospice for a year. Rest in peace Dear Neil. DJ, our beloved DJ, I'm so sorry we lost her, she was always positive and had a sense of humor which I've always admired. she was a fighter and it's good that she doesn't have pain any more.Rest in peace Dear Carolyn. I hope that newbies don't lose their hopes, there are many ones out there who survive at stage IV for a long time. Forough

  • todd121
    todd121 Member Posts: 1,448 Member
    Speechless

    Words fail me. I don't know what to say. It's really very, very sad news.

    Todd

  • brea588
    brea588 Member Posts: 240
    so saddened

    when I came on here tonight tocheck on everyone and find two of our loved ones on here have passed.  My heart breaks for the families.  I pray God gives them the comfort they need at this time and that He wraps his arms around them with love.  I pray for peace,  Nano and DJ RIP.  Love you all

  • Alexandra
    Alexandra Member Posts: 1,308
    So sad

    I just found out about Neil and Djinnie. It is very sad and unfair. My condolences to the families and friends. It will never be the same.

  • angec
    angec Member Posts: 924 Member
    Alexandra said:

    So sad

    I just found out about Neil and Djinnie. It is very sad and unfair. My condolences to the families and friends. It will never be the same.

    Alex, how are you?  Miss

    Alex, how are you?  Miss seeing you on the boards.Hugs.

  • anmazon
    anmazon Member Posts: 144
    RIP

    We have lost so many great people.  Rest In Peace Neil and Djinnie.