Inravascular B Cell Lymphoma

epicc
epicc Member Posts: 137
edited November 2012 in Rare and Other Cancers #1
My mom was very recently diagnosed with Intravascular B Cell Lymphoma. She has started her Chemo treatment with R-CHOP. She has responed well to the first round. Does anyone know much about this rare type of Lymphoma?

Comments

  • Mechpharm
    Mechpharm Member Posts: 2
    Mom just diagnosed with intravascular lymphoma as well

    any luck in getting responses?  How did things turn out for her?

  • rvuong1
    rvuong1 Member Posts: 1
    Mechpharm said:

    Mom just diagnosed with intravascular lymphoma as well

    any luck in getting responses?  How did things turn out for her?

    Dad just diagnosed with Intravascular lymphoma - JULY 2015

    My dad was just diagnosed with Intravascular lymphoma after being in the hospital for 7 weeks.  They are still trying to figure out how best to treat.  They are saying he is in stage 4.  

     

    Anyone have any ideas on best doctor or faciliate that has experience with this rare cancer?  Looking for perspective and help here.  We are in the NYC area.