The Rumor Was True - Sundance Was Full of $hit After All. (Updated below)

2

Comments

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    Hospital

    May be heading to hospital tomorrow if I can get in.

    i need ton as I'm scary skinny now and can't eat...It scares me to look at myself without clothes...just bony and emaciated looking.   May have to get cleaned out while I'm there.

    medical community just moves too slow when you're deathly sick....shaking so bad I can barely type...have to retype over and over.

    im slipping and they better hurry.

    anywsy tpn needed for sure.

    im worried...goodnight.  Hope to talk to you soon.

    craig

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    Sundanceh said:

    Hospital

    May be heading to hospital tomorrow if I can get in.

    i need ton as I'm scary skinny now and can't eat...It scares me to look at myself without clothes...just bony and emaciated looking.   May have to get cleaned out while I'm there.

    medical community just moves too slow when you're deathly sick....shaking so bad I can barely type...have to retype over and over.

    im slipping and they better hurry.

    anywsy tpn needed for sure.

    im worried...goodnight.  Hope to talk to you soon.

    craig

    This is so absolutely

    This is so absolutely heartbreaking to read all of your post Craig. You know I love you and have always looked up to you and will continue to do so.

  • LivinginNH
    LivinginNH Member Posts: 1,456 Member
    Sundanceh said:

    Hospital

    May be heading to hospital tomorrow if I can get in.

    i need ton as I'm scary skinny now and can't eat...It scares me to look at myself without clothes...just bony and emaciated looking.   May have to get cleaned out while I'm there.

    medical community just moves too slow when you're deathly sick....shaking so bad I can barely type...have to retype over and over.

    im slipping and they better hurry.

    anywsy tpn needed for sure.

    im worried...goodnight.  Hope to talk to you soon.

    craig

     :'( Hang in there!

     

    :'(

    image

    Love ya buddy....gentle hugs.

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    Sundanceh said:

    Hospital

    May be heading to hospital tomorrow if I can get in.

    i need ton as I'm scary skinny now and can't eat...It scares me to look at myself without clothes...just bony and emaciated looking.   May have to get cleaned out while I'm there.

    medical community just moves too slow when you're deathly sick....shaking so bad I can barely type...have to retype over and over.

    im slipping and they better hurry.

    anywsy tpn needed for sure.

    im worried...goodnight.  Hope to talk to you soon.

    craig

    Oh Craig.

    I'm just in tears reading this.  Please keep us in the loop (or ask Kim to update us if she can).  You are an important part of our family, we need our lion to get back on his paws!

    Big hugs coming your way~AA

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member

    Oh Craig.

    I'm just in tears reading this.  Please keep us in the loop (or ask Kim to update us if she can).  You are an important part of our family, we need our lion to get back on his paws!

    Big hugs coming your way~AA

    Hospice has landed...

    could not get into hospital...none of my gi docs were even there today.

    unbelievable can you believe it?  I swear nobody there cares...my onc signed off for hospice today and here they are.

    as long as I'm not in chemo I can do hospice - that's the rule.

    nurse is nice and seems to want to help me...I hope they can.

    i am trying to hang on...it just seems things changed so suddenly...pain intensified and stopped eating etc.

    my wife called pain pump surgeon office....were not even close for surgery...they want a consult - why?

    and then a ct for the surgery to know where to go - I get that one but still....

    thr long trips to and fro are so hard on me I've told them over and over.....and still we drag it out...

    this is how folks die...dragging it out like I've got all the time in the world..my cancer is running unchecked since November while we battle all of this other.

    times like this make me question why I still fight.

    well we'll see what hospice comrs up with.

    over and out....will update when I can.

    Hope I'm not acting like s big old baby with my whining...but I have my wife and my remaining friends on the board here...that's it and I need to talk to you.

    Love, Craig

  • jen2012
    jen2012 Member Posts: 1,607 Member
    Sundanceh said:

    Hospice has landed...

    could not get into hospital...none of my gi docs were even there today.

    unbelievable can you believe it?  I swear nobody there cares...my onc signed off for hospice today and here they are.

    as long as I'm not in chemo I can do hospice - that's the rule.

    nurse is nice and seems to want to help me...I hope they can.

    i am trying to hang on...it just seems things changed so suddenly...pain intensified and stopped eating etc.

    my wife called pain pump surgeon office....were not even close for surgery...they want a consult - why?

    and then a ct for the surgery to know where to go - I get that one but still....

    thr long trips to and fro are so hard on me I've told them over and over.....and still we drag it out...

    this is how folks die...dragging it out like I've got all the time in the world..my cancer is running unchecked since November while we battle all of this other.

    times like this make me question why I still fight.

    well we'll see what hospice comrs up with.

    over and out....will update when I can.

    Hope I'm not acting like s big old baby with my whining...but I have my wife and my remaining friends on the board here...that's it and I need to talk to you.

    Love, Craig

    Craig, I haven't posted

    Craig, I haven't posted because I don't know what to say. My heart is breaking for you and Kim...and for all of us.   You are constantly in my thoughts and prayers.  You are never a big baby.  this should be your safe place where you can say anything.   Keep at them until they get your pain under control.   Take care of you.  Love and hugs, Jen

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    Sundanceh said:

    Hospice has landed...

    could not get into hospital...none of my gi docs were even there today.

    unbelievable can you believe it?  I swear nobody there cares...my onc signed off for hospice today and here they are.

    as long as I'm not in chemo I can do hospice - that's the rule.

    nurse is nice and seems to want to help me...I hope they can.

    i am trying to hang on...it just seems things changed so suddenly...pain intensified and stopped eating etc.

    my wife called pain pump surgeon office....were not even close for surgery...they want a consult - why?

    and then a ct for the surgery to know where to go - I get that one but still....

    thr long trips to and fro are so hard on me I've told them over and over.....and still we drag it out...

    this is how folks die...dragging it out like I've got all the time in the world..my cancer is running unchecked since November while we battle all of this other.

    times like this make me question why I still fight.

    well we'll see what hospice comrs up with.

    over and out....will update when I can.

    Hope I'm not acting like s big old baby with my whining...but I have my wife and my remaining friends on the board here...that's it and I need to talk to you.

    Love, Craig

    This is not whining, Craig

    Hope I'm not acting like s big old baby with my whining

    Whining is when you carry on about something that is really quite insignificant in the big scheme of things. Complaining over being treated like a pay check (Yeah, I want a consult first and then we'll see), like you life doesn't matter at all, well, thats not whining, that is stating the facts about your care, the sad facts. 

    I know we all hate the word Hospice, its like 'The End'. But it doesn't have to be, not as long as there is some fight left in you, and I know its spread thin, but I can see it, even in your posts. 

    My long-time best friend over in Wales is a Hospice nurse. She said that sure, people come there when the Doc's can't move forward, but she also sees people there long term as well as those that pass. 

    Hospice will take care of you (I sincerely hope), while you continue to fight. Get that pain pump if you can. Do what you can while  you have that fight, even if its just a spark, in you. 

    We've got your back, and wish we could just jump through the computer and give you more. 

    Sue - Trubrit

  • Fight for my love
    Fight for my love Member Posts: 1,522 Member
    Sundanceh said:

    Hospice has landed...

    could not get into hospital...none of my gi docs were even there today.

    unbelievable can you believe it?  I swear nobody there cares...my onc signed off for hospice today and here they are.

    as long as I'm not in chemo I can do hospice - that's the rule.

    nurse is nice and seems to want to help me...I hope they can.

    i am trying to hang on...it just seems things changed so suddenly...pain intensified and stopped eating etc.

    my wife called pain pump surgeon office....were not even close for surgery...they want a consult - why?

    and then a ct for the surgery to know where to go - I get that one but still....

    thr long trips to and fro are so hard on me I've told them over and over.....and still we drag it out...

    this is how folks die...dragging it out like I've got all the time in the world..my cancer is running unchecked since November while we battle all of this other.

    times like this make me question why I still fight.

    well we'll see what hospice comrs up with.

    over and out....will update when I can.

    Hope I'm not acting like s big old baby with my whining...but I have my wife and my remaining friends on the board here...that's it and I need to talk to you.

    Love, Craig

    what??? I can't believe it. I

    what??? I can't believe it. I really question why they put you on hospic instead of pain management. Please don't be disencouraged by hospic care, I heard that people can be out of this care when things are under control. Overall I am just as upset as you are with the whole thing, speechless. Take care.

  • LindaK.
    LindaK. Member Posts: 506 Member
    Sundanceh said:

    Hospice has landed...

    could not get into hospital...none of my gi docs were even there today.

    unbelievable can you believe it?  I swear nobody there cares...my onc signed off for hospice today and here they are.

    as long as I'm not in chemo I can do hospice - that's the rule.

    nurse is nice and seems to want to help me...I hope they can.

    i am trying to hang on...it just seems things changed so suddenly...pain intensified and stopped eating etc.

    my wife called pain pump surgeon office....were not even close for surgery...they want a consult - why?

    and then a ct for the surgery to know where to go - I get that one but still....

    thr long trips to and fro are so hard on me I've told them over and over.....and still we drag it out...

    this is how folks die...dragging it out like I've got all the time in the world..my cancer is running unchecked since November while we battle all of this other.

    times like this make me question why I still fight.

    well we'll see what hospice comrs up with.

    over and out....will update when I can.

    Hope I'm not acting like s big old baby with my whining...but I have my wife and my remaining friends on the board here...that's it and I need to talk to you.

    Love, Craig

    &*$#@*!

    I can't print what I really want to say!  Craig, someone must not be telling you something.  This sounds inhumane to dump on a cancer patient who so desperately wants to continue the fight.  I found home hospice in our city not so great.  They would say opposing things depending on who you spoke to.  The night and weekend "emergency" number was often unmanned and I had to call 2 or 3 times to even get the service to get the 1 on-call nurse.  The inpatient facility I took my husband to was fantastic.  Maybe something like that will be better for pain management for you to get it under control.  Hospice does not always mean the end, it means caring for someone with a life threatening illness.  If you could get in patient and get a pain pump, you can go home with it.  We pushed for it and we made them ask the palliative care doctor.  They said it can be done.  My husband then decided he wanted to keep the pain under control with pills.  I didn't think that was such a great idea, but I couldn't argue with him.  The pain pump they used at the facility was called "sub Q" so it wasn't through his port or an IV.  It had to be moved every 3 or 5 days but he never had another pain episode and for that, I am glad.

    Please feel the love and concern from all of us.  We are in your corner.

    Linda

  • Easyflip
    Easyflip Member Posts: 588 Member
    LindaK. said:

    &*$#@*!

    I can't print what I really want to say!  Craig, someone must not be telling you something.  This sounds inhumane to dump on a cancer patient who so desperately wants to continue the fight.  I found home hospice in our city not so great.  They would say opposing things depending on who you spoke to.  The night and weekend "emergency" number was often unmanned and I had to call 2 or 3 times to even get the service to get the 1 on-call nurse.  The inpatient facility I took my husband to was fantastic.  Maybe something like that will be better for pain management for you to get it under control.  Hospice does not always mean the end, it means caring for someone with a life threatening illness.  If you could get in patient and get a pain pump, you can go home with it.  We pushed for it and we made them ask the palliative care doctor.  They said it can be done.  My husband then decided he wanted to keep the pain under control with pills.  I didn't think that was such a great idea, but I couldn't argue with him.  The pain pump they used at the facility was called "sub Q" so it wasn't through his port or an IV.  It had to be moved every 3 or 5 days but he never had another pain episode and for that, I am glad.

    Please feel the love and concern from all of us.  We are in your corner.

    Linda

    Fight

    for the pain control then you can think more clearly. Not telling you what to do here but if you want to keep fighting you should. Next thing, when you're pain free put on some weight. Whatever you decide you have my support. Good luck.

    Easyflip/Richard

  • NewHere
    NewHere Member Posts: 1,427 Member
    Sundanceh said:

    Hospice has landed...

    could not get into hospital...none of my gi docs were even there today.

    unbelievable can you believe it?  I swear nobody there cares...my onc signed off for hospice today and here they are.

    as long as I'm not in chemo I can do hospice - that's the rule.

    nurse is nice and seems to want to help me...I hope they can.

    i am trying to hang on...it just seems things changed so suddenly...pain intensified and stopped eating etc.

    my wife called pain pump surgeon office....were not even close for surgery...they want a consult - why?

    and then a ct for the surgery to know where to go - I get that one but still....

    thr long trips to and fro are so hard on me I've told them over and over.....and still we drag it out...

    this is how folks die...dragging it out like I've got all the time in the world..my cancer is running unchecked since November while we battle all of this other.

    times like this make me question why I still fight.

    well we'll see what hospice comrs up with.

    over and out....will update when I can.

    Hope I'm not acting like s big old baby with my whining...but I have my wife and my remaining friends on the board here...that's it and I need to talk to you.

    Love, Craig

    I Am A Newcomer

    And it is obvious you are strong as anyone I have seen with what you have gone through and how you keep on going.  And it is evenm ore obvious how well you are thought of here.

    All of my thoughts are with you in this.  Big old baby? Never.  So far from it.

  • ron50
    ron50 Member Posts: 1,723 Member
    Good luck mate

       I'm not much use for advice at the moment mate. I'm having problems keeping it togeather myself. My gp up and changed towns without a good bye or kiss my a. Now I am just rehashing things with the new guy. I have asked and asked for a viable alternative to Targin but there appears to be none. Every couple of weeks I have to do battle with opiate induced constipation again. I could just about afford to give up going to the toilet . I am not eating much and nothing much appeals to me. After 17 years of fighting I am financially , mentally and emotoinally bankrupt. Cancer and the long term effects thereof is an expensive on finances and the body and soul. I hope you can stop the blockages, I rely on 4 biscodyl ,4 coloxyl and two to three sachets of movicol a day. Sometimes it works , sometimes not. My neprologist put me on prednisone again for a while to help deal with some auto-immune hepatitis. Life really is a tightrope for us. All the best Craig,hugs Mate. Ron.

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    Easyflip said:

    Fight

    for the pain control then you can think more clearly. Not telling you what to do here but if you want to keep fighting you should. Next thing, when you're pain free put on some weight. Whatever you decide you have my support. Good luck.

    Easyflip/Richard

    Hospice not the end

    they are here to help manage pain and symptoms....I don't see it as the end yet...I see them offering help when nobody else would....one call and they show right up today and I don't have to travel - beautiful.

    they are staying overnight for 24 hours to watch me and help with meds etc...

    and.........a pain pump is being delivered TODAY.  It will run through my port.  Did my pain mgmt team do that for me?  No.

    Linda I agree think pump will be better than pills...so hard to maintain and stay up with it.  It has a carrying case like the 5fu pump but it's always something.  Pain is so bad after s year and half I can bsrely see sometimes.

    its been so long with pain it's hard to know anything else.....

    so if this can help me for now I'm going to try it.

    You know I talk a lot but I'm not ready to quit yet....not yet......10.5 years and still actively fighting....how many can say that?

    i want to thank you for responding and reaching out to me....I've really missed our interactions - a lot .

    in my continuing effort to share what I learned.....

    TPN is used for bad bowel conditions and not used for sustenance to live on so interesting.  Starting the LINZESS and they want pain under control do I can eat something.....and they will work with bowel regimen to help me there so I don't Impact again.

    not usrd to stranger staying over but it's good precaution.

    thanks for listening....this thread makes me feel close to you and I need that.  

    Keep your fingers crossed and I'll do my best to keep you posted.

    What a comeback this would make:)

    -Craig

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    Sundanceh said:

    Hospice not the end

    they are here to help manage pain and symptoms....I don't see it as the end yet...I see them offering help when nobody else would....one call and they show right up today and I don't have to travel - beautiful.

    they are staying overnight for 24 hours to watch me and help with meds etc...

    and.........a pain pump is being delivered TODAY.  It will run through my port.  Did my pain mgmt team do that for me?  No.

    Linda I agree think pump will be better than pills...so hard to maintain and stay up with it.  It has a carrying case like the 5fu pump but it's always something.  Pain is so bad after s year and half I can bsrely see sometimes.

    its been so long with pain it's hard to know anything else.....

    so if this can help me for now I'm going to try it.

    You know I talk a lot but I'm not ready to quit yet....not yet......10.5 years and still actively fighting....how many can say that?

    i want to thank you for responding and reaching out to me....I've really missed our interactions - a lot .

    in my continuing effort to share what I learned.....

    TPN is used for bad bowel conditions and not used for sustenance to live on so interesting.  Starting the LINZESS and they want pain under control do I can eat something.....and they will work with bowel regimen to help me there so I don't Impact again.

    not usrd to stranger staying over but it's good precaution.

    thanks for listening....this thread makes me feel close to you and I need that.  

    Keep your fingers crossed and I'll do my best to keep you posted.

    What a comeback this would make:)

    -Craig

    Arriving today...

    well that deserves a happy dance man image.

  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    Sundanceh said:

    Hospice not the end

    they are here to help manage pain and symptoms....I don't see it as the end yet...I see them offering help when nobody else would....one call and they show right up today and I don't have to travel - beautiful.

    they are staying overnight for 24 hours to watch me and help with meds etc...

    and.........a pain pump is being delivered TODAY.  It will run through my port.  Did my pain mgmt team do that for me?  No.

    Linda I agree think pump will be better than pills...so hard to maintain and stay up with it.  It has a carrying case like the 5fu pump but it's always something.  Pain is so bad after s year and half I can bsrely see sometimes.

    its been so long with pain it's hard to know anything else.....

    so if this can help me for now I'm going to try it.

    You know I talk a lot but I'm not ready to quit yet....not yet......10.5 years and still actively fighting....how many can say that?

    i want to thank you for responding and reaching out to me....I've really missed our interactions - a lot .

    in my continuing effort to share what I learned.....

    TPN is used for bad bowel conditions and not used for sustenance to live on so interesting.  Starting the LINZESS and they want pain under control do I can eat something.....and they will work with bowel regimen to help me there so I don't Impact again.

    not usrd to stranger staying over but it's good precaution.

    thanks for listening....this thread makes me feel close to you and I need that.  

    Keep your fingers crossed and I'll do my best to keep you posted.

    What a comeback this would make:)

    -Craig

    Hospice = Help

    I am sorry to hear that everything must be a struggle for you.

    I pray that Hospice folks will be able to help you turn this around so you gain strenght to continue the fight.

    You are in the thoughts and hearts of many.

    Hugs and love,

    Marie who loves kitties

  • Sonia32
    Sonia32 Member Posts: 1,071 Member
    Sundanceh said:

    Hospice not the end

    they are here to help manage pain and symptoms....I don't see it as the end yet...I see them offering help when nobody else would....one call and they show right up today and I don't have to travel - beautiful.

    they are staying overnight for 24 hours to watch me and help with meds etc...

    and.........a pain pump is being delivered TODAY.  It will run through my port.  Did my pain mgmt team do that for me?  No.

    Linda I agree think pump will be better than pills...so hard to maintain and stay up with it.  It has a carrying case like the 5fu pump but it's always something.  Pain is so bad after s year and half I can bsrely see sometimes.

    its been so long with pain it's hard to know anything else.....

    so if this can help me for now I'm going to try it.

    You know I talk a lot but I'm not ready to quit yet....not yet......10.5 years and still actively fighting....how many can say that?

    i want to thank you for responding and reaching out to me....I've really missed our interactions - a lot .

    in my continuing effort to share what I learned.....

    TPN is used for bad bowel conditions and not used for sustenance to live on so interesting.  Starting the LINZESS and they want pain under control do I can eat something.....and they will work with bowel regimen to help me there so I don't Impact again.

    not usrd to stranger staying over but it's good precaution.

    thanks for listening....this thread makes me feel close to you and I need that.  

    Keep your fingers crossed and I'll do my best to keep you posted.

    What a comeback this would make:)

    -Craig

    Hey

    Hospice is not the end as you said, if they are offering pain meds and you can't get it from any other source so be it. Bro you know we still watch over your Kim on Facebook. How can anyone forget you, you are still my bro and no one I know has been fighting as long as you have. You are an inspiration.

     

    Love you. Now take those drugs, get stronger and kick butt.

  • lp1964
    lp1964 Member Posts: 1,239 Member
    ron50 said:

    Good luck mate

       I'm not much use for advice at the moment mate. I'm having problems keeping it togeather myself. My gp up and changed towns without a good bye or kiss my a. Now I am just rehashing things with the new guy. I have asked and asked for a viable alternative to Targin but there appears to be none. Every couple of weeks I have to do battle with opiate induced constipation again. I could just about afford to give up going to the toilet . I am not eating much and nothing much appeals to me. After 17 years of fighting I am financially , mentally and emotoinally bankrupt. Cancer and the long term effects thereof is an expensive on finances and the body and soul. I hope you can stop the blockages, I rely on 4 biscodyl ,4 coloxyl and two to three sachets of movicol a day. Sometimes it works , sometimes not. My neprologist put me on prednisone again for a while to help deal with some auto-immune hepatitis. Life really is a tightrope for us. All the best Craig,hugs Mate. Ron.

    Dear Craig,

    You are one of the toughest person by any standard. You are such an inspiration. I only wish that your strength wouldn't have to be challenged this way. But it is what it is. We all love you and eagerly wait for any word from you. 

    Laz

  • traci43
    traci43 Member Posts: 773 Member
    Sundanceh said:

    Hospice not the end

    they are here to help manage pain and symptoms....I don't see it as the end yet...I see them offering help when nobody else would....one call and they show right up today and I don't have to travel - beautiful.

    they are staying overnight for 24 hours to watch me and help with meds etc...

    and.........a pain pump is being delivered TODAY.  It will run through my port.  Did my pain mgmt team do that for me?  No.

    Linda I agree think pump will be better than pills...so hard to maintain and stay up with it.  It has a carrying case like the 5fu pump but it's always something.  Pain is so bad after s year and half I can bsrely see sometimes.

    its been so long with pain it's hard to know anything else.....

    so if this can help me for now I'm going to try it.

    You know I talk a lot but I'm not ready to quit yet....not yet......10.5 years and still actively fighting....how many can say that?

    i want to thank you for responding and reaching out to me....I've really missed our interactions - a lot .

    in my continuing effort to share what I learned.....

    TPN is used for bad bowel conditions and not used for sustenance to live on so interesting.  Starting the LINZESS and they want pain under control do I can eat something.....and they will work with bowel regimen to help me there so I don't Impact again.

    not usrd to stranger staying over but it's good precaution.

    thanks for listening....this thread makes me feel close to you and I need that.  

    Keep your fingers crossed and I'll do my best to keep you posted.

    What a comeback this would make:)

    -Craig

    Ahhhh, at last some movement!

    Craig - Hopsice may just be the best thing for you right now.  You've got a pain pump, that's awesome.  I hope and pray it helps.  Get this under control so you can deal with the rest.  We're in your corner and looking for the day when you're back and dispensing your pearls of wisdom!  You're always in my thoughts.  Traci

  • LindaK.
    LindaK. Member Posts: 506 Member
    Sundanceh said:

    Hospice not the end

    they are here to help manage pain and symptoms....I don't see it as the end yet...I see them offering help when nobody else would....one call and they show right up today and I don't have to travel - beautiful.

    they are staying overnight for 24 hours to watch me and help with meds etc...

    and.........a pain pump is being delivered TODAY.  It will run through my port.  Did my pain mgmt team do that for me?  No.

    Linda I agree think pump will be better than pills...so hard to maintain and stay up with it.  It has a carrying case like the 5fu pump but it's always something.  Pain is so bad after s year and half I can bsrely see sometimes.

    its been so long with pain it's hard to know anything else.....

    so if this can help me for now I'm going to try it.

    You know I talk a lot but I'm not ready to quit yet....not yet......10.5 years and still actively fighting....how many can say that?

    i want to thank you for responding and reaching out to me....I've really missed our interactions - a lot .

    in my continuing effort to share what I learned.....

    TPN is used for bad bowel conditions and not used for sustenance to live on so interesting.  Starting the LINZESS and they want pain under control do I can eat something.....and they will work with bowel regimen to help me there so I don't Impact again.

    not usrd to stranger staying over but it's good precaution.

    thanks for listening....this thread makes me feel close to you and I need that.  

    Keep your fingers crossed and I'll do my best to keep you posted.

    What a comeback this would make:)

    -Craig

    That's good news

    So glad to hear your hospice group went right to your home and want to keep an eye on you for 24 hours.  That sounds like a wonderful start to getting your pain under control.  The hospice nurses say these pumps really do wonders so I'm hoping you'll be feeling better quickly and can get som nourishment and food moving through those tough bowels of yours!

    I certainly miss your stories and feel your suffering.  I was re-reading some things I got from hospice last night and it made me feel better instead of angry.  Ask Kim to read all the stuff if she can.  It was difficult for me when my husband first started, but now I find it comforting.

    I would like to hear that lion roar all the way up in NY!

    Linda

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    lp1964 said:

    Dear Craig,

    You are one of the toughest person by any standard. You are such an inspiration. I only wish that your strength wouldn't have to be challenged this way. But it is what it is. We all love you and eagerly wait for any word from you. 

    Laz

    Thanks everyone

    so far I cant tell a huge difference other than I have to lug around a very heavy and cumbersome pump and I don't have to monitor pills...I've got the pca but I can't pump enough to get up on it.

    still in bed and saving strength for the can...little hungry but no difference there.

    sirt of glad I'm trying this prior to surgery implant....if it does not get better don't know if it would really be a benefit for what I'd have to go through.

    hispice will be tweaking the pain so right now it's experimentation....will keep trying and see if it will get better....this pain is the worst and just in a really bad spot it seems.....came from the fires of hell itself.

    we shall see.

    all in all I'm about in the same spot...I had hoped for more...

    thanks for your support.

    -Craig