Found 8cm on my sons kidney an hour ago

24

Comments

  • blondy1975
    blondy1975 Member Posts: 27

    Hang on in there

    I know the fear you must be feeling but try not to second guess the doctors if you can. They will inform you when they have a certain diagnosis. a 50% chance its malignant is also a 50% chance its not. It just means they dont know yet.

    Won't hear anything from the

    Won't hear anything from the MRI until tomorrow when radiologist comes in. They still keeping him at the hospital another night. 

  • jason.2835
    jason.2835 Member Posts: 337 Member
    Wow

    Just seeing this post, Blondy very sorry to hear you're going through this.  But he's in the right place.  Hopefully they can remove whatever it is and be done with it.  At his age, they will probably want to do genetic testing for Birt-Hogg-Dube or Von-Hippel-Lindau syndromes.  They are genetic defects that have a high rate of kidney cancers.  More common in the younger patients from what I've read.  Whatever the case, the first order of business is to remove the mass, run it through pathology and see what it is.  Hopefully it is benign (he could have even been born with the darn thing).  Just stay positive.  There are a lot of treatment options out there these days.  

  • Dave418
    Dave418 Member Posts: 95 Member
    Hoping for the best for your

    Hoping for the best for your son. Keep us informed of the results of those tests tomorrow. I'm juste 38, but I have 2 kids and can't imagine what I would feel if...

    I'm with you and your family, as everyone on this board surely is! 

  • aamdsi
    aamdsi Member Posts: 284
    Prayers to you

    Glad you at least found this board.  Hope "we" can help.

    Keep us informed with the resuts and keep in mind, at least they caught it!

  • blondy1975
    blondy1975 Member Posts: 27
    aamdsi said:

    Prayers to you

    Glad you at least found this board.  Hope "we" can help.

    Keep us informed with the resuts and keep in mind, at least they caught it!

    They just informed us 16 hrs

    They just informed us 16 hrs after the MRI that the cyst and kidney are bleeding. They are transferring him via ambulance to children's hospital to be monitored to see if bleeding stops. They do not feel it is cancerous.

  • Jan4you
    Jan4you Member Posts: 1,330 Member

    They just informed us 16 hrs

    They just informed us 16 hrs after the MRI that the cyst and kidney are bleeding. They are transferring him via ambulance to children's hospital to be monitored to see if bleeding stops. They do not feel it is cancerous.

    Glad you let us know. Many of

    Glad you let us know. Many of us have been hanging on with you!

    Still, this uncertainty is challenging to say the least, huh?

     

    Again, this is a "working" diagnosis.. not certain.

    Good he'll be monitored closely. But why Children's hospital if he is 18?

    Just curious.. keep us posted, if you can.

     

    Hugs, Jan

  • foroughsh
    foroughsh Member Posts: 779 Member
    Wish him luck and health, may

    Wish him luck and health, may the family finds strength and peace of mind to make the best desicion . It's wonderful if it's not cancerous.let us informed pls

  • blondy1975
    blondy1975 Member Posts: 27
    foroughsh said:

    Wish him luck and health, may

    Wish him luck and health, may the family finds strength and peace of mind to make the best desicion . It's wonderful if it's not cancerous.let us informed pls

    He can still be taken care of

    He can still be taken care of at Children's even though he is 18. The urologist at this hospital can consult us on this because we came in the ER, not as a referred visit, but our insurance won't cover him after that. It was suggested to take him to Children's because he is still younger than most patience seen with a cyst this large, and a follow up MRI is necessary due to the blood being in the cyst that made it a little difficult to see everything.

  • Footstomper
    Footstomper Member Posts: 1,237 Member

    He can still be taken care of

    He can still be taken care of at Children's even though he is 18. The urologist at this hospital can consult us on this because we came in the ER, not as a referred visit, but our insurance won't cover him after that. It was suggested to take him to Children's because he is still younger than most patience seen with a cyst this large, and a follow up MRI is necessary due to the blood being in the cyst that made it a little difficult to see everything.

    Good luck

    Great news if its not cancerous. We're all rooting for you!

  • icemantoo
    icemantoo Member Posts: 3,361 Member

    He can still be taken care of

    He can still be taken care of at Children's even though he is 18. The urologist at this hospital can consult us on this because we came in the ER, not as a referred visit, but our insurance won't cover him after that. It was suggested to take him to Children's because he is still younger than most patience seen with a cyst this large, and a follow up MRI is necessary due to the blood being in the cyst that made it a little difficult to see everything.

    Keep us posted

    Blony,

     

    I may have been a little thrown off when you used the word tumor in your initial post. If it is in fact a cyst he may get a free pass on this Cancer stuff which has no part in the life of an 18 year old. Hopefully the Kidney issues will resolve themselves, but if they do have to remove the Kidney because of the cyst or bleeding issues we can still offer hope and comfort on this board as each of us has faced the loss of a Kidney and knows what the surgery and recovery are like. Hopefully you do not need us.

     

    Icemantoo

  • blondy1975
    blondy1975 Member Posts: 27
    icemantoo said:

    Keep us posted

    Blony,

     

    I may have been a little thrown off when you used the word tumor in your initial post. If it is in fact a cyst he may get a free pass on this Cancer stuff which has no part in the life of an 18 year old. Hopefully the Kidney issues will resolve themselves, but if they do have to remove the Kidney because of the cyst or bleeding issues we can still offer hope and comfort on this board as each of us has faced the loss of a Kidney and knows what the surgery and recovery are like. Hopefully you do not need us.

     

    Icemantoo

    Another sleepless night as

    Another sleepless night as fear takes over again. They transferred him to Children's Hospital.  They reviewed his scans and are not for sure what it is... a cyst or a mass. He made it sound like it's a cyst but has a mass of some sort inside of it. He said a team of specialist are having a conference tomorrow to discuss it and see "what will be the plan of attack". This can't be good. I am in utter disbelief.  The doctor at the first hospital SPECIFICALLY said it looks like a cyst and didn't see anything of concern.  But that because of bleed that it was hard to see everything and would need a follow-up scan in a couple weeks when the blood clears out. Please say a prayer

  • Allochka
    Allochka Member Posts: 1,060 Member

    Another sleepless night as

    Another sleepless night as fear takes over again. They transferred him to Children's Hospital.  They reviewed his scans and are not for sure what it is... a cyst or a mass. He made it sound like it's a cyst but has a mass of some sort inside of it. He said a team of specialist are having a conference tomorrow to discuss it and see "what will be the plan of attack". This can't be good. I am in utter disbelief.  The doctor at the first hospital SPECIFICALLY said it looks like a cyst and didn't see anything of concern.  But that because of bleed that it was hard to see everything and would need a follow-up scan in a couple weeks when the blood clears out. Please say a prayer

    Even if it is not just a cyst

    Even if it is not just a cyst - your son is obviously in good hands. Most probably there will be surgery, and. Your son will be tumor Free. Waiting is very hard, but even this hard time will pass, and things will get better!

    hugs to you...

    Alla

  • Jojo61
    Jojo61 Member Posts: 1,309 Member
    The not knowing and waiting

    The not knowing and waiting must be so difficult for you! I hope you get the best answers soon so that you can move on to the best possible care. How is your son handling all of this?

    Please keep us posted.

    Hugs

    Jojo

  • blondy1975
    blondy1975 Member Posts: 27
    Jojo61 said:

    The not knowing and waiting

    The not knowing and waiting must be so difficult for you! I hope you get the best answers soon so that you can move on to the best possible care. How is your son handling all of this?

    Please keep us posted.

    Hugs

    Jojo

    Heading back to hospital

    Heading back to hospital soon. Jojo, we haven't led on to our son what the negative possibility could be. Unfortunately he is in terrific pain just to move or breath deep and his temp keeps spiking

  • sblairc
    sblairc Member Posts: 585 Member
    Just wanted to add my support.

    I post here on behalf of my husband. Seeing someone you love in so much pain is so incredibly heartbreaking, I understand. Whatever the issue, cyst or something else (it could be cyst with calcifications, as you have mentioned) please know we are here to support you. 

  • sblairc
    sblairc Member Posts: 585 Member

    Another sleepless night as

    Another sleepless night as fear takes over again. They transferred him to Children's Hospital.  They reviewed his scans and are not for sure what it is... a cyst or a mass. He made it sound like it's a cyst but has a mass of some sort inside of it. He said a team of specialist are having a conference tomorrow to discuss it and see "what will be the plan of attack". This can't be good. I am in utter disbelief.  The doctor at the first hospital SPECIFICALLY said it looks like a cyst and didn't see anything of concern.  But that because of bleed that it was hard to see everything and would need a follow-up scan in a couple weeks when the blood clears out. Please say a prayer

    Silver lining: We got "It's cancer" right away

    I think the positive here is that they could be ruling out cancer. Many, if not most of us here heard "It's cancer" right away. No chance of anything else, which is what happened to me. The mass looking different, and the dilligence they are taking could in fact bring postive results. I think it's acutally a good thing they are forming a group to come up with a concensus of how to treat the issue, especially since preserving kidney function is important. Hang on to that thought, I will be hoping for you that this mass is just a cyst, and the impact of the skiing injury caused it to rupture. 

  • Ree_Maryland
    Ree_Maryland Member Posts: 161 Member

    I know I should give the

    I know I should give the doctors time, but they won't tell my husband anything.  They just keep saying they will know more tomorrow with the MRI.  And I know that isn't a good sign.  If they didn't suspect something bad they would say, "it doesn't look to be malignant". But they won't tell him anything.  God I just keep thinking... 8cm... that's over 3"!  They diagnosed my son with mono months ago but kept feeling what they suspected was an enlarged spleen, a syptom of mono, but now I'm thinking it was probably this 3" mass he has. I'm so heart broken.  He's been so sick with this and that.  He's lost weight, he always looks so pale. They did blood work for his mono and I remember them saying something was off but my mind is going a million miles a minute that I can't remember what it was they said.  Whatever it was I assumed they assumed it was due to the mono.  This just can't happen right now.  My husband will just lose it.  He just lost his step dad, his mom just had a stroke over it, and his dad has cancer and is in the hospital. 

    Hopeful

    I am sorry to hear that your son is in such much pain . do not jump to conclusions ,could be just a cyst, this board is a great source of comfort and  hope . Keeping you and your family in my thougths and prayers. 

  • APny
    APny Member Posts: 1,995 Member
    sblairc said:

    Just wanted to add my support.

    I post here on behalf of my husband. Seeing someone you love in so much pain is so incredibly heartbreaking, I understand. Whatever the issue, cyst or something else (it could be cyst with calcifications, as you have mentioned) please know we are here to support you. 

    You must be so stressed. Even

    You must be so stressed. Even knowing he's in good hands it's still so hard to see your child in pain and be uncertain. Hang in there and we're all thinking of you. Hoping outcome is just a cyst and it'll all be resolved quickly.

  • Footstomper
    Footstomper Member Posts: 1,237 Member

    Heading back to hospital

    Heading back to hospital soon. Jojo, we haven't led on to our son what the negative possibility could be. Unfortunately he is in terrific pain just to move or breath deep and his temp keeps spiking

    Thinking of you and your son

    Hopefully they can give him something for the pain, and you get some good answers soon. Youre in our thoughts blondy

  • cran1
    cran1 Member Posts: 139
    You and your son are in my

    You and your son are in my thoughts and prayers.