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Anyone in touch with Pete Lost at Sea?

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Comments

  • LindaK.
    LindaK. Member Posts: 506

    He also mentions

    Out of all his friends, he's the only one surviving, blames friends deaths mostly on them because his friends, although trying, weren't trying hard enough.  Maybe his friends aren't using chemo when they go over, unlike Pete, who knows, but odds aren't that good,

     

    here's his plans when in Germany: (he's on Xeloda now) As soon as I have airfare I will be on plane within A DAY TO HAVE LOCAL AVASTIN AND CHEMO AND GCMAF INJECTED TO MET TO KILL IT! BEFORE IT GETS ME.

    So he does chemo while calling us that do it here fools.

    He also has a new met to spleen, can't remember where his other mets are, but he always has mets of some sort (takes after me, always a met here or there) whether in Germany or in Australia, why if they are so small he doesn't get them cut out, I'll never understand.  Until then he'll continue to find ways to leave his family in poverty while he whisks off to the ashrams, two hour Thai massages, expensive cars and hotels in Germany. Mi wish him luck, but it's pm his family I worry about more.

    Winter Marie

    Yogurt and enemas

    He also makes his own yogurt and does coffee enemas.  I think he was also trying to get people to "sign up" (and pay him) for advice on his treatments.  He is desparate for money and calls his wife a hoarder.  His blog is kind of like a train wreck, so difficult to read, but oddly fascinating someone can really think the way he does.  I just can't stand the "holier than thou" attitude he seems to have.  He still mentioned recently being banned from this CSN blog and some derogatory comment about it.  So bizarre

  • annalexandria
    annalexandria Member Posts: 2,571
    LindaK. said:

    Yogurt and enemas

    He also makes his own yogurt and does coffee enemas.  I think he was also trying to get people to "sign up" (and pay him) for advice on his treatments.  He is desparate for money and calls his wife a hoarder.  His blog is kind of like a train wreck, so difficult to read, but oddly fascinating someone can really think the way he does.  I just can't stand the "holier than thou" attitude he seems to have.  He still mentioned recently being banned from this CSN blog and some derogatory comment about it.  So bizarre

    I think he was only banned

    once he developed a financial relationship with the German clinic he was going to.  I don't know if he actually got direct payment from them for referrals, but he did receive reduced rates for every patient he sent their way.  This was clearly not ok under the TOS for CSN.  Not to mention kind of ethically shady in general.

    BTW, if people are interested in these therapies, and would like to read unbiased info on them, user Maia at the Colon Club has great links attached to her signature on that site.  She's done a ton of research on them, and has been an incredible resource for people hoping to try them (and she's not shilling for any particular clinic).

  • LivinginNH
    LivinginNH Member Posts: 1,456

    I think he was only banned

    once he developed a financial relationship with the German clinic he was going to.  I don't know if he actually got direct payment from them for referrals, but he did receive reduced rates for every patient he sent their way.  This was clearly not ok under the TOS for CSN.  Not to mention kind of ethically shady in general.

    BTW, if people are interested in these therapies, and would like to read unbiased info on them, user Maia at the Colon Club has great links attached to her signature on that site.  She's done a ton of research on them, and has been an incredible resource for people hoping to try them (and she's not shilling for any particular clinic).

     
    Ann dear, you forgot the

     

    Ann dear, you forgot the main reason...he convinced Tedd and Ren to spend their entire life insurance policies ($100k+) to follow him to Germay for those unproven alternative therapies that obviously don't work.  And Tedd had a stay-at-home spouce with four kids who I'm sure really could have used that insurance money after he passed.  So, for me personally, watching him convince people to follow in his alternative path was the very worst part of his unethical story. 

  • lilacbrroller
    lilacbrroller Member Posts: 412

     
    Ann dear, you forgot the

     

    Ann dear, you forgot the main reason...he convinced Tedd and Ren to spend their entire life insurance policies ($100k+) to follow him to Germay for those unproven alternative therapies that obviously don't work.  And Tedd had a stay-at-home spouce with four kids who I'm sure really could have used that insurance money after he passed.  So, for me personally, watching him convince people to follow in his alternative path was the very worst part of his unethical story. 

    actually Ren had money out the kazoo I think - he started an Internet search engine, or something like that.  So did not need to cash in an insurance policy. Plus most of his treatments, the TACE liver treatments were done by a different doctor/clinic from Hallwang. He got the TACE in Frankfurt from a Dr. Vogel.  Ren did a lot of his own research and reminded me of steve jobs  in the sense that money could buy him invincibility and protection from death. Ren was czech but lived in Australia, and must have had connections back in Europe. Not sure if Pete led him to these treatments or if he just found them on his own or recommendations from european doctors. 

    Tedd, though, had SIX children! And he did go to Hallwang. He and I were pm-ing at that time and were evaluating german clinics that Pete had gone to. He chose Hallwang (with the removab drug) and I went for the dendritic cell treatment. We shared information with each other but made different choices Ultimately. Him I'm a little upset for because he just jumped at something while in a very vulnerable state which we all have done. But it was his choice, pied piper of,Hallwang or not. He did his own research, I guess, and decided that was best for him.

    Im all for information sharing and posting of success stories, but I call people out on thse boards if they say they are cured from mega stage IV, and I  ask for details, especially if they arent regular members and it sounds too good to be true.  Some folks are legit, and do post success stories, and maybe they think they are great but they post prematurely, leading others to follow.  Sometimes these treatments keep the beast at bay for awhile but then, the mets return.  And, we hope, sometimes not!

    this disease sucks and it's tough to be vulnerable and desperate. Not a cheery post but it is what it is.

    karin

  • herdizziness
    herdizziness Member Posts: 3,624
    geotina said:

    Marie -

    You crack me up but you forgot walks in the forest and meditation. 

     

    Love ya - Tina

    Oh

    I forgot about those!! LOL, which reminds me, if my lungs are up to it, I'll go take a walk in our redwoods, much cheaper then going to Germany, although I wouldn't mind touristing over there.

    love back at you,

    Winter Marie

  • Helen321
    Helen321 Member Posts: 1,430 **
    When I first came on the

    When I first came on the boards I would read what he was posting and be so confused but everyone seemed to respond to him as if they understood what he was talking about so I thought there was this whole other cancer language that I couldn't understand and it scared the hell out of me!  lol  Then I realized, he was just a little loopy.  I have a lot of patience for loopy and am not much a follower so he never bothered me.  I don't keep up with him outside of the ocassional google.  I figure someone on here will mention if something goes poorly.  I tried to find Louswift recently, hoping to see a posting somewhere else.  Found nothing=(  

  • tanstaafl
    tanstaafl Member Posts: 1,299

     
    Ann dear, you forgot the

     

    Ann dear, you forgot the main reason...he convinced Tedd and Ren to spend their entire life insurance policies ($100k+) to follow him to Germay for those unproven alternative therapies that obviously don't work.  And Tedd had a stay-at-home spouce with four kids who I'm sure really could have used that insurance money after he passed.  So, for me personally, watching him convince people to follow in his alternative path was the very worst part of his unethical story. 

    sigh,

    It is important to try to maintain perspective and clarity here.  We deal with a deadly disease that easily goes out of control, with massive financial predation and obvious, repeated technical failures as the ethical norm.  Professionally, Pete's whole style is anathema to a person like Tedd, you can rest assured he thought long and hard about Pete's limitations. 

    ...he convinced Tedd ... to spend their entire life insurance policies ($100k+) to follow him to Germay        Tedd cashed 1/4 of his second life insurance policy and left his corporate life insurance untouched.  Responsible family men have to do the math and it follows a pattern that can be met with a good job.  Social security survivors' benefits are a major piece of the plan, too.

    ...for those unproven alternative therapies that obviously don't work.    Experimental therapies that didn't work out as well as hoped. If it was that obvious, Tedd, who was well educated and experienced with the speculative nature of drug research, would have done something else.  Chemistry-wise, my wife has done only "unproven alternative therapies", at least none approved by the FDA, for almost five years without the dying or devastating chemo side effects parts. Or expense. 

    ...Tedd had a stay-at-home spouce with four kids who I'm sure really could have used that insurance money after he passed.  Most of all Tedd's kids needed their dad, and Tedd needed a home run with a weapon of mass cancer destruction.    He tried his best, with no wonderful, push button choices. 

  • Lovekitties
    Lovekitties Member Posts: 3,364

    I think he was only banned

    once he developed a financial relationship with the German clinic he was going to.  I don't know if he actually got direct payment from them for referrals, but he did receive reduced rates for every patient he sent their way.  This was clearly not ok under the TOS for CSN.  Not to mention kind of ethically shady in general.

    BTW, if people are interested in these therapies, and would like to read unbiased info on them, user Maia at the Colon Club has great links attached to her signature on that site.  She's done a ton of research on them, and has been an incredible resource for people hoping to try them (and she's not shilling for any particular clinic).

    other reasons were there too

    If Pete had just stuck with reporting on his efforts with supplements, alternative threapies and German experiences things would have been ok here.

    Unfortunately, he was openly hostile regarding mainstream treatments and those following them.  I think that this more than anything else contributed to the ban.

    He did not understand that each person must do what they feel is right for them, including considering the financial impact to their family.  He felt one had to go "all in" on what he was doing.

    His relationships here were not helped by what and how he shared his family situations.

    I don't agree with what and how Pete interacts with folks, but I will always wish him best of luck with beating this disease.

    Marie who loves kitties

     

  • ron50
    ron50 Member Posts: 1,723
    Helen321 said:

    When I first came on the

    When I first came on the boards I would read what he was posting and be so confused but everyone seemed to respond to him as if they understood what he was talking about so I thought there was this whole other cancer language that I couldn't understand and it scared the hell out of me!  lol  Then I realized, he was just a little loopy.  I have a lot of patience for loopy and am not much a follower so he never bothered me.  I don't keep up with him outside of the ocassional google.  I figure someone on here will mention if something goes poorly.  I tried to find Louswift recently, hoping to see a posting somewhere else.  Found nothing=(  

    If something

     Really annoys me I either spray it with insecticide or ignore it. It is not polite to spray people so I just ignored Pete. Any sympathy I had went to his wife and family. Ron.