Now the seemingly endless wait!

Djinnie
Djinnie Member Posts: 945 Member
edited December 2014 in Kidney Cancer #1

Had the third 3 monthly scan after metastases yesterday. The procedure was somewhat fraught, I have been vomiting for several days now. It seems the very enlarged lymph up in my chest is pressing, not uncomfortably against my gullet. Swallowing is becoming difficult, so the blender and I are now attatched at the hip. Sadly the positioning of the rogue nodes makes them impossible to remove, such a bum deal! I will be making good use of my prayer mat for the next week I can tell you!

 

 

 

Djinnie x

 

 

 

«1

Comments

  • Phredswife
    Phredswife Member Posts: 162
    Praying too!

    Glad to hear from you. Sad to hear your news. Have been thinking of you for a few days. Now I know I should have been praying for you. Hope you can find something interesting to eat when you feel up to it. When I had my tonsils out in my twenties my dear hubby individually blended a whole roast dinner so I could still eat it and enjoy it. Hope someone is making a fuss of you while you feel so rotten.  Praying your pills start shrinking the lymph nodes soon.

    Heaps of love and I will be adding my prayers to yours, Melissa xox

  • Jojo61
    Jojo61 Member Posts: 1,309 Member
    Oh Djinnie! I didn't realize

    Oh Djinnie! I didn't realize how badly you were feeling! You are always so upbeat and full of jokes and funny anecdotes. I am praying alongside you, girl.

    I am hoping your scans will reveal some solution to relieve your symptoms.

    Big Hugs,

    Jojo

     

  • APny
    APny Member Posts: 1,995 Member
    Jojo61 said:

    Oh Djinnie! I didn't realize

    Oh Djinnie! I didn't realize how badly you were feeling! You are always so upbeat and full of jokes and funny anecdotes. I am praying alongside you, girl.

    I am hoping your scans will reveal some solution to relieve your symptoms.

    Big Hugs,

    Jojo

     

    I am so sorry to hear that.

    I am so sorry to hear that. There's no other word for it than it just plain sucks! I really hope there's a way to relieve the pressure so you can resume a normal diet. My prayers and thoughts are with you as always.

  • foroughsh
    foroughsh Member Posts: 779 Member
    Hi Djinnie
    So sorry to hear

    Hi Djinnie

    So sorry to hear that new. Hope the CT report brings good news. My prayers are with you.

     

     

     

  • foxhd
    foxhd Member Posts: 3,181 Member
    foroughsh said:

    Hi Djinnie
    So sorry to hear

    Hi Djinnie

    So sorry to hear that new. Hope the CT report brings good news. My prayers are with you.

     

     

     

    my theory

    DJ, I have a new theory. It states that cancer has the ultimate goal of trying to kill it's host. Stupid disease. But when it is unable to do so, it just commits to making life miserable and uncomfortable. Pain here, weakness there. Some diarrhea followed by constipation. Weight loss, fluid retention. Opiate addiction. Mental decay. So, as mentioned many times, we have to contend with the misery. With no end date. Then along the way, the cancer will expose it's vulnerability. New or improved treatment will eventually destroy the disease. Against all odds we will be victorious. The trick for us is to figure out how to continue not losing our mind. Time goes by and voila! We will endure. People like us have an advantage. It is being able to open a heavy door through committed effort. Then being able to walk into the dark space without hesitation. It is like being an explorer going into uncharted territory. There is no turning back. Only forward progress until we exit the other end. And we do that not knowing what bizarre encounter is ahead of us.  You see, cancer hates happy people. It thrives on misery. So we don't ever feed it. We replace that with a song loop that we can't get out of our head. It is happy, infectious, contagious and unbeatable. Nothing could be worse than not being a formidable foe. We take some bumps and bruises.  No big deal. We spit in cancers face.

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    foxhd said:

    my theory

    DJ, I have a new theory. It states that cancer has the ultimate goal of trying to kill it's host. Stupid disease. But when it is unable to do so, it just commits to making life miserable and uncomfortable. Pain here, weakness there. Some diarrhea followed by constipation. Weight loss, fluid retention. Opiate addiction. Mental decay. So, as mentioned many times, we have to contend with the misery. With no end date. Then along the way, the cancer will expose it's vulnerability. New or improved treatment will eventually destroy the disease. Against all odds we will be victorious. The trick for us is to figure out how to continue not losing our mind. Time goes by and voila! We will endure. People like us have an advantage. It is being able to open a heavy door through committed effort. Then being able to walk into the dark space without hesitation. It is like being an explorer going into uncharted territory. There is no turning back. Only forward progress until we exit the other end. And we do that not knowing what bizarre encounter is ahead of us.  You see, cancer hates happy people. It thrives on misery. So we don't ever feed it. We replace that with a song loop that we can't get out of our head. It is happy, infectious, contagious and unbeatable. Nothing could be worse than not being a formidable foe. We take some bumps and bruises.  No big deal. We spit in cancers face.

    WOW, well said Fox!! I admire

    WOW, well said Fox!! I admire your attitude, fortitude and advocacy!

     

    Djinnie.. ENUFF!!! I am so sorry for all you are enduring. No wonder you have been on my mind of late.

    Sending you a shoulder to lean on. Glad you are able to come here and share what you are going through.

    This news just put my little issues into a different persepective.

    Thanks for sharing this most vulnerable dilemma.

     

    Hugs, with hope~

    Jan

  • aamdsi
    aamdsi Member Posts: 284
    oh so sorry

    Hugs to you

  • tyjsbtn
    tyjsbtn Member Posts: 50
    I am so sorry that you feel

    I am so sorry that you feel so terrible.  You are in my thoughts and prayers.  

  • APny
    APny Member Posts: 1,995 Member
    tyjsbtn said:

    I am so sorry that you feel

    I am so sorry that you feel so terrible.  You are in my thoughts and prayers.  

    Fox, that made me cry.

    Fox, that made me cry.

  • Srashedb
    Srashedb Member Posts: 482 Member
    foxhd said:

    my theory

    DJ, I have a new theory. It states that cancer has the ultimate goal of trying to kill it's host. Stupid disease. But when it is unable to do so, it just commits to making life miserable and uncomfortable. Pain here, weakness there. Some diarrhea followed by constipation. Weight loss, fluid retention. Opiate addiction. Mental decay. So, as mentioned many times, we have to contend with the misery. With no end date. Then along the way, the cancer will expose it's vulnerability. New or improved treatment will eventually destroy the disease. Against all odds we will be victorious. The trick for us is to figure out how to continue not losing our mind. Time goes by and voila! We will endure. People like us have an advantage. It is being able to open a heavy door through committed effort. Then being able to walk into the dark space without hesitation. It is like being an explorer going into uncharted territory. There is no turning back. Only forward progress until we exit the other end. And we do that not knowing what bizarre encounter is ahead of us.  You see, cancer hates happy people. It thrives on misery. So we don't ever feed it. We replace that with a song loop that we can't get out of our head. It is happy, infectious, contagious and unbeatable. Nothing could be worse than not being a formidable foe. We take some bumps and bruises.  No big deal. We spit in cancers face.

    Your theory

    LOVE IT!

    Sarah

     

  • Dave418
    Dave418 Member Posts: 95 Member
    Djinnie, I wish you well and

    Djinnie, I wish you well and I hope you'll feel better soon. 

    Fox, that was well said, you guys with stage 4 are fighters and you are inspiring for me.

  • donna_lee
    donna_lee Member Posts: 1,042 Member
    Dave418 said:

    Djinnie, I wish you well and

    Djinnie, I wish you well and I hope you'll feel better soon. 

    Fox, that was well said, you guys with stage 4 are fighters and you are inspiring for me.

    Wow...

    DJ, please hang on, but don't chip your nail polish.  Many of us are cheering and praying.  Your message earlier this year was an inspiration to find the light switch in the black hole.

    Love, Donna

  • angec
    angec Member Posts: 924 Member
    DJ, sorry to hear this. I

    DJ, sorry to hear this. I hope you got my private email in return for the nice one you sent me. I have sent several emails out and it seems they are not working.  I am glad I did get yours though.  You are so very encouraging!  I know you were on Votrient, are you still on it?  Is there any chance for you to try Keytruda? Quite a few people seem to be able to get it easily now.  Sending you hugs and hope you found a good smoothie recipe! ;)  Stay strong and positive, cancer hates that!  Love and hugs to you.. :)

  • firedude21
    firedude21 Member Posts: 52
    Stay strong Djinnie

    Sorry to hear that you are not feeling well. Hopefully this is a minor set back and you will be feeling better soon. Thinking of you and hoping for the best.

     

    firedude

  • Billy's Wife
    Billy's Wife Member Posts: 52
    Fox, you said it so

    Fox, you said it so succinctly!  Formidable foes you are-- one and all!  Every cancer researcher should hear your words.  I printed the page to hold onto them.  You inspire others!

     

    Djinnie. God bless you, I am praying for you! 

     

    Arleen

  • alice124
    alice124 Member Posts: 896 Member
    DJ's Wait AND Fox's Theory

    Djinnie - so sorry for all you're going through. But you've hit rocky road before and you've won. Winning is in your nature. Your positive spirit and grit, combined with the prayers and positive thoughts of your many friends here, will see you on the winning side again. Know you're in my thoughts and prayers. Stay strong.

    Fox - we should have a bulletin board at the front of this Board and place posts like yours. That’s some awesome writing. From biker to philosopher, you’re the best. I’m printing your theory off and taping it to John’s bathroom mirror. I think all of us “in the fight” need a daily dose of this inspiration.  Thank you.

     

  • sblairc
    sblairc Member Posts: 585 Member
    Praying for you

    My heart is with you through all of this. Hope you feel the loving energy from us all. 

  • Djinnie
    Djinnie Member Posts: 945 Member
    angec said:

    DJ, sorry to hear this. I

    DJ, sorry to hear this. I hope you got my private email in return for the nice one you sent me. I have sent several emails out and it seems they are not working.  I am glad I did get yours though.  You are so very encouraging!  I know you were on Votrient, are you still on it?  Is there any chance for you to try Keytruda? Quite a few people seem to be able to get it easily now.  Sending you hugs and hope you found a good smoothie recipe! ;)  Stay strong and positive, cancer hates that!  Love and hugs to you.. :)

    Sorry Angec the email didn't arrive!

    Hi Angec, 

    Sorry! I didn't get the email. Thankyou for the support though! I am still on Votrient, I am not so sure we have Keytruda here I will check on Tuesday. Mind you right now we don't even have any Votrient here either. The demand seems to have outstripped the supply, I can't get hold of any, Bretagne is completely out, there is a waiting list at the moment. How frightening is that, it just shows how prevalent cancer is now. My pharmacist is phoning around France to see if she can get hold of some for me, so fingers crossed.

     

    Djinnie x

  • Djinnie
    Djinnie Member Posts: 945 Member
    sblairc said:

    Praying for you

    My heart is with you through all of this. Hope you feel the loving energy from us all. 

    A whole bunch of thankyou's

    Thanks to all you's lovely people for all the comforting supportive comments. These things are sent to try us I suppose. I am not panicking just a bit peed off, it is hugely frustrating in that these cantankerous little blighters can't be safely removed. I feel sure though that my Dr La Guerre will have come up with a killer plan by Tuesday to bring them into compliance.

    In the meantime lovely Nurse Pick comes every morning to pierce my derrière with a heady cocktail. It is certainly helping somewhat to stem the flow so to speak. Sticking to liquid goup is also helping a little, my husband, bless him, creates art work on my plate to make my meals more appetising. Like you Melissa I can't stomach everything blended together. I feel the only thing missing is a high chair, lol!

    Strong motivational rallying prose for the troops Foxie, few could have voiced it better. As my historical hero Churchill once said in his war cry " We shall never surrender " I certainly don't intend to.

     

    Djinnie x

  • APny
    APny Member Posts: 1,995 Member
    Djinnie said:

    A whole bunch of thankyou's

    Thanks to all you's lovely people for all the comforting supportive comments. These things are sent to try us I suppose. I am not panicking just a bit peed off, it is hugely frustrating in that these cantankerous little blighters can't be safely removed. I feel sure though that my Dr La Guerre will have come up with a killer plan by Tuesday to bring them into compliance.

    In the meantime lovely Nurse Pick comes every morning to pierce my derrière with a heady cocktail. It is certainly helping somewhat to stem the flow so to speak. Sticking to liquid goup is also helping a little, my husband, bless him, creates art work on my plate to make my meals more appetising. Like you Melissa I can't stomach everything blended together. I feel the only thing missing is a high chair, lol!

    Strong motivational rallying prose for the troops Foxie, few could have voiced it better. As my historical hero Churchill once said in his war cry " We shall never surrender " I certainly don't intend to.

     

    Djinnie x

    Djinnie, what about things

    Djinnie, what about things like mashed potatoes or pureed veggies? Sounds silly but have you considered some of the baby food available since they're fairly easy to swallow. Or does it have to be more liquid? I have full faith in Dr. La Guerre and you coming up with a battle plan!