Roll Call For UPSC only

artist49 said:

diet response to molimoli

Still NED as of September 4 scan. That's 4 years now since diagnosis  and I thank G-d every day  for my good fortune

but wish with all my heart that everyone could be healed from this miserable affliction.

You asked for my diet Molimoli - maybe it could help someone!

Breakfast - the black raspberry smoothie I outlined above

                 Organic eggwhite omelette with 4 crushed garlic cloves and some kale sauteed

                  in 1 tsp coconut oil - served with organic tomato paste. I flavor this with

                  oregano, chili powder, black pepper, thyme, etc.

Lunch-   every raw veg in my fridge, some ground in cuisinart chopper/grinder- carrot,

             pea shoots, red cabbage, shallots, turnip, daikon, lettuces,peppers etc.

             served with homemade tahini - organic sesame seeds, pumpkin seeds,

             sunflower seeds, lemon juice, garlic, shallot, fresh dill, parsley, seasalt.

             Made in  Vitamix  and frozen in pyrex containers. Before eating I

             grind flaxseed and add it to tahini.

Dinner - a steamed cruciferous veg is main course with  a small amount of wildcaught fish

             or organic chicken on the side, sometimes sweet potato or wild rice.

             Dressing for veg is Vegennaise blended with fresh parsley and dill, garlic clove,

             onion powder and couple drops stevia. Prepare it for the week.

Snack - organic granny smith apple, small  assortment of every  organic nut-

            brazil, walnut, almond, cashew, etc.

Drink - filtered water with some organic apple cider vinegar

           chamomile, green tea, peppermint tea.

a few times a week - blended in vitamix veg drink - spinach leaves, red beet slice,

                               broccoli, carrot ,1  tbs. soaked goji berries, strawberries,

                                piece of organic lemon, some liquid stevia.

My goal, as you can see, is to eat  the widest variety of foods in small amounts

every single day. Don't want to miss any cancer fighting nutrients.

Sometimes use cranberries, cherries , blueberries and pomegranate seeds

in  the breakfast smoothie.         

To artist 49, thanks a million for diet,will source the required food on monday, and start pronto.

2014-10-07

The longer I follow this thread, the more depressed I am becoming. It seems as if there are very Few of us who have survived for 5 or more years and even fewer who have survived that long without a recurrence. I finished my chemo in May and my radiation in June of this year. I went for my first 3 month check up a couple of weeks ago and everything SEEMS to be okay but both the PA and the dr detected something in my abdomen and I am having a CT scan next week. I personally believe it is just scar tissue as I have felt something in the same area since shortly after my surgery last Dec. However, I am, of course, also frightened. It made me more curious about what my long term chances are. Will I see my youngest granddaughter( now 7 months old) grow up or will I be gone before she starts kindergarten? I have been very optimistic about my chances but now find then even though I am feeling really like my precancerous self, I spend an inordinate amount of time dwelling on what my future will be and when it will no longer be. One thread that I read when I first joined this discussion board was by Linda P. Although Linda was a quite wonderful woman and her posts right to the very end were both positive and inspiring, she did die despite doing everything she could to survive. I Have not been nearly as proactive. I don't exercise nearly as much as I should and although I have made some improvements in my diet, it still includes many things that should be eliminated including way to many sweets and fried foods. if she couldn't make it, how will I?  Why should I even try when it didn't help Linda and many of the other wonderful women on this board? I am a person who has always loved life and have in the past enjoyed excellent health. Now however I feel as though the clock is winding down and I can't seem to shake off these feelings of gloom and doom. Thanks for letting me "unload", Sandy

debrajo said:

Sandy

You are posting in the middle of the night when the mind loves to take you on dark trips!  I don't know if you are religious or not, but I truly believe we were given a misson in life, a reason to be here, and when that mission is complete we leave this life.  Our days are set from the moment we're born.  You are scaring yourself, and I know that  fear all too well!  I am over four years out from chemo without a recurrance.  Yeah, the "odds" aren't great, but we are all dancing on the head of a pin  everyday and don't even know it!  Tomorrow is not promised for anyone.  Don't let this get you depressed.  Live in the moment.  When I was diagnosed I had a 14 year old son, nine grandkids including a newborn.  I didn't think I would see my son graduated from high school!  He's a junior in college, about to turn 21, about to get engaged.  Don't borrow trouble.  We only have the moment we're in.  Breath deep and let life take you on a daily journey.  I'm up late if you need me.  It'll be alright!  Debrajo

I had done that for awhile but then decided that I have the choice to be thankful and make the most of everyday, or I can wallow in self-pity and waste away.  You have so many reasons to fight.  RO10 said it more eloquently than I do but basically she said, Worrying doesn't do anything about the future and takes your joy away from today.  The doctor told me I had a 50/50 chance of it recurring within 5 years.  I said, "well then, I will be the 50% who beat that.  On one of my facebook groups, she is celebrating her 20 year cancerversary. 

The immune system is what attacks the cancer cells.  Being doom and gloom will weaken the immune system.  Do things that will boost the immune system, lifestyle changes, exercise, laughter, better choices of foods (more fruits and vegetables, less refined sugar), do happy things.  One of the things I have witnessed is the joy of grandparents and their grandchildren.

If you are suffering from depression (as I am right now from effects of chemo. and menopause), I asked for help.  I am now on an anti-depressant.  Don't be afraid to ask for meds or even counselling.  You went through a traumatic situation and your body is trying to adjust to all the changes that are taking place.    None of us are guaranteed tomorrow.  Any one of us could be hit by a car, have a stroke/heart attack or anything.   

Don't be hard on yourself Sandy, you are not alone in this fight.  your kids and grandkids want you to fight.   I agree with debrajo about nighttime.

I'm just a little further ahead of you in your journey, get some assistance and choose to make the most of every day, celebrate the small victories.  That's what I did when I was feeling like you.  I have too many people that want me alive, so I'm doing what I can to accomodate that.      Remember there are ups and downs.  Give yourself permission for the downs and only give yourself a certain amount of time to dwell.  Say, an hour or a half hour then tell yourself, "It's not time to go there" when your thinking goes askew.  

Maybe see if the American Cancer Society or Gilda's Club has classes that you can attend.  I am sure this is just a phase and this too shall pass.  Love life, enjoy and be thankful for each moment.  Sandy, thanks for sharing, sometimes it's hard to vent.  I've done it a couple times already.  These ladies are wonderful.

Jeanette

Sandy3185 said:

Long term survival

2014-10-07

The longer I follow this thread, the more depressed I am becoming. It seems as if there are very Few of us who have survived for 5 or more years and even fewer who have survived that long without a recurrence. I finished my chemo in May and my radiation in June of this year. I went for my first 3 month check up a couple of weeks ago and everything SEEMS to be okay but both the PA and the dr detected something in my abdomen and I am having a CT scan next week. I personally believe it is just scar tissue as I have felt something in the same area since shortly after my surgery last Dec. However, I am, of course, also frightened. It made me more curious about what my long term chances are. Will I see my youngest granddaughter( now 7 months old) grow up or will I be gone before she starts kindergarten? I have been very optimistic about my chances but now find then even though I am feeling really like my precancerous self, I spend an inordinate amount of time dwelling on what my future will be and when it will no longer be. One thread that I read when I first joined this discussion board was by Linda P. Although Linda was a quite wonderful woman and her posts right to the very end were both positive and inspiring, she did die despite doing everything she could to survive. I Have not been nearly as proactive. I don't exercise nearly as much as I should and although I have made some improvements in my diet, it still includes many things that should be eliminated including way to many sweets and fried foods. if she couldn't make it, how will I?  Why should I even try when it didn't help Linda and many of the other wonderful women on this board? I am a person who has always loved life and have in the past enjoyed excellent health. Now however I feel as though the clock is winding down and I can't seem to shake off these feelings of gloom and doom. Thanks for letting me "unload", Sandy

4 years ago today  I was in the operating room at Sloan Kettering. Diagnosed stage 4B,  I never  dreamed

I would live to be a great-grandmother. Well, that happened this week so you just never know!

New treatments are emerging every single day - exercise and work on your diet  and keep busy

with  what you love and you have a great chance to be there for those new advances.

artist49 said:

survival

4 years ago today  I was in the operating room at Sloan Kettering. Diagnosed stage 4B,  I never  dreamed

I would live to be a great-grandmother. Well, that happened this week so you just never know!

New treatments are emerging every single day - exercise and work on your diet  and keep busy

with  what you love and you have a great chance to be there for those new advances.

That is wonderful news on both comments.  I will be a "great" aunt in April.  I know you are thrilled with the new addition.  You give us hope in this journey of ours.  Enjoy being a "great" grandmother.

At last! At last! I've been following the upsc conversation for almost a year. You have no idea how difficult it's been to create a functional login. At last!

I was diagnosed after an October 2013 pap test that showed uterine cancer cells. An endometrial biopsy showed upsc. I had a complete hysterectomy with removal of lymph nodes and the omentum. My staging is IA. I had the sandwich treatment - 6 cycles of paclitaxel/carboplatin with 4 vaginal brachytherapy treatments between cycles 3 and 4. My last chemotherapy treatment was in early May 2014. I developed an allergic reaction to carboplatin halfway through the very last dose.

I'm on the follow-up protocol for upsc described at the ACS site. My first post-treatment CT scans are good - NED. The CA-125 test is a "good indicator" for me. Two months post-treatment it was 21. Last week, five months post-treatment, it was 19.

Thank you for the conversations I've been reading for nearly a year. The information I read here was invaluable. This information enabled me to anticipate treatment and be certain it was the correct treatment for upsc. I'm especially grateful to Linda Procopio for establishing a community for those of us with upsc and for all the others who've maintained it over time. I've learned a lot from all of you. Thank you!

-MM

Hopeful162 said:

Awaiting surgery

Hello to everyone here. I was diagnosed with USPC less than a month ago and am awaiting surgery scheduled for 10/23.  No matter what stage, my oncologist says I will begin chemo in about a month after that. This is all so out of the blue that I am having a hard time believing it is real. I have no symptoms (other than the biopsy) but I realize this is the lull before the storm. I guess it is good that I can read of your experiences with the disease (haven't yet gotten up the nerve to do so) but this whole scenario is weird and so unwelcome. Thanks for listening.

Sorry you had to find us Hopeful, it is overwheling. Try to take a breath.  This is a journey and there are many here to help you.  Try not to get ahead of yourself or start searching things out on the world wide web.  

USPC is treated with chemo/radiation and it is a lot to try to wrap your head around.  If I may, try taking this one step at a time.  Let's start with the surgery.  We can deal with the treatment later. 

Please ask anything you want.

THis is a great board to be a part of.  Lots of wisdom, knowledge, caring and cyber hugs.  Feel free to join in on any of the conversations and even start your own thread.  We laugh together, cry together, cyber hug together.  We are in a special class of sisters.

Jeanette

It happened to Me said:

Welcome Hopeful and MM

THis is a great board to be a part of.  Lots of wisdom, knowledge, caring and cyber hugs.  Feel free to join in on any of the conversations and even start your own thread.  We laugh together, cry together, cyber hug together.  We are in a special class of sisters.

Jeanette

i am on the Facebook group too.  Anne

MarianneMushroom said:

New to UPSC Discussion

At last! At last! I've been following the upsc conversation for almost a year. You have no idea how difficult it's been to create a functional login. At last!

I was diagnosed after an October 2013 pap test that showed uterine cancer cells. An endometrial biopsy showed upsc. I had a complete hysterectomy with removal of lymph nodes and the omentum. My staging is IA. I had the sandwich treatment - 6 cycles of paclitaxel/carboplatin with 4 vaginal brachytherapy treatments between cycles 3 and 4. My last chemotherapy treatment was in early May 2014. I developed an allergic reaction to carboplatin halfway through the very last dose.

I'm on the follow-up protocol for upsc described at the ACS site. My first post-treatment CT scans are good - NED. The CA-125 test is a "good indicator" for me. Two months post-treatment it was 21. Last week, five months post-treatment, it was 19.

Thank you for the conversations I've been reading for nearly a year. The information I read here was invaluable. This information enabled me to anticipate treatment and be certain it was the correct treatment for upsc. I'm especially grateful to Linda Procopio for establishing a community for those of us with upsc and for all the others who've maintained it over time. I've learned a lot from all of you. Thank you!

-MM

 

 

 

 

congratulations on completing your treatments.  Glad you had good post treatment results.  Take time for your body to recover, and take it one day at a time.  Looking forward to reading more of your posts.  May you remain NED ( no evidence of disease) for a very long time.  In peace and caring.