Roll Call For UPSC only

1246711

Comments

  • Debra Lagrone
    Debra Lagrone Member Posts: 37
    Abbycat2 said:

    Thanks, Debrajo!

    For starting this thread, as it has given me hope that UPSC is treatable and beatable, to coin a new word.  Also, I appreciate your responsiveness to the women on this board and how supportive and kind you are with your words. 

    Best Wishes,

    Cathy   

    Serous carcinoma

    Hi Cathy,  I just received my pathology report after surgery and I was shock to learn that I also have Serous Carcinoma!  I was not told this by my gyn onc. I had several lymph nodes that were positive as we'll.  I am so glad that I have taken more of an interest to learn things instead of asking my oncologist,  I am learning so much from these posts and reports.  I thank each and everyone of you for caring enough to get the word out for all of us who are trying to learn about are cancer..  I pray for everyone and again I thank you.

     

    Have a blessed day today, take a deep breath and enjoy your life!!!

    Deb

  • Abbycat2
    Abbycat2 Member Posts: 644 Member

    Serous carcinoma

    Hi Cathy,  I just received my pathology report after surgery and I was shock to learn that I also have Serous Carcinoma!  I was not told this by my gyn onc. I had several lymph nodes that were positive as we'll.  I am so glad that I have taken more of an interest to learn things instead of asking my oncologist,  I am learning so much from these posts and reports.  I thank each and everyone of you for caring enough to get the word out for all of us who are trying to learn about are cancer..  I pray for everyone and again I thank you.

     

    Have a blessed day today, take a deep breath and enjoy your life!!!

    Deb

    Serous Carcinoma

    Hi, Deb,

    Does your pathology report indicate that you have two types of cancer?  I think I read somewhere that unless your cancer is 10% or more Serous Carcinoma -also called UPSC - it will not be labeled as Serous Carcinoma.  My path report was an eye opener for me, too. 

     

  • debrajo
    debrajo Member Posts: 1,095 Member
    Abbycat2 said:

    Thanks, Debrajo!

    For starting this thread, as it has given me hope that UPSC is treatable and beatable, to coin a new word.  Also, I appreciate your responsiveness to the women on this board and how supportive and kind you are with your words. 

    Best Wishes,

    Cathy   

    TY!

    Thanks Cathy,  I'm very flawed and can't spell woth a flip, but I try!  LOL!

  • molimoli
    molimoli Member Posts: 514

    I am sorry about your

    I am sorry about your daughter ....i lost my daughter in July of this year at 33 to cancer (mmmt) and nothing is worse than losing a child. I hope things go well for you and that you go into remission.

    Hi Denise, Thank you,the very

    Hi Denise, Thank you,the very same to you. I am so very sorry about your daughter and  that you experienced similar grief/pain  and so very new, a month? my heart aches for you, when I ask my creator for strength I won't forget to remember you. I'll ask that your strength is continually renewed.  absolutely nothing is worse,nothing at all.

     

    I am waiting on results of scans taken last week so will keep you guys posted. 

     

     

  • molimoli
    molimoli Member Posts: 514
    Abbycat2 said:

    To molimoli

    Your post yesterday to NoTimeForCancer brought tears to my eyes.  I understand your hesitancy in telling your daughters about your cancer at this point in time.  Your situation is a difficult place to be, but please don't give up hope!  I remember reading a study in which it talked about the long term survival of women with UPSC stage IVB.  These women were alive and well with no evidence of disease ten years after their diagnosis!  Someday, years from now, I look forward to reading one of your post in which you talk about your daughters and grandchildren and your shared lives.  I pray that you maintain a sense of hope and that you find peace. 

    Take good care of yourself, molimoli,

    Cathy 

    I feel lucky to have found this site,lucky indeed

    Thanks Cathy, I didn't mean to make you cry dear ,but in turn as I read your  beautiful heart warming ,spirit booster message to me I was blinded by tears that wouldn't stop coming .

    Thanks for hopes and prayers.

    I hope we all will be sharing our stories for years to come, with cancer behind us.  

     

    I  will then tell my children and  grandchildren how I fell and was picked up and carried by loving people whom I've never met.

    I suspect I'll get the courage to share you guys with them sooner than later,I will.

        You also,take care of you and yours.

        Moli

     

  • Goldheart
    Goldheart Member Posts: 36
    Thanks Deb for this

    My mom is 74 and diagnosed with UPSC Sage 3C and Breast Cancer Stage 2 last year, and is BRAC 2 postivie. She is just finished her treatment after 1 year. 

  • Debra Lagrone
    Debra Lagrone Member Posts: 37
    Abbycat2 said:

    Serous Carcinoma

    Hi, Deb,

    Does your pathology report indicate that you have two types of cancer?  I think I read somewhere that unless your cancer is 10% or more Serous Carcinoma -also called UPSC - it will not be labeled as Serous Carcinoma.  My path report was an eye opener for me, too. 

     

    Serous carcinoma

    Hi Cathy,  this is how it reads:  High Grade adenocarcinoma of endometrium (figo grade 3) Sharing features of both endometriod and serous carcinoma, with extensive tumor necrosis.  Then it says:  maximal tumor invasion.  Lymphovascular  invasion is prominent .  It would take several pages for me to type the whole report, so I took a couple of statements to get your  opinion.  Tell me if you need more info. Please advise

     

    Thank you. Deb 

  • Ann55
    Ann55 Member Posts: 48
    UPSC stage3C Dx age 58

    UPSC stage3C Dx age 58 treated at UNC surgery, taxotere and carbo.28 external radiation and 3 internal radiation,repeated taxotere and carbo,mets on CT followed by 6 doxil treatments.I have been in remission for 2 months.

  • Abbycat2
    Abbycat2 Member Posts: 644 Member
    Ann55 said:

    UPSC stage3C Dx age 58

    UPSC stage3C Dx age 58 treated at UNC surgery, taxotere and carbo.28 external radiation and 3 internal radiation,repeated taxotere and carbo,mets on CT followed by 6 doxil treatments.I have been in remission for 2 months.

    Hi, Deb

    Hi, Deb,

    I apologize for not getting back to you sooner about your pathology report.  From what you described, it appears that you have two different types of Grade 3 cancers, endometriod and the serous.  I don't think having more than one type of uterine cancer is unusual. I read somewhere that having UPSC mixed with another uterine cancer increases survival for reason that are beyond me.   I am stumped as to what the significance is of the statement: "Extensive tumor necrosis".  Since necrosis means death, I would think that this is a good thing.  I read someplace that cancer cells can die from a lack of a blood supply, so perhaps that is what has caused the necrosis.  Sometimes, too, cancer cells self-destruct, called apoptosis.  It is believed that chemotherapy causes cancer cells to commit suicide.  Maybe, your immune system has destroyed some of the tumor cancer cells.  I don't know what maximal tumor invasion means or is referring to in the report.  Lymphovascular invasion refers to the cancer cells being found in the lymph nodes and blood.  Vascular refers to blood. 

    I hope this helps, Deb.  I have to admit that I don't understand a great deal of what I have been reading about uterine cancer.  Some of this research stuff is just way over my head!  The nurses who post here are much more knowledgeable than I am about human biology and perhaps they will share their knowledge with regards to your report. 

    Best to you,

    Cathy

     

     

  • Debra Lagrone
    Debra Lagrone Member Posts: 37
    Abbycat2 said:

    Hi, Deb

    Hi, Deb,

    I apologize for not getting back to you sooner about your pathology report.  From what you described, it appears that you have two different types of Grade 3 cancers, endometriod and the serous.  I don't think having more than one type of uterine cancer is unusual. I read somewhere that having UPSC mixed with another uterine cancer increases survival for reason that are beyond me.   I am stumped as to what the significance is of the statement: "Extensive tumor necrosis".  Since necrosis means death, I would think that this is a good thing.  I read someplace that cancer cells can die from a lack of a blood supply, so perhaps that is what has caused the necrosis.  Sometimes, too, cancer cells self-destruct, called apoptosis.  It is believed that chemotherapy causes cancer cells to commit suicide.  Maybe, your immune system has destroyed some of the tumor cancer cells.  I don't know what maximal tumor invasion means or is referring to in the report.  Lymphovascular invasion refers to the cancer cells being found in the lymph nodes and blood.  Vascular refers to blood. 

    I hope this helps, Deb.  I have to admit that I don't understand a great deal of what I have been reading about uterine cancer.  Some of this research stuff is just way over my head!  The nurses who post here are much more knowledgeable than I am about human biology and perhaps they will share their knowledge with regards to your report. 

    Best to you,

    Cathy

     

     

    Pathology report

    Hi Cathy,

    thank you so much for taking the time to review what I have written, perhaps there will be someone on here who can offer their knowledge as to what all this means, and yes you have help a lot and I appreciate it.  Leave it to me to have two different types of cancer lol.  Anyways i hope everyone has a blessed and wonderful day amd keeps a positive attitude, I know that has help me more than anything through all this.  

     Ps:  if you go to my page on here I have written more about the report!

    Talk to soon!

    Deb

  • molimoli
    molimoli Member Posts: 514
    molimoli said:

    Thanks,Thanks, Thanks! Everyone.

    Jeanette,I heard you ,I am reaching for the courage to comply.

    Advice is sound, and embraced, I won't stop until  I have learnt  what you already have.

     

    I will update.

    UPDATING

    Hi everyone,I hope for all of you that this week has started out with renewed hope and a resolve to really  live while we are alive,it has for me , wish the same for you.

    As I mentioned I did several scans ,face and neck,chest and abdomen,also biopsies from vaginal wall. I am cautiously happy to tell you ,NO<NO<NO<  I am' VERY' happy to tell you that In regards to cancer they found  NED. yea!!   Thanks to the creator for the reprieve, I am embracing it ,although knowing that  I am dealing with a sneaky dickey  thingey I still did the happy dance.

    Thanks for lifting me up when I fell,I suspect that there are more of those tumble-weed days round the bend. so eat up your spinach guys ,your lifting days are not over.

    Wishing you all a stress free good week. I am hugging, can you feel it ?

     

     

  • It happened to Me
    It happened to Me Member Posts: 206 Member

    Pathology report

    Hi Cathy,

    thank you so much for taking the time to review what I have written, perhaps there will be someone on here who can offer their knowledge as to what all this means, and yes you have help a lot and I appreciate it.  Leave it to me to have two different types of cancer lol.  Anyways i hope everyone has a blessed and wonderful day amd keeps a positive attitude, I know that has help me more than anything through all this.  

     Ps:  if you go to my page on here I have written more about the report!

    Talk to soon!

    Deb

    My Pathology Report

    I thought I had two different types of cancer because my path report mentioned endometrial and then it had the word serous.  I asked the doctor about it and he said I had one.  Still wondering about it, I asked these ladies on this board and I think the thread was called Endometrial vs Serous.  Serous is a form of Endometrial.  There's apparantly different levels.  If you look through these threads and find the one that says the "Endometrial vs Serous, you will probably find your answer.   This whole Uterine cancer thing can be really confusing.  Love these women and their knowledge.

    Jeanette

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,360 Member
    molimoli said:

    UPDATING

    Hi everyone,I hope for all of you that this week has started out with renewed hope and a resolve to really  live while we are alive,it has for me , wish the same for you.

    As I mentioned I did several scans ,face and neck,chest and abdomen,also biopsies from vaginal wall. I am cautiously happy to tell you ,NO<NO<NO<  I am' VERY' happy to tell you that In regards to cancer they found  NED. yea!!   Thanks to the creator for the reprieve, I am embracing it ,although knowing that  I am dealing with a sneaky dickey  thingey I still did the happy dance.

    Thanks for lifting me up when I fell,I suspect that there are more of those tumble-weed days round the bend. so eat up your spinach guys ,your lifting days are not over.

    Wishing you all a stress free good week. I am hugging, can you feel it ?

     

     

    WONDERFUL NEWS!!  So happy

    WONDERFUL NEWS!!  So happy for you!

  • Debra Lagrone
    Debra Lagrone Member Posts: 37

    My Pathology Report

    I thought I had two different types of cancer because my path report mentioned endometrial and then it had the word serous.  I asked the doctor about it and he said I had one.  Still wondering about it, I asked these ladies on this board and I think the thread was called Endometrial vs Serous.  Serous is a form of Endometrial.  There's apparantly different levels.  If you look through these threads and find the one that says the "Endometrial vs Serous, you will probably find your answer.   This whole Uterine cancer thing can be really confusing.  Love these women and their knowledge.

    Jeanette

    Pathology report

    Hi Jeanette,  if you will please go to my page on here, I have written several lines from my pathology report and please let me know your thoughts.

     

    Thank you

    Deb

     

  • It happened to Me
    It happened to Me Member Posts: 206 Member

    Pathology report

    Hi Jeanette,  if you will please go to my page on here, I have written several lines from my pathology report and please let me know your thoughts.

     

    Thank you

    Deb

     

    Deb, what page are you

    Deb, what page are you talking about?

    Jeanette

  • Debra Lagrone
    Debra Lagrone Member Posts: 37

    Deb, what page are you

    Deb, what page are you talking about?

    Jeanette

    My page

    It is just my name Debra Lagrone

  • molimoli
    molimoli Member Posts: 514

    WONDERFUL NEWS!!  So happy

    WONDERFUL NEWS!!  So happy for you!

    Thank you very much,it is

    Thank you very much,it is good news indeed. I will update as things unfolds.

  • molimoli
    molimoli Member Posts: 514
    Ro10 said:

    Deanna, it is so good to hear from you

    I too have been wondering how you have been.  I remember when we both started posting.  You were the youngest of those first posting.  I am so happy to hear you are cancer free.  I hope you are still happily married.  I remember you planning your wedding.  Are you back to working as a nurse?  May you continue your long dance with NED.  Thanks for checking in.

    to Ro10

    how are you doing?  read your story and I like to hear "treatable"  but wish for you,  ned very soon .

  • molimoli
    molimoli Member Posts: 514
    artist49 said:

    smoothie recipe

    1/4 lb. black raspberries   (Frank Farms.com packs them frozen in 2 1/2 lb. bags. Pregrind this bag in vitamix if possible

    so that seeds get ground also and freeze in 1/2 cup glass  containers. My ca125 dropped 2 points when I

    got the vitamix and was finally able to grind those teeny seeds.)   

    1/4 avocado (thickens smoothie beautifully)

    1 tsp. or more turmeric

    dash cinammon

    1/4 tsp liquid extract stevia sweetener (nature's answer brand)

    1 tbs chia seeds

    1 tbs hemp hearts

    1 tbs +  raw organic cacao powder (nuts.com) 

    1/2 of an organic lemon  (I pregrind  alot of whole organic lemons in vitamix and freeze in

    1/2 cup glass containers)

    water

    I prepare 5 at a time in my nutribullet small cups but add the raspberries each morning.

    Been doing this for 3 years!

    If this seems complicated, read  my story.   I'll do anything for NED.

            

    Thanks for smoothie recipe,

    What about diet ,can you share?  I intend to start the smoothie this week,

    Hope you are doing well.

     

    Prayers of special blessing for all,ned please!!

  • artist49
    artist49 Member Posts: 87
    molimoli said:

    Thanks for smoothie recipe,

    What about diet ,can you share?  I intend to start the smoothie this week,

    Hope you are doing well.

     

    Prayers of special blessing for all,ned please!!

    diet response to molimoli

    Still NED as of September 4 scan. That's 4 years now since diagnosis  and I thank G-d every day  for my good fortune

    but wish with all my heart that everyone could be healed from this miserable affliction.

    You asked for my diet Molimoli - maybe it could help someone!

    Breakfast - the black raspberry smoothie I outlined above

                     Organic eggwhite omelette with 4 crushed garlic cloves and some kale sauteed

                      in 1 tsp coconut oil - served with organic tomato paste. I flavor this with

                      oregano, chili powder, black pepper, thyme, etc.

    Lunch-   every raw veg in my fridge, some ground in cuisinart chopper/grinder- carrot,

                 pea shoots, red cabbage, shallots, turnip, daikon, lettuces,peppers etc.

                 served with homemade tahini - organic sesame seeds, pumpkin seeds,

                 sunflower seeds, lemon juice, garlic, shallot, fresh dill, parsley, seasalt.

                 Made in  Vitamix  and frozen in pyrex containers. Before eating I

                 grind flaxseed and add it to tahini.

    Dinner - a steamed cruciferous veg is main course with  a small amount of wildcaught fish

                 or organic chicken on the side, sometimes sweet potato or wild rice.

                 Dressing for veg is Vegennaise blended with fresh parsley and dill, garlic clove,

                 onion powder and couple drops stevia. Prepare it for the week.

    Snack - organic granny smith apple, small  assortment of every  organic nut-

                brazil, walnut, almond, cashew, etc.

    Drink - filtered water with some organic apple cider vinegar

               chamomile, green tea, peppermint tea.

    a few times a week - blended in vitamix veg drink - spinach leaves, red beet slice,

                                   broccoli, carrot ,1  tbs. soaked goji berries, strawberries,

                                    piece of organic lemon, some liquid stevia.

    My goal, as you can see, is to eat  the widest variety of foods in small amounts

    every single day. Don't want to miss any cancer fighting nutrients.

    Sometimes use cranberries, cherries , blueberries and pomegranate seeds

    in  the breakfast smoothie.