How Cancer Can Change On You In a Week's Time

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Comments

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member

    Sending you love Craig

    Oh my friend.  I am so very sorry you are suffering so much.   my heart is heavy knowing you are in pain.  You remain in my prayers and my thoughts Craig. 

    Aloha,

    Kathleen

    Aloha, Kathleen

    Thinking of you as well:)

    Craig

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    Easyflip said:

    Craig,

    Keep fighting on my friend, still 'giving it hell' after everything you've been through is flat out courageous. I'm sending you good energy, you're a hero.

    Easyflip/Richard

    Thanks, Richard

    Ready to receive good energy.....

  • fatbob2010
    fatbob2010 Member Posts: 467 Member
    So True

    Craig,

    Sorry to hear about your pain ridden life.  Things can become good as fast as they go south to bad.  My wish is that you will have a change to fairer winds.

    Prayers of comfort and a way off the slippery slope,

    Art

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member

     
    My Dearest friend,  I

     

    My Dearest friend,  I barely know what to say...  :(  How very sorry I am to hear that you're still in such pain after that operation.  I had hoped it would provide you with a good measure of relief, but maybe the next one will do the trick.  My thoughts are with you daily, I just wish I could do something to help with your pain....  :(

    Love ya buddy,

    Cyn

     

    Hi Cyn

    Maybe the next one will help.....

    Nice to have gift to reach outnwhile I still can....things change so quickly.

    Thanks for being there:)

    Hugs/Craig

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    Trubrit said:

    The strongest of the strong

    I know that I could not fight as hard, and I admire your strength. 

    I pray that you will know the best path to take from here and that as you try to find more strength, your Doctor's can find a way to ease your pain. 

    Blessings!

    SUE - TRUBRIT

    Sue

    Just thanks, Sue...

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    lesvanb said:

    Craig

    Much love to you ...and to Kim. Holding you close in my heart as it breaks open hearing of the great pain and struggle for you. I pray for rest and comfort for you my friend. 

    Ride on, Leslie

     

     

    Hi Les

    As Wolf Brand chili once said....It's been too long....

    -c

  • Phil64
    Phil64 Member Posts: 838 Member
    Craig,
    thank you for sharing

    Craig,

    thank you for sharing and showing us all how to fight this ugly disease. You are truly inspirational. Wishing you light, love, and relief!

    Sincerely,

    Phil

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    Dear Dear Friend

    I'm so sorry that you are going through all this once again.  You are a trooper but you and your body can only take so much.  No matter how many people tell you that your are brave, strong and been through hell and back again it doesn't make any difference as you are the one going through all this personal turmoil.  Please let people know that you are feeling bad and admitting it here is a step in the right direction.  Get someone or some organization to help you deal with this.  If you need pallative care then best opt for it.  It's not a bad thing, only a solution to helping you dealing with the pain you are in.  You have been through so much and my heart aches for you and only want you to feel better.  Wishing for the best.

    Love to you as well and big, big hugs!  Kim

  • jen2012
    jen2012 Member Posts: 1,607 Member
    Oh Craig,  your post is

    Oh Craig,  your post is heartbreaking. i hate that you are in such pain.  we live in an unfair world and it makes me so angry.  My mom, like you I suspect, has never done anything to hurt anyone.  She is so giving and loving and yet like you is suffering in horrible pain all day, every day.  It makes me want to scream.  It's unbelievable to me that they can't find the right mix of drugs to stop the pain.  

    if you are able, keep trying with pain mgt people.   maybe you will hit on one that has some trick up their sleeve that helps you.  

    You are in my heart and thoughts throughout the days, even when you aren't able to visit with us. I hope you find relief from the pain soon.

  • Helen321
    Helen321 Member Posts: 1,459 Member
    Hi craig, screw hugs, I want

    Hi craig, screw hugs, I want to send you large doses of morphine.  I feel helpless right now. I don't know what to say. Hang in there just seems like useless words.  I can't believe they made you sit and wait and didn't find an immediate solution. Helen

  • marbleotis
    marbleotis Member Posts: 720 Member
    Keep fighting

    Craig - you are our hero.

    I send you love and good thoughts. 

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    Craig it hurts me to hear

    Craig it hurts me to hear about your ongoning issues with pain. I am always praying that the doctors will be able to give you some relief. I am however glad to see you using your new tablet. I am always glad to hear your voice and see the lion.

  • thingy45
    thingy45 Member Posts: 632 Member

    Craig it hurts me to hear

    Craig it hurts me to hear about your ongoning issues with pain. I am always praying that the doctors will be able to give you some relief. I am however glad to see you using your new tablet. I am always glad to hear your voice and see the lion.

    Craig my heart aches for you.

    Craig my heart aches for you. You have given and still give somuch strength and courage to all of us. We all wish that we could make the pain stop or at the least bearable. I pray for that every day. You know how much we all care for you, our feisty lion.

    im afraid to even hug you when you are in so much pain. Please extend my love to Kim, seeing you suffer so must  be hard on her too.

    much love being send your way, Marjan

  • tanstaafl
    tanstaafl Member Posts: 1,313 Member
    C#

    Craig, don't know which doctors around Dallas are experienced with IV vitamin C but our CAM doctor uses it frequently for pancreatic cancer pain relief.  Basically since pain is mediated by an oxidative process,  IV vit C's antioxidant aspect neutralizes it.  Renw got cancer and chemotherapy pain relief this way for the day.   Combined with other things like xeloda, menaquinone4 and/methylcobalamin and the LEF style supplements, it might help slow the cancer process itself down.  We have to push the "everything" part pretty diligently to reverse CEA and CA19-9 rises.

    Here's one clinical cancer experience with IVC. http://orthomolecular.org/library/jom/1996/articles/1996-v11n02-p080.shtml  The limitations would be 5-7x per week for continuity on pain relief, out-of-pocket payment, and maintaining potassium-magnesium balances (cheap).  Infusion cost is overcome by dedicated supplie(r)s, i.e. (y)our own infusion nurse and supplies at home.  The opiate withdrawal is silenced by the vitamin C.

     

     

  • Fucc
    Fucc Member Posts: 92 Member
    Craig,
    I haven't been online

    Craig,

    I haven't been online for a while and don't post often, but I do read your posts and have been following you.  I am so saddened to hear that after so many years you are in such pain.  I'm sending you positive thoughts and love, which in and of itself can be healing.  I don't know if this has been mentioned, or if you would be open to it, but you can try some medical marijuana to help with the pain.  

    Carmen xoxo

  • traci43
    traci43 Member Posts: 773 Member
    pain is the worst

    Craig - I wish they could find you some relief.  It's got to be awful to be in pain that way.  We understand if you can't post as often as you'd like.  Kow that we are thinking of you and praying that things will get better.  Take care of yourself, Traci

  • pluckey
    pluckey Member Posts: 484 Member
    Sweet Craig
    I am amazed at

    Sweet Craig

    I am amazed at the will you have shown time and time again to all of here. So p.o.'d you are dealing with this crap.

    You are THE baddest, fiercest warrior on the planet.

     

    ((hugs))

     

    Peggy

  • ron50
    ron50 Member Posts: 1,723 Member
    G'day Mate

    I wish that there was a magic wand to help you. I have been struggling with pain from ankylosing spondylitis and psoriatic arthritis. I have run the gammit of the regular pain relief and they started me on a drug called Targin. It is a combo of oxycodone and naloxone. Naloxone is an opiate antagonist and the idea of adding it to the oxy is to stop people getting high and to stop Opiate induced constipation. It has worked to stop pain and I don't get high but man do i get bunged up. It is no fun and I have been told by my gp to take at lest two dolcolax with every targin so that it does not shut down motilty. I have to use several sachets of movicol between doses. It is working after a fashion tho I dread eating and have trouble knowing what to eat. Ihave lost 22 lbs since I started targin. I am still in trouble with my kidneys , they peaked in Jan this year when I was losing over seven grams of protein a day. I was put on cyclosporin and have come down to around two grams a day. Unfortunately cyclo is a constipating agent as well.. Wishing you well. Ron.

  • TheLadySkye
    TheLadySkye Member Posts: 203 Member
    Sending love and prayers to

    Sending love and prayers to you.  Praying for miracles and that the pain subsides and...

    *just hugs you to pieces - but carefully - so I dont make anything else hurt*

  • amcp
    amcp Member Posts: 251 Member
    Praying

    Dearest Craig I  don't post often.  I do check on you.  Most of the ones I kept up with have passed like my husband., but I often check on you to see how you are.  I am praying for you to have the strength, courage, and determination to with stand this pain.  I am also praying that something or somehow they can relieve your pain or make it at least manageable.  I am so deeply sorry for your suffering.  I know with all the prayers  that are being said for you that they will be answered.  Know that you are loved, admired, respected, appreciated, and looked up to.  You have done so much to help not only me but so many others.  Will pray for you daily and will check back on you.

    Love ya

    Anna