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CT AND PET RESULTS TOMORROW

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

I hate the nervousness of waiting to hear results.    Need a miracle.  CEA is over 400. 

 

Trubrit's picture
Trubrit
Posts: 4907
Joined: Jan 2013

I will be thinking of you tomorrow, Nana b.  I will also pray for that miracle. 

I hope that you are happy with your team, and know that they will do all in their power to knock this beast on its head. 

Cyber hugs.

SUE

Hopeful0524
Posts: 22
Joined: Jun 2014

Just read your post.  We are here if you need to vent, good news or bad news, doesn't matter.  Hope you are well.

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Thank you. 

 

Well everything still growing.  Liver met size of a quarter. Lungs growing, double in size, one had no growth.  2 small one in lymp nodes.  Surprise. No chemo today   Changing it again, need insurance approval. Said go ahead and try canabis oil. But still have options. Oh, well.  Off Erbitux and going on zaltrap and staying on Folfri.  

 

 

What can I say, Stay Strong.  Second opinion on Friday. Going to get the Cannabis. Tried finding the Indica strain on my own but couldn't so going to a dispensary.  

LindaK.
Posts: 490
Joined: Apr 2013

So sorry to read this update.  I was thinking of you this morning and hoping you were getting some good news.  I think you were on a similar path as my husband.  He had 12 rounds of Folfox in 2013, finished in July.  In November and December of 2013 he had many pain issues, many tests where nothing showed up.  Finally ended up in the ED in early January with another large tumor in his small intestines this time.  Horrific 17 day hospitalization and next ct scan about 6 weeks later showed distant lymph node involvement.  Time for us to get the heck out of Dodge - went to a large much more professional cancer center in our city and never looked back.  I just feel sorry for the people that still go to that place we used to go to.  He's had a PET scan and another CT where things are looking better after only 4 Folfiri treatments.  I would highly recommend a 2nd or even 3rd opinion.  This kind of news sure takes the winds out of your sails, but as long as there are options you have to keep trying.  Good luck with the Cannabis, let us know if and how that helps.

Linda

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

I will. Thanks for the support. 

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

here's to the second opinion (fingers, toes crossed) coming up with something, or else the new chemo works.  Sending nothing but good vibes and wishes your way Raquel!!!

Winter Marie

Trubrit's picture
Trubrit
Posts: 4907
Joined: Jan 2013

Once, and only once, did I lose some serious weight, and even though I knew I had reached an ideal (for me) weight, I still wanted to lose more. Its good to be able to know when to stop. 

Winter, you look great. Stick with it and stay where you are. 

Now, if only I could use you as an example. 

UncleBuddy
Posts: 1019
Joined: Aug 2013

Please get another opinion. I am sending postive thoughts your way!

Lin

janderson1964
Posts: 2215
Joined: Oct 2011

Sorry about the bad news but i admire your spunk. Keep fighting.

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Thank you   Winter you are looking Fab, but don't lose too much weight. Ensure is a good idea.   I've lost 40 lbs, good thing I'm off Oxy, although, ONC said I may need to go back on FOLFOX, as it worked the first time. He said he wants to save it as a last resort, wonder why....  I didn't ask. I'll ask Dr Yen on Friday. 

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

I truly think you will really like him and I'm sure he'll be able to answer that question for you.  Again wish I wasn't getting surgery so we could meet and lunch.

And yes, I went and got coupons from his office today so I started the Ensure to get a bit of weight back :)!!

Winter Marie

Trubrit's picture
Trubrit
Posts: 4907
Joined: Jan 2013

I know you must have been expecting something like this, though wishing it otherwise. I know when I got my two CEA jumps, I still wanted so bad for the Oncologist to tell me that it was a fluke. Of course I knew that something was up, but figured it didn't hurt to think a miracle might happen. 

Good luck with your second opinion. It never hurts. I pray for good news. You know we're always here for you.

Blessings.

UncleBuddy
Posts: 1019
Joined: Aug 2013

How are you doing? I love your new Pic!!

Lin

Trubrit's picture
Trubrit
Posts: 4907
Joined: Jan 2013

Thanks Lin, for asking. I feel good. This pic was taken last week, so living proof. 

Should get CEA results this week. See if I'm as healthy as I feel. 

Cathleen Mary
Posts: 827
Joined: May 2011

Oh, Nana b, so sorry that you are going thought so much.  I can still read the fight in you...so glad for that and that you are getting a second opinion. Keep your eyes on the prize...NED.  you are in my heart and prayer.

CM

Helen321's picture
Helen321
Posts: 1393
Joined: May 2012

I can hear the fight in you too. Second and third opinions should be a part of the norm. Chanting NED into yhe atmosphere. 

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