Status Check Call

2

Comments

  • TxKayaker
    TxKayaker Member Posts: 176

    My status

    Name:  P. Adams

    Stage: Now Stage IVa 

    Current Status: NED with PET/CT in April.  Normal CEA (Highest ever was 6.4 when I had the liver met but studies have shown CEA to be more indicative of liver activity than activity in other areas.) 

    Current Hopes: I PRAY that my liver resection two years ago was curative and that the cancer never returns. It's been over 5 years since my original dx and I've had only the one tiny met.  I am KRAS Mutant which newer studies hint might mean better odds. 

    Name : MikeStage: 3CSurgery

    Name : Mike

    Stage: 3C

    Surgery April 2009 , 12 rounds chemo, Still NED ,

  • lilacbrroller
    lilacbrroller Member Posts: 412 Member
    TxKayaker said:

    Name : MikeStage: 3CSurgery

    Name : Mike

    Stage: 3C

    Surgery April 2009 , 12 rounds chemo, Still NED ,

    would win "most mets" contest very likely

    Stage IV SOL.  Primary tumor in rectum, mets to liver, lungs, and adrenal gland. Nearing my 2 years alive with cancer milestone.

    still alive and kicking though. I have a fantastic immune system, so I'm told, and have (touch wood) never been sick because of this cancer.  Blood tests always great. I still work and lead a fairly active life, but I have less energy (and less hair) and cancer is definitely kicking my butt. The adrenal met has given me lucious nose hair and occasional pain in my right side. 

    no surgery ever. no radiation.  FOLFOX in 2012. Great results. Went on Xeloda for maintenance in 2013, and then tried dendritic cell therapy. This didn't work. 2014 went on irinotecan/camptosar and erbitux - this also did not work.

    so now I am trying for clinical trials, for the new PD-1 drugs or really anything that might have good results for me. No appointments yet but I am grateful for my very supportive oncology clinic.  5FU doesn't work anymore, and I don't want oxaliplatin again.  Onc could give me sitvarga (sic) but at this point, while I am still physically healthy, I want to offer my body to science and see if I can benefit.

    until I'm accepted into a trial, I will be chemo free, which could be good and cleanslng. 

    hate this disease! arrgh.

    - Karin

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    Sue - Trubirt

    Diagnosed Nov 2012 Stage 3B

    Seven months post treatment. 

    CT scan scheduled March 17th.

    Hope for a long and happy life in which I can help others who are nwely diagnosed and going through treatment. 

  • thingy45
    thingy45 Member Posts: 632 Member
    Trubrit said:

    Sue - Trubirt

    Diagnosed Nov 2012 Stage 3B

    Seven months post treatment. 

    CT scan scheduled March 17th.

    Hope for a long and happy life in which I can help others who are nwely diagnosed and going through treatment. 

    Thingy45/Marjan

    diagnosed after 6 years of complaining march 2011, resection surgery on April 25 ,2011. Refused chemo and radiation. 

    Stage 3b. I changed my life style and eating habits 

    CEA test every 6 weeks around 1.0. Ct scans every year Still NED,

    hoping for a long life with no recurrences.  I live now one day at the time, looking after a very ill daughter and her family.

  • Nana b
    Nana b Member Posts: 3,030 Member
    thxmiker said:

    HI All!
     
    Stage IV, 3c  

    HI All!

     

    Stage IV, 3c   Colon Cancer, Peitoneal Cancer, and Rectal Cancer   - Round 3 of Chemo about to start - Round 6 of Surgeries to follow.  I just got my hydroponc system to work.   It is a small pump and gravity fed after that.  I will not stop living life or growing as an individual. Cancer is just an inconvient fact for me. Eating real food, showing others how to cook, and grow real food is my current life mission.  Food is our medicine.

     

    Best Always,  mike

     

    Second round of chemo, first

    Second round of chemo, first in 2009, remission since August 2009, then April 2012, put on Xeloda.  April 2013 CEA up to the 400s, CT showed 3 mets to lungs one to liver.  Put on Eributux, Xeloda and OXY.  CEA dropped to the 150s, then went up 7.  CT Scan today and CEA numbers should be in soon.  Not a candidate for lung surgery with a met to the liver.  Hangin in there, hope scan shows decrease and CEA is a fluke.

    ONC called CEA up to 194 update. Scan done yesterday, get update on Tuesday. 

  • UncleBuddy
    UncleBuddy Member Posts: 1,019 Member
    status

    Uncle Buddy is my 49 year old (will be 50 in a few months)brother and he's currently stage 4 with 1 (3cm) met to the liver and 5 to the lungs. He was diagnosed in 2011 with stage 2a rectal cancer and had an anterior resection. He had chemo/rad before the surgery and chemo after. I don't remember which chemo drugs he had then. He finished his chemo in 2011 and everything looked good. Less than a year later his CEA increased. They did a PET and CT and saw the mets, so he restarted chemo. In November/December he was hospitalized 3 times. Once for clots to the lungs where he needed emergency surgery, once for fluid around the heart and needed emergency surgery and another for rapid heartbeat/swelling in the leg. He was waivering as to whether to restart chemo, but decided to do it at a lower dose. He's doing the 5fu pump and Leucovorin for now (every other week). He was getting the erbitux and irinotecan, but it made him very sick with no quality of life. He decided that after he gets a few rounds of chemo, he will start adding the other meds back SLOWLY to see how he feels. Right now it's all about quality of life and keeping the tumors manageable.

    He just had a nuclear stress test and we found that he had a mild heart attack sometime in the last couple of years. Dr thinks it may have happened when he had the fluid around the heart. So he does have damage to the heart. He has him on meds and is monitoring him closely. 

    He is also having issues with fungal infections, but we seem to be getting that under control. We are also having trouble with his INR levels. We have to keep adjusting his coumadin and he is test 2x a week for his levels.

    He is going through all of this and is intellectually disabled. He takes everything with a grain of salt. I've tried to get him to eat better and exercise to get him healthy, but he keeps telling me he wants to enjoy whatever time he has left. He lives with our dad who is slowly developing dementia. I go to their apartment several times a week (they live about 30 minutes away) to set up all his pills in his pill sorter and check on the two of them. I'm emotionally drained, but it's nothing compared to being the patient.

    I am hoping that he will stick around for a while. He's my little brother and I want him to be able to enjoy life. For now, I'd be happy to see him smile and stay healthy while undergoing treatment. No more hospital visits, PLEASE!!'

    Lin

    PS He also had Non-hodgkins Lymphoma in 2000 and beat that. He had his spleen removed and did a chemo treatment called CHOPS. 

  • impactzone
    impactzone Member Posts: 551 Member
    Chip
    Stage IV
    going in for

    Chip

    Stage IV

    going in for scan on Monday. Dx 2006 with liver and lung mets. Colon surgery, 4 thoacic surgeries, liver surgery and chemo and I am still on the right side of the green. Kinda suffering severe scanxiety

  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    Status

    Gail, diagosed stage 1 colon cancer 11/21/07.

    NED since then.

    Sometimes severe troubles with constipation and blockages, hospitalized several times for that On daily pain medication.

    Recently had a terrible episode that left me screaming in the bathroom for 3 hours. Appt. with gastroenterologist on 3/18 to see what's going on.

  • ron50
    ron50 Member Posts: 1,723 Member
    still rolling

      Ron,dxed at age48 in jan1998. Aggresive stage3c into six nodes. Surgery and 48 sessions of 5fu and levamisole. No signs of cancer .since then but increasing problems with auto-immune disease of an unknown nature. Severe psoriatic arthritis ,type two diabetes and nephrotic syndrome of the kidneys as well as 10.000 plus premature ectopic heat beats a day.Currently on powerful immuno-suppressants. Methotrexate and now cyclosporin.  Hope ? I'm a realist. :)   Ron.

  • Coppercent
    Coppercent Member Posts: 158
    Coppercent Status

    Penny 

    Diagnosed July 2011, stage III

    Chemo/radiation...LAR...6 surgeries...illeostomy..... Reversal....Xeloda...FOLFOX....XELOX....recurrence May 2013...last surgery June 2013.  Currently watching scans. Next PET results 3/13/2014. 

    Training for a half marathon and 12K in October 2014.  Hope is I finish in a decent time. Okay maybe just finish.

  • serenity101
    serenity101 Member Posts: 82
    status

    Serenity

    Stage IV     Diagnosed stage IV with numerous liver mets in May 2012

    Looking for clinical trials      Have done FOLFOX with Avastin (which did a good job of shrinking the tumors), Irinotecan with Erbitux, and Stivarga.

    Hoping to find a clinical trial that works.

    Hoping for a miracle cure.

    Hoping my family knows how much I love them.

  • SharonVegas
    SharonVegas Member Posts: 189
    Not your average status

    Ron

    dx stage 4 apr 2011

    Have been in hospice for past two weeks and it's been the best 2 weeks of pain relief ever. 

    Hope to spend the remainder of my life pain free, treatment free, eating good food and visiting with family and friends

    peace be with you all

    Ron

  • pluckey
    pluckey Member Posts: 484 Member
    Peggy
    Stage 4 DX March

    Peggy

    Stage 4 DX March 2009

    Current:  NED

     

    Hopes:  To NEVER EVER EVER have to go thru this shiz again!!!!!!

  • annalexandria
    annalexandria Member Posts: 2,571 Member

    Not your average status

    Ron

    dx stage 4 apr 2011

    Have been in hospice for past two weeks and it's been the best 2 weeks of pain relief ever. 

    Hope to spend the remainder of my life pain free, treatment free, eating good food and visiting with family and friends

    peace be with you all

    Ron

    I was wondering how things were with you, Ron...

    I'm very sorry to hear this news, but also so glad that you're getting good pain management and enjoying time with your family.  I hope you have many more days ahead of you that are peaceful and full of love.

    AA

  • YoVita
    YoVita Member Posts: 590 Member
    Great idea Phil!

    Stage IIIC rectal initially - now Stage IV metastasized due to lung nodule found in 2012.  I had my most recent annual ctscan this past Monday.  After much waiting (3 days!) I got the great news that I'm still NED.  I'm one of the lucky ones.  My current hope is that all can be NED.

    Best to all, Vita

     

  • tanstaafl
    tanstaafl Member Posts: 1,313 Member

    Stage4 mCRC - dx March 2010 - sigmoid near total obstruction, mets to infiltrated mesentery, coined sized spot on peritoneum and conglomerated para-aortic nodes; unbiopsied shrinkable stuff in liver and lungs.

    current staus -  tamping down 7 month surge of CA19-9 and CEA with oral immunochemo, lots of supplements and IV vitamin C. Looks good, feels good.

    Plan is to stop metastasis, chew up residual cancer without chewing up too much bone marrow if possible, and cut out anything that becomes visible on CT.  Long before the CEA got above 14 in 2011, we knew it was time for a second surgery to get the para aortic nodes out.  On CEA surges under  5,  over time we've been able to dissolve several persistent lesions out of the CT scan, and back to tight baseline CEA trends, ca 2's. The latest CEA surge peaked almost 6.  Long term challenge: avoiding embolisms while not wearing wife's bone marrow out. Her combined treatments are evolving, getting stronger in effects and her bone marrow is getting weakened by long, large cumulative chemo even at her reduced doses.

  • Hooley
    Hooley Member Posts: 156
    YoVita said:

    Great idea Phil!

    Stage IIIC rectal initially - now Stage IV metastasized due to lung nodule found in 2012.  I had my most recent annual ctscan this past Monday.  After much waiting (3 days!) I got the great news that I'm still NED.  I'm one of the lucky ones.  My current hope is that all can be NED.

    Best to all, Vita

     

    Message

    Hi there, how did u get rid of lung nodule?  Size? Etc

  • mrscrain
    mrscrain Member Posts: 11
    Phil64 said:

    Phil64

    Phil64, Stage IV.

    Status: Had a second liver resection done on 2/7.  I'm back to work and waiting for a 3/20 appointment with my onc. My last CEA (on 2/27) was 1.0

    Hopes: I hope to continue healing from surgery and hope my CEA remains low and NO MORE RECURRANCES.  If I have to do chemo, I hope it WORKS and I can stay NED for a long time.

     

    status

    Melissa, Stage II colon cancer

    Status: surgery 07/12 resection to remove tumor

    Hopes: to remain NED and for this to not be passed down to my children!

  • YoVita
    YoVita Member Posts: 590 Member
    Hooley said:

    Message

    Hi there, how did u get rid of lung nodule?  Size? Etc

    Hooley

    I replied to your pm.

  • Matta
    Matta Member Posts: 39
    mrscrain said:

    status

    Melissa, Stage II colon cancer

    Status: surgery 07/12 resection to remove tumor

    Hopes: to remain NED and for this to not be passed down to my children!

    My Status

    Name:
    Matta,

    Stage:
    Diagnosed after 5 years of complaining in oct 2010, stage 3c - Surgery and then 8 rounds chemo

    Current Status:
    NED, last CT in Dec 2013

    Current Hopes:
    Hoping to stay NED for as long as possible!