"Slowly Learning to Live with the Physical Pain of Cancer"

2

Comments

  • ron50
    ron50 Member Posts: 1,723 Member
    Sundanceh said:

    Thanks, Lin

    Perhaps, this is the Swan Song of my journey.....

    If so, I want to help as many as I still can.....that was bring me joy just 3 months ago....and then snatched away in the night.

    Thanks for reading.

    -Craig

    G'day Craig

                         I asked my rheumatologist about pain the other day. I said can't you make it stop. Yes we can make it stop but unfortunately you will stop too. I am struggling, protein loss way up in the nepphrotic zone. Looking at starting cyclosporine tomorrow. If it works I may be around a while longer. If it doesn't ,well I can't have a transplant and I don't fancy dialysis for life. I guess we are both at focal points in our life. Either things start working for us orwe stop working. My rheumatologist has finally started yelling about how I should be on disability. Taken him long enough. I guuess I'll take him at his word and see how good he is  of if it's all just talk. Stay as pain free as you can mate, Regards Ron.

  • rls67
    rls67 Member Posts: 127
    Oh Craig,

    I just read your post, I was caught up in my own crap. After reading your post, I think I found another crack in my heart. I don't know how much more my heart can take. Your posts have always been an inspiration to me. My heart is breaking for you my friend. I don't know what else to say. I hope you find some relief fast. Take care and may you find some peace. God Bless.

  • geotina
    geotina Member Posts: 2,111 Member
    Craig:

    I am so sorry buddy that you are in so much pain.  I wish I had a magic want to take it away.  Sending you lots of love, compassion, understanding and hope.   I wish it was possible for Cynthia and I to come down there and visit with you and Kim but please know that you are never far from my thoughts as you go thru this most difficult time.

    Love and Hugs to you and Kim -

    Tina

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    Craig my heart is completely

    Craig my heart is completely broken into two peices reading your post. Your are such a beautiful person and have given so much to all of us. You are in my thoughts and pryers every single day.I just don't know what else to say. I am sorry that I can't be more helpful.

  • LindaK.
    LindaK. Member Posts: 506 Member
    Ditto

    All I can say is that I agree with every response to your post here Craig.  Know we are all pulling for you, our friend with the gift to write so eloquently and help so many.  My first friend on this board, you reached out to me and knew exactly what to say to help me as a caregiver.  For that, I am forever grateful to you.  Thank you for the update, painful as it was for you.  XOXO Linda

  • danker
    danker Member Posts: 1,276 Member
    pain

    We have all experienced pain, but I suspect not at the level you are undergoing.  Hang in  there if you can.  Maybe some nice trip is still in  your and Kim's future.  Good luck!!!

  • johnnybegood
    johnnybegood Member Posts: 1,117 Member
    geotina said:

    Craig:

    I am so sorry buddy that you are in so much pain.  I wish I had a magic want to take it away.  Sending you lots of love, compassion, understanding and hope.   I wish it was possible for Cynthia and I to come down there and visit with you and Kim but please know that you are never far from my thoughts as you go thru this most difficult time.

    Love and Hugs to you and Kim -

    Tina

    hey bro

    it t.ook me awhile to post also as i too can hear your pain through your words.i guess when a person can truly touch someone through thier words they are truly a great writer.someone said you dont have to write too long of a post just a word or two just to let us know you are ok that is all we need for now.let big billy take some of your pain or better yet let the man upstairs take it from you as He did take my pain away during my last hospital stay.be strong as i know you will be and please remember we are only a type on the keyboard away....Godbless....johnnybegood

  • lilacbrroller
    lilacbrroller Member Posts: 412 Member
    danker said:

    pain

    We have all experienced pain, but I suspect not at the level you are undergoing.  Hang in  there if you can.  Maybe some nice trip is still in  your and Kim's future.  Good luck!!!

    hang in there

    Hey, Craig. Hope you feel better soon. Pain is not fun Yell

    My plan is to be doped out.  I think somebody else in this thread said the same thing. I realized how little I know about medical marijuana - I went to a website and it provides names and grades for the various pot offerings. I knew about Maui Wowie but didn't believe medical marijiana would be sold on a serious website with such names!  Check it out and you will laugh. 

     

    http://www.herbalgardens.org/our-medicine.html

     

    what do you think the difference is between pineapple express and purple trainwreck?? You could probably use Mr Nice Guy..

    Karin

  • ketziah35
    ketziah35 Member Posts: 1,145
    Craig, I have nothing to add

    Craig, I have nothing to add to your post but I just wanted to let you know that I am thinking of you and praying for you.

    krtz

  • Chelsea71
    Chelsea71 Member Posts: 1,169 Member
    Hi Craig.  I've been

    Hi Craig.  I've been procrastinating in responding to your post.  I sure don't have any words of wisdom for you.  I don't know what it's like to live with physical pain.  I'm only familiar with the emotional kind.  I have a tendency to avoid commenting on these situations as I don't like to come across as sounding like I understand what you (and too many others who have cancer) are going through.  My cancer experience has been much different and I don't want to pretend to understand what it's like to cope with chronic pain.   

    I think back to last year at this time.  Things were starting to go downhill with Steve.  You were pumping out a lot of big, long, inspirational posts that really helped me.  Gave me something to hold onto.  It saddens me how much things can change in one year. I'm just feeling sad in general.  Sad for you, sad for me, sad for Steve who's been robbed of his life by this god forsaken disease.  I wish things were different.

    Please let us be there for you.  Forget about helping others and just focus on getting well.  All we need are just a few words now and then to let us know how it's going.  I think about you every day.  Hope it goes well on Friday.

  • joemetz
    joemetz Member Posts: 493
    thank you

    I've always read your posts, and rarely do i have much to add.  you truly are the king of this battle and the Lion is so appropriate.

     

    thank you for sharing this post as all of us Stage IV are curious what might be ahead for us. I appreciate you sharing what you're going through and I really hope you continue to share as much as you can.

     

    praying for you from Toledo.

     

    Joe

  • thingy45
    thingy45 Member Posts: 632 Member

    So Sad

    I am really sad reading your post.  I love how your write and your incredible wit and humor.  Please do not lose that. 

    I am sorry you are in pain - I call that the residual cancer crap that we have to deal with.

    I hope you find a comfortable balance to control the pain. 

    Please post when you can. 

    Love and hugs - your writing has helped me on many a dark day!

    Pain

    Craig my dear friend! Grab the rope and hang on, give your self the right to hope 

    Send  Big Billy a line and tel him you need him! he will help you And hopefully give you strength  to continue fighting this dreadful decease of ours, work with your body

    you know we are all behind you rooting for you, do whatever it takes to get a better quality of life, pain does not help, it takes a lot of strength to fight pain, so ask for whatever is available to you so you can fight the cancer.

    I strongly believe there is always hope.

    Take care, love you buddy. Marjan 

     

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    joemetz said:

    thank you

    I've always read your posts, and rarely do i have much to add.  you truly are the king of this battle and the Lion is so appropriate.

     

    thank you for sharing this post as all of us Stage IV are curious what might be ahead for us. I appreciate you sharing what you're going through and I really hope you continue to share as much as you can.

     

    praying for you from Toledo.

     

    Joe

    Big Thank You, Everyone!

    We'll take it day by day....and see if treatment can help some.

    So nice to hear from everyone:)

  • Fight for my love
    Fight for my love Member Posts: 1,522 Member
    Sundanceh said:

    Big Thank You, Everyone!

    We'll take it day by day....and see if treatment can help some.

    So nice to hear from everyone:)

    Your post brought tears to my

    Your post brought tears to my eyes. I understand the pain, it is real. I hope the best for you, I hope the treatment will work for you. Take care.

  • Nana b
    Nana b Member Posts: 3,030 Member

    Your post brought tears to my

    Your post brought tears to my eyes. I understand the pain, it is real. I hope the best for you, I hope the treatment will work for you. Take care.

    So sorry for your pain Craig!

    So sorry for your pain Craig! I would have posted sooner, but  I've been reallybusy. My Mom passed away on Wednesday and before she passed she was in a lot if pain. It made me so angry. I felt helpless.    She is resting now in peace.  

     

    But, hey!  You need some Cannabis. Do they allow medical mj in Texas?  They do in Ca!  

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    Nana b said:

    So sorry for your pain Craig!

    So sorry for your pain Craig! I would have posted sooner, but  I've been reallybusy. My Mom passed away on Wednesday and before she passed she was in a lot if pain. It made me so angry. I felt helpless.    She is resting now in peace.  

     

    But, hey!  You need some Cannabis. Do they allow medical mj in Texas?  They do in Ca!  

    Nana

    I'm so sorry to hear about your mom passing....my condolences to you and your family.

  • BusterBrown
    BusterBrown Member Posts: 221 Member
    Sundanceh said:

    Nana

    I'm so sorry to hear about your mom passing....my condolences to you and your family.

    Craig,
    Continue to blaze that

    Craig,

    Continue to blaze that trial no matter where it may lead!  I'm watching, praying, and hoping things get better for you.  Peace!

    Buster

  • traci43
    traci43 Member Posts: 773 Member
    Saddened that you're in pain

    Craig - I'm so sorry you're having to deal with all this.  I saw your post a few days ago in response to my bummy news but wanted to respond here.  I think being in pain is the worst.  I liked what AA said, that you can't hear anything else.  Continue trying new drugs until you can find some relief, and can hear again.  I hope the FOLFOX works and gets things under control.  Try to keep some hope alive.

    You are a treasured member of our board and I will continue to pray for you that your symptoms can be relieved.  Let us know how you're doing when you can.  We're pulling for you.  Wishing you some peace from the pain.  Traci

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    What to say? What to do?

    I too have been reading and re-reading your post and finding it hard to reply.

    Your pain, both physical and emotional, hits close to home. It leaves me speechless and I'm sorry. 

    You are a strong man, and you'll continue being strong, even when you can't join us or share your strenght, we will feel it. 

    I think its pretty obvious that you are loved here in a HUGE way. May our love and the love of those around you lift you when you can't lift yourself.

    Blessings!

     

  • mukamom
    mukamom Member Posts: 402
    Trubrit said:

    What to say? What to do?

    I too have been reading and re-reading your post and finding it hard to reply.

    Your pain, both physical and emotional, hits close to home. It leaves me speechless and I'm sorry. 

    You are a strong man, and you'll continue being strong, even when you can't join us or share your strenght, we will feel it. 

    I think its pretty obvious that you are loved here in a HUGE way. May our love and the love of those around you lift you when you can't lift yourself.

    Blessings!

     

    I don't post

    much, as, like Chelsea, am the caregiver and can't even begin to understand the pain and the emotions that go along with a cancer dx.

    I only get a glimpse here and there. (Your posts really helped!)  I see Robert's constant pain from mouth sores, teeth that are painful and loose, old injuries that 

    are aggravated by the treatments and surgeries, the pharmacy of pain meds and the days spent in the recliner, doped up and sleeping.

    In between, there are the good days.

    I hope good days are ahead for you and the treatments be a breeze!  

    I think and pray for you often.

    Love,

    Angela