CSN sisters and brothers How are you doing? Please check-in

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  • Bella Luna
    Bella Luna Member Posts: 1,578 Member
    Checking In

    I do visit from time to time and post sometimes.  I am 4 years out and moving forward with life.  I work at an elementary school as an educational aide.  The kids keep it interesting and I love their honesty and their "in the moment" personalities!  It's never a dull moment!  My husband and daughter keep my life moving and shaking.  They complete my trio and I love being a part of their lives.

    I think of you and wish one and all nothing but the best.

     

  • cahjah75
    cahjah75 Member Posts: 2,631
    I don't often look at CSN

    but that doesn't mean I don't care.  My heart aches for those we've lost this year and for those who are struggling with treatments and new dx.  I finished chemo almost 3 years ago.  February will be 3 years since finishing rads.  I still see onc every 4 months and so far all is good. Still NED!  I'm half way through my 5 years on Arimidex and seem to be handling it all right. 

    I apologize for the old Hershey picture.  My husband and I went to Hershey last year and this year.  Met some new pink sisters and had a great time.  We are hoping to go to Niagra Falls next May and meet some more pink sisters.

    My 7th grandchild was born in February.  My son has 4 and now my daughter has 3.  My husband and I are going to Disney for Christmas with my daughter and her family.  It will be my granddaughters first trip and they are 6 and 8. 

    Wishing everyone a very nice Thanksgiving and Happy Holidays.

    Char

  • New Flower
    New Flower Member Posts: 4,294
    cahjah75 said:

    I don't often look at CSN

    but that doesn't mean I don't care.  My heart aches for those we've lost this year and for those who are struggling with treatments and new dx.  I finished chemo almost 3 years ago.  February will be 3 years since finishing rads.  I still see onc every 4 months and so far all is good. Still NED!  I'm half way through my 5 years on Arimidex and seem to be handling it all right. 

    I apologize for the old Hershey picture.  My husband and I went to Hershey last year and this year.  Met some new pink sisters and had a great time.  We are hoping to go to Niagra Falls next May and meet some more pink sisters.

    My 7th grandchild was born in February.  My son has 4 and now my daughter has 3.  My husband and I are going to Disney for Christmas with my daughter and her family.  It will be my granddaughters first trip and they are 6 and 8. 

    Wishing everyone a very nice Thanksgiving and Happy Holidays.

    Char

    Thank you all

    It is nice to see old friends. and feels like we had Thanksgiving together.

    My best wishes to all, please keep posting we need each other giving hope to newbies.

    Love

    Olga

  • SAvent
    SAvent Member Posts: 62
    hi

    Im new to the site so I dont know any of you but this is my second year testing clean after being diagnosed IDC stage 4 in 2009.

    I recently celebrated 1 year anniversary at a job I really enjoy, got engaged to my teen sweetheart on valentines day & back in school working on the Business degree I was pursuing before I got sick.  I look after my grandmother and volunteer at the local community center on my day off & go to church with my family whenever I can.
     I am a NetRadio DJ and co-owner of 2 stations. I am a "SecondLifer" also and enjoy spending time with my SL family.

    Thanks to whoever put this site together. Its an awesome platform for people like us.

    Good Luck to all still fighting!!

  • sea60
    sea60 Member Posts: 2,613
    What a perfect thread!

    This was so nice to post Olga. I have not had time to visit as often as I like so I enjoyed reading and catching up on you and everyone. I celebrated 8 years NED this past October. I'm still working full time (longer hours) and enjoying my family, friends and 2 precious grandboys. That keeps me BUSY!

    I'll be getting a full cardio check up in January, just to make sure all is good. Texas weather had been cold, something we're not used to but at least I can wear coats and scarves...ha!

    Looking forward to Christmas. God bless YOU and all. Keeping us all in prayer as always.

    Love, peace, health and joy,

     

    Sylvia (sea60)

  • New Flower
    New Flower Member Posts: 4,294
    sea60 said:

    What a perfect thread!

    This was so nice to post Olga. I have not had time to visit as often as I like so I enjoyed reading and catching up on you and everyone. I celebrated 8 years NED this past October. I'm still working full time (longer hours) and enjoying my family, friends and 2 precious grandboys. That keeps me BUSY!

    I'll be getting a full cardio check up in January, just to make sure all is good. Texas weather had been cold, something we're not used to but at least I can wear coats and scarves...ha!

    Looking forward to Christmas. God bless YOU and all. Keeping us all in prayer as always.

    Love, peace, health and joy,

     

    Sylvia (sea60)

    Great to hear from everyone

    Sylvia and Susan thanks.

    we are having a very cold weather in California too. We were at Almost freezing poin today, some areas even had frost.

    long hours at work and more demanding conditions - unfortunate outcome of this recession. 

    hopefully we all will have holiday  time off to enjoy family and friends.

    Looking forward to reading more updates

    hugs

  • ppurdin
    ppurdin Member Posts: 1,181
    Hi everyone

    I am a silent reader on here.i like to know how everyone is doing.As for me I been Cancer free for four years 5months now.I have had some surgerys that we're scary since but no Cancer.Thank God.I will always remember the kindness from the people on this web sight.I got my ornament today.I love doing this.Merry Christmas to everyone.God bless you.May you have a great Newyear.

  • Sunrae
    Sunrae Member Posts: 808
    ppurdin said:

    Hi everyone

    I am a silent reader on here.i like to know how everyone is doing.As for me I been Cancer free for four years 5months now.I have had some surgerys that we're scary since but no Cancer.Thank God.I will always remember the kindness from the people on this web sight.I got my ornament today.I love doing this.Merry Christmas to everyone.God bless you.May you have a great Newyear.

    Miss You All

    NewFlower,

    What a sweet and caring sister you are, reaching out to all of us. I don't come here often because I have so many health issues and way too many doctors. This year I've been to hospitals 8 times, and no one seemed to know what my problem was. Finally I was diagnosed with atrial fibrillation and flutter and had a heart ablation in November. Still in and out of rythmn but hoping that the procedure will work and waiting for my heart to heal up. Since being diagnosed with bc in late 2009, masectomy, chemo, radiation took all of 2010, shingles came along in 2011, very painful, 3 stents in my heart in 2012, fell and ruptured cervical discs and had lot of physical therapy in 2012, have lymphdema treatment almost every year and had to have shots for tendonitis in wrist too (need surgery). Also have to contend with asthma and sinus infections, (am now on oxygen), my diabetes gets out of control and now have diabetic retinopathy in my eyes and glaucuma and have to have periodic laser surgery. Arimidex just about does me in but Femara was worse. I also have high BP, high cloresterol and fibromyalgia, don't sleep well and many other ailments that keep me from being very active.

    I still have good days and appreciate every one of them. When my heart heals up I expect many more and look forward to being with my family and friends more. I have a good support group and a loving patient husband who takes good care of me. I've lost 4 family members in the past several months, between ages of 27 and 76. My next check-up with cancer dr is around middle of January.

    I come here when I can and try to keep updated on everyone here. I sorrow at all we've lost here on this board and still hope that more is done in cancer research. My prayer is that sometime in the near future, cancer will be defeated and no one will have to go thru the treatments and suffering that most of us have been thru. I love you all and will try to come here more often. Hoping and prayng for a great 2014 for all of you and your families.

  • lizzie17
    lizzie17 Member Posts: 548
    checking in

    Thank you  for asking us to check in.  I just read this, and was feeling a little lonely this New Year's Eve.  Now, I am feeling uplifted!

    I continue to have squamous cell carcinomas on my face and go in for a biopsy report this Friday.  My breast ultrasound will be repeated in February....that is the name of the test, but it is the tissue mainly under my arm,  since I had a double mastectomy !!??

    Other than that, still working, still in my routines, and still getting used to new family traditions which include a new son-in-law! 

    I  still keep you, my pink sisters, in my prayers.  Hugs to everyone!!

  • smbrand158
    smbrand158 Member Posts: 19
    Checking in

    I'll admit that I am more of lurker-reading posts for information about treatments and lately reconstruction, than an active participant on this board. I recently found a facebook diep flap page that I am more active on and highly recommend it to other women considering or having had a diep flap reconstruction. But recently I've come back to the boards at least once a week and I feel that it's because of a connection to the survivors here.

    I am now two years post mastectomy, almost 2 years post chemo and radiation. My relationship with my husband is getting back on track with the help of a great therapy group, and I am 3 1/2 months post diep flap surgery (stage 1) and very happy with the results. Stage 2 will be either this spring or next fall.

    My son and almost 2 year-old grandson were home for Christmas and it was the best holiday that I have had since my dad past away from lung cancer 10 years ago. 

    The past is yesterday-I can't change it; it has changed me. I am a lucky woman and choose to look to the future in a positive way.

  • Christmas Girl
    Christmas Girl Member Posts: 3,682 Member
    Our sweet New Flower...

    Doesn't surprise me, Olga - our sweet New Flower, that you would post a thread such as this one. Wink

    Although I continue to maintain a 'presence' here - don't check in nor post nearly as often as years ago. Even so, I keep everyone close within my hopeful thoughts & prayers - and within my heart. Each & every day, always. Am glad to know your status is stable.

    For me - it's now been over 10 years since my 1st DX, and more than 2 years since the 2nd. Am back to being closely 'watched' - with doctor appointments/tests every three months. Quite honestly, haven't yet regained my sense of 'inner balance' since DX #2. I am grateful for each day.

    To all those facing serious & difficult challenges - sending extra hopeful thoughts & prayers your way.

    Kind regards, Susan

  • Marcia527
    Marcia527 Member Posts: 2,729
    Hello.

    I've not posted much. Mostly because a lot of the details have moved into a part of my brain not accessed much. I start the count at diagnosed date which is year 2003. So by my count that is ten years.

     

    The year 2006 I was diagnosed with Parkinson's . I've been struggling with that . Parkinson's is not something which is cured. But life goes on. Oldest son is married and other son will marry In June. Had to have our dog put to sleep. She had four tumors and in much pain. We moved to Indiana where many relatives live and visit our kids in the Winter.

     

    i'm not taking any meds for cancer, I am taking two meds for PD.

     

    My DH retired . Boy does this change our life. He is learning how to cook and bake. Part of me thinks this is because at some point I'm     

    not going to be able to do it. So he has decided to start with baking pies. We've eaten three pies in three weeks. I think I've gained a few pounds. I told DH if we keep this up I will be so round that he will be able to roll me around instead of a wheelchair. Ha ha.

    Hugs to all.

    Marcia

     

  • New Flower
    New Flower Member Posts: 4,294
    Marcia527 said:

    Hello.

    I've not posted much. Mostly because a lot of the details have moved into a part of my brain not accessed much. I start the count at diagnosed date which is year 2003. So by my count that is ten years.

     

    The year 2006 I was diagnosed with Parkinson's . I've been struggling with that . Parkinson's is not something which is cured. But life goes on. Oldest son is married and other son will marry In June. Had to have our dog put to sleep. She had four tumors and in much pain. We moved to Indiana where many relatives live and visit our kids in the Winter.

     

    i'm not taking any meds for cancer, I am taking two meds for PD.

     

    My DH retired . Boy does this change our life. He is learning how to cook and bake. Part of me thinks this is because at some point I'm     

    not going to be able to do it. So he has decided to start with baking pies. We've eaten three pies in three weeks. I think I've gained a few pounds. I told DH if we keep this up I will be so round that he will be able to roll me around instead of a wheelchair. Ha ha.

    Hugs to all.

    Marcia

     

    Thanks Ladies for your updates. Healthy New Year!

    Healthy New Year! if we are healthy everything is possible. Sorry to read about family losses and happy learning about grandchildren and children getting married. Thank you for sharing your thoughts, humor and family news

    to me our CSN is our second family, and We Do care, cherish friendship, cry and laugh together

  • helen e
    helen e Member Posts: 223
    Doing Great

    I will be going off Tamoxifen in December and I can't wait! All my tests have been great. I am still trying to get used to my "new" body. Still hard to look in the mirror even though I've had reconstruction and it turned out beautiful. It's all in my head though so I'll be alright.

  • ladybug22
    ladybug22 Member Posts: 646
    thanks for asking

    6 years out do great

     

     

  • New Flower
    New Flower Member Posts: 4,294
    ladybug22 said:

    thanks for asking

    6 years out do great

     

     

    Thanks and glad to see you

    Glad to see familiar faces and about great news

  • tasha_111
    tasha_111 Member Posts: 2,072
    How are we doing?

    Feeling OK at the moment (even tho I threw up tonight)  Booked to go on a 2 month holiday to England (where I come from) Worried about drugs (can I get 2 month supply?)  Worried about dog (broke her jaw the day after boxing day and now has to have root canal work at the end of feb)  Worried about house (who will collect the mail?  water the plants?  Ohhhhhhhhhhhhhhhh buggerrrrrr) All this worry, and I am going to England on my Grand Farewell Tour.  I hate this, cancer sucks!  Jxx

     

  • ThycaAnne
    ThycaAnne Member Posts: 68
    tasha_111 said:

    How are we doing?

    Feeling OK at the moment (even tho I threw up tonight)  Booked to go on a 2 month holiday to England (where I come from) Worried about drugs (can I get 2 month supply?)  Worried about dog (broke her jaw the day after boxing day and now has to have root canal work at the end of feb)  Worried about house (who will collect the mail?  water the plants?  Ohhhhhhhhhhhhhhhh buggerrrrrr) All this worry, and I am going to England on my Grand Farewell Tour.  I hate this, cancer sucks!  Jxx

     

    Ok for now, but.....

    Great idea, New Flower!!

     

    Life is good.  DH & I have a 4 year old grandson who we don't get to see as often as we would like.  Our daughter & son-in- law adopted him out of foster care.  He has been in their home for 18 months-- the adoption was final the week before Christmas!!  Best present ever!  We are taking them on a Disney Land/Sea trip next week to celebrate the adoption & the return of my son-in-law from a 6 month deployment.  I'll be thinking of you Cypress Cynthia!!

    Just got the all clear from MDAnderson 2 weeks ago.  It has been 2 years since the breast cancer.  They have put me in the "Survivorshp" category & I have graduated from every 6 month check ups to one year.  The thyroid cancer is still lingering in a couple of lymph nodes;  but the surgeon says "wait & watch" since it's not growing.  Was thinking that everything is going well until I woke up with my cancer breast red & hot this morning.  No fever, a little painful.  Now I'm trying to diagnos myself on Dr. Google!!  Yikes!! The only other thing is that I'm weaning  myself off Effexor that was prescribed for my horrible hot flashes after the lumpectomy.  I see a nutritionist/naturopath that has given me something that works on the hot flashes.  The weaning is NOT FUN!!  Lots of side effects!!

     

    i don't post often but do check on you all & think of you!

     

    Prayers for all!!

    Anne

  • KathiM
    KathiM Member Posts: 8,028 Member
    Still going strong....9 years since dx....

    ...still NED on both breast and rectal cancer...only big event was my beau's new heart in July.  He is now doing so well that we can resume our traveling lifestyle, with just a bit of restrictions...

     

    ...just returned from a 4-day cruise up and down the Pacific coast on Princess...

     

    Hugs to all, Kathi

  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
    I miss this place.

    Hi - Thank you for checking in on all of us.

    I haven't been on here in a while. I had had a few emergencies with pets and family. I went for my markers yesterday and they came back OK (thank God). Also, my blood work seems normal although I have been developing bruises all over, for no reason. I am also feeling tired a lot and very sleepy. I am still on tamoxifen.

    I am now 35, 3 years post surgery. I cannot believe it. I want to have a child, badly. But my Onco wants me on tamox. for 10 years. I might take a break after 5 to have my baby. Why not.

    I go for my GYN pap test this Friday. Yikes.

    My next breast MRI is in August, followed by a mammo in Nov. OUCH!

    I hope everyone is doing well here. I really miss this place a lot. I will stay in contact more often.

     

    Love you all. XOXO