Tedd? Craig? Phil?

annalexandria
annalexandria Member Posts: 2,571 Member

Just wondering how you all are doing.

I think of you guys often, and hope that there are plenty of bright moments in each day.

I'm sure I'm not the only one here doing that...we miss you!

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Comments

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    Oh, and Winter Marie too!

    Anyone else I've missed??

  • maglets
    maglets Member Posts: 2,576 Member

    Oh, and Winter Marie too!

    Anyone else I've missed??

    2nd

    I second your motion AA

    m

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    3's a Quorum...

    So, all in favor, say AYE!

    :)

    Iced out down here in TX and couldn't get to my chemo treatment today....was just starting back up again today....low tonight will be 15-degrees:)

    Oxy would have been fun on such a cold day:(

    I'm hanging in there, Ann.....they just pulled my wound vac a couple of days ago...wound is mostly sealed and we just do a wet-to-dry dressing change until it fills in....not too bad.  I'm down 55 lbs and have gone down 6-7 WAIST SIZES since then....hubba hubba:)  Looking good.

    I"m learng to live with cancer pain...much like yourself, I find myself in the world of pain meds I never wanted.....but without them, I'd be screaming, because the pain is so horrendous sometimes.....having cancer in the pleura of the lung really does hurt.....onc concurred.

    I think of you often and the type of situations and feelings we share and such...I've missed all of you very much....pain and meds have kept me mostly muted...."who'd have thunk it?" LOL!

    I think I'm going to try for a post shortly before I have to do chemo again.....I'd like to talk about living with cancer pain....this is a relative topic and one I've not touched on in the past, so it would be fresh reading.

    Take care, my Annie....and thanks for keeping me on a short leash:)

    Love/Craig

  • wolfen
    wolfen Member Posts: 1,324 Member
    Sundanceh said:

    3's a Quorum...

    So, all in favor, say AYE!

    :)

    Iced out down here in TX and couldn't get to my chemo treatment today....was just starting back up again today....low tonight will be 15-degrees:)

    Oxy would have been fun on such a cold day:(

    I'm hanging in there, Ann.....they just pulled my wound vac a couple of days ago...wound is mostly sealed and we just do a wet-to-dry dressing change until it fills in....not too bad.  I'm down 55 lbs and have gone down 6-7 WAIST SIZES since then....hubba hubba:)  Looking good.

    I"m learng to live with cancer pain...much like yourself, I find myself in the world of pain meds I never wanted.....but without them, I'd be screaming, because the pain is so horrendous sometimes.....having cancer in the pleura of the lung really does hurt.....onc concurred.

    I think of you often and the type of situations and feelings we share and such...I've missed all of you very much....pain and meds have kept me mostly muted...."who'd have thunk it?" LOL!

    I think I'm going to try for a post shortly before I have to do chemo again.....I'd like to talk about living with cancer pain....this is a relative topic and one I've not touched on in the past, so it would be fresh reading.

    Take care, my Annie....and thanks for keeping me on a short leash:)

    Love/Craig

    One Down, 3 To Go

    Good to hear from you, my friend. Hope our 3 other friends will respond, also.

    Can't even comprehend the horrible pain you must be in. I'm just so sorry. I think your idea of a "pain post" is a good one. You know how much sharing info here helps everyone.

    I really understand your remark about never wanting to get on the pain meds. I am the same way about anxiety meds. Have always thought I could just "tough it out". Finally decided, I just couldn't do it anymore. Just so many happenings overwhelming me, so I bit the proverbial bullet...............  Meds help a little, but at least, I am "trendy" now.

    Luv Ya,

    "Mama" Wolfen

  • geotina
    geotina Member Posts: 2,111 Member
    Phil:

    When I saw your post I went over and checked Phil's blog.  He had an update that he had his surgery on 12/3, doctor said it was difficult, but successful. 

    Here is wishing you the best Phil and a speedy recovery!

    Tina

  • LivinginNH
    LivinginNH Member Posts: 1,456 Member
    Sundanceh said:

    3's a Quorum...

    So, all in favor, say AYE!

    :)

    Iced out down here in TX and couldn't get to my chemo treatment today....was just starting back up again today....low tonight will be 15-degrees:)

    Oxy would have been fun on such a cold day:(

    I'm hanging in there, Ann.....they just pulled my wound vac a couple of days ago...wound is mostly sealed and we just do a wet-to-dry dressing change until it fills in....not too bad.  I'm down 55 lbs and have gone down 6-7 WAIST SIZES since then....hubba hubba:)  Looking good.

    I"m learng to live with cancer pain...much like yourself, I find myself in the world of pain meds I never wanted.....but without them, I'd be screaming, because the pain is so horrendous sometimes.....having cancer in the pleura of the lung really does hurt.....onc concurred.

    I think of you often and the type of situations and feelings we share and such...I've missed all of you very much....pain and meds have kept me mostly muted...."who'd have thunk it?" LOL!

    I think I'm going to try for a post shortly before I have to do chemo again.....I'd like to talk about living with cancer pain....this is a relative topic and one I've not touched on in the past, so it would be fresh reading.

    Take care, my Annie....and thanks for keeping me on a short leash:)

    Love/Craig

     
    Ahhh!! There you are!!!

     

    Ahhh!! There you are!!! :)   It's been too long since I've seen that handsome lion!  :)  Wish you weren't in such pain my friend, and that I could help you in some way...

    Hugs to you and Kim (((())))

    Cyn

  • jen2012
    jen2012 Member Posts: 1,607 Member
    Good to see you Craig! Sorry
    Good to see you Craig! Sorry you are having so much pain. My hubby too :( ...it sucks. I hope things turn for the better very soon. We miss you!
  • annalexandria
    annalexandria Member Posts: 2,571 Member
    Sundanceh said:

    3's a Quorum...

    So, all in favor, say AYE!

    :)

    Iced out down here in TX and couldn't get to my chemo treatment today....was just starting back up again today....low tonight will be 15-degrees:)

    Oxy would have been fun on such a cold day:(

    I'm hanging in there, Ann.....they just pulled my wound vac a couple of days ago...wound is mostly sealed and we just do a wet-to-dry dressing change until it fills in....not too bad.  I'm down 55 lbs and have gone down 6-7 WAIST SIZES since then....hubba hubba:)  Looking good.

    I"m learng to live with cancer pain...much like yourself, I find myself in the world of pain meds I never wanted.....but without them, I'd be screaming, because the pain is so horrendous sometimes.....having cancer in the pleura of the lung really does hurt.....onc concurred.

    I think of you often and the type of situations and feelings we share and such...I've missed all of you very much....pain and meds have kept me mostly muted...."who'd have thunk it?" LOL!

    I think I'm going to try for a post shortly before I have to do chemo again.....I'd like to talk about living with cancer pain....this is a relative topic and one I've not touched on in the past, so it would be fresh reading.

    Take care, my Annie....and thanks for keeping me on a short leash:)

    Love/Craig

    Yay, there you are!

    Please do post if you can, Craig.  You know we like your lengthy pieces, but we are happy to just get a paragraph now and then too.

    I'm so sorry about the pain.  It's just grueling to live with it on a daily basis, isn't it?  And what I'm dealing with is nothing compared to what you are going through.  Pain is the unwanted companion who just. won't. shut. up.  It's hard to hear anything else when there is that constant, unrelenting chatter.

    But I hope you can hear our voices still, telling you that we love and miss you!

    (and we want pics, Mr. Skinny Minny!)

  • Chelsea71
    Chelsea71 Member Posts: 1,169 Member
    Sundanceh said:

    3's a Quorum...

    So, all in favor, say AYE!

    :)

    Iced out down here in TX and couldn't get to my chemo treatment today....was just starting back up again today....low tonight will be 15-degrees:)

    Oxy would have been fun on such a cold day:(

    I'm hanging in there, Ann.....they just pulled my wound vac a couple of days ago...wound is mostly sealed and we just do a wet-to-dry dressing change until it fills in....not too bad.  I'm down 55 lbs and have gone down 6-7 WAIST SIZES since then....hubba hubba:)  Looking good.

    I"m learng to live with cancer pain...much like yourself, I find myself in the world of pain meds I never wanted.....but without them, I'd be screaming, because the pain is so horrendous sometimes.....having cancer in the pleura of the lung really does hurt.....onc concurred.

    I think of you often and the type of situations and feelings we share and such...I've missed all of you very much....pain and meds have kept me mostly muted...."who'd have thunk it?" LOL!

    I think I'm going to try for a post shortly before I have to do chemo again.....I'd like to talk about living with cancer pain....this is a relative topic and one I've not touched on in the past, so it would be fresh reading.

    Take care, my Annie....and thanks for keeping me on a short leash:)

    Love/Craig

    Nice to hear from you, Craig.

    Nice to hear from you, Craig.  Have been wondering and worrying about you.  You're tone sounds good though.  Looking forward to a lengthy, inspirational post one of these days.  Thanks for the update.  

  • herdizziness
    herdizziness Member Posts: 3,624 Member
    Sundanceh said:

    3's a Quorum...

    So, all in favor, say AYE!

    :)

    Iced out down here in TX and couldn't get to my chemo treatment today....was just starting back up again today....low tonight will be 15-degrees:)

    Oxy would have been fun on such a cold day:(

    I'm hanging in there, Ann.....they just pulled my wound vac a couple of days ago...wound is mostly sealed and we just do a wet-to-dry dressing change until it fills in....not too bad.  I'm down 55 lbs and have gone down 6-7 WAIST SIZES since then....hubba hubba:)  Looking good.

    I"m learng to live with cancer pain...much like yourself, I find myself in the world of pain meds I never wanted.....but without them, I'd be screaming, because the pain is so horrendous sometimes.....having cancer in the pleura of the lung really does hurt.....onc concurred.

    I think of you often and the type of situations and feelings we share and such...I've missed all of you very much....pain and meds have kept me mostly muted...."who'd have thunk it?" LOL!

    I think I'm going to try for a post shortly before I have to do chemo again.....I'd like to talk about living with cancer pain....this is a relative topic and one I've not touched on in the past, so it would be fresh reading.

    Take care, my Annie....and thanks for keeping me on a short leash:)

    Love/Craig

    Craig

    it's good to see you again, been missing you.  I'm so sorry about the pain, but I'm glad your wound is healing.

    luv,

    Winter Marie

  • herdizziness
    herdizziness Member Posts: 3,624 Member
    Hey there

    I just came off a lovely round of diarrhea and dehydration.  Got my second hydration this week, was supposed to have chemo this week but because of dehydration and blood work (messed up due to dehydrated) it is delayed until next week.  That way I get chemo the week I fly to Ohio for my daughter's graduation, so a bit upset over that.

    i had been given the wrong pills by the pharmacy, in other words pills the oncologist DID NOT prescribe, diarrhea set in, I lost 12 pounds last week (still can't find them as of today they are still missing, LOL). Had to buy new pants to wear today, down from a size 10 to an 8 in a week.

    Lesson learned: Do NOT assume the pharmacy double checks as they should, check on the internet for yourself.  If it had not been for Marie "LovesKitties", who looked up the drug when I was complaining on Facebook about my reaction to it, setting the course for me and the pharmacy and the doctor to discover the doctor prescribed the right pills, the pharmacy dispensed the wrong pills, I would have been a lot worse for the wear.  Thank you ever so much Marie!! (I swear I think that wonderful lady must be my guardian angel, as a matter of fact I think she is that for several of us) So everyone double check any new prescriptions.

    i never have been dehydrated before or had so much diarrhea, this was my first and hopefully last.

    Love at you all,

    Winter Marie

  • maglets
    maglets Member Posts: 2,576 Member

    Hey there

    I just came off a lovely round of diarrhea and dehydration.  Got my second hydration this week, was supposed to have chemo this week but because of dehydration and blood work (messed up due to dehydrated) it is delayed until next week.  That way I get chemo the week I fly to Ohio for my daughter's graduation, so a bit upset over that.

    i had been given the wrong pills by the pharmacy, in other words pills the oncologist DID NOT prescribe, diarrhea set in, I lost 12 pounds last week (still can't find them as of today they are still missing, LOL). Had to buy new pants to wear today, down from a size 10 to an 8 in a week.

    Lesson learned: Do NOT assume the pharmacy double checks as they should, check on the internet for yourself.  If it had not been for Marie "LovesKitties", who looked up the drug when I was complaining on Facebook about my reaction to it, setting the course for me and the pharmacy and the doctor to discover the doctor prescribed the right pills, the pharmacy dispensed the wrong pills, I would have been a lot worse for the wear.  Thank you ever so much Marie!! (I swear I think that wonderful lady must be my guardian angel, as a matter of fact I think she is that for several of us) So everyone double check any new prescriptions.

    i never have been dehydrated before or had so much diarrhea, this was my first and hopefully last.

    Love at you all,

    Winter Marie

    good to see you both

    Craig it is a lonely forum without you.  So so sorry you are having to endure more pain but glad the wound is healing.  And Winter Marie....gosh what a round of trouble you have had.  Marie Kitties is a genius......what a girl....she is an internet angel......hoping you feel better soon Winter Marie......yikes skinnieminnies everywhereSmile

    mags

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    geotina said:

    Phil:

    When I saw your post I went over and checked Phil's blog.  He had an update that he had his surgery on 12/3, doctor said it was difficult, but successful. 

    Here is wishing you the best Phil and a speedy recovery!

    Tina

    What kind of surgery did phil

    What kind of surgery did phil have. I wasn't aware of that.

  • fatbob2010
    fatbob2010 Member Posts: 467 Member

    REALLY IMPORTANT

    Always check the label of the bottle my pharmacy includes a description of the pill.  The description includes a shape, color, and both front/back imprint information.  if no description on label...try this AARP Site:  pill-identifier

    IF THE PILLS DO NOT MATCH EXACTLY...DO NOT TAKE WITHOUT TALKING TO PHARMACIST AND/OR YOUR DOCTOR.

    I do this at the counter before leaving the pharmacy.  Not always appreciated, but, as you have found, a mistake can be really bad.  

    Lastly, IMHO mistakes like this should be reported.

    Glad you are back on track,

    Art

  • abrub
    abrub Member Posts: 2,174 Member

    REALLY IMPORTANT

    Always check the label of the bottle my pharmacy includes a description of the pill.  The description includes a shape, color, and both front/back imprint information.  if no description on label...try this AARP Site:  pill-identifier

    IF THE PILLS DO NOT MATCH EXACTLY...DO NOT TAKE WITHOUT TALKING TO PHARMACIST AND/OR YOUR DOCTOR.

    I do this at the counter before leaving the pharmacy.  Not always appreciated, but, as you have found, a mistake can be really bad.  

    Lastly, IMHO mistakes like this should be reported.

    Glad you are back on track,

    Art

    Epocrates - pill identifier app for smart phones

    I've used Epocrates (the free version) for years - on my Palm Pilot, and now on my Smart Phone.  It is great for looking up info on meds.  You can also put in the description of your pills, and it will tell you what they are (including lots of generic variants).  I've seen enough pharmacy errors that I double-check everything I get.  (I loved getting eardrops once, with strict instructions and labeled to use in eyes only.  Fortunately, I don't obey blindly or I would have been forever blinded!)

    Epocrates has also been useful for me when with the dr.  My surgeon didn't know one of the meds I've used, and when I brought it up on Epocrates, he was fine with prescribing it.  We must be our own advocates!   

    Alice

  • UncleBuddy
    UncleBuddy Member Posts: 1,019 Member

    REALLY IMPORTANT

    Always check the label of the bottle my pharmacy includes a description of the pill.  The description includes a shape, color, and both front/back imprint information.  if no description on label...try this AARP Site:  pill-identifier

    IF THE PILLS DO NOT MATCH EXACTLY...DO NOT TAKE WITHOUT TALKING TO PHARMACIST AND/OR YOUR DOCTOR.

    I do this at the counter before leaving the pharmacy.  Not always appreciated, but, as you have found, a mistake can be really bad.  

    Lastly, IMHO mistakes like this should be reported.

    Glad you are back on track,

    Art

    Totally agree!

    Dispensing the wrong prescription needs to be reported. https://www.ismp.org/orderforms/reporterrortoismp.asp I would also report it to the store. Call the main office.

    You don't want to see this happen again and possibly kill someone. I wish you the best!

    Lin

  • maglets
    maglets Member Posts: 2,576 Member

    Totally agree!

    Dispensing the wrong prescription needs to be reported. https://www.ismp.org/orderforms/reporterrortoismp.asp I would also report it to the store. Call the main office.

    You don't want to see this happen again and possibly kill someone. I wish you the best!

    Lin

    yikes

    I have never checked one single prescription....just blindly trust they are doing their job....mags

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    maglets said:

    yikes

    I have never checked one single prescription....just blindly trust they are doing their job....mags

    Me neither!

    That's very scary...

  • herdizziness
    herdizziness Member Posts: 3,624 Member

    REALLY IMPORTANT

    Always check the label of the bottle my pharmacy includes a description of the pill.  The description includes a shape, color, and both front/back imprint information.  if no description on label...try this AARP Site:  pill-identifier

    IF THE PILLS DO NOT MATCH EXACTLY...DO NOT TAKE WITHOUT TALKING TO PHARMACIST AND/OR YOUR DOCTOR.

    I do this at the counter before leaving the pharmacy.  Not always appreciated, but, as you have found, a mistake can be really bad.  

    Lastly, IMHO mistakes like this should be reported.

    Glad you are back on track,

    Art

    I had

    I had never been prescribed lomotil before so had no idea what the generic name or the pill looked like, so the pill did match the prescription it wasn't a matter of putting the pill in the wrong bottle but a completely different prescription then what was prescribed.  My husband questioned the pharmacist's assistant, who supposedly looked up the prescription, wrote it down and told him yes this is what the doctor prescribed, so since he had questioned and I had just had chemo, we didn't question any further.  I thought the never ending diarrhea was the worst side effect I had suffered was from the chemo, not the wrong prescription.  Marie looked it up and said that was not a generic for lomotil but an entirely different prescription, which led to the pharmacy mistake. I quit taking the prescription and diarrhea went away, my husband has asked me at some point during this while I was sitting on the throne if I was okay, I told him no, I was just waiting for my intestines to fall out.

    So my suggestion is, if you get GENERIC medication, make sure to look it up so that you can be sure it's the generic of what was actually prescribed. and not something else entirely.

    Winter Marie

  • annalexandria
    annalexandria Member Posts: 2,571 Member

    I had

    I had never been prescribed lomotil before so had no idea what the generic name or the pill looked like, so the pill did match the prescription it wasn't a matter of putting the pill in the wrong bottle but a completely different prescription then what was prescribed.  My husband questioned the pharmacist's assistant, who supposedly looked up the prescription, wrote it down and told him yes this is what the doctor prescribed, so since he had questioned and I had just had chemo, we didn't question any further.  I thought the never ending diarrhea was the worst side effect I had suffered was from the chemo, not the wrong prescription.  Marie looked it up and said that was not a generic for lomotil but an entirely different prescription, which led to the pharmacy mistake. I quit taking the prescription and diarrhea went away, my husband has asked me at some point during this while I was sitting on the throne if I was okay, I told him no, I was just waiting for my intestines to fall out.

    So my suggestion is, if you get GENERIC medication, make sure to look it up so that you can be sure it's the generic of what was actually prescribed. and not something else entirely.

    Winter Marie

    OMG, Winter...

    I really hope you report that to the pharmacy!  That's actually dangerous!