latest scan

foxhd
foxhd Member Posts: 3,181 Member

Well here we go. I had my follow up scan yesterday. The IL-2 is doing it's job! My tumors are stable or shrinking. What else can I ask for? Next scan is in 6 weeks. There was a time a couple years back when scans showed tumors everywhere. Now only down to a couple soft tissue mets and a couple bone mets. And they are little. I feel great. I'm painless. And I just finished a good workout. Life is good!  Everyone who sees me finds it hard to believe that I'm stage 4 for short of 3 years now. Keep the faith everyone. We can do this.

nephrectomy 3/11......20ish tumors and much pain by late 2011......nivolumab trial (MDX-1106) for 18 months with excellent results except 2 or 3 new small growths which eliminated me from trial.....IL-2 treatments in July and Oct. ....no oral meds.....Zometa infusions for bones....

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Comments

  • srbelle1
    srbelle1 Member Posts: 123
    Fox:
    i have been waiting for

    Fox:

    i have been waiting for your results; after the hell you went through, these results are well-earned!!!! 

    So very glad to start my day with your good news!

    Sarah

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    WOWWEEEEE!!!! You give so

    WOWWEEEEE!!!! You give so many HOPE!

    You have been to "hell" and back it seems.

    May you continue to inspire~

    Be well my friend,

     

    Jan

  • donna_lee
    donna_lee Member Posts: 1,041 Member
    Jan4you said:

    WOWWEEEEE!!!! You give so

    WOWWEEEEE!!!! You give so many HOPE!

    You have been to "hell" and back it seems.

    May you continue to inspire~

    Be well my friend,

     

    Jan

    All we wanted to hear

    What great news, Fox!!!  As I've been made aware, IL2 is truly nasty stuff; but it works.  So glad to hear your results are truly marvelous.

    Love from the other coast.

    Donna

  • brea588
    brea588 Member Posts: 240
    what a wonderful report

    So good to hear how well you are doing.  What an inspiration you are to everyone.  Keep up the good fight!!!!

  • Jojo61
    Jojo61 Member Posts: 1,309 Member
    brea588 said:

    what a wonderful report

    So good to hear how well you are doing.  What an inspiration you are to everyone.  Keep up the good fight!!!!

    Such great news, Fox!! You

    Such great news, Fox!! You are amazing and a true example of never give up!!

     

    Jojo

  • mrs_blkjak
    mrs_blkjak Member Posts: 103
    I'm so happy for you!

    I have also been waiting to hear good results from your IL2 and a, so glad to hear a positive report for you!

  • Skagway Jack
    Skagway Jack Member Posts: 224 Member
    You the Man!  You set the

    You the Man!  You set the example and give us all confidence in our own battles.  Battle on Fox....good one on ya!!!

     

  • DMike
    DMike Member Posts: 259
    Great News

    I'm so very happy for you Fox! That's great news. 

    David

  • Alexandra
    Alexandra Member Posts: 1,308
    Go Fox!!!

    Foxy name graphics  Foxy name graphics  Foxy name graphics  Foxy name graphics  Foxy name graphics   

    Foxy name graphicsFOX IS AWESOMEFoxy name graphics

    Foxy name graphics  Foxy name graphics  Foxy name graphics  Foxy name graphics  Foxy name graphics   

  • Darron
    Darron Member Posts: 310 Member
    Fantastic Fox!
    Wow, words can't explain how happy I was to read that. As a fellow MDX'er, it is good to see there is another fork in the road.
    Quick question, were you on MDX only, or in combination with another drug?

    keep blazing that trail!
    Darron
  • BDS
    BDS Member Posts: 172
    Scan Results

     

    Yeah!!!!!!    

     

    PS -  I love Alexandra's post

  • foxhd
    foxhd Member Posts: 3,181 Member
    Darron said:

    Fantastic Fox!
    Wow, words can't explain how happy I was to read that. As a fellow MDX'er, it is good to see there is another fork in the road.
    Quick question, were you on MDX only, or in combination with another drug?

    keep blazing that trail!
    Darron

    MDX

    Darron, MDX only. I don't think they were doing combos back then.

  • foxhd
    foxhd Member Posts: 3,181 Member
    BDS said:

    Scan Results

     

    Yeah!!!!!!    

     

    PS -  I love Alexandra's post

    Thanks everyone

    I appreciate everyones support. I'll probably never see the cure but stable and no new growth is success. I care about getting fit and strong again. Then my lifestyle will remain just as it has been. I can do this for years to come. Alex, I don't think I'm a poster boy anymore. But I'll take it. Thanks. Love you. Soon I'll be entering the world of new treatments. I don't know what that will be. Sutent? votrient? cherry pick the tumors? My doctor wants to keep an eye on my progress. she doesn't see the need for any new intervention yet. I've been through enough. I don't mind waiting awhile. I am very interested in continued improvements without being on any new drugs. Is it a pipe dream? Don't care. I'll wait. 6 more weeks for the next scan.

  • Frank302
    Frank302 Member Posts: 71
    foxhd said:

    Thanks everyone

    I appreciate everyones support. I'll probably never see the cure but stable and no new growth is success. I care about getting fit and strong again. Then my lifestyle will remain just as it has been. I can do this for years to come. Alex, I don't think I'm a poster boy anymore. But I'll take it. Thanks. Love you. Soon I'll be entering the world of new treatments. I don't know what that will be. Sutent? votrient? cherry pick the tumors? My doctor wants to keep an eye on my progress. she doesn't see the need for any new intervention yet. I've been through enough. I don't mind waiting awhile. I am very interested in continued improvements without being on any new drugs. Is it a pipe dream? Don't care. I'll wait. 6 more weeks for the next scan.

    Great news Fox

    I'm so glad for your results Fox. You are inspireing and your attitude is uplifting . Your untireing willingness to come out swinging in every round serves as an example for us all .

  • TillieSOK
    TillieSOK Member Posts: 252
    foxhd said:

    Thanks everyone

    I appreciate everyones support. I'll probably never see the cure but stable and no new growth is success. I care about getting fit and strong again. Then my lifestyle will remain just as it has been. I can do this for years to come. Alex, I don't think I'm a poster boy anymore. But I'll take it. Thanks. Love you. Soon I'll be entering the world of new treatments. I don't know what that will be. Sutent? votrient? cherry pick the tumors? My doctor wants to keep an eye on my progress. she doesn't see the need for any new intervention yet. I've been through enough. I don't mind waiting awhile. I am very interested in continued improvements without being on any new drugs. Is it a pipe dream? Don't care. I'll wait. 6 more weeks for the next scan.

    This is the absolute best

    This is the absolute best news ever!

  • NewDay
    NewDay Member Posts: 272
    TillieSOK said:

    This is the absolute best

    This is the absolute best news ever!

    MADE MY DAY!!!

    You made my day!  

  • foxhd
    foxhd Member Posts: 3,181 Member
    TillieSOK said:

    This is the absolute best

    This is the absolute best news ever!

    I wouldn't go that far

    Tillie, it's not that awesome. Good news for sure. Best news ever would be ALL of us doing well. Thanks.

    Good to hear from you Kathy.

    Someone asked me about my avatar. That was taken on the observation deck of the Mt. Washington observatory. We have ridden up Mt. Washington about a dozen times in the last 15 years. Fun ride. I know I'm due for a picture change but I don't have anything else. I also don't know how I did this one. I'm not nearly as savey as Alex with this computer. I was going to draw a picture and use a sticky. But I guess you guys wouldn't be able to see it if I stuck it on my computer. Tex never believed it when I told him of my limited computer talent. That is what happens when there are no teenagers in the house.

  • foxhd
    foxhd Member Posts: 3,181 Member
    Jojo61 said:

    Such great news, Fox!! You

    Such great news, Fox!! You are amazing and a true example of never give up!!

     

    Jojo

    Jojo, you are proof

    of one tough lady. Here you are reaching out while you can hardly even fart yet. Take care of yourself during your recovery. I don't see you as one who conceeds either.

  • foxhd
    foxhd Member Posts: 3,181 Member
    donna_lee said:

    All we wanted to hear

    What great news, Fox!!!  As I've been made aware, IL2 is truly nasty stuff; but it works.  So glad to hear your results are truly marvelous.

    Love from the other coast.

    Donna

    Thanks Donna

    I wore my Kuwait shirt today when I went for my zometa infusion. Another woman had a Harley shirt and we talked about it. Then I showed her mine. She said it was the best one she has seen. I told her , "I know." I think she had a better day.

  • foxhd
    foxhd Member Posts: 3,181 Member
    srbelle1 said:

    Fox:
    i have been waiting for

    Fox:

    i have been waiting for your results; after the hell you went through, these results are well-earned!!!! 

    So very glad to start my day with your good news!

    Sarah

    Sarah

    The IL-2 was tough but I think that I've had it easy. After expecting to have been dead a couple years ago, I am fortunate. No rhyme or reason why I got lucky. But I am thankful. I've too much to look forward too.