Introducing Myself

Hello, this is my first time posting in this survivor's forum.  I am basically new to this network, as I found it by chance about a month ago.  Let me introduce myself by telling my story, a little bit about my "case".  I am 35 years old, and was diagnosed with stage III colon cancer in March 2012.  I had been having symptoms for at least two years before I decided to go to the GI doctor.  I suspected what was going on, but was a little bit scared of the diagnosis, hency waiting long before going to an actual doctor.  I remember watching an interview with Tammy Bakker at least 10 years ago, where she mentions the symptoms of colon cancer, and I was having this exact same symptom.  So, when I was experiencing this specific symptom, I thought, no it couldn't be, I am too young, it could be something else, so I waited.  As two years passed, the symptom was more pronounced, and I actually started losing weight quickly, right before I went to the doctor.  People at work actually were happy for me because I was losing weight, I looked better.  I went to the doctor, a quick test in the office, and an appointment for a colonoscopy for three weeks later.  The dreaded day came, doctor started the colonoscopy, went in a few cms, and found a big tumor on the sigmoid colon.  The doctor could not complete the procedure.  CT scan a few days later showed a big tumor, 8cms.  Biopsy was taken out, but it did not show cancer.  The doctor explained sometimes the cancer is hidden inside the tumor, and he was very sure it was cancer.  THANKS DOCTOR!!  Not the news I wanted to hear.  Fortunately for me, CT scan did not show it had metastasized to the liver, but it seemed some lymph nodes were swollen, so I may need some chemo.  I had surgery, and the surgeon said the tumor was fairly big.  On a follow up visit, I asked how big was the turmor, 12 cms by 8cms, the size of a softball, I remember the doctor saying.  I would know for sure if it was cancer after surgery was done.  It was basically 6 weeks since I first went to the GI doctor to the date of my surgery. In the middle of this, I visited the oncologist, who said the tumor was too big, so it had to be a cancerous tumor.  One week after surgery, the surgeon calls me, biopsy showed cancer cells on the lymph nodes, told me to get ready mentally, 'cause I was going through chemo.  I had 8 rounds total, Oxiloplatin on the first day, and Xeloda for the following two weeks, with one week of rest.  The second round was the one that ALMOST kicked me hard, I remember.  I finished chemo on September 2012.  I had a mediport put in a week before I started chemo.  After I finished chemo, I asked the oncologist doctor when could I take the mediport out, i was told to wait one year, so I finally got it taken out in September of this year.  I think this is progress.  The doctor who took the mediport out was the same who put it in before I started chemo.  He looked surprised at how healthy I looked.  I had a couple of CT scans and a couple of PET scans since finishing chemo treatment.  The oncologist said the reports cameback showing a node on my abdomen on the CT scans, but the PET scans did not show cancer, both times.  CEA is a little bit high, at 3.5 a couple of months ago, but the doctor says it's okay, it's "normal."  I had a second colonoscopy done after chemo ended, five polyps were found.  I also got genetic testing done on the two genes responsible for this disease, and the results camback as not mutated, meaning the doctor who did the testing does not know how I inherited this disease.  

I forgot to mention, before I had surgery, I told my boss about my diagnosis.  You see, I work at an organization where a lot of doctors work, as well.  My boss had worked at another group, where one of the doctors had experienced the same exact diagnosis as myself.  She told me "I would like you to talk to this doctor, please comeback to the office," as I was taking a training class at another building on this day.  The last thing I wanted to do is comeback to the office after taking a training class for two straight days.  Talking to him was like.....I don't know how to put it.......it really helped me a lot talking to him.  Talking to him was as if God himself talked to me.  I would forever be greatful to him.  Now, I am "trying" not to stress  myself too much, as I was told by many people stress is not good.  

Comments

  • rls67
    rls67 Member Posts: 127
    Welcome Roughbussi,

    I am sorry you found this place, only because you have been diagnosed with cancer. That definatly sucks. It sounds like they have gotten all of the cancer, which is awesome news. I think you will find this board very helpful. There are so many amazing people here who are so helpful. I wish you the best of luck in your journey and continued success. Don't be afraid to ask questions, between all the folks here, I'm sure you will find someone who has already been through what you are going through. Gid Bless and take care.

    Rich

  • UncleBuddy
    UncleBuddy Member Posts: 1,019 Member
    welcome Roughbussi

    I'm also sorry that you need to be here, but there are wonderful, caring people on this site who have been down the same road. I wish you continued success in staying cancer-free. My advice: when in doubt, get another opinion. Always follow your gut feeling.If that node is bothering you, get another doctor to look at the scan. It's always better to follow your feelings. 

    I wish you continued success in remaining cancer-free.

    Lin

  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    Welcome

    Glad to add you to the family, but so sorry you find the need to be here.

    Except for those who have a family history of crc, each of us wonders how we ended up with the disease.  There are so many things which have been cited as "risk factors" yet with two people with those same factors one may get crc and the other not.

    Please don't let fear rule in your life.  We must be vigilant in our health matters, but at the same time we must be able to live everyday to its fullest.  No one can predict our future.

    Wishing you best health.

    Marie who loves kitties

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    Many welcomes

    Your here now, and we'er with you through your fight. 

    Looking forward to the strength you can share, and don't be affraid to reach out for the love and strength that we can offer you.

  • Gavin63
    Gavin63 Member Posts: 98 Member
    Hello Roughbussi,
    Welcome to

    Hello Roughbussi,

    Welcome to the board & glad you found this lovely forum. But, sad that you have to be here. I am also new to this forum, joined this August. I was diagnosed in July with stage III CRC with few lymph Nodes involved. Did the Surgery 1st followed by Chemo Rad & now getting ready for the Chemo (8 rounds of CAPOX) in few days.

    Do not stress yourself up. Live by day. But set goals. Think normal & it helps. Good luck in your journey in achieving NED Smile

    Gavin

     

     

  • ron50
    ron50 Member Posts: 1,723 Member
    G'day Roughbussi
    Welcome to the board ,sorry you have cancer ,wishing you well on your recovery. I too am a stage 3 er . I am just coming up to year 15 and still ca free, Ron.
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    Welcome

    So glad that you found us but sorry that you had to.  Sounds like you have already gone through the surgery and treatment and moving on.  I'm a born worrier so trying to tell me not to worry or stress out does me no good.  Wishing you a stressfree life - let me know how you do it Wink  Once again - welcome.

    Kim

  • traci43
    traci43 Member Posts: 773 Member
    Welcome

    Sounds like things are going okay, you've finished treatment, Yay!  Sorry that you've been on the cancer roller coaster.  I hope you are able to find lots of support and information here.  This group is really friendly and I'm always learning something.  Traci

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    Welcome to the board!

    I hope we can be a source of comfort and support as you walk this path.  It's not an easy experience by any means, but it can be made a little easier when we all share the journey together.

    Hugs~Ann Alexandria

  • thxmiker
    thxmiker Member Posts: 1,278 Member
    Welcome Roughbussi!
     
    We are

    Welcome Roughbussi!

     

    We are sending our thoughts and prayers for strength to fight the good fight.   Cancer is a battle of staying healthy physcially and mentally. 

     

    We  all share our thoughts and experiences here to help each other.  Some are rants, some are raves, and some are humor.  Listen to the good and bad and get what you can out of all of it.  The best is knowing that we are not alone and are not experiencing challenges that others have not faced before.  The information of how to face our new challenges is most helpful and uplifitng.

     

    Best Always,  mike

     

  • fatbob2010
    fatbob2010 Member Posts: 467 Member
    Welcome

    Let me add my two cent worth as well.  Glad that you found us but sorry you need to be here.

    Like at least one other I would like your secret to a stress free existence.

    Peace,

    Art