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Some Scary News, But Not Afraid!
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Nov 09, 2013 - 10:55 am
Hi Everyone, Sorry I have been out of the loop for a few days, but we just found out on Wednesday that my RCC has spread to the brain. I have about a 1.5 centimeter tumor on my left side that was causing numbness in my right leg and arm, thought I was having a slow motion stroke, but turns out cat scan showed tumor instead, who would of thought, with just getting a good cat scan on Oct 18!! I was released from Georgetown University Hosiptal yesterday, with instructions to call Monday to set up brain surgery! I have been put on steroids to help reduce the swelling in the brain to releive numbness in leg and arm, and I must say it is working pretty well, have more and more feeling coming back everyday. I will be in hospital about 5 days after surgery and then will follow up with about 3 cyberknife radiation treatments. And, from now on, I will also be getting MRI of the brain along with CT scan to make sure no more mets are trying to make a home in me. I have the greatest husband in the world, and the best family support and most important all of you. We are looking forward to getting this behind us and enjoying the holidays! Please put in a word of prayer for us, and remember, I am good, I am still able to have surgery to remove mets and have not even had to start on daily treatments, so I have a lot more of living to do before I even began to worry about what happens tomorrow! These thoughts have been made possible to me by all of the adivice that I have received from everyone on this network, I am so glad to have found all of you, just not happy about the way we have been brought together! Love you all, and I will let you know when surgery is scheduled as soon as I know! Love and prayers of good health! Brenda |
Joined: Oct 2013
Wow
Hi Brenda,
I am so sorry that this has developed into this....especially with a great CT scan on October 18th. Goes to show you that we have to keep very aware of what our bodies are telling us.
I am so happy that you have a wonderful husband and family to support you. Even though these times are difficult, it can be a beautiful experience, just feeling the love around you.
My thoughts and prayers are with you that you will sail through this.
Keep us posted!
XO
Jojo
Joined: Oct 2011
What a shock
Brenda, your attitude seems awesome! Way to keep the positive spirit. You'll do what you have to do. Stay tough. You have a good support system. Another challenge from this crappy disease. We're all pulling for you.
Joined: Oct 2010
stay positive.
You have my prayers and you are going to sail through this!
Joined: Jan 2013
Hi Brenda... sending prayers
Hi Brenda... sending prayers your way... keep up the good attitude and fight..!
Ron
Joined: Jul 2013
Brenda, all of my thoughts
Brenda, all of my thoughts and prayers are heading your way. Keep your extraordinary attitude! You will do great. Prayers DO work.
hugs, sweetie.
tillie
Joined: Aug 2013
Keep that spirit!!
Brenda,
That is a shock. You have two of the necessary ingredients to prevail: an excellent spirit and strong support system. A mischberach (prayer) will be said for you this week.
Izzy
Joined: Mar 2013
Thinking of you B. Stay
Thinking of you B. Stay strong.
Joined: Mar 2012
duplicate
duplicate
Joined: Mar 2012
Brenda, I haven’t been
Brenda,
I haven’t been around here much lately, but John mentioned your latest report to me this morning, and I knew I had to get in here and let you know you’ll be in my thoughts and prayers as you attack this latest foe. But you’ve got this. You have a great attitude, a wonderful and caring husband, a top knotch medical team, and a ton of friends and an ace support system who will be with you throughout, some physically and some virtually. But either way, we’re here for you and engulfing you with positive thoughts and energy. You've got a great toolbox and John and I both are confident you'll make it work for you.
Joined: Jul 2013
DITTO
what an amazing and positive post in the face of frightening developments!
sarah
Joined: Jun 2013
Such an inspiration
Brenda, I'm blown away by your strength and positive attitude. I'd like to think I could be as strong given the same circumstances, but honestly, I'm not sure I could be. You truly are such an inspiration! I am lifting you in prayer and sending good thoughts your way. You WILL beat this!!
hugs to you,
Sindy
Joined: Feb 2013
Brenda, you amaze me and
Brenda, you amaze me and inspire me!! You have an amazing attitude and your positiveness will help you on this journey....sending lots of prayers your way to you and to all around you...god bless you lovely lady.
eims x
Joined: May 2013
Surgery Tomorrow at 2:10
Thank you for all the well wishes and all of your strength and prayers! I will try and have my husband post tomorrow after the surgery to let everyone know how it went. I just want you all to know I have the utmost respest and love for every one of us fighting this hideious disease. We have a lot more fighting to do, and I will speak to you all very soon!
Love and prayers of good health!
Brenda
Joined: Apr 2013
Surgery!
Hi Brenda,
I have just read your post, sorry to hear you have to go through more surgery! You are one tough lady, you have a great positive attitude. We all need to give you a group (((hug))). You know we will be supporting you with the strength of our prayers tomorrow! Keep strong! All the best!
Djinnie xx
Joined: Oct 2013
Surgery
We all will be thinking of you. I hope all goes very well for you! And we will be waiting for your husband's update.
God bless.
Jojo
Joined: Oct 2012
brenda
Brenda, You will be in my thoughts and prayers tomorrow. I am truly impressed by your strength and attitude.
Joined: Oct 2011
Good luck
Brenda! You're a tough chick. You've made that clear. We look forward to your return to posting.
Joined: Oct 2013
Hope you are doing okay
I've been thinking about you a lot, Brenda. I hope things went well for you.
Looking forward to hearing from you soon!
God bless!
XO
Joined: Mar 2012
Brenda, love and hugs coming
Brenda, love and hugs coming your way! That met will be taken care of soon and you will be back on track. I love the strength you display, it is VERY encouraging! Keep moving straight ahead and keep up the positive attitude! Will be praying for you and your family!
Joined: Oct 2013
Thinking about you....
...tonight, Brenda. Hoping surgery was quick & easy, and that you're starting the healing process. You will continue to be in my thoughts & prayers -- will be anxiously waiting for an update from your Hubby!!
Joined: Jul 2012
Lightening in a bottle
Brenda, I guesS by now you've had the surgery......or are darn close to it. I sense light all around you. The good news is they found the met early and took care of it quickly. Here's hoping your recovery will be just as quick! I think attitude is hugely important and you've got that covered. After your hospital stay you'll be on cruise control, the radiation a blip on the radar.High five, sister! My thoughts and prayers are with you.
Joined: Apr 2013
Normally...
I would write that you should try to keep the spirits high, but as always you do that excellently without needing encouragement to do so :-)
Bumpy road ahead, but Im sure you will manage.
/G
Joined: May 2013
Surgery Went Well!
Hi Everyone,
I am back and feeling like a million dollars! Everything went well they were able to get it all and hopefully, no more mets to the brain! Hoping to go back to work next week, of course I have the greatest caregiver in the world, my husband, and most important my fantastic supporters, you guys! Thanks for being there, and I am getting better by the second!
Love and prayers of good health to us all!!
Brenda
Joined: Jul 2013
Wonderful news! Have been
Wonderful news! Have been thinking of you. Your doctors are clearly top-notch since no time was wasted. Great docs, amazing positive attitude and a great husband...
sarah
Joined: Jul 2013
Wonderful news! Have been
Wonderful news! Have been thinking of you. Your doctors are clearly top-notch since no time was wasted. Great docs, amazing positive attitude and a great husband...
sarah
Joined: Mar 2012
WHOO HOO! Glad it went well
WHOO HOO! Glad it went well and you are doing great! What a remarkable person you are! Your attitude should be bottled! You are a good example for me! Take care of yourself and don't over do it! ;) Oh, do they give you meds now that you had a brain met? Is it Avastin or something? I thought i read that they usually add something to treatment! Love and hugs!
Joined: Sep 2013
Brilliant!!!
Just read your post, I am new here and new with my diagnosis, not had my first follow up visit after surgery scheduled for Feb. I also have a great support system but fear sometimes stops me in my tracks. I have been on this journey since August and know that I will meet people like you brave and postive that will lift me when I fall, thank you for your bravery.
Joined: Jan 2013
Congratulations
Brenda,
Glad to hear about your good news. Amazing.
Joined: Oct 2011
Awesome!
Did I mention AWESOME?! Been worried. Nice to hear you did well. Keep it up.
Joined: Oct 2013
Oh so happy to hear it all
Oh so happy to hear it all went well. I have been thinking about you SO much. You do have a great attitude and you do us proud!
Take care and God Bless!
XO
Jojo
Joined: Jul 2012
Fantastico!
back to work already?! Isn't it amazing? have a GREAT Thanksgiving!!!
Joined: May 2013
Cyber Radiation Being Done
Hi Everyone,
I will be having cyber radation to help make sure mets are no longer in brain. Tomorrow going for a full body MRI and hoping for no surprises. I will be having 3 back to back cyberknife radiation treatments, but there will be no other meds at this time. Doc says you can't treat what is not there. I had just graduated to every 6 months tests, will now be going back to every 3 months. I am very lucky I do not have to start meds yet. If they can get it with surgery that is the best way! I am so happy to be here with my family for the holidays! Been fighting the fight for 3 years and I will not go out easy, got to much love for life! Love to you all and Happy Thanksgiving!
Love and prayers for good health to us all!
Brenda
Joined: Nov 2013
good attitude
Brenda! You are an inspiration! I'm so happy that you are doing okay. The cyberknife will be a breeze. Enjoy Thanksgiving.
Joined: Feb 2009
Santa's on his way
Bringing you good wishes, good luck, and a stocking full of health. You have enough great attituded to tell the bad old Grinch to get lost and just have him cut out of your life for good.
Prayers to you both.
Donna
Joined: Oct 2013
Hi Brenda! Glad that they are
Hi Brenda!
Glad that they are being thorough. I love your attitude - it has carried you through your challenges - and will continue to do so.
Enjoy your time with your family and Happy Thanksgiving!!
:)
Jojo
Joined: Mar 2013
Great news!!
Great news!!
Joined: Oct 2011
...and on no meds..
Glad you are doing well, Brenda. you said something interesting as I have thought about this often. I guess you have not ben on any meds. I have had infusions for nivolumab and zometa. (almost forgot IL-2) But nothing oral. I haven't much considered taking an oral. We'll see. Get strong.
Joined: Apr 2013
MRI & Cyber Radiation!
Hey Brenda, I am so happy to hear the op went well! All the best with the MRI and radiation treatment.
Have a great Thanksgiving with that wonderful family of yours:)
Djinnie x
Joined: Jul 2013
Absolutely excellent news!!
Absolutely excellent news!! I couldn't be happier for you! And to be home with your family for Thanksgiving knowing that sucker is outta there HAS to feel great!! You are my poster girl for excellent attitude!