Tired of doctors and hospitals

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  • annalexandria
    annalexandria Member Posts: 2,571 Member
    #22
    LivinginNH said:

     
    Hey Jen,
    I know that it's a

     

    Hey Jen,

    I know that it's a bit of a ride north, but have you considered going to Mass General for another opinion?  I'm just thinking that another set of eyes looking at his charts might make the difference in finding the right treatment.

    All my best,

    Cyn

    When they were unable to dx my cancer here in Seattle,

    they sent my samples to MA General's pathologist, who is, according to my surgeon, the "best in the world".  He was able to determine what it was.

    So I'm assuming they must have a pretty good program overall!

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    #23
    jen2012 said:

    Prelminary results say no

    Prelminary results say no cancer!   The oncologist called a little ago and said the pathologist said she does not see cancer, but sees what looks like myositis ossificans, which is usually seen after a trauma or injury - bone growth in the muscle.  Bizarre.  Hopefully we'll know final results on Monday and she kept reminding us that these are preliminary results and they could change....   So typical treatment would be anti-inflammatory meds, which he's allergic to.  She's thinking of trying celebrex in the in patient infusion room tomorrow with them watching him for a couple of hours. 

    That's great news!

    And Celebrex is said to perhaps have some anti-cancer properties, so that could end up being an unexpected bonus!

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