Nasopharyngeal cancer

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Comments

  • bany
    bany Member Posts: 38
    Mr Taipei said:

    Hallo
    Just thought I would give you an update, in case anyone was interested.

    My wife had an MRI scan at the end of December, and it came back clear! So far so good, although obviously I'm aware that it's going to be a long road ahead.

    She's also got back her taste buds and has put on most of the weight she lost during her treatment.

    congratulations! i'm so
    congratulations! i'm so happy for you mr taipei :)
  • Mr Taipei said:

    End of treatment
    Thanks Ron, we appreciate your support.

    Well, the treatment is finished, and in the end my wife's white blood count held up, so she had 35 radiotherapies and 7 chemos. She got quite a bit more mucositis in the last couple of weeks and has been vomiting in the last couple of days (which the doctor says is a bit odd - could be a bug rather than reaction to the treatment), but she's managed to eat food all the way through the seven weeks, and even ate some KFC a couple of days ago! She's been supplementing her food with some Ensure drinks for the last few days, although she's found it difficult because of the vomiting. She's lost about 4 kilos through the treatment, which is really good I think. Now we look forward to the recovery.

    We'll be back into the hospital at the start of November, and the dreaded MRI will take place shortly after then, although I'll have gone back to England before that time. The CT scan she had for reprecisioning a few weeks ago still showed some cancer cells in the primary site and neck nodes (as expected - it was only half way through the treatment), so I'm just hoping that she's responded well enough to the final half of the treatment to get rid of whatever was left. She's also just been given a blood test for EBV levels and antibodies, which I think can be predictive of recurrence... scary stuff, I don't really like thinking about it to be honest.

    P.S. I'll tell her she won't have to shave her neck any more!!!

    agressive or not
    My husband is completing a grueling 6 months of treatment for npc and I have one question, which nobody has been able to properly answer.
    Is npc is slow growing or fast growing cancer? I would really like to know.

    Thanks!!

    Susanne
  • NickiN
    NickiN Member Posts: 6
    Mr Taipei said:

    Hallo
    Just thought I would give you an update, in case anyone was interested.

    My wife had an MRI scan at the end of December, and it came back clear! So far so good, although obviously I'm aware that it's going to be a long road ahead.

    She's also got back her taste buds and has put on most of the weight she lost during her treatment.

    Updates?
    Mr. Taipei,

    I have been thinking about you and your wife and wondering how you are both doing? Hopefully fantastic! My mother is 15 weeks post radiation and chemo. She ended up not completing protocal (two treatments short) due to the terrible side effetcs she was experiencing. She only weighs about 90 pounds so neddless to say she is very weak and listless. Nutrition comes almost exclusively from feeding tube as lack of saliva and difficulty swallowing makes it very uncomfortable to eat by mouth. On a positive note, she had a clean PET scan yetserday so I suppose now we just have to concentrate on getting her stronger for now. I hope this email finds you and your family is good health and great spirits. Nicole
  • Hondo
    Hondo Member Posts: 6,636 Member
    God gave me the Strength
    G’day everyone: I guess we are all in the same boat with it comes to NPC. Mine started on the right side in Oct 2002 and it come back on me and had to do radiation and chemo over again in Nov 2003. Then in 2006 the doctor informed me that the Pet scan was not good and that the Cancer was now on the left side. At that point I opt for no more treatment but put it all in God’s hand. I have been doing only herbal treatments now for the passed 3 years, it is still there but it has stopped growing. My doctor sent me to MD Anderson in Houston and they too can’t understand it. From the all the test they have looked at from my other doctor and what they have done its shows that something is there but why it is not growing they don’t know.


    All of this has left me very weak and took away a lot of my memory, there are people who I know I know but can’t remember them when I see them. I have a lot of pain in the back of the head, problems with hearing (almost nothing on the right ear) tongue numbness and the right eye is now having problem, not to say anything about problems with the Jaw not being able to open more them ½ inch..

    But I am still here and preaching every other Sabbath in Church. I might not be the Man I once was, but with God by my side I will be able to continue the work he has giving me to do on this Earth before I go to Sleep and await His coming.

    O by the way my only Son will be getting Married this month and all I can say is thanks you Jesus for extending my life and being able to attend his wedding.

    If anyone else is going through NPC don’t give up hope there are lots of us who have been there and are still here. If you need help I am always available to anyone with NPC to help you through it just Look up my Portfolio, My God give you the strength to put your Faith in Him.
  • sfsquared
    sfsquared Member Posts: 3
    Hondo said:

    God gave me the Strength
    G’day everyone: I guess we are all in the same boat with it comes to NPC. Mine started on the right side in Oct 2002 and it come back on me and had to do radiation and chemo over again in Nov 2003. Then in 2006 the doctor informed me that the Pet scan was not good and that the Cancer was now on the left side. At that point I opt for no more treatment but put it all in God’s hand. I have been doing only herbal treatments now for the passed 3 years, it is still there but it has stopped growing. My doctor sent me to MD Anderson in Houston and they too can’t understand it. From the all the test they have looked at from my other doctor and what they have done its shows that something is there but why it is not growing they don’t know.


    All of this has left me very weak and took away a lot of my memory, there are people who I know I know but can’t remember them when I see them. I have a lot of pain in the back of the head, problems with hearing (almost nothing on the right ear) tongue numbness and the right eye is now having problem, not to say anything about problems with the Jaw not being able to open more them ½ inch..

    But I am still here and preaching every other Sabbath in Church. I might not be the Man I once was, but with God by my side I will be able to continue the work he has giving me to do on this Earth before I go to Sleep and await His coming.

    O by the way my only Son will be getting Married this month and all I can say is thanks you Jesus for extending my life and being able to attend his wedding.

    If anyone else is going through NPC don’t give up hope there are lots of us who have been there and are still here. If you need help I am always available to anyone with NPC to help you through it just Look up my Portfolio, My God give you the strength to put your Faith in Him.

    hi hondo,

    just came across your post. I'm thirty six years old male.
    nov o6 was diagnosed with npc stage4. did 36 rounds of irmt radio with chemo(cisplatin,5-fu). finally I was starting to live with the new me. just had a recent ct scan and
    something suspect showed up. went in for a tissue biopsy came back positive. few
    days ago did pet scan and again something suspect in left lower lung. wont find
    out results until mom or tues. I'm already freaked out about the treatments. my
    radiologist said basical more of the same treatment followed with boost cybernife radio.
    chemo doc says different drugs will be used because the other drugs did not work. I
    just wanted to know more about your 2nd treatment. what they told you and what you
    chose. how you handled the second time around. I guess any information would be of
    great help. it was so tough the first round i'm so scared to step back into the ring.

    steven
  • Hondo
    Hondo Member Posts: 6,636 Member
    sfsquared said:

    hi hondo,

    just came across your post. I'm thirty six years old male.
    nov o6 was diagnosed with npc stage4. did 36 rounds of irmt radio with chemo(cisplatin,5-fu). finally I was starting to live with the new me. just had a recent ct scan and
    something suspect showed up. went in for a tissue biopsy came back positive. few
    days ago did pet scan and again something suspect in left lower lung. wont find
    out results until mom or tues. I'm already freaked out about the treatments. my
    radiologist said basical more of the same treatment followed with boost cybernife radio.
    chemo doc says different drugs will be used because the other drugs did not work. I
    just wanted to know more about your 2nd treatment. what they told you and what you
    chose. how you handled the second time around. I guess any information would be of
    great help. it was so tough the first round i'm so scared to step back into the ring.

    steven

    Hang in there
    Steven

    The 2nd round is not easy like the first was. And the affects from the radiation & chemo stay with you longer after treatment stops. But the fact is I made it and I am doing well despite that it has moved to the other side of the Nasal passageway.

    If you go for the 2nd treatment you can make it, but it will take a lot of prayer. My faith and my wife by my side was all I had to hold onto at times. Keeping a positive motive is the driving force that will give you the edge to a full recovery.

    Also I never stop working while in treatment, it kept my mind off my problems during the day, I thank God that I work for a group of people who understood what I was going through and let me come in late and leave early.

    I have a lot of problems with memory and my jaw can’t open more then ½ inch but I can eat just as much as anyone else just slower.

    There are a lot of things you can do to help your body fight the cancer. Build up your bodies immune system, keep your alkaline level above 7.2 and stay away from ALL sugar product. Remember Sugar is Cancers main food source, doctors will not tell you this but when you do a PET scan the radiation they give you is mixed with sugar water. The sugar water attaches its self to the Cancer and the machine can then see the radiation in the group of cells.

    Eat as many fresh fruit as you can the body will turn the acid in the fruit to an Alkaline and the natural sugar in the fruit will reinforce the good cells not to turn to cancer.

    I will be praying for you and if you need to contact me you can do so anytime day or night.

    timhonmc@aol.com
  • Hondo
    Hondo Member Posts: 6,636 Member

    agressive or not
    My husband is completing a grueling 6 months of treatment for npc and I have one question, which nobody has been able to properly answer.
    Is npc is slow growing or fast growing cancer? I would really like to know.

    Thanks!!

    Susanne

    Susanne
    My NPC has been slow growing, but I believe a lot of it depends on the person. A person with a Strong Immune system will do better they someone with a weak Immune System.
    I stay away from all Sugar products as sugar feeds the Cancer cells so again depending on what you eat may also have a affect on weather the Cancer grows slow or fast. I hope this helps
  • RoseEm
    RoseEm Member Posts: 32
    Hondo said:

    Hang in there
    Steven

    The 2nd round is not easy like the first was. And the affects from the radiation & chemo stay with you longer after treatment stops. But the fact is I made it and I am doing well despite that it has moved to the other side of the Nasal passageway.

    If you go for the 2nd treatment you can make it, but it will take a lot of prayer. My faith and my wife by my side was all I had to hold onto at times. Keeping a positive motive is the driving force that will give you the edge to a full recovery.

    Also I never stop working while in treatment, it kept my mind off my problems during the day, I thank God that I work for a group of people who understood what I was going through and let me come in late and leave early.

    I have a lot of problems with memory and my jaw can’t open more then ½ inch but I can eat just as much as anyone else just slower.

    There are a lot of things you can do to help your body fight the cancer. Build up your bodies immune system, keep your alkaline level above 7.2 and stay away from ALL sugar product. Remember Sugar is Cancers main food source, doctors will not tell you this but when you do a PET scan the radiation they give you is mixed with sugar water. The sugar water attaches its self to the Cancer and the machine can then see the radiation in the group of cells.

    Eat as many fresh fruit as you can the body will turn the acid in the fruit to an Alkaline and the natural sugar in the fruit will reinforce the good cells not to turn to cancer.

    I will be praying for you and if you need to contact me you can do so anytime day or night.

    timhonmc@aol.com

    Prayers with you
    SFSquared - as you already know, you are in my prayers, also. Please write when you can. I'll keep an eye out for updates.
  • antmeme17
    antmeme17 Member Posts: 2
    Hondo said:

    Hang in there
    Steven

    The 2nd round is not easy like the first was. And the affects from the radiation & chemo stay with you longer after treatment stops. But the fact is I made it and I am doing well despite that it has moved to the other side of the Nasal passageway.

    If you go for the 2nd treatment you can make it, but it will take a lot of prayer. My faith and my wife by my side was all I had to hold onto at times. Keeping a positive motive is the driving force that will give you the edge to a full recovery.

    Also I never stop working while in treatment, it kept my mind off my problems during the day, I thank God that I work for a group of people who understood what I was going through and let me come in late and leave early.

    I have a lot of problems with memory and my jaw can’t open more then ½ inch but I can eat just as much as anyone else just slower.

    There are a lot of things you can do to help your body fight the cancer. Build up your bodies immune system, keep your alkaline level above 7.2 and stay away from ALL sugar product. Remember Sugar is Cancers main food source, doctors will not tell you this but when you do a PET scan the radiation they give you is mixed with sugar water. The sugar water attaches its self to the Cancer and the machine can then see the radiation in the group of cells.

    Eat as many fresh fruit as you can the body will turn the acid in the fruit to an Alkaline and the natural sugar in the fruit will reinforce the good cells not to turn to cancer.

    I will be praying for you and if you need to contact me you can do so anytime day or night.

    timhonmc@aol.com

    NPC/HELP PLEASE
    TIM
    I HAVE JUST BEEN TOLD I HAVE THIS NASO CANCER , I START 1 CHEMO TREATMENT NEXT WEEK on THURS, JUNE 11 AND I BELIEVE THE RADIATION MAY START MONDAY WITH 6 WEEKS 5 DAYS A WEEK . I AM ABSOLUTELY MORTIFIED AT ALL OF THIS BAD NEWS I HAVE BEEN GIVEN . I HAD TO HAVE MY TEETH PULLED OUT AND OH HOW HORRENDOUS THAT WAS SINCE I DIDNT OR ANYONE ELSE I KNOW DIDNT EVER HEAR OF THIS ! THEN HE SAID THEY WERE GOING TO BURN MY NECK FROM THE INSIDE OUT LIKE A MICROWAVE !!!!!!!! THE DR. SAID YOU WILL HATE MY GUTS AND FEEL LIKE YOU ARE BREATHING FIRE AND I WONT BE ABLE TO SWALLOW , MAYBE NOT BE ABLE TO DRINK BUT HAVE TO EAT AND DRING ALL THESE LIQUIDS A DAY ! I HAVE NEVER BEEN A WATER DRINKER EVER AND HE SAID I WILL LEARN BUT THEY WONT PUT A FEEDING TUBE IN MY STOMACH ? THE CHEMO DR.SAID THEY WOULD BUT RAD DR. SAID NO PROBABLY CUZ I AM SO FAT ALREADY LOL ! ?? THE MASK WaS HORRIBLE AND I PRAYED AND PRAYED THAT IT WOULD GET BETTER BECAUSE I COULDNT BREATHE UNDER IT ! SOME ONE SAID TO TAKE A VALIUM OR ZANAX? THEY GAVE ME ZANAX WHEN I FIRST LEARNED OF ALL THIS BECAUSE I JUST WANTED TO END MY LIFE RIGHT THEN ! IT WAS THAT OLD DEVIL MAKING THE FEAR WORSE AND IT TOOK A LOT OF PRAYERS TO GET ME THRU THE FIRST PHASE. I JUST FEEL SO ALONE AND NO ONE UNDERSTANDS WHAT I AM GOING THRU , THEY DO , BUT THEY DONT ! AND I JUST KEEP SCREAMING AT THEM ! AND THEN I CRY ! DID THE MASK MAKE YOU FEEL AFRAID? I SURE HOPE YOU CAN TELL ME ABOUT THESE RADIATION TREATMENTS ! I KNOW ABOUT THE CHEMO , SICK, TIRED, NO HAIR AND I THOUGHT THAT WOULD BE HORRIBLE BUT THIS RADIATION SOUNDS LIKE SOME HORRIBLE STUFF AND I DONT KNOW IF I AM STRONG E- NUFF TO GET THRU IT ?? I ASKED THE DR. WHAT WOULD HAPPEN IF I DIDNT GO THRU THIS AND HE SAID I WOULD DIE A HORRIBLE DEATH BY STRANGULATION IN ABOUT ??? 2 YEARS I THINK HE SAID ? SO I HAVE OPTED TO TRY THIS ?? PLEASE HELP ME IF YOU CAN ! I JUST WANT THE TRUTH TO WHAT I AM HONESTLY FACING AND HOW LONG AND WHEN WILL I FEEL GOOD AGAIN ????
    THANK YOU , GOD BLESS YOU MY BROTHER IN CHRIST
    MARY{A CHRISTIAN FEELING VERY SCARED ! antmeme17@yahoo.com
  • Hondo
    Hondo Member Posts: 6,636 Member
    antmeme17 said:

    NPC/HELP PLEASE
    TIM
    I HAVE JUST BEEN TOLD I HAVE THIS NASO CANCER , I START 1 CHEMO TREATMENT NEXT WEEK on THURS, JUNE 11 AND I BELIEVE THE RADIATION MAY START MONDAY WITH 6 WEEKS 5 DAYS A WEEK . I AM ABSOLUTELY MORTIFIED AT ALL OF THIS BAD NEWS I HAVE BEEN GIVEN . I HAD TO HAVE MY TEETH PULLED OUT AND OH HOW HORRENDOUS THAT WAS SINCE I DIDNT OR ANYONE ELSE I KNOW DIDNT EVER HEAR OF THIS ! THEN HE SAID THEY WERE GOING TO BURN MY NECK FROM THE INSIDE OUT LIKE A MICROWAVE !!!!!!!! THE DR. SAID YOU WILL HATE MY GUTS AND FEEL LIKE YOU ARE BREATHING FIRE AND I WONT BE ABLE TO SWALLOW , MAYBE NOT BE ABLE TO DRINK BUT HAVE TO EAT AND DRING ALL THESE LIQUIDS A DAY ! I HAVE NEVER BEEN A WATER DRINKER EVER AND HE SAID I WILL LEARN BUT THEY WONT PUT A FEEDING TUBE IN MY STOMACH ? THE CHEMO DR.SAID THEY WOULD BUT RAD DR. SAID NO PROBABLY CUZ I AM SO FAT ALREADY LOL ! ?? THE MASK WaS HORRIBLE AND I PRAYED AND PRAYED THAT IT WOULD GET BETTER BECAUSE I COULDNT BREATHE UNDER IT ! SOME ONE SAID TO TAKE A VALIUM OR ZANAX? THEY GAVE ME ZANAX WHEN I FIRST LEARNED OF ALL THIS BECAUSE I JUST WANTED TO END MY LIFE RIGHT THEN ! IT WAS THAT OLD DEVIL MAKING THE FEAR WORSE AND IT TOOK A LOT OF PRAYERS TO GET ME THRU THE FIRST PHASE. I JUST FEEL SO ALONE AND NO ONE UNDERSTANDS WHAT I AM GOING THRU , THEY DO , BUT THEY DONT ! AND I JUST KEEP SCREAMING AT THEM ! AND THEN I CRY ! DID THE MASK MAKE YOU FEEL AFRAID? I SURE HOPE YOU CAN TELL ME ABOUT THESE RADIATION TREATMENTS ! I KNOW ABOUT THE CHEMO , SICK, TIRED, NO HAIR AND I THOUGHT THAT WOULD BE HORRIBLE BUT THIS RADIATION SOUNDS LIKE SOME HORRIBLE STUFF AND I DONT KNOW IF I AM STRONG E- NUFF TO GET THRU IT ?? I ASKED THE DR. WHAT WOULD HAPPEN IF I DIDNT GO THRU THIS AND HE SAID I WOULD DIE A HORRIBLE DEATH BY STRANGULATION IN ABOUT ??? 2 YEARS I THINK HE SAID ? SO I HAVE OPTED TO TRY THIS ?? PLEASE HELP ME IF YOU CAN ! I JUST WANT THE TRUTH TO WHAT I AM HONESTLY FACING AND HOW LONG AND WHEN WILL I FEEL GOOD AGAIN ????
    THANK YOU , GOD BLESS YOU MY BROTHER IN CHRIST
    MARY{A CHRISTIAN FEELING VERY SCARED ! antmeme17@yahoo.com

    Antmeme17


    I am not going to lie to you and tell you everything will be fine, you have a lot to go through, but the most important thing for you right now is to go into treatment with a positive attitude. Removing your teeth now is better then having to do it later, I did not remove my teeth and I have a lot of problems with them now and wish I had removed them. Yes your face will have a burned look and the inside of your mouth will become very very sore, you will lose all of your taste, (OK that’s all the bad stuff). The good stuff is that you will recover, life may be a little different and your body will adjust in time to the new normal you, it is like anything it takes time. My greatest strength was in the God I trusted, pray and have as many people as you can praying for you to have the strength needed to go through these treatment, because at times you will want to quit and give-up just keep God by your side and remember when you are finish with treatment it will be your turn to help someone else go through the fire. There is live after Cancer, My wife and I are going on Vacation tomorrow for two weeks to Roatan Honduras and I can’t wait. Life is good after treatment and the God I service is better as I am still able to preach once a month at Church on Sabbath aswell. I will put you on my pray list, God bless. Timhonmc@aol.com
  • agressive or not
    My husband is completing a grueling 6 months of treatment for npc and I have one question, which nobody has been able to properly answer.
    Is npc is slow growing or fast growing cancer? I would really like to know.

    Thanks!!

    Susanne

    AGRESSIVE
    susanne hoping for the best for you, your husband & your family. I am a eight year survior of Nasopharyngeal carcinoma. this is one of the more agressive form of cancer, because it is so rare. After visting a doctor for 8 months for a sinus infection, i was, diagnosed week later with cancer, in the last stage (4) MY doctor told me that, in 8 mon. times cancer had already eaten a large hole through the base of my skull. but i make it, so will your husband. " please listen ! we get angry, mad, and upset. but prepare yourself for this, someday we want to be left alone, someday we want to be babied. I couldnt eat or drink for nine months ,but the lord held me in his arms and feed me with love, mercy grace and with his strength ! what ever happen, dont give up, or forget to pray . prayer can make a big different. remember somedays are going to be harder than other. so if you need to cry just let go.head up he might hate you , but that's just the drugs talking.
  • sonichirag13
    sonichirag13 Member Posts: 5

    AGRESSIVE
    susanne hoping for the best for you, your husband & your family. I am a eight year survior of Nasopharyngeal carcinoma. this is one of the more agressive form of cancer, because it is so rare. After visting a doctor for 8 months for a sinus infection, i was, diagnosed week later with cancer, in the last stage (4) MY doctor told me that, in 8 mon. times cancer had already eaten a large hole through the base of my skull. but i make it, so will your husband. " please listen ! we get angry, mad, and upset. but prepare yourself for this, someday we want to be left alone, someday we want to be babied. I couldnt eat or drink for nine months ,but the lord held me in his arms and feed me with love, mercy grace and with his strength ! what ever happen, dont give up, or forget to pray . prayer can make a big different. remember somedays are going to be harder than other. so if you need to cry just let go.head up he might hate you , but that's just the drugs talking.

    NPC Stage 4A and remission
    Hi there

    My father is also diagnosed with Stage 4A NPC , it was undifferentiated carcinoma and reached to his base of skull and both sides of the lymph nodes.
    After 3 months of treatment it appears to be in remission but he has headache all the time.
    Was your cancer the same and what treatent you take?
    What kind of food and care you were taking? I am glad to see you as a very long term survivor.
    I willwait for your reply

    Thanks
  • Purplemountain
    Purplemountain Member Posts: 119
    NPC treatment side effects concern

    Hello.  I am currently receiving treatments (chemo and radiation) for NPC "early" stage as I was told.  I am into my first week of treatment.  Today I have an oral yeast infection in the back of my throat.  It causes difficulty swallowing.  I am going to have radiation done tomorrow and will see the doctor as well.  Can anyone tell me more about this from their experience? Thanks.

  • lornal
    lornal Member Posts: 428

    NPC treatment side effects concern

    Hello.  I am currently receiving treatments (chemo and radiation) for NPC "early" stage as I was told.  I am into my first week of treatment.  Today I have an oral yeast infection in the back of my throat.  It causes difficulty swallowing.  I am going to have radiation done tomorrow and will see the doctor as well.  Can anyone tell me more about this from their experience? Thanks.

    Purple

    This thread is pretty old.  You'll want start a new thread.  Go back to Head and Neck Cancer discussusion board, and find the link to start a new forum/discussion.  I need to start getting ready for work, but I'll check back later.

  • Hondo
    Hondo Member Posts: 6,636 Member
    lornal said:

    Purple

    This thread is pretty old.  You'll want start a new thread.  Go back to Head and Neck Cancer discussusion board, and find the link to start a new forum/discussion.  I need to start getting ready for work, but I'll check back later.

    Hi NPC Concern

    Welcome to CSN I agree with lornal you would do better to start a new post on this question. I too an NPC and had the same problem. Let you doctor know so he/she can get you on some antibiotic to clean it up

     

    God Bless

    Hondo