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  • LindaK.
    LindaK. Member Posts: 506 Member

    I thought about that but they

    I thought about that but they have tried every medication possibly to get me cleaned out but cant i havent had a bowel movement in 3 in half weeks they even tried that go lighty stuff you drink before a colonoscopy and that didnt even work this week they tried me on Mineral Oil Fleet enemias and im up to 4 of those a day and nothing has worked and as each comes i keep getting worse and no one will either listen to or even take me serious. So im hoping that something shows so that i can prove to them i was making it up and im not faking it because im tired of my doctors thinking im a hypoconderact cause im not and im being tired of being accused of this even by my own cancer doctor.

     

    Update?

    How did you make out with your test(s) last week?

  • LindaK. said:

    Update?

    How did you make out with your test(s) last week?

    Update

    I got the results on my CT Scan but i dont know which to believe my gastrinologist called me and told me that there was nothing wrong everything is ok ...

    But i got a copy of CT scan report and it says that i have Talovc Cyst the bottom part of my spine and some od the serious symptoms is not only nerve damage but it can cause bladder trouble not being able to empty that and also intestine trouble where you cant empty your colon so i dont know what to do weather i should go back to him or make an appointment with my Neurololgist see what she thinks and last week i had the scope test on my bladder and i have total loss of being able to empty my bladder so each time i have to go i have to cathederize myeself each time and when im able to have a bowel moevement its very pain and very hard for me to empty out my colon . So i dont know what to do . Keep ya posted.

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member

    Update

    I got the results on my CT Scan but i dont know which to believe my gastrinologist called me and told me that there was nothing wrong everything is ok ...

    But i got a copy of CT scan report and it says that i have Talovc Cyst the bottom part of my spine and some od the serious symptoms is not only nerve damage but it can cause bladder trouble not being able to empty that and also intestine trouble where you cant empty your colon so i dont know what to do weather i should go back to him or make an appointment with my Neurololgist see what she thinks and last week i had the scope test on my bladder and i have total loss of being able to empty my bladder so each time i have to go i have to cathederize myeself each time and when im able to have a bowel moevement its very pain and very hard for me to empty out my colon . So i dont know what to do . Keep ya posted.

    Tarlov Cyst

    I checked this out a little bit and it seems from the description that this might be the cause.  Being unable to dump the CT prep and especially the scope prep is hard to imagine.  The Go-lytely works by gravity essentially, so if they ruled out a blockage and it sounds like both doctors did, then it leads you to believe that it could be some kind of nerve compression from this cyst that could be causing the problem.

    I read where if the tumor was 1.5 cm or larger, that symptoms begin to present....so see if you can determine the size of the cyst they found...they should have a number for you.

    Personally, I would point the direction towards the neurologist....this sounds like nerves...they need to figure something out for you to empty your colon...carrying all of that matter around for 3-weeks at a time has to not only be painful but it's allowing the body to absorb the bad stuff it should be eliminating.

    I hope you get some answers very soon.

     

     

  • Bluejuniata
    Bluejuniata Member Posts: 20

    Hi. there,

    It became a struggle to go to the bathroom...not a flow. Alternating with diarrhea, and thinner stools...but still did not occur to me that something was niot good until there was blood streaked on the side of my stool.

  • update

    Hello Everyone,

    its been a while since ive last been on here wanted to give you an update i had a mylagram CT scan done 

    and they found a tumor on my spine alng the nerv roots that control the bladder and colon im going to be going tto a surgeon

    to find out if they can do surgerie or not but even i have the tumor removed they dont think i will

    re gain the use of my bladder or colon id have to continue the use f cathederizing everyday 

    and possible more surgerie of having to have a colostomy bag . and the other thing their not sure of

    if its cancerous or caused from the other disease i have called neurofibromatosis.

    I will keep all of you posted i will write back on here after my appointment before surgerie and let you know what  they say.

  • Trubrit
    Trubrit Member Posts: 5,796 Member

    update

    Hello Everyone,

    its been a while since ive last been on here wanted to give you an update i had a mylagram CT scan done 

    and they found a tumor on my spine alng the nerv roots that control the bladder and colon im going to be going tto a surgeon

    to find out if they can do surgerie or not but even i have the tumor removed they dont think i will

    re gain the use of my bladder or colon id have to continue the use f cathederizing everyday 

    and possible more surgerie of having to have a colostomy bag . and the other thing their not sure of

    if its cancerous or caused from the other disease i have called neurofibromatosis.

    I will keep all of you posted i will write back on here after my appointment before surgerie and let you know what  they say.

    Blessings

    You really have been through the ringer and my heart goes out to you.

    We will all be waiting to hear more news and hoping and praying that it gives you some hope. 

     

  • lp1964
    lp1964 Member Posts: 1,239 Member
    Dear Terin,

    What can some say in hard times like this. You have been toughened over the years and you are gonna succeed this time as well. You are a positive person and that's what matters. 

    Let us know what's next and we are with you all along the way.

    Laz

  • lp1964 said:

    Dear Terin,

    What can some say in hard times like this. You have been toughened over the years and you are gonna succeed this time as well. You are a positive person and that's what matters. 

    Let us know what's next and we are with you all along the way.

    Laz

    Thank You

    Thanks i just got word from my neurologist that their having to send me out to seattle i dont know which hospital i will be going to but no one in Montana will do the surgerie here too invasive im not sure how long of a wait i will have from my first appointment with them to my surgerie date i will have but i will keep all of you posted .Its in my spine and their not sure if its cancerours or if its caused from the disease that i have i will keep all of you posted Sincerely Terin I will have internet access so i will give you updates and let you know what going on .

  • annalexandria
    annalexandria Member Posts: 2,571 Member

    Thank You

    Thanks i just got word from my neurologist that their having to send me out to seattle i dont know which hospital i will be going to but no one in Montana will do the surgerie here too invasive im not sure how long of a wait i will have from my first appointment with them to my surgerie date i will have but i will keep all of you posted .Its in my spine and their not sure if its cancerours or if its caused from the disease that i have i will keep all of you posted Sincerely Terin I will have internet access so i will give you updates and let you know what going on .

    I'm glad that they were able to figure out what was going on.

    Getting the proper diagnosis is definitely half the battle.  And if they found you a surgeon here in Seattle, that's great news!  We have some first class hospitals here and really experienced surgeons, so I think it's likely that you will get excellent care.  Let us know how it goes, we'll be thinking of you.

    Hugs~AA

  • Dumbfounded
    Dumbfounded Member Posts: 25
    When I was diagnosed with

    When I was diagnosed with colon cancer my symptoms were alot like the stomach flu. I even passed it off as that 4 months prior because the symptoms had gone away (just to come back 4 months later worse than before). I had severe belly cramping, diarrhea and vomiting.

     

    I also want to add that I am not a very big fan of the colonoscopy. I was told by several physician and x-ray techs that for where my cancer had originated in the colon would never have been found by a colonoscopy. An upper GI would not have either. It was located in the far lowest corner of the colon that cameras from either direction would have ever reached it. How they found it was during Laproscopic surgery to remove what they thought was blockage. The surgeon decided to explore a little upon completion when he discovered a small tumor. When it was tested and came back positive for metastatis cancer is when they ordered a PET scan and found 5 areas in the abdominal cavity and 22 lymph nodes.

  • herdizziness
    herdizziness Member Posts: 3,624 Member

    When I was diagnosed with

    When I was diagnosed with colon cancer my symptoms were alot like the stomach flu. I even passed it off as that 4 months prior because the symptoms had gone away (just to come back 4 months later worse than before). I had severe belly cramping, diarrhea and vomiting.

     

    I also want to add that I am not a very big fan of the colonoscopy. I was told by several physician and x-ray techs that for where my cancer had originated in the colon would never have been found by a colonoscopy. An upper GI would not have either. It was located in the far lowest corner of the colon that cameras from either direction would have ever reached it. How they found it was during Laproscopic surgery to remove what they thought was blockage. The surgeon decided to explore a little upon completion when he discovered a small tumor. When it was tested and came back positive for metastatis cancer is when they ordered a PET scan and found 5 areas in the abdominal cavity and 22 lymph nodes.

    Colonoscopy

    my last colon tumor was detected on October 2012, on CT/PET scan, after chemo each scan (4 of them) no colon tumor was detected.  I insisted on a colonoscopy due to pain, and the tumor was found to still be there.

    On my last CT scan two weeks and two days ago, it still didn't show up.  Two weeks ago they removed the tumor and part of my sigmoid colon, the tumor had obstructed 95% of my sigmoid colon and three "seed" tumors had been taken out with it.  Had it not been for the colonoscopy the tumor would not have been found (the doc couldn't get the colonoscopy tube around it no matter how hard she tried), I am a fan of colonoscopies now.

    Winter Marie