Numbnesss in feet ONLY when he burps...?

gizzyluv
gizzyluv Member Posts: 143
in Colorectal Cancer #1

As crazy as that sounds, that's what Jason has been experiencing. He says that when he burps the bottoms of his feet feel numb for just a second, then its gone.....? Anyone else had this happen?

Comments

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    #2
    Zing

    Near the end of my FOLFOX treatment this would happen to me. It was only on the soles of my feet then. I called it my Zing.  Now, after my six week hook-up of 5FU, my hands and feet are totally numb, and the Zing goes clear up my legs.

    I preffered it when it was just on my soles. 

  • gizzyluv
    gizzyluv Member Posts: 143
    #3
    Trubrit said:

    Zing

    Near the end of my FOLFOX treatment this would happen to me. It was only on the soles of my feet then. I called it my Zing.  Now, after my six week hook-up of 5FU, my hands and feet are totally numb, and the Zing goes clear up my legs.

    I preffered it when it was just on my soles. 

    Yikes!

    When you say your "six week hook-up" do you mean constantly for six weeks?.....Surprised

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    #4
    gizzyluv said:

    Yikes!

    When you say your "six week hook-up" do you mean constantly for six weeks?.....Surprised

    All hooked up and nowhere to go

    Yes! It pumped into me at first, every one minute, then near the end, every 30 seconds. Every day for five weeks. I would go in once a week to get flushed out and re-hooked. 

    I was really fretting this, but (other than the side effects) the pump was a doddle. 

    They un-hooked me last week, one week early  because my neuropathy spiked. I was hoping relief would come quicklly, but it seems to be worse..  Not nice!

  • gizzyluv
    gizzyluv Member Posts: 143
    #5
    Trubrit said:

    All hooked up and nowhere to go

    Yes! It pumped into me at first, every one minute, then near the end, every 30 seconds. Every day for five weeks. I would go in once a week to get flushed out and re-hooked. 

    I was really fretting this, but (other than the side effects) the pump was a doddle. 

    They un-hooked me last week, one week early  because my neuropathy spiked. I was hoping relief would come quicklly, but it seems to be worse..  Not nice!

    =(

    Awww, I'm so sorry! I'll keep you in my prayers.....

  • PatchAdams
    PatchAdams Member Posts: 271
    #6
    have Jason........

    Have Jason stand up and then bend his neck like he's looking at his feet.  Does he feel something in his feet and/ or legs when he does this?  If so, he needs to alert his onc.  I just assumed it was part of neuropathy and didn't realize it IS but is a sign of damage to the CNS.

    Look up L'Hermitte's Sign http://en.wikipedia.org/wiki/Lhermitte's_sign 

    http://www.medterms.com/script/main/art.asp?articlekey=16049

  • gizzyluv
    gizzyluv Member Posts: 143
    #7
    PatchAdams said:

    have Jason........

    Have Jason stand up and then bend his neck like he's looking at his feet.  Does he feel something in his feet and/ or legs when he does this?  If so, he needs to alert his onc.  I just assumed it was part of neuropathy and didn't realize it IS but is a sign of damage to the CNS.

    Look up L'Hermitte's Sign http://en.wikipedia.org/wiki/Lhermitte's_sign 

    http://www.medterms.com/script/main/art.asp?articlekey=16049

    Nope....

    I had him do what you said & he said it didn't bother him. He does have some disc issues in his neck from years ago, but he said that doing what you said didn't bother him, but thank you for letting us know about that! It's good to know for future reference! =)

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #8
    Wow

    Never heard of that, but the bottom of my soles would hurt just touching the sheet.  Make sure you tell the doctor.

    Kim

  • Deena11
    Deena11 Member Posts: 199 Member
    #9
    Numb feet

    The soles of my feet are very numb.  The numbness didn't occur until after I finished my last chemo treatment.  During the last couple of months of treatment and for about 4 months after treatment, I felt little shocking jolts throughout my body (especially when  got anxious).  I've been out of treatment since the end of last August.  My fingertips and feet are still numb.  I think I may have permanent damage.  I wish I would have known this was going to happen while I was in treatment.  I would have told my Oncologist about it.  Talk to your doctor before it progresses.

    Deena

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