Needing Advice

Im new on here i was diagnosed with breast cancer in 2010 had 16 rounds of chemotherphy im in remission been 3yrs. But im needing advice im having problems with my colon they dont know yet if my cancer has spread to my colon . But if you dont mind i was wanting to hear from you of what symptoms you experienced.Their not sure if its that or if it caused from a disease that i have called neurofibromatosis. But if you could let me know what kind of symptoms you got that would be great God Bless Sincerely Terin.

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Comments

  • jen2012
    jen2012 Member Posts: 1,607 Member
    Hi Terin - it sounds like you

    Hi Terin - it sounds like you have been through enough.  I hope it's not cancer.

    My husband's symptoms were thin stools and a bit of bleeding - that's it.  Seems like most of the symptoms of colorectal cancer can also be symptoms of other things, so try not to worry too much, but get it checked out and insist on a colonoscopy.

    Good luck!

  • jen2012 said:

    Hi Terin - it sounds like you

    Hi Terin - it sounds like you have been through enough.  I hope it's not cancer.

    My husband's symptoms were thin stools and a bit of bleeding - that's it.  Seems like most of the symptoms of colorectal cancer can also be symptoms of other things, so try not to worry too much, but get it checked out and insist on a colonoscopy.

    Good luck!

    My Symptoms

    My symptoms im getting are

    Thinging and watry stool

    Chronic Abdominal Pain

    Bloating

    Not being abel to empty out all the way

    Weakness Fatigue sleep alot .

    My weight changes goes up and down all the time never stays the same.

     

  • janderson1964
    janderson1964 Member Posts: 2,215 Member

    My Symptoms

    My symptoms im getting are

    Thinging and watry stool

    Chronic Abdominal Pain

    Bloating

    Not being abel to empty out all the way

    Weakness Fatigue sleep alot .

    My weight changes goes up and down all the time never stays the same.

     

    I had thin stools for a while

    I had thin stools for a while but didnt know that was a symptom. What alarmed me was unbearable abdominal pains that would come and go.

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    jen2012 said:

    Hi Terin - it sounds like you

    Hi Terin - it sounds like you have been through enough.  I hope it's not cancer.

    My husband's symptoms were thin stools and a bit of bleeding - that's it.  Seems like most of the symptoms of colorectal cancer can also be symptoms of other things, so try not to worry too much, but get it checked out and insist on a colonoscopy.

    Good luck!

    Blood

    I had blood in my stool for a long time, but blamed it on my hemeroids as they were very large.

    Several months previous to diagnosis, I would  look in the mirror (naked) and my upper  abdomen (right below the breasts) was distended. A little voice in my head told me that things were not right.  I even thought about the word 'Cancer' but would strike that down right away. On my husbands and my anniversary, I was constipated the whole time, even though I was earthing healthy and drinking to keep hydrated. 

    To make a long story short, I ended up in the ER, then a colonoscopy revealed a tumour about to rupture. A BIG tumour that I didn't know was there. growing for years the GI doctor told me. 

    There are allot of little tell tail symptoms, most unrecognized by the people, which is why it's the second leading cancer killer.

    i suggest colonoscopy, not a bad procedure, just the goup they make us drink.

    Good luck in your journey.   I do so hope it's not cancer.

    Be sure and keep us updated.

  • Trubrit
    Trubrit Member Posts: 5,796 Member

    My Symptoms

    My symptoms im getting are

    Thinging and watry stool

    Chronic Abdominal Pain

    Bloating

    Not being abel to empty out all the way

    Weakness Fatigue sleep alot .

    My weight changes goes up and down all the time never stays the same.

     

    Not good.

    That's not good. Hope you have a Doctors appointment Lined up. 

     

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    Everyone tends to be a bit different.

    Personally, I had no obvious G-I symptoms, only the more generic symptoms of anemia, fatigue, and persistant weight loss,  Hopefully, you're getting this checked out by a doctor asap.  Good luck~AA

  • Thank you all for your posts

    Thank you all for your posts on here i will keep all of you posted im very tired and sick today and im stuck what to do my cancer doctor out of town and so is my family doctor and im stranded what to do im getting worse nothing working to help my instestine empty my stomach is very distended . I want them to get me in for a colonoscopy but i dont get much for answers from either of them and right now im about to my breaking point scared to death that it could be cancer , Once you have had cancer that always lingers in the back of your mind of possible mastesis. of recurrrance somewhere else.

    Soon as i get somehere with these doctors i will keep all of you posted. Sincerely Terin .

  • LivinginNH
    LivinginNH Member Posts: 1,456 Member

    Thank you all for your posts

    Thank you all for your posts on here i will keep all of you posted im very tired and sick today and im stuck what to do my cancer doctor out of town and so is my family doctor and im stranded what to do im getting worse nothing working to help my instestine empty my stomach is very distended . I want them to get me in for a colonoscopy but i dont get much for answers from either of them and right now im about to my breaking point scared to death that it could be cancer , Once you have had cancer that always lingers in the back of your mind of possible mastesis. of recurrrance somewhere else.

    Soon as i get somehere with these doctors i will keep all of you posted. Sincerely Terin .

    Hmmm....

    Personally, I'd take a trip to the ER....

    All my best,

    C

  • Trubrit
    Trubrit Member Posts: 5,796 Member

    Thank you all for your posts

    Thank you all for your posts on here i will keep all of you posted im very tired and sick today and im stuck what to do my cancer doctor out of town and so is my family doctor and im stranded what to do im getting worse nothing working to help my instestine empty my stomach is very distended . I want them to get me in for a colonoscopy but i dont get much for answers from either of them and right now im about to my breaking point scared to death that it could be cancer , Once you have had cancer that always lingers in the back of your mind of possible mastesis. of recurrrance somewhere else.

    Soon as i get somehere with these doctors i will keep all of you posted. Sincerely Terin .

    I agree

    Of course my trip to eve ER was a disaster.  The ER doctor basically patting me on the head telling me I'm constipated.

    Anyway, I think that you need to go to the ER and not wait for you Onc and GP to get back,

    l will be thinking of yoa shoe hope to heat good news soon.

    P.S.  tell one of your Doctors that you want a colonoscopy. Don't take no for answer. 

  • barbebarb
    barbebarb Member Posts: 464
    Trubrit said:

    I agree

    Of course my trip to eve ER was a disaster.  The ER doctor basically patting me on the head telling me I'm constipated.

    Anyway, I think that you need to go to the ER and not wait for you Onc and GP to get back,

    l will be thinking of yoa shoe hope to heat good news soon.

    P.S.  tell one of your Doctors that you want a colonoscopy. Don't take no for answer. 

    Agree too
    Missed my doctors appointment and a nurse said go to the ED and I didn't.
    I believe you can get help quicker and get colonoscopy scheduled if needed.
    Dont wait -better to resolve and get peace of mind.
    Hoping for the best.
    I had blood in my stool but was very busy with my kids schedule and work, etc.
    Health comes first!
    Barb
  • danker
    danker Member Posts: 1,276 Member

    Thank you all for your posts

    Thank you all for your posts on here i will keep all of you posted im very tired and sick today and im stuck what to do my cancer doctor out of town and so is my family doctor and im stranded what to do im getting worse nothing working to help my instestine empty my stomach is very distended . I want them to get me in for a colonoscopy but i dont get much for answers from either of them and right now im about to my breaking point scared to death that it could be cancer , Once you have had cancer that always lingers in the back of your mind of possible mastesis. of recurrrance somewhere else.

    Soon as i get somehere with these doctors i will keep all of you posted. Sincerely Terin .

    excess diarrhea

    It was the diarrhea that caused me to get my first colonoscopy.  That revealed my tumor.  Otherwise, no symptoms at all. 

  • lp1964
    lp1964 Member Posts: 1,239 Member
    Diarrhea

    Dear Friend,

    It'very unlikely that your beast cancer spread to your colon. If you  have any consistent change in your bower movent, disconfort, bloating, blood in the stool you need a colonoscopy and if you have anything abnormal, tiny biopsies.

    Most of us fooled ourselves here with all kings of excuses not to get  or even push for this exam and ended up with a lot worse Stage than if we listened to our symptoms and even insisted on test, because many doctors downplay the symtoms too and tell you to eat more fiber or probably you have hemorrhoids etc.

    DON'T WAIT and EASE YOUr MINd no matter what the outcome is.

    All the best for you and I hope you will be fine.

    Laz

  • The Waiting Game

    I got a hold of my cancer nurse navigator now im waiting to hear back of whats the next step in getting this figured out the hardest i found when you got something serious like cancer the hardst part is the waiting for answers of what their going to do next yet your scared because in the back of your mind ur praying that its not Cancer or mastestis. Ive had many years of surgeries throughout my life and my last one on my 28th birthday in 2010 was the diagnosis of breast cancer and having to have a radical mastectomy . and a yr of treatment with 16 rounds of chemotherphy.

    So i hope and pray to have something done and some answers by the end of this week . Keep all of your posts and comments its helpd me out alot with trying to get this figured out i thank all of you from the bottom of my heart.

    God Bless

    Sincerely Terin Hibl

  • The Waiting Game

    I got a hold of my cancer nurse navigator now im waiting to hear back of whats the next step in getting this figured out the hardest i found when you got something serious like cancer the hardst part is the waiting for answers of what their going to do next yet your scared because in the back of your mind ur praying that its not Cancer or mastestis. Ive had many years of surgeries throughout my life and my last one on my 28th birthday in 2010 was the diagnosis of breast cancer and having to have a radical mastectomy . and a yr of treatment with 16 rounds of chemotherphy.

    So i hope and pray to have something done and some answers by the end of this week . Keep all of your posts and comments its helpd me out alot with trying to get this figured out i thank all of you from the bottom of my heart.

    God Bless

    Sincerely Terin Hibl

    Stuck what to do

    The end of june i was put in the hospital with a 101.1 temp I was having problems with my bowels and they did a CT scan but one thing my cancer doctor didnt tell me was that i had an enlarged masenteric lymph node and now im unable to have a bowel movement and im hoping to hear back from my gastrinologist of what to do because the enemais he requested me to try did not work. and im worried about this and scared to death that its not cancer or anything serious like this it worries me with not only that but developing  a bad infection like sepius too.

    I hope none of you have ran into any of this trouble like im having with trying to get anyone to listen to you let alone believe you .

  • tootsie1
    tootsie1 Member Posts: 5,044 Member

    Stuck what to do

    The end of june i was put in the hospital with a 101.1 temp I was having problems with my bowels and they did a CT scan but one thing my cancer doctor didnt tell me was that i had an enlarged masenteric lymph node and now im unable to have a bowel movement and im hoping to hear back from my gastrinologist of what to do because the enemais he requested me to try did not work. and im worried about this and scared to death that its not cancer or anything serious like this it worries me with not only that but developing  a bad infection like sepius too.

    I hope none of you have ran into any of this trouble like im having with trying to get anyone to listen to you let alone believe you .

    Call the GI back!

    Keep trying until you get someone to see you and take you seriously!

     

    *hugs*

    Gail

  • tootsie1 said:

    Call the GI back!

    Keep trying until you get someone to see you and take you seriously!

     

    *hugs*

    Gail

    Needing Prayer

    Tomorrow i have a CT scan done cause i havent had a bowel movement in a long time and everything that they have tried has not worked I'm tired of being put off and im scared because it seems like each day gets worse im afraid of ending up with a twiste bowel or it ruptering and ending up  with a serious infection that could possibly kill me or putting holes into my intestine cause their not working hard at helping me or giving a dam when i have already have had Cancer i just hope that my breast cancer hasnt mastestised into my intestines because im not only blockd up but i also have an enlarged lymphnode and their acting like their not very concerned . I just hope and pray they figure out what causing this and get it fixed because as each day goes by and its getting worse the less i eat im afraid to even eat right now with everything that going on and ive got very bad hot falsh sweats and cold flashes day and night i thought about going to the ER but my luck they would just send me home so i hope and pray i know somwthing by tomorrow or friday and if i havent heard anything im calling .I just hope and pray none of you have ran in the trouble im having . I will write an update soon as i know something possibly thursday the 25 or friday the 26th.

    Sincerely Terin

  • Goldie1
    Goldie1 Member Posts: 264 Member

    Needing Prayer

    Tomorrow i have a CT scan done cause i havent had a bowel movement in a long time and everything that they have tried has not worked I'm tired of being put off and im scared because it seems like each day gets worse im afraid of ending up with a twiste bowel or it ruptering and ending up  with a serious infection that could possibly kill me or putting holes into my intestine cause their not working hard at helping me or giving a dam when i have already have had Cancer i just hope that my breast cancer hasnt mastestised into my intestines because im not only blockd up but i also have an enlarged lymphnode and their acting like their not very concerned . I just hope and pray they figure out what causing this and get it fixed because as each day goes by and its getting worse the less i eat im afraid to even eat right now with everything that going on and ive got very bad hot falsh sweats and cold flashes day and night i thought about going to the ER but my luck they would just send me home so i hope and pray i know somwthing by tomorrow or friday and if i havent heard anything im calling .I just hope and pray none of you have ran in the trouble im having . I will write an update soon as i know something possibly thursday the 25 or friday the 26th.

    Sincerely Terin

    Previous posts...

    have mentioned having a colonoscopy.  Just wondering if you had this procedure yet and if not, you should demand it.

    Take care,

    Ellen

  • LindaK.
    LindaK. Member Posts: 506 Member

    Needing Prayer

    Tomorrow i have a CT scan done cause i havent had a bowel movement in a long time and everything that they have tried has not worked I'm tired of being put off and im scared because it seems like each day gets worse im afraid of ending up with a twiste bowel or it ruptering and ending up  with a serious infection that could possibly kill me or putting holes into my intestine cause their not working hard at helping me or giving a dam when i have already have had Cancer i just hope that my breast cancer hasnt mastestised into my intestines because im not only blockd up but i also have an enlarged lymphnode and their acting like their not very concerned . I just hope and pray they figure out what causing this and get it fixed because as each day goes by and its getting worse the less i eat im afraid to even eat right now with everything that going on and ive got very bad hot falsh sweats and cold flashes day and night i thought about going to the ER but my luck they would just send me home so i hope and pray i know somwthing by tomorrow or friday and if i havent heard anything im calling .I just hope and pray none of you have ran in the trouble im having . I will write an update soon as i know something possibly thursday the 25 or friday the 26th.

    Sincerely Terin

    ER

    As much as we all hate going to Emergency Room, you should go. You're right, you do not want to end up with a perforated colon.  Get to a good hospital where they will do a scan AND colonoscopy asap.  You may need an NG tube if nothing is passing.  This will give your intestines rest so things may be able to pass.  My husband went into the ED and was admitted with a complete blockage.  His intestines were so bloated he had to have the NG tube to get rid of things up that tube.  His surgery was scheduled within 36 hours, but some other complications postponed it a few more days, which was better in the long run.  He was able to pass everything that had been "stuck" and therefore much more clear for the surgery he had to remove part of his colon.

    Contact your breast cancer doctors if you need to for some referrals.  I cannot believe no one has been helping you figure out what is going on.  Let us know how you make out.

    Linda

  • Goldie1 said:

    Previous posts...

    have mentioned having a colonoscopy.  Just wondering if you had this procedure yet and if not, you should demand it.

    Take care,

    Ellen

    I thought about that but they

    I thought about that but they have tried every medication possibly to get me cleaned out but cant i havent had a bowel movement in 3 in half weeks they even tried that go lighty stuff you drink before a colonoscopy and that didnt even work this week they tried me on Mineral Oil Fleet enemias and im up to 4 of those a day and nothing has worked and as each comes i keep getting worse and no one will either listen to or even take me serious. So im hoping that something shows so that i can prove to them i was making it up and im not faking it because im tired of my doctors thinking im a hypoconderact cause im not and im being tired of being accused of this even by my own cancer doctor.

     

  • LivinginNH
    LivinginNH Member Posts: 1,456 Member

    I thought about that but they

    I thought about that but they have tried every medication possibly to get me cleaned out but cant i havent had a bowel movement in 3 in half weeks they even tried that go lighty stuff you drink before a colonoscopy and that didnt even work this week they tried me on Mineral Oil Fleet enemias and im up to 4 of those a day and nothing has worked and as each comes i keep getting worse and no one will either listen to or even take me serious. So im hoping that something shows so that i can prove to them i was making it up and im not faking it because im tired of my doctors thinking im a hypoconderact cause im not and im being tired of being accused of this even by my own cancer doctor.

     

    Wow - three weeks!!  Well, if

    Wow - three weeks!!  Well, if you really decide not to go to the ER today, then as soon as your CT comes back and shows a complete blockage - FIRE YOUR CURRENT DOCTOR IMMEDIATELY!    You can't be passive - your life depends on it.