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sister with horrible rectal pressure

Farm Girl
Farm Girl Member Posts: 17

 My sister was diagnosed stage IV from Nov. 2011. Her rectal mass is sitting on the pevic bone so she has been inoperable to this point. Has done chemo, radiation and nothing is shrinking the tumor. I need to know if anyone on this board has bad rectal pressure and what she can do for it. The pain meds they give her are not helping because it is pressure not pain. She has a scan tuesday to see how her lungs, and liver are doing. Any suggestions out there would be grateful. thanks Farm Girl

Comments

  • YoVita
    YoVita Member Posts: 590
    I'm sorry about your sister's situation

    I'm not sure I have any helpful advice other than muscle relaxers?  Hopefully someone in our world will have some great advice.  

  • db8ne1
    db8ne1 Member Posts: 142

    I'm so sorry to hear about your sis.  I can relate.  I had my rectal tumor removed in April. I had chemoradiation to shrink the tumor (it did) prior to surgery.  No bag.  Recovered well from surgery and started post surgery chemo two weeks ago. Just had Round 2 of FOLFOX.  I am not doing well now that chemo has started.  Terrible rectal pressure. Severe diahrrea for hours a day with extreme cramping pain.  Rectal pressure for hours...  I just took a pain pill, which I don't like to do, and it helped a little.  I, too, would like to know if anyone else has experienced this - and what worked for them.

    I hope your sister finds some answers and some relief soon!

    J

  • Farm Girl
    Farm Girl Member Posts: 17
    db8ne1 said:

    I'm so sorry to hear about your sis.  I can relate.  I had my rectal tumor removed in April. I had chemoradiation to shrink the tumor (it did) prior to surgery.  No bag.  Recovered well from surgery and started post surgery chemo two weeks ago. Just had Round 2 of FOLFOX.  I am not doing well now that chemo has started.  Terrible rectal pressure. Severe diahrrea for hours a day with extreme cramping pain.  Rectal pressure for hours...  I just took a pain pill, which I don't like to do, and it helped a little.  I, too, would like to know if anyone else has experienced this - and what worked for them.

    I hope your sister finds some answers and some relief soon!

    J

    if they removed your rectal

    if they removed your rectal tumor why are you still having the rectal pressure. I feel so bad for my sister. Got a second opinion this week but every one is stating the same. Inoperable

     

  • db8ne1
    db8ne1 Member Posts: 142
    Farm Girl said:

    if they removed your rectal

    if they removed your rectal tumor why are you still having the rectal pressure. I feel so bad for my sister. Got a second opinion this week but every one is stating the same. Inoperable

     

    I don't know...

    It started with the FOLFOX treatment, so I'm sure it's chemo related.  While it's been 7 weeks since surgery and I've healed very nicely - the drugs attack the weakest sections - and I still have some internal healing to do, I'm sure. The drugs really do a number all through the GI tract - starting with mouth sores all the way through...Alot of my pressure and pain is diahrrea related - as it's been very severe from the drugs.  But I still have ongoing bouts of rectal pain and pressure even when I'm not experiencing diahrrea.  Doc's don't know everything.  They just write it down and offer drugs to help.  They are still learning, that why it's called a medical "PRACTICE"... :)  Plus, everyone reacts differently to drugs and treatments.  Our chemical make ups are all different. So, it's a trial and error thing.

  • Farm Girl
    Farm Girl Member Posts: 17
    db8ne1 said:

    I don't know...

    It started with the FOLFOX treatment, so I'm sure it's chemo related.  While it's been 7 weeks since surgery and I've healed very nicely - the drugs attack the weakest sections - and I still have some internal healing to do, I'm sure. The drugs really do a number all through the GI tract - starting with mouth sores all the way through...Alot of my pressure and pain is diahrrea related - as it's been very severe from the drugs.  But I still have ongoing bouts of rectal pain and pressure even when I'm not experiencing diahrrea.  Doc's don't know everything.  They just write it down and offer drugs to help.  They are still learning, that why it's called a medical "PRACTICE"... :)  Plus, everyone reacts differently to drugs and treatments.  Our chemical make ups are all different. So, it's a trial and error thing.

    thank u

    I feel so helpless with helping her. Did they find yours any where else other than colon?  My heart goes out to everyone on this board.

     

  • Annabelle41415
    Annabelle41415 Member Posts: 6,712 **
    Pressure

    Mine was also rectal and my pressure was terrible too.  They gave me pain meds that helped somewhat but those can also make you constipated.  Even though my rectum was removed, the radiation was a lot of my problem with pain and pressure.  Try a sitz bath too.  It kind of gets the mind off the pressure.  I'm not sure what else to suggest but it did take me about a year before it resolved itself.  Hope she feels better soon.

    Kim

  • slmenc1966
    slmenc1966 Member Posts: 1
    db8ne1 said:

    I'm so sorry to hear about your sis.  I can relate.  I had my rectal tumor removed in April. I had chemoradiation to shrink the tumor (it did) prior to surgery.  No bag.  Recovered well from surgery and started post surgery chemo two weeks ago. Just had Round 2 of FOLFOX.  I am not doing well now that chemo has started.  Terrible rectal pressure. Severe diahrrea for hours a day with extreme cramping pain.  Rectal pressure for hours...  I just took a pain pill, which I don't like to do, and it helped a little.  I, too, would like to know if anyone else has experienced this - and what worked for them.

    I hope your sister finds some answers and some relief soon!

    J

    I had the pain and pressure after my surgery and it ended up being a fluid sac collection around the rectal incision so I had to get a drain tube put in for 8 days. Thank God it wasn't an abcess like they originally thought and was only fluid.