Update, both lungs are involved ugh!

2

Comments

  • Kristin N
    Kristin N Member Posts: 1,968 Member
    SIROD said:

    Full Plate

    Hi,

    Your plate is indeed full.  I am so sorry about the need for lower lip and chin radiation.  I hope that goes well.  Sounds like you have a great thoracic surgeon to do the VATS.

    Keep us posted.

    Doris

    Saying how sorry I am doesn't

    Saying how sorry I am doesn't even seem to touch how I am feeling about your post.  Just so sorry Patti that this has happened.

    I'll be praying for your treatments to work for you.

     

  • Kristin N
    Kristin N Member Posts: 1,968 Member
    SIROD said:

    Full Plate

    Hi,

    Your plate is indeed full.  I am so sorry about the need for lower lip and chin radiation.  I hope that goes well.  Sounds like you have a great thoracic surgeon to do the VATS.

    Keep us posted.

    Doris

    Sorry

    double post

     

  • Kylez
    Kylez Member Posts: 3,761 Member
    Kristin N said:

    Sorry

    double post

     

    You've got so many prayers

    You've got so many prayers here Patti and I am adding mine to the list of pink sisters that love you and are here for you.

    Hugs, Kylez

  • Patti1967
    Patti1967 Member Posts: 186
    Kylez said:

    You've got so many prayers

    You've got so many prayers here Patti and I am adding mine to the list of pink sisters that love you and are here for you.

    Hugs, Kylez

    Thank you all:) All of your

    Thank you all:) All of your prayers, support and well wishes give me strength!

    Patti

  • June Bugs
    June Bugs Member Posts: 167
    SIROD said:

    Full Plate

    Hi,

    Your plate is indeed full.  I am so sorry about the need for lower lip and chin radiation.  I hope that goes well.  Sounds like you have a great thoracic surgeon to do the VATS.

    Keep us posted.

    Doris

    I am so sorry.  I feel so bad

    I am so sorry.  I feel so bad for you and will be praying.

  • VickiSam
    VickiSam Member Posts: 9,079 Member
    June Bugs said:

    I am so sorry.  I feel so bad

    I am so sorry.  I feel so bad for you and will be praying.

    My thoughts and prayers

    are with you.  So many Sisters in PINK have provide such valuable information, insight and proof that life goes on.  Best of luck and well wishes.

    Strength, Courage and HOPE for a Cure.

    Vicki Sam

  • Alexis F
    Alexis F Member Posts: 3,598
    VickiSam said:

    My thoughts and prayers

    are with you.  So many Sisters in PINK have provide such valuable information, insight and proof that life goes on.  Best of luck and well wishes.

    Strength, Courage and HOPE for a Cure.

    Vicki Sam

    Can't even find the words

    Can't even find the words right now to tell you how sorry I am Patti.  You know you've got me and all of the others in your corner supporting you and praying for you.

    I wish I could erase all of this from you, I truly do.

    Please continue to update us and to come here for support.  There's a lot of love on this board for you!

    Lex

  • kmenurse
    kmenurse Member Posts: 217
    I pray that God's angels

    I pray that God's angels wraps you in a healing blanket of love.... HUGS!!!  Kathy

  • DianeBC
    DianeBC Member Posts: 3,881 Member
    Patti1967 said:

    Thanks Doris:)  I think what

    Thanks Doris:)  I think what complicates matters with me is the fact that the "slight" emphysema I was told I had four years ago is now being called extensive....I am no longer a smoker and they cannot figure out why that has gotten so bad during these past 8 or 9 months as well. The scans in Sept showed just slight changes in that not enough to even warrent treatment of any kind.   This surgeon is the very top of the top at U of C center for advanced medicine in that area.  It's not only the numerous noduels, like that word better then tumors...its the fact that my lungs are in horrible shape now altogether.  I am ending up being a very strange case....

    I saw my head and neck cancer surgeon today, and my rad onc next Wed to be fitted for my mask for my 36 rounds of radiation I will be having to my face )lower lip and chin).  I will be starting those treatments on May 28.  They are planning to just add the lung met treatment after they finish the VATS or whatever they end up doing. 

    It does help me Doris to know how you have done:), cancer is hell on earth.

    Hugs!!!!!!

    Patti

    I am sending lots of hugs

    I am sending lots of hugs your direction today! 

  • Megan M
    Megan M Member Posts: 3,000
    Patti1967 said:

    Thanks Suzanne:)

    Thanks Suzanne:)

    Lots of cyber hugs and

    Lots of cyber hugs and praying daily for you!

  • burcu123
    burcu123 Member Posts: 66
    SIROD said:

    Going on 5 years with both lungs, pleura, ribs.....

    Dear Patti,

    I was dx in 1994, cmf, then Tamoxifen, regional recurrence in '99, two rib lesions in 2000 - Arimidex kept me NED until 2008.  A dry cough led to a ct scan where both lungs were involved, along with the pleura (lining) and a pleura effusion.  I also had a PET scan that also found celiac nodes involvement and confirmed both lungs and pleura area.  I had a VATS and in the thoracic surgeons notes stated: "I was studded with tumors in both lungs, pleura.  The effusion was drained.  Tumors showed I was stil ER+ PR and HER2 negative, I began using Faslodex at 250 mg.  The next ct scan 7 months later showed progression so I went on Femara and for the next 2 years I was stable.  In 2011, progression and I decided to try a break in order to reboot.  This new theory was approved in the 2008 SABC Symposium.  I didn't use estradiol but my own estrogen to allow the cancer to grow.  The ct scan in the 7 month showed the cancer was very active again, so I went back on Femara (rebooting in hopes to use the drug longer), my next ct scan showed more progression so I went back to Faslodex now approved by the FDA for 500 mg.  My oncologist didn't think it would work but my next scan was stable, my next 3 months ct scan showed continued stable with some regression.  About 5 months later, I had the dry cough, shortness of breath and wheezing.  I asked for a ct scan that showed that my right lung, pleura and ribs were stable but my left lung showed increase in size and numbers.  I had used all the hormonal drug therapies except one.  To soon to use that one, it would have failed had I tried it now.  Might work later down the road.  After 18 years of using hormonal drug therapies, I went back to chemo.

    I always stated I would never do it as I read that women like me do better with hormonal but.... I could do nothhing or do chemo.  I am on Taxol since February.   When I say it is in both lungs, I mean they were everwhere including the lining (Pleura) that goes around the lungs and it will be 5 years next month since that awful ct scan.

    I stayed overnight after the VATS and left the following day.  I was back to work 3 days later, 2 days were my days off.   They ran a series of tests on me too.  I passed them all and they are all the normal ones that are given prior to any type of surgery.  If this surgeon doesn't want to operate ask for someone in his practice that will.

    I hope my story helps you.

    Best to you,

    Doris

    So uplifting

    Dorris Your story is so uplifting, you are real warrior

  • Ritzy
    Ritzy Member Posts: 4,381 Member
    kmenurse said:

    I pray that God's angels

    I pray that God's angels wraps you in a healing blanket of love.... HUGS!!!  Kathy

    Good luck this Wednesday

    Good luck this Wednesday Patti.  I know it is going to be difficult for you.  When you can, post to let us know how it went for you.

    Sue :)

  • Patti1967
    Patti1967 Member Posts: 186
    Ritzy said:

    Good luck this Wednesday

    Good luck this Wednesday Patti.  I know it is going to be difficult for you.  When you can, post to let us know how it went for you.

    Sue :)

    Thanks:)  I have appts Wed

    Thanks:)  I have appts Wed (rad onc for lip and chin) Thurs (breathing tests to see if I can have the VATS) and Fri with my surgeon who will then let us know the results of Thurs tests and if and when my surgery will be.  Today however, I plan on enjoying the 85° it's going to be today.  I am going to take a long walk on the beach:)  HUGS to you all of you wonderful supportive pinks!!!!!

    Patti

  • Alexis F
    Alexis F Member Posts: 3,598
    Patti1967 said:

    Thanks:)  I have appts Wed

    Thanks:)  I have appts Wed (rad onc for lip and chin) Thurs (breathing tests to see if I can have the VATS) and Fri with my surgeon who will then let us know the results of Thurs tests and if and when my surgery will be.  Today however, I plan on enjoying the 85° it's going to be today.  I am going to take a long walk on the beach:)  HUGS to you all of you wonderful supportive pinks!!!!!

    Patti

    Enjoy your walk on the beach

    Enjoy your walk on the beach today Patti! 

    Lots of hugs,

    Lex

  • Lynn Smith
    Lynn Smith Member Posts: 1,264 Member
    Alexis F said:

    Enjoy your walk on the beach

    Enjoy your walk on the beach today Patti! 

    Lots of hugs,

    Lex

    I'm praying for a MIRACLE

    I'm praying for a Miracle that you're able to have surgery.Throughout my life praying has got me through sickness, hard times and others lives have been saved. Prayer gets me through life.I had a out of body experience after the birth of my oldest son. Those  gates were opened and HE was asking me to Come.I said I can't die.I just had a baby boy that needs me.I woke up and was alive. It wasn't my time. i've lived 45 years since that and with other serious illnesses and trauma.I Prayed.

    After the situation I had I was talking to a classmate.I told her about my experience.She said it was the drugs.No it wasn't I only was taking a antibiotic.No pain meds. A miracle happened.This is what I wish for you.And you see your grandson graduate.My experience was 45 years ago.I now have seen all but 1 grandchild graduate and have a new great grandson.

    Believe in Miracles.I will pray for you that it happens.My prayers are usually answered.  

    Lynn Smith 

  • jnl
    jnl Member Posts: 3,869 Member

    I'm praying for a MIRACLE

    I'm praying for a Miracle that you're able to have surgery.Throughout my life praying has got me through sickness, hard times and others lives have been saved. Prayer gets me through life.I had a out of body experience after the birth of my oldest son. Those  gates were opened and HE was asking me to Come.I said I can't die.I just had a baby boy that needs me.I woke up and was alive. It wasn't my time. i've lived 45 years since that and with other serious illnesses and trauma.I Prayed.

    After the situation I had I was talking to a classmate.I told her about my experience.She said it was the drugs.No it wasn't I only was taking a antibiotic.No pain meds. A miracle happened.This is what I wish for you.And you see your grandson graduate.My experience was 45 years ago.I now have seen all but 1 grandchild graduate and have a new great grandson.

    Believe in Miracles.I will pray for you that it happens.My prayers are usually answered.  

    Lynn Smith 

    Praying for a miracle with

    Praying for a miracle with you too Patti! 

    Love, Leeza

  • Patti1967
    Patti1967 Member Posts: 186
    jnl said:

    Praying for a miracle with

    Praying for a miracle with you too Patti! 

    Love, Leeza

    All prayers are welcome and

    All prayers are welcome and so appreciated:)  I so enjoyed the weather today and the walk and smell of the beach, ahhhh it's the little things in life.  Now to get my mind set ready for the rest of my week....HUGS and more hugs to all!!!!!

    Patti

  • Alexis F
    Alexis F Member Posts: 3,598
    Patti1967 said:

    All prayers are welcome and

    All prayers are welcome and so appreciated:)  I so enjoyed the weather today and the walk and smell of the beach, ahhhh it's the little things in life.  Now to get my mind set ready for the rest of my week....HUGS and more hugs to all!!!!!

    Patti

    It makes me so happy to know

    It makes me so happy to know that you had a great day at the beach!  I know you've got a rough week ahead of you.  I and all of the other pink sisters will be here, waiting for an update.

    Hugs and more hugs to you too,

    Lex

  • Patti1967
    Patti1967 Member Posts: 186
    Alexis F said:

    It makes me so happy to know

    It makes me so happy to know that you had a great day at the beach!  I know you've got a rough week ahead of you.  I and all of the other pink sisters will be here, waiting for an update.

    Hugs and more hugs to you too,

    Lex

    Thanks Lex:)  You are just

    Thanks Lex:)  You are just too sweet!  and a great pink sister:)

    Patti

  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    Patti1967 said:

    Thanks Lex:)  You are just

    Thanks Lex:)  You are just too sweet!  and a great pink sister:)

    Patti

    Good luck today with your

    Good luck today with your rads onco Patti. 

    Hugs, Jan