are there alternatives to radiation?

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Comments

  • Hondo
    Hondo Member Posts: 6,636 Member
    CivilMatt said:

    no rads

    The internet is full of alternate treatments, therapies and what not.

    Surgery, Chemotherapy, nothing, prayer, natural remedies, vitamins, voodoo, water, naturopathic, Chinese, acupuncture, mind-body, proton therapy, pet-therapy, hypnosis, exercise, aroma-therapy, Biological and Pharmcologic Therapies, Antineoplastons, Gaston Naessens Therapy (714X), Revici Therapy,  Hydrazine Sulfate, Immune Therapies, Immuno-Augmentative Therapy (IAT), Issels whole-body immune therapy, Herbal Therapies, Harry Hoxsey formulas, Essiac tea, Mistletoe (Iscador)...as used by Suzanne Somers, Pau D'Arco, Chaparral, Nutritional Therapies, Wheatgrass Therapy, Macrobiotics, Moerman's Anti-Cancer diet, Metabolic Therapies, Gerson, Oxygen Therapies (including Ozone), Hyperthermia, DMSO therapy, Chelation, Live Cell therapy, Energy Medicine, Bioelectric Therapie, apricot seed kernels, papaya leaves and stalks, and lemon grass ……………………..to name a few.

    everyone is so different

    Ill take the prayer and lemon grass please. I agree with the second opinion and a 3rd if needed because everyone being so different it is hard to say what will work or will not work. For some people Radiation and Chemo will work the first time and others it doesn’t. Then there are some people that can take an alternative treatment and it will work for them but not for anyone else. I don’t think there is a reason other then our genetic make-up, the same reason why some people get cancer and others don’t. I had radiation twice and chemo once and it did not work because the cancer came back a 3rd time. I do know that if someone has a strong positive outlook going into treatment it has a tremendous effect on there outcome of treatment. Other people who have a lot of friends praying for them tend to do better then someone who has no one praying for them. The way I look at it, do what you think best, make a choice and stick with it keeping as positive as can be, after all it’s your body.   

  • peggylulu
    peggylulu Member Posts: 375
    Laralyn said:

    I understand the need for information

    I think we all go through that. We want to make sure we're making the right decision. 

    I strongly encourage you to get a second opinion. If you have a major cancer center within 100 miles, ask if they have a cancer or tumor board where multiple doctors weigh in. In fact, get a third opinion. Try to develop a sense of confidence--and inner peace--about the decision you make.

    To be honest, though, the thought that kept popping into my head as I read this thread (which was mostly posted before I started coming to this site) was: there's no way to know until it's potentially too late to save your life. Reading someone say, "I had radiation and I regret it" makes me really sad because I understand how frustrating side effects can be and the longing to have a choice that wouldn't lead to life-long consequences. I had to stop reading the dental issues thread this morning because I couldn't bear to think about what might happen to me, especially since I've been skipping the flouride trays a couple days a week lately.

    On the other hand, the person saying, "I had radiation and I regret it" is still here to regret it. There's no way to know what would have happened if he/she didn't choose to have radiation. The only way to know is to not have radiation and risk discovering you should have had it when it's either too late to save your life, or the cancer is so advanced that the long-term side effects are worse because the cancer had spread to the jaw, or your voice box, or the palate.

    So here's the truth, from my perspective, heading toward the year anniversary of completing treatments (June 1):

    I think about the radiation (and chemo) side effects 4 times a day on a good day, 10 times a day on a bad day.

    I think about how incredibly lucky and blessed and grateful I am not to have worse side effects at least 5 times a day.

    I think about the joy of being alive, of walking in the sun, of going to my job (which I love), of going to a movie with my boyfriend, of sitting with a cat on my lap, of having another day on earth at least 20 times a day.

    So when I think about the decision I made to have radiation and chemo, I have zero regrets. These days in the sun are worth every second of the treatments, and the hours of simple pleasures in every day far, far outweigh the minutes I spend dealing with side effects.

    Laralyn

    That was so well said !! I so agree with you !! Some of my family and my caregiver didn't think that I needed raditation and didn't want me to have to go thru the side effects because after my surgery the path report showed no Cancer , but I wanted to be more sure "it" was gone . So guess what I had a recurrance within 6 mos. after treatments on Lymph glands a couple of inches further down on my neck and this time the Path report showed 1 lymph node/gland with the same SCC ! I am so glad that I went ahead and had the Radiation treatments . I am now going to MDA to see what I am to do next.

  • Tim_the_MusicMan
    Tim_the_MusicMan Member Posts: 3
    fishmanpa said:

    What my team said

    Hi Tim,

    I was Dx'd   Tx N2b MO Stage IV HPV+   I had an unknown primary and the cancer was growing in several lymph nodes on the left side of my neck. 
    My team decided for surgery (selective neck dissection) along with additional biopsies to help find the primary. All biopsies came back negative.

    The point was this. If they went in and the tumors were still encapsulated then it would be radiation only. If they had broken out of their capsules then it would be chemo/rads. Either way rads would be necessary to make sure they eradicate any microscopic cancer cells that the surgery missed. 

    If you're not already, I would get a 2nd opinion at a comprehensive cancer center.

    Positive thoughts and prayers

    "T"

     

    Radiate or not

    Thanks for the advice Fishmanpa and Phrannie. I am currently being seen by The Medical College of Georgia (GRU), and yes, this is a pretty big cancer center. As I had noted before, the surgeon told me he would suggest that I do the RADS thing (due to my age), if I was 80 yrs. old he said he would probably pat me on the back and tell me to have a good life. I admire this doc for the amazing work he did on the surgery and has been very honest in my opinion.  Both of my parents had cancer, my mother had breast cancer (radical mastectomy) in one breast and had cancer cells in two lymph nodes. She opted out for Radiation and Chemo.... that was 25 yrs. ago and she is now 85 and in a nursing home. Cancer has not returned. My Dad had stomach cancer from ulcers, and he also after surgery opted out for Radiation and Chemo.... He died 13 yrs later from heart failure related to a fractured pelvis. So, I think everyone can see where I am coming from. I am now going to try and get a 2nd opinion about this. My wife is worried that it may come back right away with a vengeance. I also am trying the baking soda/ maple syrup regimen along with supplements to improve immune system.... I know it sounds crazy but, I did it for 5 days prior to surgery and maybe??? that had something to do with the tumor being smaller than originally thought??? Anyway, thanks again and I will keep all of you in my prayers and will keep updating what is going on.

  • Tim_the_MusicMan
    Tim_the_MusicMan Member Posts: 3
    fishmanpa said:

    What my team said

    Hi Tim,

    I was Dx'd   Tx N2b MO Stage IV HPV+   I had an unknown primary and the cancer was growing in several lymph nodes on the left side of my neck. 
    My team decided for surgery (selective neck dissection) along with additional biopsies to help find the primary. All biopsies came back negative.

    The point was this. If they went in and the tumors were still encapsulated then it would be radiation only. If they had broken out of their capsules then it would be chemo/rads. Either way rads would be necessary to make sure they eradicate any microscopic cancer cells that the surgery missed. 

    If you're not already, I would get a 2nd opinion at a comprehensive cancer center.

    Positive thoughts and prayers

    "T"

     

    Radiate or not

    Thanks for the reply fishmanpa and phrannie. I am currently being seen at Medical College of Georgia (GRU), which is a pretty big cancer center. I am in the process of trying to obtain pathology report in order to get 2nd opinion from another cancer center. Thanks again and I'll keep you updated.

  • Ladylacy
    Ladylacy Member Posts: 773 Member
    Radiation

    When my husband was diagnosed with laryngeal cancer in 2010, we were told that the way to go was radiation (35 rounds) and 3 chemo.  We had hoped that would work, but it didn't and in 2011 he had a complete laryngectomy, partial neck dissection and his throat had to be reconstructed due to radiation completely closing off the back of his throat.  We were also told that he couldn't have more radiation.

    Fast forward to 2012 when they found a tumor at the cervical of his esophagus.  Very small and surgery we were told wasn't a good option due to his prior radiation.  Now my husband said many times that he wouldn't undergo anymore radiation after the first time, well when faced with this new and rare spot for cancer we were told, he elected to undergo another 35 radiation and 7 chemo treatments.  Well the second time around it wasn't as bad but he did have a peg tube inserted once again before treatment.  Now after a follow-up PET/CT scan (second one since treatment ended) the cancer is back and has spread.  My husband elected no more treatment.  The only option was chemo since the cancer had spread to his right lung.  He said quality of time was more important than quantity.

    On this journey, and after reading his PET/CT scans, I have had many questions.  The main one each time is if the PET/CT shows clear, then why did the cancer return.  I was told that no PET/CT scan, viewing by the specialist down the throat or in your throat, cannot find cancer cells that are tiny and this is why they suggest after surgery radiation and/or chemo.   So guess what I'm trying to say is that, although radiation is hard and H&N radiation especially, no one can predict the outcome.  And like all treatment, radiation/chemo/surgery each person responds differently to treatment. 

    Wishing you the best outcome with your decision.  Sharon