First scan results today

lts
lts Member Posts: 75
in Head and Neck Cancer #1

Hi All,

It's been awhile since I've posted but I do read. I had my 90 day post tx scan(MRI brain and mandible\jaw area) last Monday and today I have a 3:00pm with my onc doctor to go over results. I did not sleep at all last night. I have never felt this kind of anxiety in my life. I never call in to work sick, but I did today. Just wasn't feeling it, ya know?

I'm at a loss for words right now but will update when I get back from appointment.

Luke Sandzik

One thing I found funny. My jaw and mouth area took 50 min to scan and my brain took only 25 min to scan.Wink

 

 

Comments

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #2
    Scanxiety

    Perfectly normal to have a high level of scanxiety going on....

    I'm counting on a good report later today from you...

    LOL, no comment on the short time on the brain scan compared to the mouth and jaw.... I wouldn't mention that to your wife..., or boss Tongue Out

    JG

  • katenorwood
    katenorwood Member Posts: 1,912
    #3
    Hello Luke !

    It's good to hear from you !  Do you ever use an anti-anxiety med ?  I've also tried a benedryl the night before scans or appointments that made me not sleep.  I will be praying for excellant results on the scan....but remember some hot spots or scarring may show up early on.  Please keep us posted.  I could very easily make a remark on the time limits you posted but won't......kinda left yourself open there guy...lol !  Best to you !   Katie

  • meaganb
    meaganb Member Posts: 244 Member
    #4
    I always think the same thing

    I always think the same thing about the time difference in scanning my head/neck vs my brain. Makes you feel like you're not working with much!;) Praying for a clean scan!

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    #5
    i'll b praying 4 a clean

    i'll b praying 4 a clean scan.

    God bless,

    dj

  • peggylulu
    peggylulu Member Posts: 375
    #6
    Hi Luke

    I'm kinda a newbie here and I haven't seen any of your post , but I'm hoping and praying that you get a NED today and betting that you will because it seems to me that most of the scans I see on here do ! best wishes for NEd.

    Peggy

  • lts
    lts Member Posts: 75
    #7
    NED

    Rad Onc Dr. said nothing abnormal. No evidence of disease. No local trouble and no mets in brain. He will see me in 6 months. I have an appointment with ENT\Surgeon in Aug and will have a CT of chest and abdoman prior to that appointment.

    I am sure to get some rest tonight.

    Luke

  • peggylulu
    peggylulu Member Posts: 375
    #8
    lts said:

    NED

    Rad Onc Dr. said nothing abnormal. No evidence of disease. No local trouble and no mets in brain. He will see me in 6 months. I have an appointment with ENT\Surgeon in Aug and will have a CT of chest and abdoman prior to that appointment.

    I am sure to get some rest tonight.

    Luke

    Wonderful !!!

    So glad to hear you are NED !! Now get some good rest !

    Congratulations

    Peggy

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    #9
    lts said:

    NED

    Rad Onc Dr. said nothing abnormal. No evidence of disease. No local trouble and no mets in brain. He will see me in 6 months. I have an appointment with ENT\Surgeon in Aug and will have a CT of chest and abdoman prior to that appointment.

    I am sure to get some rest tonight.

    Luke

    fantastic news!
    celebrate.
    dj

    fantastic news!

    celebrate.

    dj

  • HobbsDoggy
    HobbsDoggy Member Posts: 276
    #10
    Great News!

    So happy for you.  Hope for years more of those for you and everyone who has been on this long journey.

  • phrannie51
    phrannie51 Member Posts: 4,716
    #11
    The first one is the scariest...

    I was heart in throat for two days on my first post treatment scan.  When they told me it was clear, my knees just about gave out, and I started to cry.  Like you, I've never felt that kind of anxiety in my life...not even when I was waiting for the diagnosis.

    YEAHHHHHH on the NED....my very favorite words!!

    p

  • meaganb
    meaganb Member Posts: 244 Member
    #12
    lts said:

    NED

    Rad Onc Dr. said nothing abnormal. No evidence of disease. No local trouble and no mets in brain. He will see me in 6 months. I have an appointment with ENT\Surgeon in Aug and will have a CT of chest and abdoman prior to that appointment.

    I am sure to get some rest tonight.

    Luke

    Congrats Luke! Here's to

    Congrats Luke! Here's to nothing but NED in your future!

  • hwt
    hwt Member Posts: 2,328 Member
    #13
    phrannie51 said:

    The first one is the scariest...

    I was heart in throat for two days on my first post treatment scan.  When they told me it was clear, my knees just about gave out, and I started to cry.  Like you, I've never felt that kind of anxiety in my life...not even when I was waiting for the diagnosis.

    YEAHHHHHH on the NED....my very favorite words!!

    p

    Luke

    Congrats! Celebrate...........

  • Duggie88
    Duggie88 Member Posts: 760 Member
    #14
    lts said:

    NED

    Rad Onc Dr. said nothing abnormal. No evidence of disease. No local trouble and no mets in brain. He will see me in 6 months. I have an appointment with ENT\Surgeon in Aug and will have a CT of chest and abdoman prior to that appointment.

    I am sure to get some rest tonight.

    Luke

    Luke

    Now that's the news we waited for. Congrats..................sleep will come easy tonight. I love it when cancer loses. Matter of fact I live for its loss.

    Enjoy the good news I know the feeling.

          Jeff

  • katenorwood
    katenorwood Member Posts: 1,912
    #15
    YES !

    Luke,

    I can't tell you how happy I am to hear those 3 letters NED !  Congrads. and now a good nites sleep is in order !  Tongue Out  Katie

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #16
    Force...

    The force is strong in you Luke....

    JG

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    #17
    normal feelings

     

    Luke

    Scanxiety is something most of us live with. Take your day off to enjoy in your new health and be happy when your scans come out clean.

    Matt

     

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    #18
    Skiffin16 said:

    Force...

    The force is strong in you Luke....

    JG

    good feelings

    John,

    I am feeling something in you too.

    H&N Force,

    Matt

  • Mikemetz
    Mikemetz Member Posts: 465 Member
    #19
    Scanxiety is normal

    Even after you get a few clean scans, it is normal to feel some scanxiety--my fingers are crossed for a good result, but keep in mind that a false positive this early is not uncommon.  It took me six months post-treatment to get my first negative scan.

    Mike

     

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