End of Scanxiety -- NED Again!

NoDuck
NoDuck Member Posts: 134

Doc just called and the knot in hubby's neck is likely scar tissue from radiation and latest CT scan shows NO EVIDENCE OF DISEASE!

This scan came 6 months after post-tx PET last October. Knew the 6-month scan was coming but had not expected the new "knot" in his neck discovered about 4 weeks before the scheduled 6-mth post-tx scan to make the anxiety even worse.

We have been Nervous Nellies for weeks and it didn't get any better at the ENT appt. last week when the doc felt of it and instead of saying "Oh. it's nothing to worry about" like we had hoped, said "I'm not going to tell you not to worry until we get the scan results back."

I feel like I have not taken a complete breathe since last Friday's appointment.

Thanks to all for your support, prayers and for listening. Prayers back to you and yours.

Deb (and Dale)

Comments

  • phrannie51
    phrannie51 Member Posts: 4,716
    WHOOP!!!

    I can't help it....I want to do a jig in the kitchen with this post.  I know you both were worried because of he thought he was having "symptoms".....that he was losing weight, etc.....Keeping in mind that recovery isn't just an up hill climb....it's ups and downs....not the roller coaster ride treatment was, but small set backs, that back in our pre abi-normal times wouldn't have made us think anything.

    You two go celebrate some how, even if it's a walk around the block.....I just LOVE our buddy NED.

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    congrats on NED!!
    God

    congrats on NED!!Cool

    God bless,

    dj

  • hwt
    hwt Member Posts: 2,328 Member

    congrats on NED!!
    God

    congrats on NED!!Cool

    God bless,

    dj

    Yes

    Congrats!!!!! Seems like about the same timing as when I felt something on my neck. Fortunately, at my appt. the doctor said it was scar tissue and definitely not a lymph node. He said a lymph node would feel more like a grape. I certainly understand the extra anxiety that would have caused. Glad it was nothing.

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    Name Change...

    OK, now you have to change your name to "NoKnotDuck"..., LOL quack, quack...

    Congrats...

    JG

  • D Lewis
    D Lewis Member Posts: 1,581 Member
    YAY NED!

    Seriously, someone needs to have a chat with these doctors that make 'off the cuff' comments like that one.  They have NO IDEA how seriously we take those comments. Shame on them.

    Deb

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    NED!

    Deb & Dale,

    Breathe easy, you are NED.

    Keep healing and getting better.

    Matt

  • VanessaSLO
    VanessaSLO Member Posts: 283
    CivilMatt said:

    NED!

    Deb & Dale,

    Breathe easy, you are NED.

    Keep healing and getting better.

    Matt

    This is great!!!

    Oh, such a realief, right? Relax now and enjoy!! I'm very happy for you!! Congrats!

  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    NED is awesome

    Love your good news.

    Stay strong!!

    Mike

  • katenorwood
    katenorwood Member Posts: 1,912
    YES !!!!

    Deb and Dale,

    Hurray for the NED !  Now take a great big breath of this wonderful news and celebrate !   Katie