Pet Scan Tomorrow

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Comments

  • hwt
    hwt Member Posts: 2,328 Member
    NJShore said:

    My post from Caring Bridge tonight... 4/17

    I have thought many times that I wanted to write about how things that are suppose to happen and we are told will happen - don't. Medical professionals have a very tough job, but then again, so do I. If I say I am going to do something, I do it. Simple thing my parents taught me throughout my childhood. Unfortunately, because I try to always respond or deliver on my word, I kind of expect it in kind. It happens at work every day. It happens all around us. But when it really counts to us emotionally, it's not easy excepting less than someones best. This has happened so many times through Dan's treatment, I'd love to be an advisor to Jefferson - it'd be so easy to improve their patient happiness quotient considerably.

    This frustration is all centered around the results of Dan's Pet Scan. He got the PET Scan early (had the appointment for about a month in advance). He showed up on time, cooperated, asked for a CD copy and got one, was told the doctor would have the pictures and the written report the next morning first thing. He came home happy. Couldn't ask for more.

    Dan who is so sweet and patient, much more than I am, said I will wait and if I don't hear from the doctor I will call at 2:30 and ask if the doctors office if they can read me my results. This is his choice, I wouldn't say a word, although I would like to say, no, call them now! One of us is not a cool cucumber all the time :)  So, the Dr's office says, we don't think we have them yet, let me check and call you back. And they do at 4, to confirm they don't have the results. Then, he calls the Radiology department that did the scan, and they've all left for the day... at 4pm they are gone?

    So, that means we will wait, eat more ice cream, and hopefully tomorrow have more news.. at least I won't jump 20 feet off the ground when the phone rings tonight ;)

    Have a great evening!
    Love,
    Kari & Dan

    Kari and Dan

    That's just not right. Prayers for an early phone call with good news.

    Candi

  • HobbsDoggy
    HobbsDoggy Member Posts: 276
    I had to Wait Two Weeks!!!

    My doctor is not in the same area (actually across town - not a huge town) from the hospital where they did the scan. The san was ready the next day. The doctor's office said it would be two weeks before they could get the results to me. I accepted that at first then got to thinking about that and it did not make sense. The problem was the doctor did not have an appointment available for two weeks so they just put me on the list. I finally figured that out and call, the nurse, after some pressure from me, said the scan was negative (NED) but that was unofficial as the doctor would have to confirm. How bad is that?

    Will never let them do that to me again.

    Part was I always believe they will call immediately with bad news and are in no rush with good news.  I think for my doctors they lack sensitivity about what the patient is going though.  They are good docs, but not very good at customer service.

    You are handling this gerat and wishing the best in fantastic results.

  • phrannie51
    phrannie51 Member Posts: 4,716
    NJShore said:

    My post from Caring Bridge tonight... 4/17

    I have thought many times that I wanted to write about how things that are suppose to happen and we are told will happen - don't. Medical professionals have a very tough job, but then again, so do I. If I say I am going to do something, I do it. Simple thing my parents taught me throughout my childhood. Unfortunately, because I try to always respond or deliver on my word, I kind of expect it in kind. It happens at work every day. It happens all around us. But when it really counts to us emotionally, it's not easy excepting less than someones best. This has happened so many times through Dan's treatment, I'd love to be an advisor to Jefferson - it'd be so easy to improve their patient happiness quotient considerably.

    This frustration is all centered around the results of Dan's Pet Scan. He got the PET Scan early (had the appointment for about a month in advance). He showed up on time, cooperated, asked for a CD copy and got one, was told the doctor would have the pictures and the written report the next morning first thing. He came home happy. Couldn't ask for more.

    Dan who is so sweet and patient, much more than I am, said I will wait and if I don't hear from the doctor I will call at 2:30 and ask if the doctors office if they can read me my results. This is his choice, I wouldn't say a word, although I would like to say, no, call them now! One of us is not a cool cucumber all the time :)  So, the Dr's office says, we don't think we have them yet, let me check and call you back. And they do at 4, to confirm they don't have the results. Then, he calls the Radiology department that did the scan, and they've all left for the day... at 4pm they are gone?

    So, that means we will wait, eat more ice cream, and hopefully tomorrow have more news.. at least I won't jump 20 feet off the ground when the phone rings tonight ;)

    Have a great evening!
    Love,
    Kari & Dan

    The first time I had to wait like Hobbs did...

    ...wait for my ENT appointment before I could hear the news - 10 days!!  After that tho, my Onc made all the scan appointments, and they were SO good about calling the minute they had them.  What a relief it is....I'll bet big bucks you hear from someone in the morning...they know you're looking for them, and hopefully they'll let a nurse do the calling.

    Until then....I'll eat a bowl of icecream with ya Kiss...(I can hardly wait for those little berry pills to get here, and see if icecream actually gets a flavor....LOL).

    p

  • rachel12yrsuv
    rachel12yrsuv Member Posts: 435
    NJShore said:

    My post from Caring Bridge tonight... 4/17

    I have thought many times that I wanted to write about how things that are suppose to happen and we are told will happen - don't. Medical professionals have a very tough job, but then again, so do I. If I say I am going to do something, I do it. Simple thing my parents taught me throughout my childhood. Unfortunately, because I try to always respond or deliver on my word, I kind of expect it in kind. It happens at work every day. It happens all around us. But when it really counts to us emotionally, it's not easy excepting less than someones best. This has happened so many times through Dan's treatment, I'd love to be an advisor to Jefferson - it'd be so easy to improve their patient happiness quotient considerably.

    This frustration is all centered around the results of Dan's Pet Scan. He got the PET Scan early (had the appointment for about a month in advance). He showed up on time, cooperated, asked for a CD copy and got one, was told the doctor would have the pictures and the written report the next morning first thing. He came home happy. Couldn't ask for more.

    Dan who is so sweet and patient, much more than I am, said I will wait and if I don't hear from the doctor I will call at 2:30 and ask if the doctors office if they can read me my results. This is his choice, I wouldn't say a word, although I would like to say, no, call them now! One of us is not a cool cucumber all the time :)  So, the Dr's office says, we don't think we have them yet, let me check and call you back. And they do at 4, to confirm they don't have the results. Then, he calls the Radiology department that did the scan, and they've all left for the day... at 4pm they are gone?

    So, that means we will wait, eat more ice cream, and hopefully tomorrow have more news.. at least I won't jump 20 feet off the ground when the phone rings tonight ;)

    Have a great evening!
    Love,
    Kari & Dan

    Kari and Dan I am so sorry
    Kari and Dan I am so sorry you have to wait. When I was treated at Penn by a genious, I was never a person. I was 28yr old female NPC III and that's it. They did what they wanted when they wanted, but in the end, cured me, so I can't bi..h now!
    Hang in there, I aagree with Phrannie it will come early tomorrow!

    Try to sleep and I keep checking. Enjoy some icecream for me too okay!


    Love,

    Rachel