Just beginning this journey.

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Comments

  • Ruben and Jude
    Ruben and Jude Member Posts: 155
    #42
    akbear49 said:

    Agree

    As others have already said - Welcome to our community.    The internet is a wealth of knowledge, it is also a sewage pit of misinformation.

    Gargle with salt water and baking soda often, someone else mentioned it number their throat - me too.   The radiation b=nurse thought I had mis spoken and noted that I had a mild sore throat - I corrected her and told the doc my throat was mildly numb.  I was very grateful for that

    I drank Ensure plus and my wife made me protein powder fortified smoothies every morning before my radiation treatments.   I started at 220 and ended at 203 lbs -

    A good attitude is critcal to your well being.    My daughters were each allowed to visit the radiation back room one time each during the 35 treatments - I told my girls that the machine was called a Fry-o-lator  ;-)

    Chemo gave me diarrhea - be ready for that.     Better to be ready and not need it than the other way around, the last thing you want to do is be running to the store when that hits

    Write down all your questions, give your wife and the doctor a copy - there are no stupid questions but you have to ask

    hang in there

    Ed 

    Thank you Ed. I'm taking

    Thank you Ed. I'm taking notes. It seems the consensis (sp) is baking soda and salt. I'm lining up my ducks with all of this wonderful input and advise.

    God Bless You.

     

     

  • donfoo
    donfoo Member Posts: 1,771 Member
    #43
    Ruben and Jude said:

    Thank you Ed. I'm taking

    Thank you Ed. I'm taking notes. It seems the consensis (sp) is baking soda and salt. I'm lining up my ducks with all of this wonderful input and advise.

    God Bless You.

     

     

    Mouth sores

    If mouth sores appear, I found that JG's suggestion of using Hydrogen Peroxide as a mouth rinse to work really great for me. I use it straight and just love that mouth foam action, sure tells me it is working on bacteria. I will rinse again until that foaming goes away, much like I have used it topically for years. Keep rinsing wound until it is all clear and no foam tells me all bacteria is killed off. 

  • hwt
    hwt Member Posts: 2,328 Member
    #44
    donfoo said:

    Mouth sores

    If mouth sores appear, I found that JG's suggestion of using Hydrogen Peroxide as a mouth rinse to work really great for me. I use it straight and just love that mouth foam action, sure tells me it is working on bacteria. I will rinse again until that foaming goes away, much like I have used it topically for years. Keep rinsing wound until it is all clear and no foam tells me all bacteria is killed off. 

    Glad you found us

    Feeding tube is a good idea but continuing to swallow is very important, even if just water. I never got nauseated but followed thru with the medicine and never laid down before 30 minutes was up after using my feeding tube. I wish I had found this site before tx or that someonee had told me about the mouth exercises. I regret that I cannot open my mouth as wide as I used to and it sounds as though it was preventable. Prayers for an easy journey.

    Candi 

  • rachel12yrsuv
    rachel12yrsuv Member Posts: 435
    #45
    Ruben and Jude,
    I tried to
    Ruben and Jude,

    I tried to respond last week when I saw this and text failed, and then I was away. I saw your post on swallow exercises and glad you aare looking into that now. Just keep up with it, it is something he will have to do for the rest of his life. I didn't have your dx, I was NPC stage 3 12yrs ago, I wasn't given a choice my peg tube was put in during my exploritory surgery @ Univer of Penn, good move on dental that a hindsight wish for me. I had REALLY good teeth @ 28, and was numb after dx, so you go through all the docs involved and by the time I got to dentist I wasn't listening, my Mom was, then I heard that they wanted to remove all 8 molars. At that moment I woke up and used a very bad word and said noway are you pulling my teeth, I had a pin hole cavity that was filled and that was it, they were white and strong. At the time I was over weight, newly married, wanted to have babies not fight cancer, now rad, chemo (I'm a child of the 80's) and they said that my hair,my precious BIG hair was gonna fall out, and now my teeth! It was the only control I felt I had and said "no", bad move.... I made it 8 yrs before 7 were pulled, but 7 yrs of dental issues, it was to the point where I would run to dentist just for novicane shot so I was at least 3 hrs without pain! So good job!

    John said he wasn't gonna pull any punches, the road you are on now SUCKS, there are bad times ahead. But at the end, it is like a rebirth, the sky is bluer, the grass smells nicer, you are aware again like a baby noticing things for the first time. My spirituality was grown intensely, if not for my belief in God I believe I wouldn't be here. One night I made sure I said I love you to everyone, went to bed and prayed to God that I was tired, and if he wanted to bring me home I was ready, when I woke up the next morning I was like okay God I got I will fight and I will win, from that moment I was positive and it saved my life. Be POSITIVE and pray, God answers prayers! We sure offer up a lot here!

    Take care and God Bless you and Hubby
    Fight hard, love strongly and stay positive,

    Rachel
  • Ruben and Jude
    Ruben and Jude Member Posts: 155
    #46
    donfoo said:

    Mouth sores

    If mouth sores appear, I found that JG's suggestion of using Hydrogen Peroxide as a mouth rinse to work really great for me. I use it straight and just love that mouth foam action, sure tells me it is working on bacteria. I will rinse again until that foaming goes away, much like I have used it topically for years. Keep rinsing wound until it is all clear and no foam tells me all bacteria is killed off. 

    Thank you Don. I bought

    Thank you Don. I bought hydrogen peroxide for the mouth and am armed and ready!

  • Ruben and Jude
    Ruben and Jude Member Posts: 155
    #47
    rachel12yrsuv said:

    Ruben and Jude,
    I tried to
    Ruben and Jude,

    I tried to respond last week when I saw this and text failed, and then I was away. I saw your post on swallow exercises and glad you aare looking into that now. Just keep up with it, it is something he will have to do for the rest of his life. I didn't have your dx, I was NPC stage 3 12yrs ago, I wasn't given a choice my peg tube was put in during my exploritory surgery @ Univer of Penn, good move on dental that a hindsight wish for me. I had REALLY good teeth @ 28, and was numb after dx, so you go through all the docs involved and by the time I got to dentist I wasn't listening, my Mom was, then I heard that they wanted to remove all 8 molars. At that moment I woke up and used a very bad word and said noway are you pulling my teeth, I had a pin hole cavity that was filled and that was it, they were white and strong. At the time I was over weight, newly married, wanted to have babies not fight cancer, now rad, chemo (I'm a child of the 80's) and they said that my hair,my precious BIG hair was gonna fall out, and now my teeth! It was the only control I felt I had and said "no", bad move.... I made it 8 yrs before 7 were pulled, but 7 yrs of dental issues, it was to the point where I would run to dentist just for novicane shot so I was at least 3 hrs without pain! So good job!

    John said he wasn't gonna pull any punches, the road you are on now SUCKS, there are bad times ahead. But at the end, it is like a rebirth, the sky is bluer, the grass smells nicer, you are aware again like a baby noticing things for the first time. My spirituality was grown intensely, if not for my belief in God I believe I wouldn't be here. One night I made sure I said I love you to everyone, went to bed and prayed to God that I was tired, and if he wanted to bring me home I was ready, when I woke up the next morning I was like okay God I got I will fight and I will win, from that moment I was positive and it saved my life. Be POSITIVE and pray, God answers prayers! We sure offer up a lot here!

    Take care and God Bless you and Hubby
    Fight hard, love strongly and stay positive,

    Rachel

    I can see the road is a rough

    I can see the road is a rough one. It breaks my heart to think my husband is going to have to go through this, and then I read how positive everyone on this sight is and am thankful for all the posts and information.

    Thank you for responding.

    God Bless you.

    I'm sure we'll be hearing more from one another.

    Jude

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